DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Last Reply November 24, 2014 at 06:50
Started November 18, 2014 at 23:10
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1 replies...

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Started November 24, 2014 at 03:41
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0 replies...

Left subclavian DVT
Posted by Wendi Woo
Last Reply November 24, 2014 at 03:20
Started September 27, 2013 at 03:35
Hi guys I have eventually been diagnosed with this I knew I had this clot but it
was initially missed by A& E . So I am currently on daily injections as I am not
sure I am not pregnant. If not it's then over to Warfrin, although they have said
tips I wish to continue TTC then I can stay on the injection, which in the UK is
Enoxoporin. They are not trying to find our what caused it p, waiting on blood
tests. However I have a feeling it's the Thorasic syndrome, or Pagetts. Although
they would not listen to me and initiall ultra sound of my arm did not show the
clot, and after repeated trips to the A & E and a letter of my GP requesting a CT
and a very determined consultant radiologist (who would not let me leave
heritable until she had an answer) she found the clot, I mean I am a bit angry in
was the signs were all there. I think I had confused then a bit as I have had a
tightness in my arm for weeks with intermittent swelling of my hand. Which
initially GP p... read more

1 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply November 24, 2014 at 03:00
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

154 replies...

Sharing that idea thank you ma'am
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Last Reply November 24, 2014
Started November 24, 2014
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0 replies...

DVT alternate treatments
Posted by Hope
Last Reply November 22, 2014 at 13:09
Started November 22, 2014 at 13:09
Hi,
My MoM is having DVT in both legs. She is around 60(doesn't smoke and doesn't drink) and obese and having DVT for past 6 years. She is having blood thinners and wearing stocking. But skin color has become dark red in the lower lambs since the last 5-6 months in additional. Can anyone suggest any alternative treatments ? Is surgical option effective?

0 replies...

Many questions--Few answers--Rapid Lysis??
Posted by Tom
Last Reply November 22, 2014 at 13:03
Started March 7, 2008 at 21:23
I had a DVT in July last year and I am 32 yrs old. I was unable to walk more than 10 feet without severe pain and shortness of breath. My leg was swollen for months following the DVT and I still experience pain and some swelling today. It wasn't until recently that I have begun to research procedures and other details regarding DVT. From reading the forum it appears that many people have similar symptoms, but doctors have used various methods to treat this condition. And also they do recommend many differing activities to patients after they begin taking coumadin.

I have a few questions I was hoping someone could help me with.

Is rapid lysis practiced often, has anyone had it done? I read about a healthy 19 year old who had it done with success.
Are stents considered for DVT patients?
Venoplasty, or vein grafts? (Any help?, I read of a women on this forum whose doctor recommended it if her swelling returns)
Does weight training or extensive exercise put someo... read more

15 replies...

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Last Reply November 22, 2014 at 05:50
Started November 22, 2014 at 05:50
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0 replies...

BLOOD CLOT IN LEG
Posted by SHAWNEE
Last Reply November 21, 2014 at 21:24
Started April 17, 2008
I am 30 yr old female, weight is 135,don't smoke and don't drink. My left legs hurts really bad. Started numbness and tingling in butt from sitting on chair at computer. Then pain was in the crease of bottom of left butt cheak. As time went on the pain went further down. It hurts now to sit on my butt on the chair and pain, tingling and soreness goes down my whole left leg now. Been happening for about 4days now. When i stretch out my calf it feels like the muscle been stretched too far already. I have not gotten hurt or did any thing to hurt my leg.
Sometimes i get sharp pains in my leg. There is no swelling,reddness or skin that feels hot. Although sometimes it feels warm on the inside. It hurts to push on certain areas on the back of my thigh and down. Skin feels very sensitive to touch. Like having the flu.
I was diagnosed w/3 leaky heart valves and i am taking propranolol for high heart racing. I was soooo scared that i had a blood clot in the leg that i rushed to the ER and ... read more

76 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply November 21, 2014 at 18:11
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

65 replies...

Xralto for DVT
Posted by Sandy
Last Reply November 20, 2014 at 22:14
Started November 20, 2014 at 12:56
I was just diagnosed with a DVT in my right calf. I was
prescribed 15mg of Xaralto 2X a day. I still have severe
pain in my leg. Does anyone know how long before I might
get some relief?

1 replies...

how soon can I fly after a dvt
Posted by marie hall
Last Reply November 20, 2014 at 22:10
Started April 4, 2006 at 15:57
I am taking doxium 500mg 2 a day and 1 aspirin a day, have been on clexane injections for 8 days 2 to go and I have finished

thankinf you in advance


66 replies...

Menstrual cycle and Coumadin
Posted by Marie
Last Reply November 20, 2014 at 15:10
Started August 9, 2008 at 14:50

Hi all, thanks for the info.. Faye, what is Paracetamol? Can anyone tell me what to expect since I am still having a menstrual cycle and on Coumadin. On Thursday 8/7 I had my first cycle since the DVT/PE diagnosis. I am having the worst cramps, back pain, dizziness, nausea and of course I'm flowing like a fountain thanks to the Coumadin. Could this cause me to become anemic?



163 replies...

Permanent Disability
Posted by Bob
Last Reply November 20, 2014 at 13:16
Started December 8, 2013 at 19:18
I'm interested how many have been declared permanently disabled as result of your DVT/PTS?

In other words, you're collecting SSDI and not working due to the ongoing complications, pain and risks associated with your DVT.

Thanks.

10 replies...

DVT and hot tubs
Posted by Michelle
Last Reply November 20, 2014 at 10:56
Started August 5, 2008 at 17:55
I just wanted to check with everyone to see if anyone else got the same advice I did. I was told never to use a hot tub - as the heat will cause the veins to dialate - which could widen the vein enough to allow the clot to move / dislodge. The theory makes sense. Has everyone else been told the same thing?
Does this also apply to any heat source - saunas, hot bath tub, hot summer days, etc??? Should I be packing my bags and moving to the Yukon? I'm already in Canada, but we do have some pretty steamy days here in the summer.

10 replies...

Questions for those who have had PE
Posted by Ry
Last Reply November 20, 2014 at 08:24
Started April 16, 2011 at 18:00
A few questions for those here who have had a PE:

1) Did you have any warning signs of it coming days/weeks earlier?
2) How did your symptoms manifest?
3) Was your PE a large or small one?

9 replies...

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Last Reply November 20, 2014 at 02:07
Started November 20, 2014 at 02:07
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0 replies...

Compression Stockings - wear to sleep?
Posted by Ian T
Last Reply November 19, 2014 at 18:19
Started September 8, 2009 at 02:38
I was prescribed grade 1 compression stockings because of the DVT I had in May. The doctor told me to make sure I put them on first thing in the morning, after my shower, and that I can take them off when I go to bed, or otherwise if I'm laying down and can keep my legs elevated.

My question: Can I wear them while I sleep? Or are there negative side effects from wearing compression stockings 24 hours a day?

I only ask because a couple of times I was just too tired at night to take them off before sleeping.. you know how difficult those things are to put on and take off. When I wake up in the morning my legs and ankles feel stiff, but on those nights where I didn't bother removing my stockings, I woke up with my legs feeling a little itchy at the top of the stockings, but otherwise fine and free of stiffness.

44 replies...

Thigh Pain and DVT
Posted by Jim G
Last Reply November 19, 2014 at 15:57
Started May 28, 2014 at 10:53
A week ago I was in the ER and diagnosed with DVT from groin to knee in right leg. I had swelling in calf and soreness. They gave me Lovenex and Coumadin and sent me home with a week's supply of those meds. They seemed to make the assumption that I have no PE and no heparin was administered. Now, in the last day or so, my calf has loosened up and is not sore. But my thigh has fairly sharp pain that ranges from my kneecap up to my groin. If I lie down and put heat or ice on it, the pain subsides for the most part. But being on my feet for much over a minute is quite painful. I'm assuming that this pain is directly related to my DVT. I'm not sure what to do about it. Is something like others have experienced? Is this a passing thing that might subside quite a bit in a few days?

4 replies...

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