DVT deep vein thrombosis forum |
|
Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.
Moderated by :: Travel Insurance :: MRSA forum :: MBT shoes forum 
|
|
|
|
| Start New Topic |
|
List Forum Topics & Search |
| number of topics started (2228) - Page 24 of 112 | |
|---|---|
|
being proactive about your warfarin dosage
Posted by pamela |
Last Reply March 30, 2010
at 04:21
Started March 9, 2010 at 04:07 |
|
My dosage just as soon as it got regulated was 3.75 6x 2.5 1x week. And it was good and stable through Oct, Nov, Dec, early part of Jan. But then in Jan I finally got control of the swelling. In Jan I started working out regularly- I realized I could not tolerate high-intensity cardio day after day, but I could alternate it with strength training, yoga, etc. and do 6 days a week reliably. No INR test has given me any confidence since Jan. I test, it's low, they say, take 5 instead of 3.75 the night they call and then go back to the regular schedule, take a test 3 weeks later. I do, and what do you know, it's low again (and I suspect I've been low and therefore not theraputic all that time) so they say do the 5 again, come back in a week (2.2) and they say, ok, come back in 3 weeks. I do, and it's even lower than the last one. And I'm going to Las Vegas, so I call and ask to talk to the doc, because I want to know if I have more than one drink a week- ... read more |
|
10 replies... |
|
|
dvt
Posted by b.obryan@ cox.net |
Last Reply March 29, 2010
at 23:36
Started March 29, 2010 at 20:26 |
|
I had a tkr left 3 wks ago. I just finished 2 wks of loviton and am on coumadin. I am active, normal weight, and just today have an occasional intermitent tnrobbing in my opposite shin = feels like ashin splint. Should I be concerned? I don't want to go to the dr if not necessary. |
|
1 replies... |
|
|
Protein C Deficiency?
Posted by Robert |
Last Reply March 29, 2010
at 15:00
Started March 28, 2010 at 19:04 |
|
I've been told that I have protein C deficiency based on some blood tests that were done in the hospital during my PE episode. My Protein C level appears to be slightly below the recommended range (I believe my test result was about 59). Also read somewhere that Protein C results are skewed downward during a clotting episode (which was my situation). Couple questions... 1. For those that have Protein C deficiency, have your doctors indicated that you need to be on Warafin for life? 2. Did you have your Protein C level checked/re-tested once you were certain you had no clotting conditions? I understand that in order to have it re-checked, I would need to come off of Warfin for a while to get an accurate result. I would like to know to get a better understanding if I in fact have this condition (and for my kids as well) and to confirm if I should stay on Warafin for life :(. Thanks in advance for your responses... |
|
6 replies... |
|
|
May-Thurner Syndrome
Posted by Diane |
Last Reply March 28, 2010
at 17:49
Started March 28, 2010 at 17:49 |
|
I have started a new group on Facebook (March 27, 2010) and it can be found by going to Facebook Groups and typing "May-Thurner Syndrome Support Group" which will take you to two FB groups with similar names. My new group has the word Support in it because that is what we do, plus I post medical information from experts in the field as it becomes available. This is a closed group for privacy of the members, so please write and tell me a little about yourself if you are interested in joining. I can be contacted at woodcreek12@aol.com This new FB group will be in addition to the thriving group I've had for two years on Google Groups, and which currently has 85 members. --Diane Peterson |
|
0 replies... |
|
|
May-Thurner Syndrome
Posted by Diane |
Last Reply March 28, 2010
at 17:47
Started March 28, 2010 at 17:47 |
|
I have started a new group on Facebook (March 27, 2010) and it can be found by going to Facebook Groups and typing "May-Thurner Syndrome Support Group" which will take you to two FB groups with similar names. My new group has the word Support in it because that is what we do, plus I post medical information from experts in the field as it becomes available. This is a closed group for privacy of the members, so please write and tell me a little about yourself if you are interested in joining. I can be contacted at woodcreek12@aol.com This new FB group will be in addition to the thriving group I've had for two years on Google Groups, and which currently has 85 members. --Diane Peterson |
|
0 replies... |
|
|
Most comfortable thigh high stockings on nhs?
Posted by Heather |
Last Reply March 28, 2010
at 06:49
Started November 13, 2009 at 21:56 |
|
Hi, I am due some new compression stockings soon and my gp has told me I can have any thigh high stockings that are available on nhs prescription. In your experience what are the most comfortable / efficient brands or styles? |
|
20 replies... |
|
|
Old DVT or a new one?
Posted by Harkers |
Last Reply March 27, 2010
at 22:43
Started March 25, 2010 at 11:48 |
|
Hi All I had calf DVT diagnosed last may and came off warfarin in December. Last couple of days I had the same shooting pain in my heel as I had last time so went to A&E and my d-dimer was a weak positive result so started on the heparin jabs. Could the weak positive be because my original clot is still dissolving (it was the length of my calf an halfway up my thigh). Typical NHS - didn't rescan when I finished warfarin so now it seems to me to be a guessing game... I really don't think I can face warfarin for life this time - I was wiped out on them last time and really struggled to do my job. Thanks for any input |
|
3 replies... |
|
|
Leg 1inch bigger post DVT
Posted by Vicky |
Last Reply March 27, 2010
at 22:24
Started March 23, 2010 at 21:11 |
|
Hi I had a DVT 2 years ago when I was 34 weeks pregnant, this was due to the way my baby had wedge himself in my groin. I have just had my 2nd child and started back on weight loss and gym and my DVT leg is still 1.5 inches bigger than the other one!! now as you can probably imagine trying to get jeans especially to fit is a nightmare!! i just wondered if any one else has had this prob and if /how long the leg took to get back to a similar size!!! Thanks |
|
6 replies... |
|
|
I found out why
Posted by Machka |
Last Reply March 27, 2010
at 12:33
Started March 27, 2010 at 12:33 |
|
I had bloodwork done last week, and two days later was sent a letter to pay my Dr a visit "at my earliest possible convenience". Evidently I'm a mutant. :D Turns out that I have both a genetic mutation which increases my risk of developing DVT, and a high homocysteine level which puts my cardiovascular risk from the genetic mutation into a high risk level. The mutation is the methylenetetrahydrofolate (MTHFR) Gene Mutation (C677T), and apparently 8-18% of the population has this mutation. I guess there's a good possibility I'll be on warfarin for the rest of my life, and Vit B and Folic Acid are supposed to reduce my homocysteine level. The test for this is a simple blood test which tests for both MTHFR and Homocysteine. If you haven't found out a cause for your DVT yet, talk to your Dr about getting this test done. Who knows ... you might be a mutant too. :D |
|
0 replies... |
|
|
Multiple DVT's
Posted by Claire |
Last Reply March 26, 2010
at 19:07
Started March 24, 2010 at 21:39 |
|
I am a 33 year old lady with recurrant DVT's. This started 8 years ago and I have now had 15 DVT's. I have had clots in the arm and leg and a stroke 18 months ago in the corroted artery in my neck. I have had 2 venoplasty's which one was 3 weeks ago and I am trying to get back to work but finding it really hard this time. I still work self employed inbetween going to the hospital 3 times a week but I dont want to give up work as i feel it keeps me going. I am desperately trying to find someone who has had lots of clots like me as I am told I am a rare case and how they have been treated and by who to see if there is anything else I can do? Many Thanks |
|
3 replies... |
|
|
Swelling years after DVT
Posted by Jim |
Last Reply March 26, 2010
at 14:27
Started March 25, 2010 at 21:43 |
|
17 years ago I was in a wreck and broke my leg and developed a DVT in ny calf. I had major problems with this leg swelling for months.I was put on Cumadin( for approx 6 mon.) after a week's stay in the hospital. The leg continues to swell not nearly as bad and has some numbness. Is this swelling normal ?I have to be very careful about some activities, socks/shoes I wear, standing. I have lived with the pain from this for years. I'm not very trusting of vascular surgeons. Recently I had to have hip replacment,(due to a old injury) on the opposite leg and developed a small DVT in that leg. I am back on Cumadin, but there are no ongoing swelling issues in that leg. Has anyone else had these issues YEARS after a DVT ? |
|
2 replies... |
|
|
silk worms/fibrin
Posted by tony |
Last Reply March 25, 2010
at 18:46
Started March 25, 2010 at 18:46 |
|
hi,the forum is very good it seems to me people are very worried about there dvt,s i had my dvt over twenty years ago left leg, yes and it is thinner than the right and it as never returned ,8 weeks in hostpital , heperin, then warferin,doeses getting smaller with each return to hostpital, over the years i have tried most cures , i am only lay person , i just thought i would try and share with you all what i have found out, i might be wrong but hear goes, the stuff that causes blood clots is called Fibrin ,the way blood vessels are made if there is a crack or fiisure in the Fibrin colesterol builds up around it then over time a little piece breaks of and blocks blood vessel ,hence dvt,but in USA Tufts Unversity they are trying to put silk worm cocoons in a stent, boiling them first soaking with antibiotics only 1mm thick when cocoon dissolves it makes new fibrin , i myself are going to try something called Serrapeptin,silk worms again,DR linus pauling vitamin c cure,q10,hope you che... read more |
|
0 replies... |
|
|
thigh pain
Posted by joe |
Last Reply March 25, 2010
at 11:19
Started March 20, 2010 at 17:55 |
|
Ok, been looking online now for a cpl days about DVT and have a cpl questions. When ppl talk about thigh pain, what part of the thigh are they normally meaning, like the front, back..etc? I started having pain in my right leg on thursday right above my knee cap on the top side, then it seemed to spread up my leg, friday it hurt on the top of my thigh up to my waist, now today it no longer hurts there, but seems to have moved over a little to the inside a bit. i was just wondering if that sounded common in DVT, cause everything i've read online shows deep veins in the thigh run from the groin to behind the thigh bone and not on top. also there is no swelling or redness that i can see, and only warmth is from where i keep pushing on it to try and locate the exact point of the pain cause it seems to move around. and no i do not recall injuring my leg in any way prior to thursday, just kind of came on so to speak. i am 35, non smoker, fairly active, although i do read in my recline... read more |
|
3 replies... |
|
|
Stabalising Warfarin and leg swelling
Posted by Morris |
Last Reply March 24, 2010
at 23:51
Started March 24, 2010 at 22:39 |
|
Hi there I had a DVT found on 8th March, when I went for an outpatients appt and ended up beind admitted! Whilst in hospital I was on Heparin shots and 10mg warfarin for 2 days, then my levels went too high, so nothing for 2 days. Then heparin shots and 5mg for 2 days, then 7mg for 2 days, then local clinic and INR was 2.0, so 8mg for 5 days. Then I went back for another test and INR was over 8.0, so nothing again for 2 days. Back again today and INR 3.6, so nothing again for another 2 days and back Friday for my next test. I realise it will take a while to stabalise, but what worries me is that over the last 3 days my leg is swelling more and more. Originally my right calf was swollen, now it is my thigh as well, and also my left leg. Is this "normal"? What should I expect with regards to swelling? When 1st diagnosed the swelling was near enough unoticable. Now it's swollen and the skinn feels tight. Anyone got any advice? It would be much appreciated as this is all very ... read more |
|
1 replies... |
|
|
suspected dvt
Posted by Gwen |
Last Reply March 23, 2010
at 22:42
Started March 23, 2010 at 11:54 |
|
Hi, i noticed a cyst like abcess when flexing by my calf around a month and a half ago. At first I thought it was a harmless cyst but after going to the doctor it was described as "bouncy" and possibly a vein. After showing my mom she told me that she believed it was a blood clot. My insurance has just expired and I am in a slow process of renewing it so I could not get the tests done on it to verify clot. But I suspect it's getting more severe and i'm utterly confused on what to do. I'm only 18, and I have no reason to form a blood clot other than waitressing at a bar. It has halfed size since I went to a doctor but I am started to form vercoise veins and they look like major veins. I know that it gets more dangerous as it hits the groin area and right under my pelvic bone I have formed another branch of velcroise veins. When I poke the assumed clot the whole vein aches in accuriating pain. I am constantly feeling a painful pulsating sensation throughout my whole body. What I am wo... read more |
|
2 replies... |
|
|
'Man with the golden arm'
Posted by N |
Last Reply March 23, 2010
at 21:03
Started March 23, 2010 at 13:32 |
|
'Man with the golden arm' saves 2million babies in half a century of donating rare type of blood An Australian man who has been donating his extremely rare kind of blood for 56 years has saved the lives of more than two million babies. James Harrison, 74, has an antibody in his plasma that stops babies dying from Rhesus disease, a form of severe anaemia. He has enabled countless mothers to give birth to healthy babies, including his own daughter, Tracey, who had a healthy son thanks to her father's blood. Mr Harrison has been giving blood every few weeks since he was 18 years old and has now racked up a total of 984 donations. When he started donating, his blood was deemed so special his life was insured for one million Australian dollars. He was also nicknamed the 'man with the golden arm' or the 'man in two million'....READ MORE: read more |
|
1 replies... |
|
|
Double PEs, 10 Weeks Later
Posted by Robert |
Last Reply March 22, 2010
at 15:05
Started March 21, 2010 at 21:09 |
|
Hello All. Great forum, learned many things here. I thought I'd share my recent experiences to maybe help some other's as their posts have helped me. I am a 42 yr. old active male and have been into long distance road cycling the last few years. Have never really been sick in my life and am very fit. I'd been feeling a little off in early December 2009. Was a bit more tired than usual and I had a pain in the middle of my back, which I was certain was a pulled muscle due to lifting weights. I finally made a doctors appt.(after about 3+ weeks of feeling this way)and got an appt. on xmas eve. They did some blood work and took a chest xray. They called me back in the afternoon and said blood work was fine, but I had some fluid around my lungs. Since it was xmas eve, they said they would contact me the following week to have a CT scan done (this is one of those crappy urgent care places). Things went downhill on xmas eve and I thought I was having severe back spasms. Sharp pai... read more |
|
2 replies... |
|
|
Long length compression stockings
Posted by ergomaniac |
Last Reply March 22, 2010
at 14:44
Started March 1, 2008 at 13:42 |
|
Being a relative newbie to the old DVT and PE experience I am after some advice about compression stockings. I have been advised to wear them day and night and that they must be the full thigh length ones. I was issued 2 pairs by the hospital but they don't stay up!!! For all of you UK readers they keep doing a norah batty on me!! I am relatively tall at 5'10" and have been trying to find a supplier of long length graduated compression stockings but the only ones I've found so far are in the UK. Any advice, suggestions, help? I've got to wear these for quite a while and I'm getting REALLY fed up already with the stupid things! Thanks :) |
|
38 replies... |
|
|
How to find the cause?
Posted by Julie |
Last Reply March 21, 2010
at 23:02
Started March 20, 2010 at 09:26 |
|
My husband is healthy, 44 years old, nonsmoker and active. He was hospitalized this week with a DVT in his calf and PE in the lungs. His only symptom was the pain in his leg. How will the doctors be able to find a cause for this? What will they test for/ what should we ask them to test for? I guess he is looking at having to take coumadin for several months, but I am scared to death that this will happen again after he comes off it. |
|
3 replies... |
|
|
Post-DVT and Exercise
Posted by Machka |
Last Reply March 21, 2010
at 16:44
Started January 10, 2010 at 11:40 |
|
I developed DVT on June 12, 2009 and was diagnosed and admitted to hospital on July 29, 2009 with blood clots throughout my entire left calf and one clot above the knee. I was a very active person (mainly cycling), but it's been months now and I seem to be having a lot of trouble returning to my pre-DVT activity level. How many months did it take you to return to your pre-DVT fitness and activity level? |
|
21 replies... |
|
|
|
| Start New Topic |
|
List Forum Topics & Search |
|
 Create your own visitor map! |
