DVT deep vein thrombosis forum |
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Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.
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APS and impact- diff for men/women? Family?
Posted by pamela |
Last Reply March 3, 2010
at 21:31
Started March 3, 2010 at 20:13 |
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I have found so much info on Factor V, etc. etc. Not so much on APS except for the connection to miscarriages. But maybe those of you who have it can answer some questions. Does APS raise the risk of a 2nd clot above an idiopathic cause? If there was never a first clot, does it raise risk in the face of surgery, a broken limb or similar complication? Are there differences in what having APS means for women vs. men, beyond the issues of pregnancy? Do any of you who have it find out that any family members also have APS? Anyone know the likelihood for a sibling to have it? |
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1 replies... |
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plane trips post-DVT
Posted by pamela |
Last Reply March 3, 2010
at 21:22
Started March 3, 2010 at 21:22 |
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My doc said to email or call if I needed to make any long trips, but as long as I was on warfarin a 2-hr plane flight or less was not a concern, but I should wear my compression stockings. It's been 7 months. I did, and on both legs. And as far as I could tell, no problems, been back 5 days now. But both out and back, as soon as we started to descend, my legs started to ache (my DVT one much worse. Of course, rules say you can't stand at all during that time, so the most I could do was try and rotate my ankles, stamp my feet, etc. The discomfort made me keep moving but did not provide any real relief. Anyone else? Some of you are frequent travelers, did it happen to you and now it doesn't? It would be quite the downer, given that a longer trip would involve a longer descent, perhaps an hour or more. |
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0 replies... |
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Chronic Fatigue, Warfarin
Posted by Liz |
Last Reply March 3, 2010
at 18:11
Started March 3, 2010 at 07:40 |
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Hi everyone, I started taking warfarin 5 months ago due to blood clotting in my leg in pregnancy. I am feeling so exhausted from the minute I get up in the morning. I can barely function throughout the day and trying to look after a baby is horrendous. My baby is great!! so it's not tiredness from her, she sleeps all night. I was wondering if anyone else has or is experiencing this? Also, my feet and ache so much, when I get out of bed in the morning, i'm hobbling like an invalid. It's just terrible. Any thoughts? Thanks Liz |
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2 replies... |
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Chronic Fatigue, Warfarin
Posted by Liz |
Last Reply March 3, 2010
at 07:39
Started March 3, 2010 at 07:39 |
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Hi everyone, I started taking warfarin 5 months ago due to blod clotting in my leg in pregnancy. I am feeling so exhausted from the minute I get up in the morning. I can barely function throughout the day and trying to look after a baby is horrendous. My baby is great!! so it's not tiredness from her, she sleeps all night. I was wondering if anyone else has or is experiencing this? Also, my feet and ache so much, when I get out of bed in the morning, i'm hobbling like an invalid. It's just terrible. Any thoughts? Thanks Liz |
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0 replies... |
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APS Testing
Posted by Claire |
Last Reply March 2, 2010
at 19:27
Started March 2, 2010 at 17:54 |
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does anyone know what the APS tests consist of, ie what do they test for in total ?? |
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3 replies... |
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Questions on Doctors
Posted by Tim in Minnesota |
Last Reply March 2, 2010
at 18:09
Started March 1, 2010 at 14:16 |
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Question for anyone: What type of Doctors do you see (vascular, hemotologist, GP, Rheumetologist)? I am now 8 months post DVT occurence (ankle to upper thigh), still on warfarin (tested moderate positive for Antiphospholipid 2 months into recovery via genetic testing). How often do you see them? The reason I am asking the question is that medical bills do pile up and become expensive and I'm starting to wonder how much I need to see these doctors (currently seeing a vascular surgeon and hemotologist seperately). I have appointments scheduled for both vascular and hemotologist in March and am wondering how much benefit I am getting out of those visits versus what they are costing me. Benefits versus cost: I get 5 to 10 minutes with each and they don't really tell me much, yet are costing me between $300 and $500 per visit. Any thoughts would be appreciated. |
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4 replies... |
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Off topic: Chinese herbs
Posted by N |
Last Reply March 2, 2010
at 11:01
Started March 2, 2010 at 11:01 |
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It's never been more popular. But how safe Chinese medicine? For five years, Patricia Booth took a Chinese herbal remedy for a skin complaint. As a result, she has lost both kidneys and developed cancer of the urinary tract. It is a shocking story, but even more shocking is that it almost exactly parallels the experience of catering manager Sandra Stay. ...read: http://www.dailymail.co.uk/health/article-1254746/Chinese-medicine-caused-kidney-failure-cancer-So-safe-popular-cures.html |
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0 replies... |
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Warfarin and Niacin
Posted by Derek Miller |
Last Reply March 1, 2010
at 23:19
Started March 1, 2010 at 18:05 |
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Hello Everyone, I have been on Warfarin for over a year and a half now and what a roller coast ride it has been. Just recently my Doctor prescribed Niacin to help lower my cholesterol (which is very high). I was wondering if anyone out there has been on or is taking both the warfarin and the niacin. And if so did you experince any complications or any type of interactions that you could share. Thank you very much |
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1 replies... |
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Questions about D-Dimer
Posted by Shane |
Last Reply March 1, 2010
at 01:35
Started February 27, 2010 at 22:43 |
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I went to the hospital three days ago for chest pains, had an x-ray and D-dimer test to rule out clots in my lungs. Everything was fine. Well Shortly after the test my right inner thigh has been hurting like crazy. It goes from my groin area, down my inner leg and even my lower back. So Im just wondering if I had a negative D dimer test should I be okay? im kinda freaking out. |
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2 replies... |
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Blood type and DVT -- Do they matter?
Posted by N |
Last Reply February 28, 2010
at 15:00
Started February 28, 2010 at 15:00 |
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Research out of the Netherlands has shown that your blood type can increase the risk of suffering deep vein thrombosis (DVT). Blood types in humans include A, B, AB or O. The study showed that people with blood type A, B or AB had an increased risk of DVT. Researcher, Dr Vania Morelli, from the Leiden University Medical Center in The Netherlands, said "A non-O blood type strongly increases the risk in people who carry a variant of a protein (called Factor V Leiden) involved in blood clotting. This variant protein is found in around 3% of people of European descent". "Our research suggests that information on blood type may have a role in the management of DVT, especially in carriers of this variant protein. It is obviously important to know what your blood group is!" said Morelli. Dr Morelli will present this research at the XXth Congress of the International Society on Thrombosis & Haemostasis in Sydney tomorrow. --- Throughout history, cocoa has been described as a ... read more |
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0 replies... |
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ALTERNATIVE MEDICATION TO WARFARIN
Posted by AJU |
Last Reply February 25, 2010
at 16:01
Started February 23, 2010 at 21:42 |
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Hey, let me fill you with my info first. I am a 35 years old female who has been on warfarin for the past 14 years. at 20 years after giving birth to my first child i form DVT and PE (in lungs). I also have in IVC filter fitted in. i suffer from double dose protein c deficince also known as factor v leine lately for the past 6months to 1 years, i am noticing i have a lot of side affects, mainly fatigue, tiredness etc... i do not know if this is to the fact the warfarin side effect or just my body changing. Anyway to cut the chase short, i requested my consultant to stop my warfarin. it has now been 4 weeks and my calfs are hurting again, i have been doing a lot of research on alternative medication and i see, garlic, ginger, gingko, ginsing vitamin e are all good blood thining agents. just wanted to know anyone know of tried any alterantive medication instead of warfarin. |
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2 replies... |
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Epigenetics: Chemicals Turn Genes On and Off
Posted by N |
Last Reply February 25, 2010
at 06:54
Started February 24, 2010 at 09:52 |
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Epigenetics: Chemicals Turn Genes On and Off at the Wrong Times Tuesday, February 23, 2010 by: David Gutierrez, staff writer ) Scientists are increasingly becoming aware of a new mechanism by which pollutants can damage the health of living organisms -- epigenetic changes, in which a chemical changes how a gene is expressed. While some chemicals are toxic (attacking the body's systems directly) and others are mutagenic (changing the actual code of an organism's genes), others do not change the way a gene is written, but instead how it acts in the body. Epigenetic changes "can lead to increased susceptibility to disease," said Linda S. Birnbaum, director of the National Institute of Environmental Health Sciences and of the National Toxicology Program. "The susceptibility persists long after the exposure is gone, even decades later. Glands, organs, and systems can be permanently altered." Epigenetic changes have been identified that increase the risk of Alzheimer's disea... read more |
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1 replies... |
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refused treatment
Posted by kat woods |
Last Reply February 25, 2010
at 06:50
Started February 22, 2010 at 09:00 |
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I survived a near-fatal car wreck in mid-October, 2009. I fell asleep behind wheel, was flung 30 feet from a smll car just before the top of the vehicle was sliced off, hence by a blond hair, evaded decapitation. yes, i know there is something odd about my survival. i am 52 years old. had a punctured lung, broke every rib and finger, pulverized both wrists and forearms into dust, broke back and neck, smashed three disks in spine. i live in the most remote area of Calif. -- 70 miles from closest milk bottle. It's a nassty one-lane road, takes two hours to get home, not one light on it. Friends in the Panoche Valley heard the smash, came running, kept me from drowning in my blood, and I got chopper life-flighted to San Jose Regional Med. I got kicked out of that so-called hospital after two months, the inch-thick inpatient report said i had DEEP VEIN THROMBOSIS in right thigh, but i was never treated. The reason they booted me was this, verbatim: "You NON-PAY. YOU NO ... read more |
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7 replies... |
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Compression Stockings Incorrectly Used
Posted by N |
Last Reply February 25, 2010
at 04:26
Started February 17, 2010 at 02:45 |
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Compression Stockings Incorrectly Used In 29 Percent Of Patients An original study, published in the September issue of the American Journal of Nursing (AJN), revealed that graduated compression stockings were used incorrectly in 29% of the patients and sized incorrectly in 26% of the patients. These stockings play an important role in preventing the formation of deep vein clots that can result in pulmonary complications and death. "Problems with the use and sizing of graduated compression stockings are common throughout the country and this study is one of the first to systematically analyze the problems and recommend ways to improve practice," said Elizabeth H. Winslow, PhD, RN, FAAN, Research Consultant, Presbyterian Hospital of Dallas, TX and lead author of the study. "Based on the study findings, we recommend that knee-length stockings be the standard length used and that the education of nurses and patients about the proper use of stockings be improved." This stud... read more |
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4 replies... |
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Vitamin D Protects Against Dangerous Blood Clo
Posted by N |
Last Reply February 24, 2010
at 23:38
Started February 24, 2010 at 10:43 |
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More good news about Vitamin D AGAIN! With March being National Deep Vein Thrombosis Awareness Month (I'm not making this up!), you would think that a study showing that prevention of Deep Vein Thrombosis, also called DVT, through sunlight exposure would have captured some attention. But for most of National Deep Vein Thrombosis Awareness Month, Big Pharma had it's showcase, trotting out examples of people who have died from DVT and how THEIR drugs would have saved them. Blood clots in the legs, also known as Deep Vein Thrombosism, are most often acquired by people who are inactive for long periods of time, women who smoke and take birth control pills, the elderly and hospitalized and post surgical patients. DVT's in and of themselves are generally not dangerous and will often resolve on their own. But the BIG risk is that the clot in the leg will break off and go into the lungs causing a life threatening situation called a Pulmonary Embolism- or PE. For people who are at h... read more |
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2 replies... |
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Side Effects?
Posted by Emmab |
Last Reply February 24, 2010
at 19:34
Started June 3, 2008 at 14:51 |
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Hi All: Well, my husband has been on Rivaroxaban now since mid April. We have to go on this research study until Mid July and then hopefully get another dopplar and his knee surgery. Since this med is still like Coumadin, I'm wondering what the side effects are of Coumadin? He's been getting queasy and having tummy trouble. They only check his blood about every four weeks or so and are supposed to tell him if anything is wrong. Very scary. I wish he had chosen the old fashioned route, but he didnt and doesnt want to quit now. He has no swelling, no bleeding issues, no more clot pain (though hard to tell since his knee is shattered at the moment). Anyway, wondering if queasy is normal or no? |
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8 replies... |
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Factors associated with warfarin sensitivity
Posted by N |
Last Reply February 24, 2010
at 17:01
Started February 24, 2010 at 17:01 |
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Both genetic and environmental factors such as foods and medications can affect the anticoagulation effect of warfarin: * Genetics: Variants in both vitamin K epoxide reductase (VKORC1) and cytochrome p450 2C9 (CYP2C9) have a significant impact on warfarin sensitivity. Carriers of specific variations may be more sensitive to warfarin and may therefore require significantly lower doses than those with other variations. Variations in VKORC1 have a much greater impact on warfarin sensitivity than variations in CYP2C9, particularly during the initiation of therapy. * Ethnicity: There are significant differences in warfarin dose requirements among different ethnic groups. Specifically, it has been recognized that people of East Asian descent require on average a 30-40% lower warfarin dose than individuals of European descent. In recent years it has become apparent that the VKORC1 gene variants that are associated with lower warfarin doses are much more common in Asians than... read more |
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0 replies... |
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Heparin blood thinner caused man to lose his..
Posted by N |
Last Reply February 24, 2010
at 09:45
Started February 24, 2010 at 09:45 |
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Heparin blood thinner caused man to lose his toes, claims lawsuit Tuesday, February 23, 2010 by: Ethan A. Huff, staff writer ) A recent report in the West Virginia Record details a lawsuit filed against Baxter Healthcare Corp. for damage caused by their blood thinning drug, heparin. After being prescribed the drug in 2007, James Bradley quickly developed severe bodily injuries that resulted in having to have his toes amputated. He and his wife Shirley are seeking compensation for his loss and the intense pain and suffering that he experienced from the drug. Heparin is known to cause a severe blood platelet disorder called thrombocytopenia that can cause patients to develop gangrene. The Bradley case is one of many in which patients have had to undergo amputation due to heparin-induced disease and decay. The Bradley case is alleging that Baxter and other drug companies that market heparin are doing so falsely. They believe it is clear that the drug is not safe and that it ... read more |
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0 replies... |
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Vegetarian Diet Can Cause Repeat Miscarriages
Posted by N |
Last Reply February 23, 2010
at 22:36
Started February 23, 2010 at 22:36 |
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Women who are deficient in vitamin B12 may be at risk for infertility or repeat miscarriages, but in many cases they can change their situation with vitamin therapy. Vitamin B12 plays a key role in the nervous system and the development of new tissue, and is also crucial in ovulation. Women who are deficient may not ovulate, for instance, or a fertilized egg may not develop, resulting in miscarriage. But according to the study, 10 of the women conceived after beginning vitamin therapy; six of these women conceived almost immediately. Seven of the women were found to have mutations in a gene involved in metabolism of folate. That, combined with the B12 deficiency, increased their risk of thrombophilia, a condition in which they were at increased risk of clot formation. Six other women were found to have other causes of thrombophilia. One woman had suffered seven miscarriages before doctors discovered that she was deficient in vitamin B12. The woman went on to have three ... read more |
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pain
Posted by caly czunys |
Last Reply February 23, 2010
at 02:11
Started February 19, 2010 at 22:18 |
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Hiya, im 20 and i found out i had an extensive dvt of my upper leg when i was 30 weeks pregnant with my 2nd child. I was in hospital for 2 weeks and was on heprin for 6 months. its been 2 months since i came off the injections but my leg still gets really sore for time to time. i use my stockings most days and i know ill get a little pain sometimes but how often and to what extent? i couldnt walk for 2 months after being in hospital and had to marry my now husband on crutches. thanks! carly |
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3 replies... |
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