DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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When to test INR after change in dose?
Posted by Audrey
Last Reply July 25, 2014 at 09:19
Started June 29, 2009 at 20:35
I'm just beginning this long journey on warfarin/coumadin after being diagnosed with DVT.

I did a lot of research on warfarin and understnd that it has a very long half life, which means that it can take the body a considerable amount of time to adjust to changes in dosage levels, on top of its complex reaction to changes in the metabolism. So my question is, if your dosage level is changed significantly, when is the optimal time to have your INR levels restested?

I was on 5 mg. per day starting on a Saturday. My intial INR prior to starting was 1.1. I was tested again on Monday, with an INR of 1.2. On Wednesday, after almost 96 hours at that dosage level at which time the med should have reached maximum effect in my system, I still tested 1.2. My dosage was increased by 40% to 7 mg. starting Wednesday night. Blood was drawn on Saturday morning, or 60 hours after increasing the dose. INR was 2.2, with a targeted level of 2.5. My doctor called me on Sunday and has dropped my do... read more

8 replies...

DVT in Groin during Pregnancy.
Posted by Kate
Last Reply July 24, 2014 at 19:55
Started July 24, 2014 at 14:07
Hi, one week ago today I was admitted to hospital with a hugely swollen,
discoloured and fluid filled left leg. After an ultrasound, I was told that I had a
large clot in my left groin. I was started on daily heparin injections as I am 28
weeks pregnant. After 4 nights in hospital, I have returned home and have been
told to rest and elevate my leg. My mobility is severely affected; I can really only
manage to get around the house and even that is very painful. I am taking
paracetemol every 6 hours for the pain. Can anybody tell me about their
experiences of a clot in the groin in pregnancy? I'm petrified that the pain and
immobility are going to be long term problems. I've no idea how I'll cope with a
baby when I currently can't stand long enough to shower. Can anyone advise on
when I might hope to see some improvement? Thanks for any help.

1 replies...

loratadine (Claritin) and warfarin
Posted by Sarah
Last Reply July 24, 2014 at 18:20
Started June 6, 2008 at 22:31
Does anyone take claritin for allergies and if so did it affect your INR levels if taking warfarin concurrently?

13 replies...

The risk of long flights
Posted by Pat N, Silver Spring
Last Reply July 24, 2014 at 10:51
Started July 23, 2014 at 13:50
I was planning to fly to London end of August (approx 7.1/2 hour
flight), then a 3 hour bus trip, and wonder how risky this is since I
had vein surgery on June 25th to correct a superficial vein deficiency
in left leg. A follow up MRI revealed a blood clot had developed,
something I had not had before surgery. I took Lovenox shots for 2
weeks, a follow up MRI showed blood clot had gone. Doctor said due to
my upcoming flight I should have a shot of Lovenox prior to the flight
and one upon my return as a precaution. Various medical sites on the
web suggest flying within 3 months of surgery is risky so perhaps I
should wait until late Sept/early Oct. Some articles even suggest
waiting for a year until flying. My mother is 93 years old and I do
need to go and see her. I can delay my trip until October but not
sure that would make much difference. I could not delay it for a
year. Since I do not have DVT I am wondering if I am worrying
unnecessarily any... read more

2 replies...

Posted by DANIELLE
Last Reply July 24, 2014 at 07:03
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

137 replies...

First Rib Resection Experiences Please
Posted by Becks
Last Reply July 23, 2014 at 20:44
Started August 16, 2012 at 08:35

I am a 26 year old active and otherwise fit and healthy female that was admitted to
hospital in January with a very swollen right arm (there was a 4cm diameter difference
from the left arm), it was a distinct purple/grey colour and all of the veins that were
hidden deeper under the skin were visible and the normally visible green veins were
almost protruding.

Turns out I had a 20cm clot running through my shoulder and down my arm in the
subclavian vein. I had surgery straight away to dissolve then vacuum out the clot with
good results. The specialists all tried to put the cause down to being on the pill even
through I had been on it for 10 years, it wasn't until after a venogram that showed my
vein was compressed in my thoracic outlet by the collar bone and first rib that we knew
I had a mechanical issue.

I was on warfarin for 6 months, have now been off it for 2 weeks. The problem is that I
am constantly experiencing a dull ache generally along... read more

4 replies...

DVT Recovery Time
Posted by Ann
Last Reply July 23, 2014 at 12:33
Started September 17, 2007 at 17:35
Can anyone tell me just how long it takes to be fully recovered from a DVT and fit for work? I developed a DVT in the calf about a week after returning from a holiday flight last month and no-one, not even the doctor can give me an indication of how long I'm going to be off work. I'm a teacher - the only answers I get are - everyone is different, it will be a while yet!

34 replies...

Warfarin headaches
Posted by Claire
Last Reply July 22, 2014 at 15:48
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

69 replies...

May Thurner's
Posted by Donna Edgerley
Last Reply July 21, 2014 at 22:32
Started June 6, 2014 at 07:36
Hello fellow DVT sufferers.Has anyone else been diagnosed with May-Thurners?I was diagnosed in February 2014 after a DVT for thirteen years and now chronic venous insufficiency and May-Thurners. I would like to know how people deal with the pain. Thank you.

1 replies...

Worried about new DVT
Posted by Gemma
Last Reply July 21, 2014 at 21:37
Started September 2, 2012 at 13:55
Hey everyone, I'm hoping you guys on here can give me a big of reassurance, I'm
a 23 year old female who has been diagnosed with a DVT and superficial
thrombosis about a month ago. I was On Heparin injections twice a day a 7mg of
Coumadin. My first inr was 1.7 My INR stabilized at 2.3 for one INR test so was
taken of Heparin, but since my INR has varied between 1.7 and 2, I'm now on
10mg of Coumadin and am yet to see a stable result. Im follwing everytging the
doctors told me about my diet and Vitamin K My first question is, how long
should it take to be stabilized? Secondly should I be put back on Heparin since
my results aren't staying in the therapeutic range? my last question is, since
being on Coumadin I have develope a pain in my right leg the same as the pain I
got with the DVT in my left leg, could I have developed another blood clot while
taking the medication?
Thanks, I hope someone can help me out, I don't really understand what my dr
tells me.

3 replies...

Compression Stockings - wear to sleep?
Posted by Ian T
Last Reply July 21, 2014 at 08:47
Started September 8, 2009 at 02:38
I was prescribed grade 1 compression stockings because of the DVT I had in May. The doctor told me to make sure I put them on first thing in the morning, after my shower, and that I can take them off when I go to bed, or otherwise if I'm laying down and can keep my legs elevated.

My question: Can I wear them while I sleep? Or are there negative side effects from wearing compression stockings 24 hours a day?

I only ask because a couple of times I was just too tired at night to take them off before sleeping.. you know how difficult those things are to put on and take off. When I wake up in the morning my legs and ankles feel stiff, but on those nights where I didn't bother removing my stockings, I woke up with my legs feeling a little itchy at the top of the stockings, but otherwise fine and free of stiffness.

42 replies...

DVT PTS and Venowave
Posted by Martha Moon
Last Reply July 21, 2014 at 05:34
Started August 10, 2011 at 09:20
I developed my first DVT over a year ago. It was incredibly painful I
was taking pain meds around the clock. Finally the pain subsided after
about 6 weeks and a full month off work. I gathered info on the
Venowave. It seemed to get mixed reviews here however I went for it out
of desperation to get back to work. So far I am showing virtually no
signs of PTS which was my greatest concern and the anxiety of developing
another DVT is eased by wearing the Venowave. I know the coast is not
clear for PTS yet, but all looks good this far and I am pleased.

114 replies...

Monocusp valve surgery
Posted by Greg
Last Reply July 21, 2014 at 01:12
Started July 21, 2014 at 01:12
Post thrombotic syndrome in left leg below knee. This is a miserable condition
complete with leg ulcers. I need this monocusp surgery along with angioplasty
to open the vein. I will contact Dr. Opie to check availability. Just for
information do not go to univ. Of Michigan hospital for treatment . They are all
talk and will rob you blind.

0 replies...

Posted by JEAN
Last Reply July 20, 2014 at 10:34
Started August 9, 2008 at 05:45

27 replies...

coumadin and head bumps
Posted by Dawn
Last Reply July 19, 2014 at 21:23
Started May 28, 2008 at 16:42
I was hoping someone could tell me anything about bumping your head on while on coumadin. I have been having dull headaches for a few weeks now. The dr assured me not from coumadin probably stress related. My right eye keeps going blurry on me and a couple of days ago my tongue and lips felt numb. I bumped my head on the corner of a shelf a few weeks ago and was wondering if this is something to worry about. It didn't hit real hard and didnt give it much thought at the time. Now with some of these problems I am having I'm wondering if they are related. Thanks

19 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply July 19, 2014 at 15:25
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

50 replies...

How long have you been on Warfarin?
Posted by Tina
Last Reply July 19, 2014 at 08:15
Started May 18, 2010 at 21:00
Hi, I have just found this forum, can't believe I've not seen it before!

Anyway, I have just replied to another post and it occurred to me, who
has been on Warfarin the longest? I have been on it for 16 years, has
anyone else been on it this length of time?

I have recently been starting to worry about the long term side effects
but my doctor just says it's the side effects of not taking it that I
should be worried about ie getting another clot :-(

20 replies...

Too much Coumadin Warm feeling?
Posted by Mike L.
Last Reply July 19, 2014 at 03:56
Started September 14, 2008 at 05:38
Hi I was wondering if any of you when your INR or coumadin level is too high do you get the same warm flush then a slightly eratic heartbeat that I get every other day or so?

14 replies...

bruising while on warfarin
Posted by suzanne
Last Reply July 18, 2014 at 23:00
Started September 14, 2009 at 19:41
Was just wondering why you get asked when go for inr test if you have any unexplained bruising?I have noticed today that i have 3 small bruises on my dvt leg,but cant remember knocking my leg.

49 replies...

flying with clexane
Posted by kyasa
Last Reply July 18, 2014 at 13:19
Started June 30, 2010 at 04:06
Hi all
I had a DVT and multiple PE in April last year caused by birth control pill, which I have since stopped taking. I have no other risk factors. I Was on Warfarin until Dec. Have had no problems since.

I am going on a 9.5 hr international flight in a few weeks. I have compression stockings to wear and my doctor has prescribed clexane injections. My question relates to the dosage of clexane.

My doctor said I should have one 60ml injection the night before my flight, another one 12 hours later (a few hours before boarding), and then a third injection 12 hours later (about an hour before landing). Are 3 injections necessary? Is it enough to just have one a few hours before the flight?

any advice would be appreciated, thanks.

26 replies...

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