DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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D-dimer tests
Posted by NB
Last Reply December 15, 2014 at 03:58
Started April 25, 2007 at 14:07
Does anyone have any experience of d-dimer testing in relation to DVT ?

I was given a d-dimer test as part of my initial DVT diagosis - after the 2nd positive d-dimer they agreed for me to have an ultrasound scan of my leg. I have since read quite a lot about d-dimers in Research papers etc and there is some literature which points towards d-dimer measurement being a useful indicator of DVT recurrence.

Now that I'm off warfarin (after 6 month course) I pursuaded my GP to send me for a repeat d-dimer. Its come back positive again, although at a lower level then when I had my DVT diagnosis. He has suggested that I have another d-dimer in June but I am likely to be back on warfarin by then, as i am temporarily off while have my thrombophilia tests done.

Does anyone know if d-dimer readings can be affected by warfarin (coumadin) - my GP was a little bit vague on this(!. I would also be interested in whether any of you have been having regular d-dimer tests or know any more abou... read more

6 replies...

coming off warfarin with a vena cava filter
Posted by alan
Last Reply December 14, 2014 at 15:12
Started April 2, 2010 at 03:38
hello all im alan im 26 in aug 08 i was diagnosed with dvt throughout my left leg and 3 clots in my lungs one large one in right side two (i guess you would say normal sized) in my left. the vena cava filter was put in and have been on warfarin since.

doctors said im lucky to be alive, and dont understand how im still alive and so on so forth.

my doctor told me on my last visit that he wanted to take me off of the warfarin next month. it kinda worries me because of the filter being there, and was wondering is this safe? has anyone here been taken off warfarin with the filter? and what was their experiance with this?


21 replies...

PE Pain :How long?
Posted by Kim
Last Reply December 13, 2014 at 06:28
Started May 7, 2010 at 04:15
Hi, About 3 weeks ago I was diagnosed with a PE in my right lower lung. I am currently on Warfarin and still learning how to balance my levels. My question is, how long does the pain last? I understand that inflammation takes time to heal and not being able to take anti-inflammatories drags it out. I have been taking tylenol for the pain and hot compresses for the inflammation. It seems like everytime I think it is getting better, it flares up and I'm back to square one. It is worse at night and quite frustrating. I have spoken with my primary and pulmonologist and neither seemed to be concerned, should I be?

8 replies...

DVT ( or post ) and weather
Posted by Rui
Last Reply December 13, 2014 at 03:50
Started November 26, 2008 at 23:09
anuone know whether weather/temperature has any effect on post dvt syndrome or dvt???

15 replies...

Stents for May Thurner Syndrome
Posted by Leann
Last Reply December 13, 2014 at 02:00
Started June 30, 2009 at 18:25
Can anyone help? I'd like to hear of anyones experience of having stents fitted due to May-Thurner syndrome.How was the pain after surgery? How long were you down? How soon were you back to your normal activity?I have had two angioplastys and After surgery I had to lay flat on my back without moving for 6 hours and then I was sent home that evening.Will it be similar to anything like this? Any advice to get me through this would greatly appreciated. I will be having a stent placed due to May Thurner Syndrome in Late August.I am 16 years old.

Thanks!

9 replies...

As much as you can nice tight
Posted by ammad roy862
Last Reply December 13, 2014
Started December 13, 2014
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0 replies...

Tooth extraction while on warfarin/coumadin
Posted by Michael
Last Reply December 12, 2014 at 23:13
Started October 30, 2008 at 14:14
Hi guys,
Just want to know if anyone of you had experienced tooth extraction while on warfarin/coumadin? Is the risk of bleeding too high?
Because I have a severely painful tooth which I wanted to be extracted asap. I am on my 3rd month of warfarin. My hematologist wants me to finish to 6 months.
Thanks!
Michael


57 replies...

flying while still having dvt
Posted by magnet
Last Reply December 12, 2014 at 19:37
Started September 5, 2007 at 07:52
i am due to go on holiday in two weeks.the flight is for two and half hours.Has anyone else flown while still having dvt.i know that i will have to use socks and move my leg around but has any one else got any other advice.
i have the dvt in my left low leg.
i am 32 years old

50 replies...

When is it OK to return to work?
Posted by ergomaniac
Last Reply December 12, 2014 at 15:36
Started February 14, 2008 at 12:39
Hi everyone. I am totally new to this area and am struggling to get information. Brief history is that 2 weeks ago I was diagnosed with bilateral lower limb DVT and bilateral pulmonary edema. I was started on Fragmin injections with coumadin whilst I was in hospital but then when I went home it was just the coumadin. I am only 40 and have a hectic physical job and a 3 hour commute to and from work each day. I know it is all individual but I'm just trying to get a handle on how long most people tend to have to stay off work for. The doctors are still trying to stabilise my INR - last night it dropped to 1.6 so I had to go to the hospital to get a Fragmin shot and they doubled the coumadin dose to 6mg. Any help/advice for a newbie would be very gratefully received. Thanks :)

15 replies...

I stopped taking my warfarin and I am at 1.0
Posted by Barbara
Last Reply December 12, 2014 at 08:37
Started December 11, 2014 at 23:07
I have had 2 blood clots and am supposed to be on warfarin for the
rest of my life. I have stopped taking it for 3 weeks and my inr is
at 1.0. Is that okay and is there another alternative besides
Warfarin that I can take?

2 replies...

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Posted by ammad roy860
Last Reply December 12, 2014
Started December 12, 2014
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0 replies...

I stopped taking my warfarin and I am at 1.0
Posted by Barbara
Last Reply December 11, 2014 at 23:03
Started December 11, 2014 at 23:03
I have had 2 blood clots and am supposed to be on warfarin forever,
but I quit taking it about 3 weeks ago. My inr is 1.0 is that okay?

0 replies...

bruising while on warfarin
Posted by suzanne
Last Reply December 11, 2014 at 15:31
Started September 14, 2009 at 19:41
Was just wondering why you get asked when go for inr test if you have any unexplained bruising?I have noticed today that i have 3 small bruises on my dvt leg,but cant remember knocking my leg.

52 replies...

on medicine for life: share your experience
Posted by Frank
Last Reply December 11, 2014 at 14:26
Started December 11, 2014 at 14:26
After 2 1/2 years of my first DVT, I got diagnosed with my 2nd DVT and now am on
Xarelto for life. Right now, it seems like a daunting prospect. What will I do if I need a
surgery? Should I exercise? Should I see a dr. with every headache?

There was another thread here for how long people have been on Coumadin and several
folks replied in excess of 10 years. Some even going 30-40 years. If you are one, do you
mind sharing some life experience with us? What you would have done differently ó-
wear compression stockings, put more lotion, lose weight :) Did you ever have a surgery
or bleeding?

0 replies...

one of the best shooting games in mobile industry
Posted by mass effect
Last Reply December 11, 2014 at 08:35
Started December 11, 2014 at 08:35
This type of first person shooter games is a fresh way of spending a little free passtime on your smartphone. That superb and fresh first person shooter shall take you away into a world of fun. Mass Effect was actually based on this mobile game. When you fight away with some of cyber enemies. Mass effect at it's best. Do not look back and proceed doing the shooting. Call of Duty: Modern Warfare is what really gives fun to the player. When the grim dark nightmare of far future, there is nothing but combat with robots. Frontline commando fights in far battlefield in mass effect. The game is made using easy tap controls for your entertainment. This type of first person shooter games are the doom of player's free time. Battlefield is a game for android and it is not impossible to get it on android market. That first person shooter app will set you free. Try and place yourself in this mass effect like experience.

0 replies...

First DVT - How long to stay on warfarin?
Posted by Marie
Last Reply December 11, 2014 at 03:48
Started December 10, 2014 at 19:11
I've been diagnosed with my first DVT in my left leg, and I was wondering how long do people usually stay on blood thinners with their first DVT diagnosis? I am worried about possible future blood clots. And I would rather stay on warfarin than stop taking it and end up having to go through the process of diagnosing a new clot later on.

1 replies...

Exercise after massive DVT?
Posted by Jennifer K.
Last Reply December 10, 2014 at 08:20
Started July 3, 2006 at 01:13
I was 35, fit, healthy, never took birth control pills, no serious injuries... and then out of nowhere I had a massive dvt in January 2005 and nearly died. My left leg and left side of abdomen and groin were affected and I am still using a walker (frame) to get around. I'm on Coumadin daily, and also am eating some spinach every day (for me, the vitamin k helps my inr levels to stabilize).
I have gained approx. 100 lbs and am by far the largest I have ever been. My doctors tell me in the same breath that I must lose weight, but to not do anything to elevate my blood pressure (which is low) or my heart rate!
There's a serious risk with having lyposuction, etc, so other than that, how am I supposed to lose weight?! I DO watch what I eat, am careful about what I eat and how much and am eating far less than what I ate when healthy and fit (pre-dvt), but I'm huge. My pharmacist pointed out side effects to Coumadin such as weight gain, insomnia, hair loss, and I have all the side effec... read more

341 replies...

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Last Reply December 10, 2014
Started December 10, 2014
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0 replies...

PAIN WHEN WEARING COMPRESSION STOCKINGS
Posted by JACOB
Last Reply December 9, 2014 at 09:19
Started March 28, 2012 at 22:30
Hi everyone. Im Jacob, age 29. After the last DVT in January 2012 (4th
in my life) I was put on warfarin for a life-time. I was also advised
to wear those bloody compression stockings. Everyone says they are a
must, and they do the job. But I just cannot wear them.

I got one in Poland and I could not wear it at all. It caused a pain.
The skin around my ankle is already very soft and I felt very
uncomfortable after 20 minutes of wearing that bloody sock !

And now Im living in the UK... they gave me another sock. The leg was
measured etc. but unfortunately it is the same thing. Pain and pain.
It makes more pain than it is without that stocking.

Has anyone experienced that as well ? What should I do? If I don't
wear that stocking, is it gonna be more harmful for me ?

Pls help !

27 replies...

DVT - Liver Cancer
Posted by Khurram Ali
Last Reply December 9, 2014 at 07:35
Started May 21, 2010 at 21:11
My mother is diagonsed with liver cancer in January, 2010 and after having several operations she seems to be recovering. But since yesterday their is too much swellen and pain in her leg, Doctors have told that this is because of blood clotting and now she is in hospital for treatment, her age is 50 years. Can any one tell me does this blood clotting is cureable or not and how long does it take for her to come back from the hospital and what precautionary measures are required? Is it life threatning ? I live in Dubai and my mother is in Pakistan so doesnt have access to all the names of medicines which the doctors are giving to her rite now but she is under observation in hospital.

Does the cancer has any thing to do with this blood clotting ?

Any advice or details about this disease will be helpful. plz email me at

khurram_016@hotmail.com

13 replies...

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