DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Warfarin headaches
Posted by Claire
Last Reply April 10, 2015 at 05:55
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

80 replies...

Swelling years after DVT
Posted by Jim
Last Reply April 8, 2015 at 15:33
Started March 25, 2010 at 21:43

17 years ago I was in a wreck and broke my leg and developed a DVT in ny calf. I had major problems with this leg swelling for months.I was put on Cumadin( for approx 6 mon.) after a week's stay in the hospital.
The leg continues to swell not nearly as bad and has some numbness.
Is this swelling normal ?I have to be very careful about some activities, socks/shoes I wear, standing. I have lived with the pain from this for years. I'm not very trusting of vascular surgeons.
Recently I had to have hip replacment,(due to a old injury) on the opposite leg and developed a small DVT in that leg. I am back on Cumadin, but there are no ongoing swelling issues in that leg.

Has anyone else had these issues YEARS after a DVT ?

8 replies...

Exercise, being mobile, compression stocking
Posted by Dominique
Last Reply April 7, 2015 at 19:26
Started April 7, 2015 at 19:26
Firstly thank you for this forum. My husband had 2 knee (arthroscopy) surgeries,
3 weeks ago. The first week everything was ok. At the end of the first week he
started getting pain and swelling in his left knee. No problem with right knee. He
then took it easy, used crutches to get around. By the end of the second week he
had excruciating pain in his left calf. With the long weekend we only went for an
Ultrasound this morning and he was diagnosed with DVT. He started taking
Xarelto and wearing a compression stocking/ sock. He is very sporty and is an
MTB rider. My questions are: how soon can he start riding his bike and exercise
again? Can he get off the couch and walk around the house and go shower? How
long and when would he need to wear the compression sock/stocking? And when
can he go out to visit friends and go to a restaurant for dinner? My questions
might be a bit silly but I would appreciate all the advice we can get. Thank you.

0 replies...

when to go back to work with a PE?
Posted by peter
Last Reply April 7, 2015 at 12:22
Started September 24, 2008 at 18:06
Hi everyone, I work in the freight business … in the month of august I ve had an accident that occurred while I was unloading trailer’s , something came down on the back of my left knee and , in the meantime I was not doing bad , kept working I just had a few scratches nothing to be alarmed at, but after about a couple of weeks all of a sudden I ran out of breath… in the first place I thought it was a panick attack or something else like high cholesterol so I decided to check with my family doctor , I was told to go at the hospital immediately , get some blood tests, they made me do a Doppler for my leg and found out that I had a blood clot in the back of my knee and sinceI was having shortness of breath a ct scan was done to see if it had moved to the lungs.. the ct scan did reveal that I have several clots in my lungs…I got treated with 2 shots a day and 1 5mg coumadin pill …for a few days then after 6 days they stopped the shots and I resumed with 8mg for 2 days (inr 1,5) , n... read more

6 replies...

xarelto and hair loss
Posted by Jessie
Last Reply April 7, 2015 at 03:39
Started October 17, 2014 at 05:08
I suffered bilateral pe's shortly after
the induction of anesthesia for a gall
bladder surgery. I was started on
coumadin in the hospital. The drs wanted
to switch me to Xarelto, selling it as a
wonder drug.

Since taking it, I've experienced terrible
hair loss. (I was at work the other day,
took out my pony tail and ran my fingers
through my hair. I threw away the
resulting clump. My friend came over to
talk, saw the hair and wanted to know why
I cut my hair at work).

Has anyone else had this issue? After a
discussion with my drs, we're switching
blood thinners. I hope the hair loss

9 replies...

Posted by Renee
Last Reply April 6, 2015 at 20:03
Started February 26, 2015 at 12:44
hi guys, I was just diagnosed with DVT Feb 2, 2015. The ER told me
that I could start working out again after a month. I'm on xarelto,
and I wanted to start the thirty day shred. Would this be okay?

I have no leg pain at all anymore, (Thank God), but my leg is still
red and just a tad swollen.

2 replies...

May Thurner's
Posted by Donna Edgerley
Last Reply April 6, 2015 at 17:25
Started June 6, 2014 at 07:36
Hello fellow DVT sufferers.Has anyone else been diagnosed with May-Thurners?I was diagnosed in February 2014 after a DVT for thirteen years and now chronic venous insufficiency and May-Thurners. I would like to know how people deal with the pain. Thank you.

2 replies...

switching from warfarin to lovenox
Posted by Elaine
Last Reply April 6, 2015 at 10:34
Started March 26, 2015 at 20:14
My hematologist wants me to switch from the warfarin my primary prescribed to lovenox. I picked up the lovenox today but realize I don't know how to end one and start the other. Can anyone help?
Thank you

2 replies...

Posted by JACOB
Last Reply April 5, 2015 at 21:07
Started March 28, 2012 at 22:30
Hi everyone. Im Jacob, age 29. After the last DVT in January 2012 (4th
in my life) I was put on warfarin for a life-time. I was also advised
to wear those bloody compression stockings. Everyone says they are a
must, and they do the job. But I just cannot wear them.

I got one in Poland and I could not wear it at all. It caused a pain.
The skin around my ankle is already very soft and I felt very
uncomfortable after 20 minutes of wearing that bloody sock !

And now Im living in the UK... they gave me another sock. The leg was
measured etc. but unfortunately it is the same thing. Pain and pain.
It makes more pain than it is without that stocking.

Has anyone experienced that as well ? What should I do? If I don't
wear that stocking, is it gonna be more harmful for me ?

Pls help !

29 replies...

Is warmth a concern?
Posted by M-Dubyoo
Last Reply April 5, 2015 at 16:19
Started March 19, 2015 at 07:12
I had a DVT and superficial clots diagnosed in November last year. I have
moderate varicose veins, but it's thought my DVT was caused by a number on
contributing factors, including the pill. I stopped Xarelto about 6 weeks ago, and
have since had a few instances of a warm/hot leg in the region of my varicose
veins. This region isn't hot at all times of day, but can remain warm for many
hours. There is swelling, although there is no redness or pain. Just slightly
bulging veins. Is it common for vein related inflammation to be warm?

Many thanks!

2 replies...

Coming off Warfarin
Posted by Rob, UK
Last Reply April 3, 2015 at 22:39
Started October 2, 2010 at 09:36
I have been advised this week that I am to stop taking warfarin from
next Tuesday. After 6 weeks (this is the length of time I was told it
takes to clear my system), I will need to have a full blood check to
look for any genetic disorders etc.
I have been on warfarin since January this year, and although I am
'looking forward' to identifying the likely cause of my clotting
issues, I do have some trepidation about the sudden ending of my
medication. Will there be any noticeable 'cold turkey' symptoms or
contra- indications ? I am wearing compression stockings as instructed
and will continue my rather gentle walking regime at the gym- do you
know if it's safe to use the vibration equipment to improve my
I have also been instructed to eliminate the risk factor associated
with driving up to 1000 miles per week for my job- so I am either
going to work from home, or if that is not considered a feasible
option, I will have to take long-term paid sic... read more

40 replies...

DVT Treatment
Posted by Mark Garcia
Last Reply April 2, 2015 at 08:58
Started April 2, 2015 at 08:58
For those of you (or anyone you know)who are suffering from chronic DVT and Post Thrombotic Syndrome, there is hope and a new study that is actively enrolling patients to evaluate a minimally invasive technique to open up the veins and improve the quality of life. For more information, please visit www.chronicdvtstudy.com. Please share and spread the word, that "living with it" is no longer the answer.

0 replies...

Risk of old clot traveling?
Posted by Will
Last Reply April 1, 2015 at 20:17
Started March 21, 2015 at 14:56
I tore a MCL and then formed a blood clot. The doctor has me on blood thinners
which I realize prevent blot clots from forming and growing larger. But I also
understand it takes months for the blood clot I have to dissolve. Aren't I therefore
at the same risk of the blood clot breaking free and traveling to my head and
lungs that I was before going on the thinners? I mean the clot is still there, so it
could break free at any time correct?
Pretty scary, so any feedback would be greatly appreciated!


2 replies...

Posted by CLAIRE
Last Reply April 1, 2015 at 18:51
Started January 28, 2010 at 15:16
I saw my hema Dr today for a follow up and was told I tested borderline for the Lupus anticoagulant,he wants to test it again in August and do another ultrasound as my one done last week showed the clots still there,but with good blood flow ,there is a possibility I may have to stay on Coumadin for life,which is ok,I have come to terms with this,in my opinion its no different to a diabetic taking insulin every day, the alternative doesn't appeal to me.

Does anyone else have this Lupus anticoagulant thingy ??

22 replies...

Leg cramps
Posted by Juliet
Last Reply April 1, 2015 at 17:07
Started June 29, 2009 at 23:14
Hi all, recently ive been experiencing some painful cramping in my left thigh. The pain
goes from the top of my knee and shoots up my thigh, the cramp always seems to be
there, although it peaks and its very painful. Its always in the one leg, the right one,
which is were my large clot was. It got so bad, i was crying last weekend and ended up
in A&E, they told me it was muscular and to go home and take some paracetamol. Ive
had the pains again yesterday and today. Im on Warfarin for life. Im just wondering if
anyone else has experienced this type of pain? Thank you.

8 replies...

Just released taking Previscan
Posted by Lore
Last Reply March 31, 2015 at 13:35
Started March 18, 2008 at 19:10

I was just released from the hospital today after suffering from multiple small DVTs throughout my left leg and a minor PE. I am 35 years old and otherwise healthy. I was taking low dose estrogen birth control pills and had taken two 6 hour flights over 2 days. I am American but living long term in France and I am currently taking 5 mg of Previscan. I understand that Previscan is widely used in France, but not so much elsewhere. Does anyone have any experience with this drug? Any side effects or things to be concerned about? Also any advice for dealing with my condition? I have not yet had a chance to see what my mobility limits are but the swelling has gone down considerably in my leg and I am getting around my apartment without much trouble or pain. I felt a little winded when I went up the stairs quickly.

Thanks, Lore

56 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply March 30, 2015 at 18:32
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

69 replies...

dvt in the arm
Posted by Laura
Last Reply March 30, 2015 at 14:03
Started February 10, 2011 at 21:39
i have a blood clot in my arm and has been on warfarin for 2 months. it has took the whole 2 months to get my inr to 2.2.
after the first month of being on warfarin my arm swelled and got really heavy so i had to go back 2 hospital, this was because the doctors had not given me the correct dose and my inr had come down to 1.3 but should of been 2.5, so the clot had no treatment for 2 weeks which caused the clot to get bigger.
after 2 months i still get swelling and heavyness in my arm every morning and if i do alot with my arm it swells and get tingly. as i am only 24 if i have any problems i struggle to get an answer from the doctors cause they say i am a guinea pig for them cause they have not had any one so young to get a clot and normally people get them in there leg and not in there arm.
is there any 1 else out there that is young and has one in there arm.
im sure there is more than just myself.

25 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply March 29, 2015 at 20:45
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

522 replies...

PE and drug interactions
Posted by Mike day
Last Reply March 29, 2015 at 13:10
Started March 29, 2015 at 13:10
Hi all, six months ago l had two coronary stents fitted to my arteries, and was
prescribed 20 msg of an anti platelet drug called Prasugrel to be taken Dailey.
Unfortunately this caused a bleed in my bladder (probably due to prostate
surgery six years ago)
I was admitted to hospital and catheratised and spent 6 days having my bladder
irrigated to clear the blood.
On the 7 th day they finally took me to theatre where they cauterised the prostate
and stopped the bleeding.
Unfortunately l developed a pulmonary embolism whist in hospital and given
claxine to inject into my stomach for 8 days and put on Warferin.
At present I am taking 5.5 Mgs of Warferin and will have to take this for 6 months.
My cardiologist wants me to carry on taking Prasugrel for a further six months
because he is worried about my two new stents blocking up.
I would gravely appreciate any input on this posting as I am not sure if anyone
else has similar problems or any thoughts on how likely ... read more

0 replies...

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