DVT deep vein thrombosis forum

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Re: Xarelto
Reply #40 by Chris
Posted: December 11, 2013 at 12:00
Paul,

Xarelto is wrapped in a lactose (milk) base. I took lactaid for a few months to quiet the
heartburn. After a few months, I rarely have heartburn when I take Xarelto. Talk with
your doctor and let us know how it goes. Good luck to you!

Chris
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Re: Xarelto
Reply #41 by Paul H,
Posted: December 12, 2013
Chris,

I thank you sincerely for taking the time to offer an idea what could be my problem. I have a hiatus hernia that does cause periodic acid reflux but only on a rare occasion.The pain I feel in the chest is directly located below the heart, had a bruise there while on warfarin and is very similar to the same tweaks I feel in my leg almost like a stabbing pinching feeling acting up the same time my leg clot locations act up and dissipate when I elevate. I will call the doctor on this and update the forum. Knowledge from other peoples experiences is beneficial to everyone and communication with your specialist is key. Thank you for the wishes Chris.Take care.

Paul
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Re: Xarelto
Reply #42 by Dianna
Posted: December 12, 2013 at 12:42
Found pe's in my lungs 11days ago. After heparin I started taking xarelto for the
last 7 days. Side effects have been flu like symptoms on and off and no appetite.
I am worried about the no reversing agent, but not sure if I should make the
switch to Coumadin. I should only need the blood thinners for 6 months per
doctor. Any feedback would be great.
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Re: Xarelto
Reply #43 by Paul H,
Posted: December 12, 2013 at 16:09
Hi Dianna,

I cannot advise you on which is the best to do. I was long term Coumadin user ( 13 years) now I have just started the Xarelto. I found this fact sheet that pertains to xarelto so you may be alert to any significant side effects and the proper concern:

https://intermountainhealthcare.org/ext/Dcmnt?ncid=521387442

From all information I have gathered, there are fewer side effects with xarelto but a rescue drug is not available as for coumadin. If you are extremely active The flu like symptoms you have stated should be told to your health care provider, not sure if they are medication or PE related. Have you had a rescan for your PEs? I did experience more nausea with the coumadin but apparently some people experience it with xarelto because of the coating. Let the forum know how you make out. All the best Dianna.

Paul H
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Re: Xarelto
Reply #44 by Diva
Posted: December 17, 2013 at 17:59
Has anyone had any problem with hair loss? Mine as started breaking off and turned a orange color
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Re: Xarelto
Reply #45 by AG
Posted: December 18, 2013 at 04:07
Hi there,
I was also changed to Xarelto after few months of Coumadin.
I love not having to go to get a blood test done every week & worry about what I'm
eating that will effect my blood levels. I feel great on it too :) Because its still a bit of a
new drug for DVT, people look at me funny when i say im on it. But I feel fine, so Im
hoping its fine on the inside too lol
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Re: Xarelto
Reply #46 by AG
Posted: December 18, 2013 at 04:08
Hi there,
I was also changed to Xarelto after few months of Coumadin.
I love not having to go to get a blood test done every week & worry about what I'm
eating that will effect my blood levels. I feel great on it too :) Because its still a bit of a
new drug for DVT, people look at me funny when i say im on it. But I feel fine, so Im
hoping its fine on the inside too lol
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Re: Xarelto
Reply #47 by Paul H.
Posted: December 28, 2013 at 15:39
Update...
Appointment with DVT clinic hematologist to discuss symptom of leg swelling. I mentioned to the examining intern the problem of fluid retention and asked if there was a link between the fluid retention, leg swelling and hence vein constriction causing pain at the locations of previous clots.No other symptoms, just leg swelling and sharp pain at the previous clot locations. Nevertheless, blood tests and ultrasound were performed to exclude the possibility of a new clot. No new clots were found. I again mentioned the fluid retention to the specialist and asked if there was anything I could take. I was placed on water pills and potassium pills. These are working with no really bad side effects (slight nausea, slight dizziness) but a total reduction in swelling and pain. I almost feel normal. My point for the update is to encourage people on new medication to track their side effects and communicate with your physician, It will help you and possibly others. Thank you for this forum.
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Re: Xarelto
Reply #48 by D. Crouthamel
Posted: January 3, 2014
I've been using Coumadin for the past year, due to a blood clot in the
leg and in the lungs. This past of couple of days I was complaining of
chest pain and it appears I may have had more clots in the lungs.

They now have switched me over to Xarelton. Hopefully this will work.
The immediate symptoms since first using it are shortness of breath,
stomach cramps (mild) and slight headache.

I never felt good with Coumadin. I lost a lot of hair in the past year
- maybe it will grow back with Xarelton :) Also, my chest never felt
right with Coumadin - it's as if I was always having chest pains.

I am on 15 mg twice a day for the next 3 weeks, and they plan is to
move over to 20 once a day after that, pending appointment with
oncologist/hematologist.

I'm a 41 year old male with a large clot in my right leg and many
PMEs. Hopefully the next drug will work better. Fortunately, my
insurance helps with the cost. I have both factor 5 lieden and the
Prothrombin gene mutations. My mother has had clots twice in her legs
and both my brother and sister had clots in their 30s.

I could never maintain a consistent INR with coumadin - it would
fluctuate wildely. It's hard to maintain a constant diet. The lowest I
remember was 1.2 with the highest being 4.1. So the doctor would
change my dose, but then my diet would change. It seemed like a never
ending battle.

Are there any concerns with flying when on Xarelton?
Sounds like there are no food restrictions with it?

I'll post more questions and concerns as time goes by.
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Re: Xarelto
Reply #49 by Jan
Posted: January 16, 2014 at 22:10
Switched from Coumadin to Xarelto due to hair loss and inconvenience of having
INR testing. Completed the 3 weeks of 15 mg twice daily and one week of 20 mg
daily, since last week have been taking omeprazole and ranitidine daily due to
intolerable acid gastritis and diarrhea (no lactose intolerance history). The again
symptoms are improved, however have developed severe bilateral lower leg
edema, lethargy., dry bloodshot eyes, lower back pain and muscle weakness.
Obviously returning to Coumadin.

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Re: Xarelto
Reply #50 by Jan
Posted: January 16, 2014 at 22:15
Reply 49-- the gastrointestinal symptoms improved by adding the acid production
blocker and the acid neutralizing medication (but who wants to take 2 meds to
tolerate the side effects of one every day?)

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Re: Xarelto
Reply #51 by Alex
Posted: January 29, 2014 at 15:33
Is it safe to take omeoprazole 20 mg with Xarelto 20 mg ? I plan to take one in the
morning (Xarelto) and one in the evening (omeoprazole)
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Re: Xarelto
Reply #52 by LeoDN NY
Posted: January 29, 2014 at 18:00
Curious to know what side effects attributed to warfarin/xarelto are really related to these drug, not the acute phase of the DVT/PE ... I used warfarin+lovenox before switching to xarelto (had a DVT 4 weeks ago) so that it is still hard for to isolte the effects of the drugs from the acute recovery DVT/PE phase and the emotional shock of being in hospital under a potential life threatening condition.



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Re: Xarelto
Reply #53 by Patricia
Posted: January 29, 2014 at 18:04
My doctor gave mea prescription for Prilosec/omeoprazol and I'm on Xarelto.
You should check with your doctor though just to confirm.
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Re: Xarelto
Reply #54 by Megan
Posted: February 27, 2014 at 04:33
I am about to start Xarelto. Got a clot three months ago in my leg which has
nearly gone but this is my second one so could be a lifer for thinners. I do a lot of
hard core exercise (crossfit and cycling) and didn't stop with the clot except for
running as my circulation wasn't coping. I couldn't get Warfarin to stabilise this
time with readings ranging from 1.2 to 5. I was worried about getting knocked
from my bike but will time taking the Xarelto to just after my morning ride so that
it is it's lowest level just before the ride. Fingers crossed that it works. - I want to
eat grapefruit again!
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Re: Xarelto
Reply #55 by Michelle
Posted: March 5, 2014 at 23:13
On day 7 of Xeralto and day 4 of a horrific period and I am seeing the doc
tomorrow to get back on Coumadin! I don't know how women deal with this each
month on Xeralto! I was on Coumadin after my first two clots and did not have
any intolerable side effects.... I can't wait to get off Xeralto! I was reading where
some women had to get blood transfusions because their periods where do
terrible and I believe I am on that road if this doesn't stop.
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Re: Xarelto
Reply #56 by Amerimex
Posted: March 7, 2014 at 06:55
I too have heavy periods on Xarelto, but I certainly do not think that Warfarin would
make it any better. It does the same thing to your blood. Regardless, You aren't losing
blood that comes from your veins from your period. This is stored blood form your
uterous. It is the same amount, just in unpredictable times and amounts. I don't see
why you would need a transfusion. Maybe just my ignorance about my uterous ;)
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Re: Xarelto
Reply #57 by Kayle
Posted: March 29, 2014 at 23:57
Has anyone experienced severe loss of appetite and fatigue on Xarelto. Loss of appetite is to the point of losing weight. Just feel really bad. Does Coumadin cause the same symptoms?
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Re: Xarelto
Reply #58 by Mokie
Posted: April 7, 2014 at 22:17
Had dvt in lower left calf. In hospital 3/24/14. Given Coumadin 3/24 and 3/25, along with an injection of lovenox each day. Given info on new drug Xarelto. Sounded great. Went on it 3/26 and yesterday noted a horrible breaking out of a rash, covering about 70% of my body. Showed to Nurse assistant. She immediately said, off Xarelto and to switch to Coumadin. Perscription for 5 mg and scheduled for another ultrasound next week. Was given a steroid shot to reduce pain, which was about an 8. Have Coumadin now for swallowing but after reading all of the above, thank you all, I am highly concerned that many doctors have diverse recommendations for a person going from Xarelto back to Coumadin. Had a calf clot 3 1/2 years ago. Got by then on Coumadin and injecting myself with Lovanox for 3 weeks or so. In summary, if anyone out there has had a horrible rash and itching on Xarelto, please post. It's 10 pm 4/7/14, and I don't know if I am suppose to start taking Coumadin or hold off till Coumadin briefing Thursday. Slightly bummed out. Mokie
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Re: Xarelto
Reply #59 by Saje
Posted: April 8, 2014 at 18:08
I have read through every post here & am still confused. After having
3 blood clots in my left leg, several years apart, I was permanently
placed on Coumadin (warfarin) for a PT range between 2-3. I have been
on this drug now for 27 years without any major problems. I must
continue to take it for life as I was discovered to have some kind of
mutated gene that causes clotting issues. I also have a-fib. Last
fall I had an ablation to stop the a-fib issues & although I was
taking my Coumadin after the surgery, a few weeks later my PT dropped
to 1.6 & I ended up having a small stroke. My Coumadin was adjusted &
all was well until a few weeks ago when suddenly my PT started reading
as low as 1.2 & as high as 4.8. I have it checked each week. I have
had no lifestyle changes or changes in my diet. Today I saw the
surgeon who performed my ablation & he indicated that based on this
info he wants me to start taking Xarelto. I told him I had heard some
bad things about this drug but he said these things aren't the fault
of the drug itself but the fault of the doctors who prescribe it
incorrectly &/or prescribe it for the wrong kind of patient. I am
still concerned about taking it, especially with there being no
reversal agent. I am a 60-year=old female. Any suggestions or
thoughts would be greatly appreciated.
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