DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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swollen cold foot ankle and leg
Posted by doug
Last Reply March 18, 2015 at 22:13
Started March 18, 2015 at 22:13
My boyfriend has a left swollen foot leg and ankle it is ice cold pain
up to groin and can't put pressure on it

0 replies...

What will happen if I drink Alcohol?
Posted by Carl
Last Reply March 18, 2015 at 13:13
Started May 22, 2010 at 19:57
The worst thing affecting my life since being diagnosed with extensive DVT is being told that I can't drink alcohol, what a nightmare!
What are the risks if I continue to drink whilst on the injections and Warfarin? Does it affect the treatment from working or is it just a case of potential liver damage?
Surely a few good sessions would be ok?
Why do they tell us not to drink except keeping within those silly government guidelines?

Thank you in advance for your answers!

15 replies...

Vascular surgery to remove hardened blood clot
Posted by Jim
Last Reply March 18, 2015 at 10:26
Started May 9, 2012 at 20:47
I have DVT in the left leg, was given Warfarin as my only treatment. Three months later, I was discharged by a vascular surgeon, told to wear a sock and "handle it." WEll, I am not going to "handle it."

I will now get a second opinion and will not back down until I find a vascular doctor and an interventional radiologist to remove the hardened clots in my leg.

Could anyone share their success stories regarding surgery to remove hardened blood clots?

43 replies...

INR Changes
Posted by Helen
Last Reply March 18, 2015 at 09:36
Started November 18, 2009 at 19:10
Hi I had a clot in my left thigh when I was 29 weeks pregnant. Since having my baby in June I have been on warfarin and was told I would be on it for 6 months. My INR levels have been stable around 2 for most of the time I've been on it. In the last month my INR level dropped to 1.9 and now to 1.7 so I've had to increase my dosage. I don't know what may have caused this as I have not changed my diet. Can feeling stressed or an increase in exercise affect your INR. I was really hoping that I would be able to stop the warfarin next month but now I'm not so sure. Just wondered if anyone else had a similar experience and if they have any advice?

59 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply March 17, 2015 at 13:30
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

105 replies...

blood clots
Posted by donna
Last Reply March 16, 2015 at 21:08
Started March 16, 2015 at 21:08
Hello I am 49 years old I was admitted in the hospital in sept.2014 I went in emergency with arm pain they found a blood clot in my left lung don't no where it came from but I was put on warfarin 10mg.and will be on for the rest of my life because I can get more clots so if ur dr. says he is taken u off of it I would question that because u can get more clots and not no it this med.can protect u from more clots forming I would rather stay on the med. rest of my life for safety it also helps protect u from stroke and heart attacks but not 100%but u never no also u have to have enough vitamin k everyday I drink NUTRAMENT COMPLETE NUTRITION DRINK I drink 1 in the morning when I get up and 1 at nite it does what I need my INR LEVELS is to be 2.0 -3.0 I stay around 2.4-2.5 level so I hope any one reading this it helps you and god bless

0 replies...

Can I kneel with a calf DVT?
Posted by Madeleine
Last Reply March 16, 2015 at 11:39
Started March 14, 2015 at 05:54
After hip replacement, a small DVT was found in my calf. I'm on warfarin and things are going well and I'm near my INR. I'm desperate to do some gardening, but am slightly worried that it might compress my calf and do some damage. My Haematology nurse says it will be OK for me to kneel. Is it?

3 replies...

What happens to a clot if not dissolved
Posted by Megan
Last Reply March 15, 2015 at 22:02
Started May 23, 2013 at 18:07
Hi there,
I was diagnosed with DVT & PE after giving birth 8mths ago. I have/had DVT in
my leg and a complete blockage in my right lilac vein. A recent ultrasound
showed the complete block and some clot in leg still exisiting. My specialist said
the clot solidified in to scar tissue? And my body has directed the blood (because
I have no pain or swelling).

Can someone explain this to me, they want me to stop taking Warfarin. I'm
concern as I don't understand if its correct that just because its been 8months it's
a sure thing it's now scare tissue? And the bits in my legs that are still there, the

Thanks in advance :-)

8 replies...

New to DVT
Posted by Phil B
Last Reply March 14, 2015 at 18:35
Started July 10, 2014 at 16:16
I'm a new DVT sufferer, just diagnosed two weeks ago. I raced a 5k on a Sunday
morning (I was in the middle of marathon training for my 10th marathon - was at
about 30 miles a week), felt fine Monday, left leg felt tingly Tuesday,
Wednesday left leg began swelling, and Thursday could not walk! D-dimer test
showed abnormality so had ultrasound Friday morning, DVT from just blow the
knee to the groin (not sure if it went above that).

Immediately on Xaralto and compression bandages. Followed up with hematologist,
who said forget the bandage for a few weeks until the swelling goes down (he
says it's a lifetime problem that won't really be impacted by delaying this
several weeks - anyone else hear this?). He also said elevation is my friend
until the swelling is down, so I put it up at night and at work during the day.
Then he ordered a dozen tests to try to figure out the root cause might be -
said this is super rare in marathon runners (although I have found so... read more

28 replies...

Elevated d dimer w/out cause??
Posted by Chris
Last Reply March 14, 2015 at 15:52
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

34 replies...

Questions to ask Hematologist ?
Posted by Michelle
Last Reply March 12, 2015 at 20:03
Started March 18, 2007 at 18:24
Hi all... have not posted in awhile - my case: July '06 DVT knee to groin, multiple PE's both lungs after knee injury & immobility / birth control pills (do not smoke, healthy weight, 25 years old etc.)

I still have chest pain quite frequently - esp. after activity. Went for a follow-up CT Scan / EKG a couple weeks ago and all clear no new clots and old clots are all gone. YAAY what a relief - only explanation for chest pain has been "chest wall inflammation" which I don't understand.

I'm still on coumadin (8th month now) for my DVT - leg still turns blue / tingles / red "lace" patterns on calf but there is next to no swelling or pain. I never actually had any swelling with my DVT (very lucky here). I still wear good compression stockings every day to help with tingling / colour changes.

OKAY so now my question! I have an appt. on April 2 with a Hematologist to see if I have any genetic / hormonal clotting factors. If it turns out there is nothing then I can stop c... read more

33 replies...

DVT PTS and Venowave
Posted by Martha Moon
Last Reply March 12, 2015 at 09:30
Started August 10, 2011 at 09:20
I developed my first DVT over a year ago. It was incredibly painful I
was taking pain meds around the clock. Finally the pain subsided after
about 6 weeks and a full month off work. I gathered info on the
Venowave. It seemed to get mixed reviews here however I went for it out
of desperation to get back to work. So far I am showing virtually no
signs of PTS which was my greatest concern and the anxiety of developing
another DVT is eased by wearing the Venowave. I know the coast is not
clear for PTS yet, but all looks good this far and I am pleased.

121 replies...

I think im ok !
Posted by Amar
Last Reply March 11, 2015 at 19:38
Started March 5, 2015 at 14:16
Im 19 years old and i've had DVT 7 months ago in both my right and
left leg, at first i couldn't walk at all i had excruciating pain in
my legs and it lasted for about one month after the diagnosis, then
gradually the pain was gone and i went back to my normal life.

Now its bean seven months and i feel great my legs dont swell and i
dont feel pain at all not even when i walk long distances and im set
to have a doppler test to see the state of my blood clots in two

I was wondering what are my chances that the blood clots dissolved
completely, when will i stop using compression socks and what to
expect in the future with DVT ??

5 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply March 11, 2015 at 19:37
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

521 replies...

Burning feeling??
Posted by Christie
Last Reply March 11, 2015 at 19:31
Started March 26, 2007
I had my clots & PE's about 6mo ago in my leg and I haven't had a doppler since. The docs had asked me before if I had burning. Well yesterday I started having a burning sensation. Does anyone know what this could be caused from? I have tried searching online and the only thing I can find is that it is a symptom of a clot. Could this be post thrombotic syndrome? I do have the start of it but the docs were hoping they could correct it before it got out of hand.. I don't see my doc until Tues and was just wondering if anyone else has experienced this before?

23 replies...

coming off warfarin with a vena cava filter
Posted by alan
Last Reply March 10, 2015 at 12:16
Started April 2, 2010 at 03:38
hello all im alan im 26 in aug 08 i was diagnosed with dvt throughout my left leg and 3 clots in my lungs one large one in right side two (i guess you would say normal sized) in my left. the vena cava filter was put in and have been on warfarin since.

doctors said im lucky to be alive, and dont understand how im still alive and so on so forth.

my doctor told me on my last visit that he wanted to take me off of the warfarin next month. it kinda worries me because of the filter being there, and was wondering is this safe? has anyone here been taken off warfarin with the filter? and what was their experiance with this?

23 replies...

Wedge Shoes/Boots
Posted by Roni
Last Reply March 10, 2015 at 04:05
Started March 10, 2015 at 04:05
DVT Sept 2014 - since I found wedge boots (not too high though) my leg pain has decreased significantly. If I wear flats I have calf pain and heels, well forget heels! I had several clots in top half of leg and back of knee which had me on crutches for 2 months, anyway just wanted to share this as its been so much easier since I came off crutches to wear wedge boots or shoes.

0 replies...

stopping warfarin
Posted by suzanne
Last Reply March 9, 2015 at 02:21
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

123 replies...

Deep vein Thrombosis
Posted by fare
Last Reply March 8, 2015 at 14:07
Started March 5, 2015 at 15:29
my mother has a deep vein thrombosis in the mesenteric diagnosed for 2
months she takes coumadin and is very weak, she vomited, problem
breathing ect she will stop coumadin and I want she takes natural
treatment, I want her to take nattokinase I read this post: http:
//www.dvtforum.com/index.asp forumID = 18638 & subject = Nattokinase-
Even said that the treatment to work well. I want to know where to buy
nattokinase, and your experience with this treatment

2 replies...

Just diagnosed with DVT
Posted by Nicole
Last Reply March 8, 2015 at 09:47
Started March 7, 2015 at 13:35
Hello all! I hope that I can get some info from you guys that have experience with
DVT's. On Monday I had surgery on my knee for a torn meniscus. On Thursday I
was diagnosed with a DVT behind my knee. The ER doctor scared me to death,
telling me I would be in the hospital for a few days, and not to put any pressure
on my leg and admitted me. I saw the hospitalist at the hospital and he told me
now that I am on Lovenox that I am free to do as I please I can even play
basketball if I want because I am on Lovenox. He did not want to do any more
bloodwork to see if the Lovenox was working, he says that those levels would not
go down for three months so there was no need to test for them again and
discharged me. I'm shocked at the difference of opinions. He told me to make an
appointment with a hematologist. So hopefully this week I can get some better
answers. I came home from the hospital with a sore throat and chills and a fever
that comes on and off. I am hop... read more

2 replies...

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