DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Pls Explain
Posted by Bharati
Last Reply October 17, 2014 at 05:34
Started February 24, 2009 at 04:26
Hii Friends
I got Low INR In my last blood checkup. [ 1.4 to 1] now after changing my tablet into 5 mg it showed two days back my INR as 1.7
i was totally avoided carrot and root items and spinach and took plenty of water and glucose also perday two times [ totally 8 spoons glucose]. i kept watching my diet without rice much and i took chapati instead. within 8 days i got result as 1.7. my question is due to my tab5mg or due to my diet? really dont know the logic of this DVT. i m willing to work soon. so naturally i have to be away from my family and will have outside food. so i need some suggestion regarding food taking from outside. will it affect my INR level? if anyone comeacross any problem like this pls let me know.
thanks in advance.

16 replies...

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Last Reply October 17, 2014 at 02:59
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Started October 16, 2014 at 20:06
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Last Reply October 15, 2014 at 22:03
Started October 15, 2014 at 22:03
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Speculation about the cause of my DVT
Posted by DanainSeattle
Last Reply October 15, 2014 at 20:33
Started May 6, 2011 at 18:28
Hello again, I just wanted to run a theory past any of you who might be interested in offering your opinion.

Today is 2 months since my diagnosis with DVT. I have (or had) 4 clots in my left leg, and 1 in the right. I walked around in pain for at least a month before we figure out what was going on, mainly because DVT was just not on anyone's radar.

I'm 42, not a complete couch potato, and although I have cystic fibrosis, I am in fairly good health overall. No family history of blood clots. There was no injury or surgery that preceded my clots. I've been tested for a variety of clotting disorders, and only one test (the russel viper's venom) came back abnormal. My hemotologist dismissed the results of that test, since I am currently on coumadin.

So...what caused my clots? My theory- motorcycling. I have run this past a couple of docs, and they don't bite, but I am beginning to think this is the most likely culprit.

I started riding again about 2 years ago, after an ext... read more

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No IVC
Posted by Jan
Last Reply October 15, 2014
Started October 13, 2014 at 02:40
Almost 5yrs ago I was diagnosed with an
occluded DVT of the left leg and abdomen.
When CT was performed I was also informed
I did not have a IVC. I had thrombolysis
preformed 4 days after clot formation.
Only to have it fail and I reclotted.
Dr's are now going to do a MRI to see if I
am a candidate for some type of bypass
surgery. I am interested in seeing if
anyone else was born without a Inferior
Vena Cava (IVC)? If so what type of
treatment have you had. My pain in getting
worse by the month. I am at a loss I don't
want to do anything any more. Laying
around legs kill me if I am up doing
things I am also in pain. I am just
looking for anything that could help me.

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Last Reply October 14, 2014 at 08:51
Started October 14, 2014 at 08:51
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Rash from Stockings
Posted by Naomi
Last Reply October 14, 2014 at 04:39
Started February 3, 2011 at 17:35
Hey all,

Anyone get a rash at the top of their thigh from the compression stockings? I was fine for the past 7 months wearing them but all of a sudden if I wear it for more than 2 days consecutively, I get a rash on the top of my right leg (DVT leg). It goes away if I stop wearing the stocking but given that it's my bad leg, I need to wear it. Anyone have any ideas on how to prevent that?

I've tried changing the soap to wash them in and cleaning the rubber top with different things.

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Last Reply October 14, 2014 at 04:39
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Sex drive and warfarin
Posted by Lucy
Last Reply October 13, 2014 at 18:38
Started January 14, 2010 at 01:12
Hi...
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,
Lucy

76 replies...

Degrees of clots ?
Posted by Melissa
Last Reply October 13, 2014 at 13:11
Started October 12, 2014 at 13:34
I am just curious if their are different "degrees" of clots? What I mean is, when I
went to ER my leg looked nothing like the pic above. If you looked closely it was
Slightly different coloring than other one and a bit swollen. Doctor measured 3 or
4 places in each leg, and only the mid calf one was 2.5 cm bigger than the other
leg. I have a clot from knee to ankle, it really just feels like Charlie horse but hurts
worse the more I walk in it. Everyone is surprised I was let go thru ER. I was put
in 120mg luvenox shits 2x a day and 5-7.5 mg Coumadin at night. I think they let
me go because I also have Rheumatoid Arthritis and am quite adept and shooting
myself with shots. OR could it be my clot is minor? A smaller one? A safer one? I
am scrounging for any good news just now. Also why did they not have me put in
pressure stockings? Or even mention it? Thanks!!!!

2 replies...

Going back to work??
Posted by Melissa
Last Reply October 13, 2014 at 09:55
Started October 13, 2014 at 09:55
I had a clot from knee to ankle, on luvenox and Coumadin. Calf still throbs and
aches worse when I walk. My job is for a dentist, but basically I run on my feet
constantly like an ER nurse? Will I ever be able to go back to work? Does
throbbing and pAin lessen as clot dissolves? Just trying to plan my life!!!
Thanks!

0 replies...

lifelong warfarin
Posted by dale
Last Reply October 13, 2014 at 02:45
Started October 10, 2014 at 09:06
I've been taking warfarin for 12 years as I have a congenetal absence
of ivc. Of late I've been feeling really unwell. I'm 100% sure its the
warfarin. I'm only 34 and I'm fit. I'm really active. What is the best
alternative to warfarin? I have to be on blood thinning meds for the
rest of my life and ideally don't want to feel sick until the day I
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1 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply October 13, 2014 at 01:45
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

58 replies...

does swelling always 'pitt?'
Posted by mimms
Last Reply October 12, 2014 at 14:41
Started October 12, 2014 at 14:41
Hi, just wondered on this one. If an area looks swollen due specifically to venous issues does it always pitt?

My old dvt leg looks swollen to me around the knee and I've been having a few odd pangs and heaviness this week but when I press on the affected part it doesn't really leave a mark. Des this automatically mean there is no swelling?

0 replies...

Multiple PEs (DVT), Coumadin Side Effects!!!
Posted by Jonathan A
Last Reply October 12, 2014 at 11:14
Started November 11, 2009 at 17:04
Hi,

I'm a 23 year old male recently released from the hospital with multiple bilateral pulmonary emboli. Doctors said there was major blockage with infarction in both lungs. Massive clots.
Ultrasound revealed no additional clots in the legs which is good news.

Tests revealed genetic pre-disposals (Protein C deficient) so I'm a lifer for coumadin.

Started dose at 10mg per day, then slowly dropped to 7.5, then 5 and now at 2.5 after a week at my INR being over 4. I'm in the low 3s and have my next blood test here in about an hour. While I was in the hospital I was taking 2 lovenox injections per day. After 7 days of Lovenox they took me off and now I only take the coumadin. I've been on coumadin since Oct 21, its now Nov 11.

I started noticing some side effects, but after reading here and other sites I'm very concerned that nothing is going to help.

I have extreme lower back pain. Headaches every single day. Frontal lobe headaches that hurt worse when I cough. I have ... read more

19 replies...

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