DVT deep vein thrombosis forum |
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Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.
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28 yrs old on warfarin for life
Posted by Dave |
Last Reply August 23, 2010
at 02:23
Started July 23, 2010 at 16:00 |
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Hi everyone, Had my first Dvt 13 months a go, I ignored the pain thinking it was just muscular until I woke up in an ambulance after collapsing at home. Apparantly by ignoring the problem the clot had dislodged at travelled to my lung causing a PE. A few "i told you so's later" and I started on 6 months of warfarin treatment. After much variation in my INR level I finally stabalised on a dose of 13mg. Because of my age and no underlying reasons for the DVT I was referred to a Haematologist for further tests. These tests came back inconclusive and i was discharged from his care after only 2 appointments in January this year. This week I was woken in the night with an awful pain in my left leg (first dvt was right). After last years experiences I decided it best to get it checked out.... Glad I did because an ultrasound confirmed another blood clot in my calf. I have been told I am now on life long warfarin, I don't think I have totally accepted this yet. I... read more |
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3 replies... |
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DVT at age 24
Posted by Freddy |
Last Reply August 23, 2010
at 02:05
Started August 23, 2010 at 02:05 |
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On September 21, 1979 while sitting at home watching The Roper's on TV I got this pulled groin feeling in my left leg when I got up to get a beer. I was alone at the time. It did not seem like a big deal at first then about 10 minutes later I noticed my jeans getting tighter. I went upstairs to change them when I noticed my swollen and blue/purple thigh as my toes began to lose feeling. I made it back downstairs to the phone and called an EMT friend of my father. When he saw the leg his eyes almost bulged out of their sockets. He simply said what hospital do you want to go to? It took about 30 minutes to get to the UMASS Medical Center. By this time I could not feel anything below my knee. The doctors in the ER were residents and interns who asked the same set of stupid questions. Finally, one asked me what I thought was wrong and I said, "I have blood clot in my leg." Their response was, "twenty-four year-olds do not have blood clots." Brilliant! By this time the pain was... read more |
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0 replies... |
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Warfarin - cause of elevated Liver Levels?
Posted by Marie |
Last Reply August 23, 2010
at 01:17
Started August 23, 2010 at 01:17 |
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Hi everyone - has anyone had elevated liver levels while on Warfarin? I'm on a very high dose of Warfarin (15mg for 6 days, 17.5mg for 1 day) because it interacts with the medicine I take for Crohn's disease (mercaptopurine, 6MP). I've been on the Warfarin since December (dvt and bilateral pe) with no "exit strategy" since the docs don't know on what caused the clots. (That's another story - I'm trying to track down if I ever had a positive Anticardiolipin test. Was told I did by one doc who at the follow up appt didn't remember that and couldn't find that test. Argh). Anyway, my Liver Levels (ALT and AST) have been rising - in Feb and May they were slightly elevated, and now both are moderately elevated (ALT is 132, AST is 220). My GP thinks this is caused by the Crohn's med because that's a known side effect (that is why they are checking my liver levels regularly). But I was on that same Crohn's med for more than 12 years as a teen/young adult and it never affected my liver... read more |
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0 replies... |
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Yet another question for char !
Posted by Claire |
Last Reply August 22, 2010
at 21:51
Started August 21, 2010 at 15:19 |
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Hi Char Can you tell me if your insurance covered all of your coagcheck monitor, seeing as I'm going to be on Coumadin for another year at lease, maybe forever, I think its a good idea to get one of these. I work in Celebration hospital & it's no trouble to go to the coumadin clinic there, but it costs $40 for a little finger prick !, which machine do you have ?? Regards x |
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7 replies... |
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Stockings & broke
Posted by Kay |
Last Reply August 22, 2010
at 20:05
Started August 21, 2010 at 20:48 |
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have hadd dvt for about a month now. have been out of hosp. for 2 weeks. problem is i am on the unemployeed list due to our company going bankrupt and now have no income or insurance. doctors tell me i have to get compression stockings. i am almost flat broke, the hosp. took care of most of my nest egg & savings acct & checking account, and now I have almost nothing to live on expt my husbands tiny income & it just barly pays housing & food cossts. I had an idea after puting on my thigh highs to go to church last sunday......Why cant I just use a small size tight fitting pantyhose or thigh high instead? i am 100% sure the support would not b as good as proper fitting compresion stockings, but would not it be better than nothing? Even if I put on say 2 layers at a time??? I may not be able to view this after a couple of weeks as our internet is going to be turned off due to lack of funds. Please, any help quickly is great thanx kay beauler |
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4 replies... |
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NEW TO DVT, CONFUSED
Posted by KEVIN @ TENNESSEE |
Last Reply August 22, 2010
at 15:27
Started August 21, 2010 at 20:31 |
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August 13th 2010 (Friday 13th, go figure) I was admitted into the hospitol & diagnosed with DVT. I am 33 years old, in great shape (Was) and up untill a couple of days ago, was a heavy smoker. It has not been confermed, but the blood clot was thought to have been started when I ran our tractor off into a sink hole & got tossed around & banged up a bit. However, my father has a long history of health problems. (He had a stroke when he was only 37 or 38) NOW, Here is my conflits: I was told when I was released from the Hospital that I could slowly resume my regular work schedule. I am a parts department manager at a farm tractor dealership and am up on my feet 4-5 hrs a day, and sitting 3 to 4 hrs a day. NOT very great for DVT sufferers. 2) My wife found out that in 2006, 900,000 people had DVT, AND 200,000 PEOPLE DIED from complications with PE after having DVT. Yet a few people we know... read more |
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3 replies... |
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GETTING PREGNANT WHILE BEING TREATED FOR DVT!
Posted by Angie |
Last Reply August 22, 2010
Started August 21, 2010 at 22:34 |
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I have been on Coumadin for over 3 months now. Been a very rocky road for me. Well yesterday I found out I was pregnant! I am lost for what I should do? I dont have money for the lovenox injections. They are waay too expensive. I am a single mother, Who cannot work due to the DVT from the left kneecap up to the pelvis. What are my options? What can I do? Im only a month pregnant and extremely sick, and tired already! PLease help! |
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3 replies... |
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Internal Jugular vein clot
Posted by Leanne |
Last Reply August 22, 2010
Started August 17, 2010 at 14:35 |
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Hi, I have recently had a load of clots removed from my internal jugular vein via surgery. The clots were originally caused by another surgery in the area and not by a clotting disorder. Has anyone had a clot in their internal Jugular veins? Was it extensive like mine? (from my ear to collarbone), I am not sure how much they managed to remove whne they went in, apprantly they got some flow back but the chances are it will reclot due to trauma. Can my body break down the rest of the clot? or is it impossible? Has anyone else managed to dissolve a clot in this location? I am on Warfarin for 6 months. (I am also taking nattokinase 200mg per day but being watched very carefully by warfarin nurse as I know thay are contradicted) My INR is stable at 2.9 Any advice would be appreciated! |
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2 replies... |
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Left arm,chest and jugular DVT
Posted by Kerrie |
Last Reply August 22, 2010
Started December 21, 2008 at 07:57 |
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Hello everyone I have just found this wonderful forum and I am so excited because I have discovered others with an upper extreminity DVT. I was diagnosed 2 years ago with an Idiopathic DVT which started in the brachial vein of my left arm, continued into the subclavian vein and finished in my left jugular vein. I was on clexane for 12 - 18 months. Most of the clot disappeared but is still have residual clot in the subclavian and jugular veins. I no longer take any medication. Doctors tested me for many things and monitored me regularly for cancer. What I found interesting from reading others peoples stories, was previous to my clot I had been tested for MS as I was exhibitng many symptoms of MS and was tested on more than one occasion. I had periods of passing out and on one occasion doctors thought I may have had a stroke. However, scans gave me the all clear. Since the clot I have tested low positive on all my blood tests for the past two year for antiphospholipid syndr... read more |
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8 replies... |
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low INR
Posted by julie |
Last Reply August 21, 2010
at 23:29
Started November 19, 2008 at 10:02 |
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i am 3 weeks post DVT and although my INR was once 2.5 it is now 1.5 or 1.7.my GP does not sem worried-she says my blood is still thinner than a 'normal' person,which is 1.i know a too high INR has the risk of bleeding,but are there risks with it too low,other than another clot might form?im really asking if i should worry or if it stays like this for the 6 months i am on warfarin,will it be ok? |
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55 replies... |
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May Thurner: how can i alleviate symptoms?
Posted by Adam |
Last Reply August 21, 2010
at 13:29
Started August 20, 2010 at 14:12 |
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Hi, I have MS and recently had a Catheter Venogram to check for CCSVI, which i had a balloon angioplasty to treat, but in the venogram it was noted i also had May Thurner syndrome - narrowing/compression of the left illiac vein, I have always had a v faint tenderness of th eleft thigh but just thought i easily pulled that muscle. So since my internal jugular veins were dilated my left leg tenderness/stinging has become a lot more uncomfortable, so as i will not be getting the M-T treated for a month as i dont want to treat more than one thing at a time, is there any tips to relieve the stinging/tenderness discomfort of my left thigh? thanks |
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3 replies... |
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INR - Please help
Posted by Abbi Cooper |
Last Reply August 21, 2010
at 01:52
Started September 10, 2007 at 20:03 |
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Am all new to this, have had my 1st blood test and warfin introduction today and have been told my INR needs to be between 2-3 and its today its 1.6, is this a long way from 2 or quite close, am on 10mg of warfin for the next two days and fragmin every night, blood test again on Wednesday, any advise gratefully received, thanks. |
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37 replies... |
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duration of taking coumadin
Posted by Cyndee |
Last Reply August 20, 2010
at 20:51
Started August 26, 2008 at 16:05 |
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I have a DVT from my pelvis to my ankle. My Vascular doctor whom I was given went I entered hospital A on Valentines Day said from the get go he likes to keep his patients on coumadin for 6 months to a year. I had a doppler at hospital A in April. I have been going to hospital B to thier coumadin clinic every 2 weeks. I went today and they say I am done as it has been 6 months, They told me to stop taking the coumadin and set up a doppler Sept 8th for a baseline. Who do I listen to? Shouldn't I have the doppler at the same hospital to compare the 2? The doctor at hospital b says it is not necessary. They just need a baseline for here on in, incase I develope another clot down the road. How long do most doctors recommend coumadin? |
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14 replies... |
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dvt last time
Posted by claire |
Last Reply August 20, 2010
at 11:21
Started February 23, 2008 at 20:36 |
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\?:\?hi there im new here not sure if im in the right place i am 33 years old and we have been trying for a baby for 5 months now we have a 13 year old daughter i developed a dvt when i 18 years old and was 7 months pregnanat with her from knee to groin i was in hospital for 8 weeks and on a heparin infusion pump for 2 weeks then twice daily injections of heprin for 6 weeks i then went onto warfarin for 12 months and myself and daughter are healthy otherwise, i have just recently seen a specialist and she is happy for me to try conceiving and has given me approx a 5% chance of this happening again i will be on a drug called clexane from 6 weeks gestation and warfarin for 12 months + after pregnancy i still get pain in my leg and have just had another thrombothilia screening done this year as i have had every year since my daughter was born i am scared and just would like to speak to other people in similar circumstances as i was not with my current partner when this happened first t... read more |
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16 replies... |
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Treament for new clots that works!
Posted by Ju |
Last Reply August 19, 2010
at 16:42
Started August 18, 2010 at 09:31 |
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I found this site about 6 weeks ago after having a suspected DVT in my right calf. I was put on to Tinziparin injections until the leg could be scanned. The scan 7 days later was negative and over the next few days the pain in the calf went but my breathing deteriated. The breathing was not to bad but was persistant so I went back and had a lung scan one week after the calf scan. This showed a PE and I was put back on the injections. One week later I woke up with a swollen left leg from the crutch to ankle. This was scanned 5 days later with the clot found to go from my belly button to the ankle. I was rather upset about the new clot so did a lot of research and found new clots could be treated with the clot busting drug TPA. I stormed around saying I would go anywhere in the UK and pay to have the treatment if a Dr could refer me. I met with a blank wall from the GP and acute hospital GP so I kept shouting. The afternoon after my leg scan I was called by a valscular consultant who ... read more |
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11 replies... |
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Cost of clot scan on my leg?
Posted by Niamh |
Last Reply August 19, 2010
at 03:34
Started March 29, 2009 at 02:01 |
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Hi everyone, I hope someone can help me. I have been suffering pain in my calf for a few weeks now, within 10 minutes of sitting down I am in pain. In the past couple of days it has spread to my upper thigh and now hurts when I walk. I am due to get a Sector Colour Doppler test on my lower right leg on Monday morning. I am still sorting the insurance out and may have to pay upfront and claim later. Can anyone tell me roughly (in USA or Canadian dollars if possible!) how much this will cost? (I am not a permanent resident in this country so I don't qualify for healthcare.) Thanks Niamh |
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4 replies... |
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Treatment of Chronic DVT
Posted by David |
Last Reply August 17, 2010
at 10:45
Started September 30, 2008 at 03:42 |
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Our 16 Year old daughter was struck by a 4WD while crossing a pedestrian crossing 8 months ago. After 14 days in ICU and a further 8 weeks in hospital she is slowly rebulding her life. Unfortunately she developed a DVT in the Iliac vein that extends from just above her knee to just below the renal vein. Fortunately they had put a IVC filter just below the renal vein whilst she was in ICU, which prevented the clot from getting to the heart and lungs. She now injects herself with Clexane daily and wears thigh length pressure stocking during the day. Given that she is looking at living with the consequences for the next 70-80 years we are looking for solutions that will give her the best quality of life. Without any further treatment the prognosis is leave the filter in and be in warfarin for the rest of her life. It will also limit air travel and present problems with child birth. We are hoping for something better. We are looking for ways of removing the clot and have seen there are... read more |
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17 replies... |
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Post DVT Exercise
Posted by Echo |
Last Reply August 17, 2010
at 03:58
Started September 17, 2005 at 21:45 |
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How soon after suffering a DVT can you start exercising? |
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93 replies... |
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what is a safe cumadin level with a DVT
Posted by rona altschuler |
Last Reply August 16, 2010
at 22:58
Started July 18, 2008 at 14:17 |
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post arthroscopic surgery I developed a clot in the calf. Also a staph infection in the knee. I am post antibiotics for the infection and am dealing with knee inflamation and pain. I take 7.5 mg. of cumadin daily and my INR is usually 1.0. My doctor does not want to increase the dose. Am I ok. I am becoming more active and exercise with weights daily and walking. Also can one fly on cumadin safely? rona |
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14 replies... |
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Question for Char
Posted by Claire |
Last Reply August 15, 2010
at 21:42
Started August 14, 2010 at 20:18 |
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Hi Char, I have an appt to see Dr Sam Martin in September, I see from one of your old posts, that he did laser surgery for you. How did that pan out ?, I'm not sure he'll be able to do anything with my clots as they are over a year old. If you don't mind me asking, what was your out of pocket cost?? Regards |
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2 replies... |
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