DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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warfine
Posted by william noble
Last Reply September 25, 2014 at 15:43
Started September 25, 2014 at 15:43
why am i busting a nut in 10 seconds now ???

0 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply September 25, 2014 at 11:21
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

53 replies...

Anyone had only 1 DVT and how long ago?
Posted by Sarah
Last Reply September 25, 2014 at 07:44
Started September 25, 2014 at 07:44
Hi, I am due to come off warfarin end of next month, they say it was caused from my contraception injection and possibly my brca1 gene. I cannot find any happy stories of people not having a recurring clot and I'm worrying about having another and being on warfarin for life. My first 7 weeks on warfarin have been horrendous, enflamed intestines, pressure all through my internal organs, couldn't function, nausea, hairloss, memory loss and pains throughout my body. Look forward to reading all replies

0 replies...

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Last Reply September 24, 2014 at 23:56
Started September 24, 2014 at 23:56
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Side Effects?
Posted by Emmab
Last Reply September 24, 2014 at 13:00
Started June 3, 2008 at 14:51
Hi All: Well, my husband has been on Rivaroxaban now since mid April. We have to go on this research study until Mid July and then hopefully get another dopplar and his knee surgery.
Since this med is still like Coumadin, I'm wondering what the side effects are of Coumadin? He's been getting queasy and having tummy trouble. They only check his blood about every four weeks or so and are supposed to tell him if anything is wrong. Very scary. I wish he had chosen the old fashioned route, but he didnt and doesnt want to quit now.
He has no swelling, no bleeding issues, no more clot pain (though hard to tell since his knee is shattered at the moment).
Anyway, wondering if queasy is normal or no?

13 replies...

warfarin due end date tomorrow what now?
Posted by Joanne
Last Reply September 24, 2014 at 03:42
Started September 11, 2014 at 06:19
Hello
I am wondering if my end date is tomorrow I am also having my INR tomorrow too, what is the procedure for coming off warfarin? I have 2 superficial thrombohlebitis in my calf have been on the ward for 3 months after Clexane. Is that it now? Will they check if clots are there or is it ok just to stop? Will they reduce dose? Apprehensive but glad.

6 replies...

How Long Did You have a clot for be diagnoses
Posted by Andy, UK
Last Reply September 24, 2014 at 03:40
Started August 18, 2014 at 20:21
Hi

If you don't have swelling or redness, how do you know you have a clot or how long you have had it ?

I was diagnosed in February with multiple PEs in my right lung, how ever I think I had something effecting my breathing from a year before, I wasn't collapsing but when exercising I felt I couldn't get a full lung full of air. I then thought I had a clot when I had a heaviness in my leg last June 2013 and went to a medical drop in centre and was told "thats not a clot" so thought just forget about it.


I was then lying in bed last September and got a pain in my calf and then my heart started bursting out of my chest and sweating badly. I then developed a ache in my right chest.

As I was feeling wierd I went for a health check at a private, hospital, they did ECG and at them end told me there was nothing.
When I got the lung test results in it said lung age was 58, and being only 37 and never smoking I thought this was strange.

I then got to last December and once ... read more

3 replies...

DVT DIABETIC
Posted by FRAN
Last Reply September 24, 2014 at 01:51
Started September 24, 2014 at 01:51
I keep my sugar level normal due to diet and metformin if so why do I have dvt?

0 replies...

diabetis type 2 with dvt
Posted by fran
Last Reply September 24, 2014 at 01:49
Started September 24, 2014 at 01:49
I keep my sugar level normal due to diet and metformin if so why do I have dvt?

0 replies...

diabetis type 2 with dvt
Posted by fran
Last Reply September 24, 2014 at 01:48
Started September 24, 2014 at 01:48
I keep my sugar level normal due to diet and metformin if so why do I have dvt?

0 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply September 23, 2014 at 23:59
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

77 replies...

Xarelto
Posted by Dharma
Last Reply September 23, 2014 at 22:47
Started May 5, 2013 at 15:55
Just wondering if anyone is taking Xarelto instead of the other more common blood thinners. I was on Coumadin for several months after having my chronic (2 year old) dvt removed and stented and since January have been on xarelto. I feel 100% better on this newer blood thinner and I am symptom free. The Coumadin made me tired, bruised and caused severe hair loss. The switch to xarelto was my hematologist idea. He said it is as good at preventing clots as Coumadin. I know there is currently no known reversal agent but I live a pretty low risk lifestyle so for me it is worth the risk.

I have been on it everyday since January 2013 and plan on taking it for at least another year...maybe longer. Has anyone else been put on this for dvt prevention? If so have you had any side effects?

77 replies...

Mirena Coil
Posted by Miriam
Last Reply September 23, 2014 at 22:35
Started October 23, 2009 at 22:16
Having just had a baby and a very tough pregnancy, I want to wait a good long while before going through it all again. I was told the mirena coil is a safe form of contraception for anyone who has had a DVT. Is there anyone out there who have had one fitted, and if so do you recommend it? Thanks

13 replies...

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0 replies...

I just stopped warfarin tonight
Posted by Sick and Tired
Last Reply September 22, 2014 at 21:49
Started February 17, 2014 at 16:13
My decision, sick of the nausea and the pain.Either I stop the warfarin now or it'll finish me.

Should be on it for life.I have no life on it.Have been back and forth to doctor and casualty for weeks begging for something to end the nausea, nothing works.Have been on it for three months.

please don't say I am stupid I feel bad enough already.

19 replies...

INR levels
Posted by Rob Shore
Last Reply September 22, 2014 at 18:57
Started September 21, 2014
Reply #4 by Rob shore Posted: September 21, 2014
Hello again,
Thanks for the feedback. I appreciate the time taken for your responses to my
questions.
I am still on warfarin, but am battling to maintain my INR levels within the range.
One 5mg pink tablet daily, for a week, has my readings at 1,4.
Two x5mg tablets daily for a week, sets my levels at 4,4..
I am now doing fluctuating doses daily, but no combination i have tried yet, keeps
me constant within the range.

Any suggestions out there my fellow ratpoison users?
Regards
Rob


3 replies...

My DVT experience and questions
Posted by Melissa
Last Reply September 22, 2014 at 18:24
Started July 6, 2010
Hi!

I'm 24, female, and about three weeks ago was admitted to the hospital for 7 days due to a big DVT in my right leg spanning from my groin to my ankle, blocking the entire vein. They believe it was caused by the 1.5 months I spent on birth control, but we don't yet know if I have Factor Five.

I got out the hospital on a Tuesday, stayed home to rest on Wednesday, and returned to work Thursday and Friday. The docs wanted me to walk/use the leg the best I could, and I guess I took their advice a bit too literally! I was hobbling around using pretty much only my calf muscle to push off the ground and crutches to navigate long hallways and stuff (I work between a high school and an office) and by Saturday night I was back in the ER because not only was my calf in searing pain anytime it was in motion at all, but it was swelling a little more. I ended up back in the hospital for 3 days. They offered to put a catheter in the vein and fill it with mega-clot-busting meds but the r... read more

12 replies...

Life After Coumadin
Posted by coumadinsucks
Last Reply September 22, 2014 at 12:56
Started September 22, 2014 at 12:56
I had a PE in February from a DVT in my upper arm. I was put on Coumadin and suffered for over 6 months with migraines, chest pains, shortness of breath and vertigo. I thought I was dying or had cancer or something, but doctors kept telling me that it was my imagination or just anxiety attacks and that there was no way that coumadin was causing my symptoms.

I got off Coumadin in the beginning of August and I started feeling like my old self after three weeks. No more headaches, no more chest pains and no more shortness of breath or vertigo.

There are people who have the same reaction that I did to Coumadin. If you are one of those people, then look into getting off of it and don't let the doctor tell you that you are just suffering from anxiety. When I was on coumadin stress from work would almost always cause a migraine and chest pains and I never had those symptoms before coumadin. Three weeks later, I still had stressful work situations, but I had no issues.

I ... read more

0 replies...

DVT Doctors in Mumbai
Posted by Saj
Last Reply September 22, 2014 at 01:40
Started November 6, 2009 at 06:48
Hi

I would like to consult DVT specialists Doctors in Mumbai. I have only come across cardiovascular surgeons and would like to know of someone who has past experience of dealing in complicated DVT cases.

Regards

Saj

4 replies...

New to rat poison
Posted by Rob shore
Last Reply September 21, 2014
Started June 20, 2014 at 06:51
Hello world,
I am thrilled to be part of this forum. It is good to know, that warfarin does have
side effects.
I started on the juice 12 days ago. On the 13/6/14, my INR reading was 1,4.
Today, one week later, my INR reading is 1,6.
However, i seem to be experiencing a few side effects. I am battling for breath,
especially after a coughing bout. I cant inhale immediately, but have to wait until
my air passage opens up.
I am very fatigued. My other half says im moody, grumpy and very volitile with
the kids around making noises etc..
I was discharged from hospital a week ago after spending a week in hospital for
dvt. I have 6 of them from my ankle to my mid thigh area.
It still hurts like the blazes, but like most irritations in life, you get used to them.
Can anyone tell me how long the recovery period is?
Regards
Rob in REA

4 replies...

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