DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4624) - Page 2 of 232
Your Experiences with Post Thrombotic Syndrome
Posted by Sarah
Last Reply January 9, 2017 at 21:10
Started October 12, 2008 at 21:37
Hi All,
for those of you that have had your dvts for awhile, I'm curious about your experiences with PTS. I'm 8 months past my initial diagnosis. Lately I've been feeling some slight pain in my vein in the upper/inner thigh. I know this is where my clot was, and I know I have residual clot there as I never had thrombolysis. I had a follow up ultrasound 2 days ago to assess for reflux so I know this is not new clot. The discomfort is usually not too bad, and seems to subside after awhile. Have any of you all felt this as well? Not much swelling, just this vein stuff that I think is happening a little more often than it used to. If anyone cares to describe what PTS is like for them I would be intersted in hearing your stories.

99 replies...

Posted by Bridget
Last Reply January 9, 2017 at 18:34
Started December 28, 2016 at 04:15
Hi all.i was diagnosed with dvt after
what I thought was a muscle injury so
didn't really worry me as quiet often
tweek my leg muscles at work. So I
went to A&E and got diagnosed,that
was on 6th December. So,got heperan
injection,warfarin and a codine
script and sent on my merry way.. so
after 3 weeks my INR is still low,at
1.1.. can't get cleared for medical
cert for work and it's GRRRRR!!!
hopefully fingers crossed it comes
back higher tomorrow,as I'm
apparently doing everything I'm ment
to be doing,not having as much vitk,
resting the leg,and now I think it's
traveled up to the thigh from calf,
ARG!!!! so not impressed lol, sorry
for the rant guys,no one I know here
has had a dvt,and just needed a vent.
Have a good night people's 😃

1 replies...

Venous Reflux Diseas question
Posted by Mike
Last Reply January 9, 2017 at 18:27
Started January 4, 2017 at 11:37
Has anyone been diagnosed with this? I just was and it's probably from a DVT I had four years ago. The name itself scares the pants off me. They gave me compression stockings today and I will wear those and they talked about a laser procedure to close the diseased vein which should reduce swelling and pain. Anyone had this done? I feel like I was just given an incurable diagnosis that will get worse and worse until bad things happen.

1 replies...

Just diagnosed with DVT behind knee
Posted by Jessica9776
Last Reply January 9, 2017 at 18:19
Started December 21, 2016 at 16:38

I came across this site while trying to gather more info about my DVT.

I fractured my fibula a little over 4 weeks ago and was put in a fiberglass cast.
About 11/2 to 2 weeks ago, I started to notice pain in my calf which I thought was
a muscle spasm from lack of movement, with the thought always in my mind
about a clot. About 2 or 3 days ago, the pain has slowly been going away but, I
finally got scared and went to my orthopedist who removed my cast and did an
u/s where they found 2 clots behind my L knee.

I am terrified. I have already had 2 injections of lovenox and will start bridging to
Coumadin. I am so afraid that they will break off and I'll end up with a PE.

The dr and nurses are trying to reassure me that even though it can move, the
fact I'm now on blood thinners, they offer protection.

I don't know what the purpose of my post is, other than to maybe hear from
others who have been here.

Thanks in advance!

2 replies...

Posted by Hellen
Last Reply January 9, 2017 at 08:30
Started July 1, 2016 at 10:58
I am so grateful to Dr. Kruma Crumen for providing me with Hemp
oil here in the United State of America. I was diagnose with skin
cancer 2 years and 3 weeks ago, and ever since then have done a
lot of Chemo and Radiation that have not help me, but only damaged
my immune system and render me weak and helpless. I came across
the Phoenix Tears and i have read about the Hemp oil a lot and saw
the Post that Dr. Kruma Crumen could provide me with Cannabis Oil
here is the State, i contacted him on: drkrumacrumen@gmail.com for
the procurement of this medication, to my surprise the medication
was procured and delivered within 48 hours and i have been on
treatment for the past 3 months. Am now here to testify that am no
longer a cancer patient. I have experience a total transformation
in my life with Dr. Kruma Crumen Hemp oil service.
Below are the different types of illness he cured

(1) Adeniod Cystic Carcinoma
(2) Anal Cancer (Squamous Cell Carcinima)
(3) Apl... read more

8 replies...

Factor II mutation
Posted by SueG
Last Reply January 9, 2017 at 01:50
Started December 31, 2007 at 20:33
Hello all - does anyone know anything about Factor II gene mutation? I had appointment with haematologist today who thinks that this is why I've had DVT and two PE's in the last three years. So warfarin forever.... I kind of expected that, but would be interested to know if anyone else has heard of this? Also possible links to hormone fluctuations - odd that this suddenly caused problems when I hit menopause (I'm now 49) As always thanks for any comments


13 replies...

Questions to ask Hematologist ?
Posted by Michelle
Last Reply January 8, 2017 at 21:30
Started March 18, 2007 at 18:24
Hi all... have not posted in awhile - my case: July '06 DVT knee to groin, multiple PE's both lungs after knee injury & immobility / birth control pills (do not smoke, healthy weight, 25 years old etc.)

I still have chest pain quite frequently - esp. after activity. Went for a follow-up CT Scan / EKG a couple weeks ago and all clear no new clots and old clots are all gone. YAAY what a relief - only explanation for chest pain has been "chest wall inflammation" which I don't understand.

I'm still on coumadin (8th month now) for my DVT - leg still turns blue / tingles / red "lace" patterns on calf but there is next to no swelling or pain. I never actually had any swelling with my DVT (very lucky here). I still wear good compression stockings every day to help with tingling / colour changes.

OKAY so now my question! I have an appt. on April 2 with a Hematologist to see if I have any genetic / hormonal clotting factors. If it turns out there is nothing then I can stop c... read more

37 replies...

Tylenol and INR ?
Posted by Steve
Last Reply January 8, 2017 at 20:55
Started November 22, 2008 at 02:38
I was told that the only pain reliever I should take while caring for my DVT and on Warfarin was Tylenol. Has anyone checked to see how this affects their INR reading? I suspect the danger is taking too much and causing an internal bleed (which would be all the more dangerous if INR is high) ?

And if you do regularly take Tylenol during Warfarin therapy, what dosage do you take ?

Thanks !

13 replies...

Prothrombin Gene Mutation
Posted by Judy
Last Reply January 7, 2017 at 23:11
Started February 5, 2011 at 17:07
I got my thrombophilia results on Weds and got told I have prothrombin gene mutation. At last, something I can genuinely blame my parents for!!

Anyone got any experience with this?


5 replies...

First Rib Resection Experiences Please
Posted by Becks
Last Reply January 7, 2017
Started August 16, 2012 at 08:35

I am a 26 year old active and otherwise fit and healthy female that was admitted to
hospital in January with a very swollen right arm (there was a 4cm diameter difference
from the left arm), it was a distinct purple/grey colour and all of the veins that were
hidden deeper under the skin were visible and the normally visible green veins were
almost protruding.

Turns out I had a 20cm clot running through my shoulder and down my arm in the
subclavian vein. I had surgery straight away to dissolve then vacuum out the clot with
good results. The specialists all tried to put the cause down to being on the pill even
through I had been on it for 10 years, it wasn't until after a venogram that showed my
vein was compressed in my thoracic outlet by the collar bone and first rib that we knew
I had a mechanical issue.

I was on warfarin for 6 months, have now been off it for 2 weeks. The problem is that I
am constantly experiencing a dull ache generally along... read more

20 replies...

Ulcers risks with femoral occlusion past dvt
Posted by Imy
Last Reply January 6, 2017 at 13:39
Started January 6, 2017 at 13:39
Please could anyone,maybe through experience let me
know what likelihood or percentage of developing
ulcers later in life after dvt has caused severe
post thrombotic syndrome? I am 40 now I have all the
nasty attributes related to it and its been about 4
years now, so am I likely to get ulcers with this
later in life,is there a risk..? Please anyone?

0 replies...

Elevated d dimer w/out cause??
Posted by Chris
Last Reply January 5, 2017 at 21:52
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

69 replies...

when does pain ease from xarelto for DVT
Posted by Nix
Last Reply January 5, 2017 at 20:34
Started January 5, 2017 at 18:33
Hi everyone,
It's been 2 weeks since I've started taking xarelto for a DVT that developed in my
calf, and I have yet to receive any kind of ease since the pain started. Is this
normal? I thought by now I'd be able to see even the slightest difference but the
pain is still severe as ever. Please share your thoughts and experience! Thanks!

1 replies...

DVT and Pregnancy
Posted by LB
Last Reply January 5, 2017 at 16:49
Started January 27, 2010 at 17:10
Has anyone gotten a DVT due to pregnancy? How were you treated? Was it during your pregnancy or after your pregnancy? And how did this affect later pregnancies?

I am 23 years old and developed a DVT in my left groin at about 37 weeks. I went in for an ultrasound due to pain and swelling and they didn't find anything. Four days later, with worsening symptoms, I went in again and had a clot that was almost a foot long. I was in the hospital for 10 days before they induced me. I had a healthy baby girl and then was put on coumadin for 6 months. I still have residual clot that probably won't go away. My leg still swells and my veinsd are quite the sight. My Dr thinks I'll probably have to do blood thinners throughout all future pregnancies.

21 replies...

Hawaii Healthcare?
Posted by Gary G
Last Reply January 5, 2017 at 14:03
Started January 5, 2017 at 14:03
I had zero risk factors when on 10/28/2016 my left kneecap started
to burn. Within hours I couldn't bend my knee, my calf was sore,
and the leg appeared reddish. I saw my PCP who diagnosed it as a
torn Patellar tendon. It sounded off but he owned 3 clinics so I
went down the rabbit hole. I was sent for an MRI then saw an
orthopedic surgeon. He diagnosed a torn quadriceps tendon and
advised surgery. Again his reading of the MRI seemed like
guesswork to me, but he worked at the hospital and seemed quite
sure. I was on the gurney w an IV when he came in to "mark" which
knee to cut. I showed him the swelling had gone and the knee
seemed fine. He poke around, shook his head, cancelled surgery,
and gave me cream to rub on the sore calf muscle. 4 calls into the
PCP doctor all went un-returned. The weekend came and my shoulder
started hurting. I developed a chronic cough and my right lower
back hurt when I breathed. I slept sitting up. Monday came and I
called ... read more

0 replies...

Does the clot return after treatment?
Posted by Carl
Last Reply January 3, 2017 at 22:49
Started January 4, 2011 at 20:18
I had a dvt extensive to mid thigh and had 6 months on Warfarin. I am very anxious after being off it for a month, I am getting tingling feelings from the start to the end of the supposably cured dvt, which isn't allowed to be re scanned after treatment - we are told that by the GPs that they assume it has gone and there is no need for further tests - so this is making me want to go to A&E to get assurance tests by way of scanning.
I am paranoid that the dvt could re develop in the same place from where it left off and travel upwards towards the groin. So this poses a few questions:
If there is a reoccurence can it be in the same place and follow extensively further from where it stopped?
Can a reoccurence happen this quickly after stopping medication?
How would I know if it is happening and going to my groin or pelvic vein?

Many Thanks in advance!

Carl, Bridlington, UK

9 replies...

shortness of breath on coumadin / warfarin
Posted by Claire
Last Reply January 3, 2017
Started May 14, 2010 at 01:56
has anyone noticed a shortness of breath being a side effect of being on
warfarin/ coumadin ? this happens to me sometimes, it really started after I had a
panic attack & that awful feeling of not being able to catch my breath freaked me
out. I know I can breathe because when I'm busy I forget about it.
it's horrible .

10 replies...

Iliac vein stents
Posted by Rachel
Last Reply January 2, 2017 at 20:01
Started June 30, 2009 at 18:02
Okay I am a 14 year old female and I have May Thurner Syndrome and I have a vascular surgeon Dr.Franz he is awesome! Well I have had 2 angioplastys and he is was not planning on putting a stent in until I was about 23 and stopped growing.Well he found a stenosis that might be growing and getting progressively worst.So he said that he will be putting the stent in in august after I go back for my regular 3 month appointment and testing as usual I will have a venous duplex(ultra sound)and an mrv.I currently have a dvt and have been on coumadin for 7 months when I go back to him in august I will come off the coumadin yay! I am worried about having the stent placed because I might grow and then I don't know what will hapopen and he said that once the stent is in there he can't move it. So yeah I am kind of scared.How was your or is your experience with the stent?!?

26 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply January 1, 2017 at 23:07
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

254 replies...

stopping warfarin
Posted by suzanne
Last Reply January 1, 2017 at 14:35
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

160 replies...

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