DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply June 30, 2015 at 10:27
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

71 replies...

stockings
Posted by Sonya
Last Reply June 29, 2015 at 16:38
Started May 13, 2012 at 05:46
I am still searching for the right grade of compression stockings without paying an arm and a leg-I need suggestions please. I believe I am wearing the 20 in a calf sock. Thanks

8 replies...

hiw long after having a DVT will they consider
Posted by Lindag
Last Reply June 29, 2015 at 16:29
Started June 28, 2015 at 16:03
I am currently waiting for a hip replacement operation. I have had 2 DVTs in the
past. I suspect I may have a 3rd (I have factor 5 Leiden). If I am right, how long
after the clot being diagnosed, will it be, before they will do the hip replacement ?
Any ideas? (I'm on warfarin for life but currently injecting enoxaparin as tge hip
op was planned for tomorrow but has just been cancelled)

2 replies...

Vascular surgery to remove hardened blood clot
Posted by Jim
Last Reply June 28, 2015 at 23:50
Started May 9, 2012 at 20:47
I have DVT in the left leg, was given Warfarin as my only treatment. Three months later, I was discharged by a vascular surgeon, told to wear a sock and "handle it." WEll, I am not going to "handle it."

I will now get a second opinion and will not back down until I find a vascular doctor and an interventional radiologist to remove the hardened clots in my leg.

Could anyone share their success stories regarding surgery to remove hardened blood clots?

49 replies...

I am now a warfarin "lifer"!
Posted by Ken
Last Reply June 28, 2015 at 11:12
Started March 25, 2011
Been on warfarin since Sept 1st 2010. Took it for 6 months and recently was taken off of it March 1st. Been riding my mountain bike too. On the 17th my calf started to swell again. Went into ER and had them do an ultrasound. They didn't think I had a clot and said there was nothing new, but they gave me Lovenox. Called my IRadiologist on the 21st and told him my calf was hurting and I thought I had a clot. He said I didn't. Went to my Hemotologist yesterday and he rushed me in to get another ultrasound. They told me I have another clot from my calf to halfway up my thigh. My Hemotologist informed me that I am now a "lifer" with Warfarin! I am so excited, I want to throw a party! He told me in 2 to 3 years they might have a product out of Europe that is safer. Until then, Champagne wishes and Caviar Dreams and bloody cerebral hemorrhages..... ultimately we are all dead losers. It's just the "quality" of life while we are alive we try to improve. But in the end we all lose..... read more

22 replies...

Dvt or pe?
Posted by Desuzapro
Last Reply June 28, 2015 at 08:23
Started June 28, 2015 at 08:23
Hello I suffer from anxiety but last 2 weeks I got some little pain and my legs
seem weeker I also have shortness of breath without chest pain. I went to my go
but he said it was from anxiety but anyway he ordered d-dimmer test which
results came negative I have no swelling or redness on my legs just a little bit
pain in both legs and arms could it be dot or pe?

0 replies...

how soon can I fly after a dvt
Posted by marie hall
Last Reply June 28, 2015 at 05:33
Started April 4, 2006 at 15:57
I am taking doxium 500mg 2 a day and 1 aspirin a day, have been on clexane injections for 8 days 2 to go and I have finished

thankinf you in advance


69 replies...

Warfarin destroys your bones!
Posted by Ken
Last Reply June 26, 2015 at 18:15
Started April 12, 2011 at 18:50
Osteoporosis

Anyone having major problems out there with Warfarin destroying your bones? Any fractures? Vitamin K in necessary for the health of your bones and Warfarin blocks it out.

After initial reports that warfarin could reduce bone mineral density, several studies have demonstrated a link between warfarin use and osteoporosis-related fracture. A 1999 study in 572 women taking warfarin for deep venous thrombosis, risk of vertebral fracture and rib fracture was increased; other fracture types did not occur more commonly.[22] A 2002 study looking at a randomly selected selection of 1523 patients with osteoporotic fracture found no increased exposure to anticoagulants compared to controls, and neither did stratification of the duration of anticoagulation reveal a trend towards fracture.[23]
A 2006 retrospective study of 14,564 Medicare recipients showed that warfarin use for more than one year was linked with a 60% increased risk of osteoporosis-related fracture in men; ... read more

24 replies...

INR Changes
Posted by Helen
Last Reply June 25, 2015 at 21:29
Started November 18, 2009 at 19:10
Hi I had a clot in my left thigh when I was 29 weeks pregnant. Since having my baby in June I have been on warfarin and was told I would be on it for 6 months. My INR levels have been stable around 2 for most of the time I've been on it. In the last month my INR level dropped to 1.9 and now to 1.7 so I've had to increase my dosage. I don't know what may have caused this as I have not changed my diet. Can feeling stressed or an increase in exercise affect your INR. I was really hoping that I would be able to stop the warfarin next month but now I'm not so sure. Just wondered if anyone else had a similar experience and if they have any advice?


60 replies...

Iliac vein stents
Posted by Rachel
Last Reply June 25, 2015 at 18:53
Started June 30, 2009 at 18:02
Okay I am a 14 year old female and I have May Thurner Syndrome and I have a vascular surgeon Dr.Franz he is awesome! Well I have had 2 angioplastys and he is was not planning on putting a stent in until I was about 23 and stopped growing.Well he found a stenosis that might be growing and getting progressively worst.So he said that he will be putting the stent in in august after I go back for my regular 3 month appointment and testing as usual I will have a venous duplex(ultra sound)and an mrv.I currently have a dvt and have been on coumadin for 7 months when I go back to him in august I will come off the coumadin yay! I am worried about having the stent placed because I might grow and then I don't know what will hapopen and he said that once the stent is in there he can't move it. So yeah I am kind of scared.How was your or is your experience with the stent?!?


21 replies...

How Accurate Are D Dimer Tests?
Posted by Kerri
Last Reply June 25, 2015 at 14:49
Started February 1, 2011 at 20:59
I had a D Dimer test reccently due to pain in my groin it came back negative so the doctor sent me home with pain meds, I haven't taken them cause I hate taking pain medicine but anyways the pain is still there so I was wondering just how accurate D Dimer tests are could it have been wrong?

11 replies...

My INR is 1.1 is that ok?
Posted by Carl
Last Reply June 25, 2015 at 13:38
Started May 14, 2010 at 16:54
Hi,

Ive been on the injections for 6 days and warfarin for 3 days and my first INR came back as 1.1. The Nurse said this was normal. As a second opinion is this ok?

Thanks

16 replies...

DVT and night sweating
Posted by Farid
Last Reply June 24, 2015 at 17:21
Started May 15, 2014 at 16:35
Hi everybody..
I have been diagnosed with a massive dvt 3 weeks ago. At night I wake up with a very heavy sweating that all my clothes are wet. I know it is normal symptoms but I wonder if there is a way to treat it or at least to reduce it??


3 replies...

DVT PTS and Venowave
Posted by Martha Moon
Last Reply June 24, 2015 at 14:54
Started August 10, 2011 at 09:20
I developed my first DVT over a year ago. It was incredibly painful I
was taking pain meds around the clock. Finally the pain subsided after
about 6 weeks and a full month off work. I gathered info on the
Venowave. It seemed to get mixed reviews here however I went for it out
of desperation to get back to work. So far I am showing virtually no
signs of PTS which was my greatest concern and the anxiety of developing
another DVT is eased by wearing the Venowave. I know the coast is not
clear for PTS yet, but all looks good this far and I am pleased.

127 replies...

Stents in the Iliac Vein and exercise
Posted by Donna
Last Reply June 24, 2015 at 06:23
Started April 20, 2008
Hello,
Are there any restrictions to do strenuous exercises if you have stents in your Iliac Vein (Abdomen)?

9 replies...

post knee surgery dvt prevention
Posted by kb
Last Reply June 24, 2015 at 05:36
Started November 12, 2009 at 22:39
Hello all...anyone have experience with DVT prevention measures before and after a knee surgery?
History: I had a DVT in my left calf, bi-lateral PE's, about a year ago. Did the coumadin treatment for 6 months and got the all clear. The cause of the DVT was a torn MCL in my left knee combined with long haul air travel. I got the MRI done this past spring to prove the tear, but my knee doctor wanted to wait until I was off warfarin before surgery. I decided to wait until summer was thru and now I am planning the surgery this December.
Since I have had a DVT now, I am concerned about getting another. Knee surgery's can be an easy cause of DVT's...of course we have an advantage of knowing and taking precautions. I believe I will be back on coumadin for a few weeks after surgery...just would like advise from anyone that might of gone through this and see your recommendations.
Thanks. kb

30 replies...

Xarelto
Posted by Dharma
Last Reply June 23, 2015 at 22:18
Started May 5, 2013 at 15:55
Just wondering if anyone is taking Xarelto instead of the other more common blood thinners. I was on Coumadin for several months after having my chronic (2 year old) dvt removed and stented and since January have been on xarelto. I feel 100% better on this newer blood thinner and I am symptom free. The Coumadin made me tired, bruised and caused severe hair loss. The switch to xarelto was my hematologist idea. He said it is as good at preventing clots as Coumadin. I know there is currently no known reversal agent but I live a pretty low risk lifestyle so for me it is worth the risk.

I have been on it everyday since January 2013 and plan on taking it for at least another year...maybe longer. Has anyone else been put on this for dvt prevention? If so have you had any side effects?

80 replies...

ARE LOVENOX SHOTS SAFE TO TAKE LONG TERM..
Posted by JEAN
Last Reply June 23, 2015 at 20:10
Started August 9, 2008 at 05:45
I WAS DIAGNOST WITH A DVT IN MY CALF IN MARCH 08 ... I WAS PUT ON LOVENOX AND THEN WARFARIN THERAPY.. SINCE THEN I HAD ANOTHER ULTRA SOUND AND TWO MORE CLOTS HAVE DEVELOPED ONE IN MY THIGH AND THE OTHER IN MY GROIN. I HAVE NOT SEEN A SPECIALIST.. JUST MY HOME TOWN PA.. AND THEY NOW HAVE TAKEN ME OFF WARFARIN AND STARTED ME BACK ON LOVENOX ... UNTIL I CAN SEE A SPECIALIST... IT LOVENOX SAFE TO BE ON CONTINUOUSLY? I WAS ALSO TOLD THERE WAS NO GOING BACK TO WARFARIN ONCE I CHANGE TO LOVENOX... HAS ANYONE ELSE EXPERIENCED THIS...? WHAT WOULD CAUSE ME TO CREAT NEW BLOOD CLOTS WHILE ON THERAPY... PA FEELS I DEVELOPED DVT DUE TO LONG SITTING.

32 replies...

DVT
Posted by Jane
Last Reply June 23, 2015 at 20:05
Started June 23, 2015 at 18:37
I recently got diagnosed with a DVT in my lower extremity. I live in Southern California and am looking for a really good Vascular surgeon who specializes in treating DVT's. Does anyone have any suggestions??

1 replies...

Pain relief for d.v.t.
Posted by Marika
Last Reply June 23, 2015 at 14:48
Started April 15, 2008 at 23:53
My husband (68) has had a d.v.t. in his calf for 1 week. He is in agony if he does anything other than sitting with his leg elevated. He is taking Tramacet (Tramadol + paracetamol) but to be honest it only helps for a relatively short while. Is there anything else which might be more effective? And - will the pain lessen when his INR reaches the right level, or is it determined by something else? Please help...

46 replies...

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