DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Anyone else taking Xarelto?
Posted by Ken
Last Reply July 19, 2014 at 13:50
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

124 replies...

How long have you been on Warfarin?
Posted by Tina
Last Reply July 19, 2014 at 08:15
Started May 18, 2010 at 21:00
Hi, I have just found this forum, can't believe I've not seen it before!

Anyway, I have just replied to another post and it occurred to me, who
has been on Warfarin the longest? I have been on it for 16 years, has
anyone else been on it this length of time?

I have recently been starting to worry about the long term side effects
but my doctor just says it's the side effects of not taking it that I
should be worried about ie getting another clot :-(

20 replies...

Too much Coumadin Warm feeling?
Posted by Mike L.
Last Reply July 19, 2014 at 03:56
Started September 14, 2008 at 05:38
Hi I was wondering if any of you when your INR or coumadin level is too high do you get the same warm flush then a slightly eratic heartbeat that I get every other day or so?

14 replies...

bruising while on warfarin
Posted by suzanne
Last Reply July 18, 2014 at 23:00
Started September 14, 2009 at 19:41
Was just wondering why you get asked when go for inr test if you have any unexplained bruising?I have noticed today that i have 3 small bruises on my dvt leg,but cant remember knocking my leg.

49 replies...

Xarelto
Posted by Dharma
Last Reply July 18, 2014 at 16:55
Started May 5, 2013 at 15:55
Just wondering if anyone is taking Xarelto instead of the other more common blood thinners. I was on Coumadin for several months after having my chronic (2 year old) dvt removed and stented and since January have been on xarelto. I feel 100% better on this newer blood thinner and I am symptom free. The Coumadin made me tired, bruised and caused severe hair loss. The switch to xarelto was my hematologist idea. He said it is as good at preventing clots as Coumadin. I know there is currently no known reversal agent but I live a pretty low risk lifestyle so for me it is worth the risk.

I have been on it everyday since January 2013 and plan on taking it for at least another year...maybe longer. Has anyone else been put on this for dvt prevention? If so have you had any side effects?

72 replies...

flying with clexane
Posted by kyasa
Last Reply July 18, 2014 at 13:19
Started June 30, 2010 at 04:06
Hi all
I had a DVT and multiple PE in April last year caused by birth control pill, which I have since stopped taking. I have no other risk factors. I Was on Warfarin until Dec. Have had no problems since.

I am going on a 9.5 hr international flight in a few weeks. I have compression stockings to wear and my doctor has prescribed clexane injections. My question relates to the dosage of clexane.

My doctor said I should have one 60ml injection the night before my flight, another one 12 hours later (a few hours before boarding), and then a third injection 12 hours later (about an hour before landing). Are 3 injections necessary? Is it enough to just have one a few hours before the flight?

any advice would be appreciated, thanks.

26 replies...

Sauna/Steam room
Posted by Bill
Last Reply July 17, 2014 at 22:41
Started April 4, 2011 at 11:32
Does anyone know if it is ok to go in a sauna or a steam room when on
warfarin, would intensive sweating lower INR ?

3 replies...

Coming off Warfarin
Posted by Rob, UK
Last Reply July 17, 2014 at 09:55
Started October 2, 2010 at 09:36
I have been advised this week that I am to stop taking warfarin from
next Tuesday. After 6 weeks (this is the length of time I was told it
takes to clear my system), I will need to have a full blood check to
look for any genetic disorders etc.
I have been on warfarin since January this year, and although I am
'looking forward' to identifying the likely cause of my clotting
issues, I do have some trepidation about the sudden ending of my
medication. Will there be any noticeable 'cold turkey' symptoms or
contra- indications ? I am wearing compression stockings as instructed
and will continue my rather gentle walking regime at the gym- do you
know if it's safe to use the vibration equipment to improve my
circulation?
I have also been instructed to eliminate the risk factor associated
with driving up to 1000 miles per week for my job- so I am either
going to work from home, or if that is not considered a feasible
option, I will have to take long-term paid sic... read more

38 replies...

Blast of steam to end the pain of varicose vei
Posted by N
Last Reply July 17, 2014 at 09:25
Started October 22, 2010 at 07:22
A device that’s smaller than a ­matchstick and sprays super-hot steam into blood vessels is the latest ­treatment for painful varicose veins.

The steam ablation treatment has proven effective in shrinking and destroying swollen veins.
One week after the treatment, all the veins the device were used on were blocked, with no blood flowing through them. Researchers say the treatment has fewer side-effects than other therapies.

Varicose veins are enlarged veins, usually blue or dark purple in colour. They develop when small valves inside the vein stops working properly, ­leading to blood pooling in the area.

It’s not known why the valves weaken, although there are a number of risk factors, including gender — women are twice as likely to get them, possibly because oestrogen seems to have a relaxing effect on vein walls, making the valves more prone to leaking.

Other risk factors include a family history of the problem, being ­overweight and having a job ­involving a lot o... read more

2 replies...

stopping warfarin
Posted by suzanne
Last Reply July 17, 2014
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

119 replies...

WHAT I DID TO CURE MYSELF OF DVT
Posted by DogoYaro
Last Reply July 16, 2014 at 04:15
Started June 10, 2010 at 11:45
Hi All,


First time here, just to share my personal experience regarding DVT
and what I did to cure myself of it.

BACKGROUND

My job involves lot of sitting down, as I work on the computer. This
could be anything up to 12 or 13 hours a day. A while ago, I noticed
that my calf started aching as well as gradually getting swollen. I
didn't take much notice of it except to massage it or place it next to
the gas fire so as to help with the circulation.

I knew that my problem was due to my having to sit for hours and hours
on end on the computer. Anyway, as time went by, I started noticing
the veins in my legs become more pronounced, in addition to a constant
pain. I also noticed some sort of lump inside my right leg!

This gave me a lot of concern as I consider myself relatively fit,
being that I do physical exercises everyday, on the exercise bike, in
addition to dancing salsa on a regular basis.

Anyway, one day, I heard something about dvt on T... read more

11 replies...

Allergic reactions to Coumadin
Posted by Audrey
Last Reply July 15, 2014 at 17:49
Started August 30, 2009 at 19:48
Are there people out there who have had allergic reactions to Coumadin? What was your reaction and what changes took place with your treatment?

I posted early in the month, thinking that I might have been bitten by some kind of insect, but was not sure. My foot turned bright red and was itchy; however there was no real puncture spot from a bug bite. Ten days later, I still had swelling and redness. My doctor put me on antihistamines.

Since then, I have noticed three red areas on my stomach and thigh when I got out of the shower. At first glance, they appeared to be possible bug bites, but that did not make sense with my environment, dress style and habits.

This morning, I awoke to what appears to be hives on both my right and left wrists. I did fax my doctor to let her know what is going on and that I am taking Zyrtek. If I feel my throat swell or anything like that, I will definitely call the ER.

In the meantime, has anybody else gone through this and what was your out... read more

25 replies...

Bleeding Gums
Posted by Catherine
Last Reply July 15, 2014 at 12:14
Started March 7, 2008 at 11:37
Does anyone else find that their gums sometimes start bleeding for no reason while on warfarin?

I've been on it for nearly 4 weeks now and find that every so often my gums set off bleeding on their own (only for a few minutes and not excessively!) Often when I wake up in the morning I can see that they must have bled a little in the night!

My INR is always stable so it's not that - sometimes even eating a sandwich will set them off!!

Just wondered whether it happens to anyone else?!

Catherine UK

11 replies...

Diagnosed with DVT
Posted by Dindz
Last Reply July 15, 2014 at 10:37
Started June 24, 2014 at 23:52
hi guys...
Last month i knew i had the symptoms of DVT but unfortunately the 1st
hospital did not believe what im saying...they said I got cellulitis
and others...i have hospitalize for two weeks without the right
medicine...i took a 2nd opinion for DVT and they hospitalized me last
June 14, 2014...since that they i took enoxaparin and overlap it with
warfarin 6 days ago...i just wanted to know how long it will take me
to come back to my usual self? co'z im really have no idea what will
happen next and im really afraid about my condition...i really want to
have a piece of mind on how to handle this situation.
thanks in advance!!! :(

2 replies...

Swelling and strange feeling
Posted by JO UK
Last Reply July 15, 2014 at 04:31
Started July 15, 2014 at 04:31
Good Morning all,
I have 2 superficial clots in the back of my leg(calf) I am being
treated with warfarin 10mg and my levels are around 3.1 to 3.5 my
range is 2-3 but I guess slightly over is ok as it fluctuates. Anyhows
yesterday my ankle swelled and it is still swollen today, I also have
a strange sensation in my leg, not painful just constantly achy and
strangely tingly,with occasional dull ouchy pain.I ride my bike once a
week about 12 miles and am active as a mum would be with a young
daughter and a house to run.I do keep whacking my ankles on domestic
appliances as I am a bit clumsy lol but no bruising, have a small deep
bruise but only about a couple of centimetres so nothing to write home
about. Is it normal to swell? and is that sensation normal as part of
the healing process or is it more damaged due to my bike
rides/lifestyle.I have been on Warfarin about a month before that I
was also on Clexane since 31st May with. Has anyone else had this as ... read more

0 replies...

Coming off Xarelto after surgical DVT
Posted by Shari
Last Reply July 14, 2014 at 07:36
Started July 14, 2014 at 07:36
Hello! New here….I developed a DVT in my calf following knee surgery. Took Xarelto
for 3 months. Family dr felt that amount of time should be sufficient for a provoked
clot. Went off Xarelto six days ago and now feel tightness in my calf where the clot
was. Is this normal? or could it be that the clot is really not gone and I should be
calling my dr? It is not the terrible charley horse pain that told me I had one in the first
place, but it is tight. That is the best way to describe. I am still doing therapy for the
knee so I am trying to decide if it is just a tight muscle, or clot….thanks Wondering if
anybody else experience tightness after going off...


0 replies...

Low White Blood Cell count on Warfarin
Posted by DHY
Last Reply July 13, 2014 at 19:17
Started August 15, 2009
Hi everyone, I recently had a Complete Blood count taken and it showed my white blood cell count had dropped to a bit below the normal range since I started on Warfarin. All other counts in the test came back ok.

Has anyone else noticed that their white blood cell count decreased whilst on Warfarin?

Thank you.

4 replies...

Any cops on coumadin?
Posted by cop on coumadin
Last Reply July 13, 2014
Started July 11, 2011 at 06:59
I am a police officer who was laid off. I am have been on coumadin for the past 2 years and my department never knew. Know I am in the process of interviewing with several departments. I will eventually have to take a pre med exam. I am afraid that if any department knows this I will not get an offer. Anybody here a cop on coumadin? please respond.

I have no heart problems, the reason I was put on coumadin was that I had a pulmonary embolism. They never could find the reason why I had a PE.

3 replies...

DVT in arm
Posted by Blake
Last Reply July 12, 2014 at 20:16
Started July 12, 2014 at 20:12
Just diagnosed with blood clot in arm. Active 35 yr old male never past
symptoms or issues. No arm injury, or any specific issues.
Pull my arm a bit doing yard work and had been using over counter brace for few
days. Used neoprene brace overnight and woke up to fat baby hand. Went to Dr
and did X-rays for broken bone. Followed ip next day for ultrasound. Swelling had
gone down but elbow hurt. Ultrasound showed DVT in brachial artery (sp?) put
me on blood thinner X.., went to primary care doc yesterday day and they needed
blood samples. Took about 4 vials then veins stopped. Tried from hand and I
ended up passing out and vomiting. Still had 2 vials they tried on other arm( clot
arm) after I laid down and recovered a bit but could only get about 1/4 vial. I lift
weights 6ft 210 about 18% bf so am very vascular. Never issue with blood or
giving. Thought May have been new meds. Also my shoulder is really hurting now
under coller bone area and not sure how releva... read more

1 replies...

Anyone on a lower dose of Xarelto?
Posted by LeoDN, 44, NY
Last Reply July 12, 2014 at 16:31
Started July 12, 2014 at 09:16
Hi All, the recommended dose of Xarelto for DVT/PE/VTE is 15mg 2x a day
in first 21 days and 20mg 1x a day after that. There are, however,
therapeutic approved dosages of Xarelto of 10 mg 1x days and 2.5 mg 2x a
day for other medical conditions. Is anyone in this forum being treated
for DVT/PE/VTE on a lower dosage? Or anyone thinks it is a good or bad
idea asking a doctor to try so. The reason I am asking is that I am not
sure I will be able to cope with a 20 mg 1x a day treatment with X2,
side-effects wise. Thanks!

3 replies...

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