DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Does this sound like DVT?
Posted by Jane
Last Reply May 20, 2015 at 08:52
Started May 11, 2015 at 10:15
Don't worry, I know you guys aren't doctors so I'm not looking to hold you to a diagnosis, but just didn't want to go to the hospital needlessly, so would really appreciate hearing your views. (It has to be hospital as I'm flying in less than 48 hours and can't get a doc's appointment in time)

About a month ago I woke up and the top of my foot felt as though somebody had stamped on it but there was no swelling or discolouration. I just loosened off the laces on my trainers and carried on. Since then my foot has swollen quite badly and feels colder than the other one. It is generally a little better first thing in the morning and seems to improve a bit with exercise, but nothing makes a huge difference. Last couple of days I now have a dull throb in my calf which has made me concerned about flying and DVT associated risks.

Would appreciate any views on the symptoms.





4 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply May 20, 2015 at 08:36
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

197 replies...

DVT and hot tubs
Posted by Michelle
Last Reply May 20, 2015
Started August 5, 2008 at 17:55
I just wanted to check with everyone to see if anyone else got the same advice I did. I was told never to use a hot tub - as the heat will cause the veins to dialate - which could widen the vein enough to allow the clot to move / dislodge. The theory makes sense. Has everyone else been told the same thing?
Does this also apply to any heat source - saunas, hot bath tub, hot summer days, etc??? Should I be packing my bags and moving to the Yukon? I'm already in Canada, but we do have some pretty steamy days here in the summer.

11 replies...

Successful feminine products for periods
Posted by KDubs
Last Reply May 19, 2015 at 13:21
Started September 7, 2014 at 09:57
Hi everyone,

My question is, what kinds of feminine products do you use successfully with
your heavy period? Also, how do you manage pain without being on ibuprofen?

I just started Xarelto a month ago and my period will start any minute. I was on
the pill to control heavy bleeding and a 7-9 day period already. Now that I'm off,
I'm terrified of what's coming. I can't use tampons, so anything else is helpful
advice.

Please, please do not post horror stories of almost bleeding to death. I am
freaked out enough as it is from other posts.

Thanks!

3 replies...

Venowave
Posted by Kate
Last Reply May 19, 2015 at 07:53
Started May 19, 2015 at 07:53
I just started wearing the venowave- I year post Dvt still dealing with daily pain
very little swelling. The blood still gets trapped in my leg a bit upon exertion.
Here is my question.. I'm still hoping to build collateral veins to better the outflow
from my leg muscle ( my DVts all in calf have dissolved) do you think wearing the
venowave all the time will prevent new collaterals from forming as the venowave
is pumping the blood up for the body instead of the body learning to do it for
itself? Thanks for your thoughts

0 replies...

Thrombophilia screen/ Pradaxa
Posted by Rob- UK
Last Reply May 19, 2015 at 07:33
Started July 13, 2010 at 12:51
I have been on Warfarin since January this year, and it looks as if I will be kept on it until the haematologist decides it is 'safe' for me to come off it so he can undertake a thrombophilia screen. He believes that there may be a family history of clotting that needs to be investigated-however, if I come off warfarin totally, am I not then at risk if I do indeed have a clotting problem? Is there not another test that can determine this without the possible risk associated risk of coming off warfarin altogether ?
Also, I was wondering if any of you have changed over to Pradaxa as an alternative to warfarin. I have approached my GP about this possibility if I should have to stay on drugs for life, but was not given a definitive answer.
Many thanks .

4 replies...

Compression Stockings - wear to sleep?
Posted by Ian T
Last Reply May 17, 2015 at 18:47
Started September 8, 2009 at 02:38
I was prescribed grade 1 compression stockings because of the DVT I had in May. The doctor told me to make sure I put them on first thing in the morning, after my shower, and that I can take them off when I go to bed, or otherwise if I'm laying down and can keep my legs elevated.

My question: Can I wear them while I sleep? Or are there negative side effects from wearing compression stockings 24 hours a day?

I only ask because a couple of times I was just too tired at night to take them off before sleeping.. you know how difficult those things are to put on and take off. When I wake up in the morning my legs and ankles feel stiff, but on those nights where I didn't bother removing my stockings, I woke up with my legs feeling a little itchy at the top of the stockings, but otherwise fine and free of stiffness.

46 replies...

Fishnet professional dance tights
Posted by John
Last Reply May 17, 2015 at 18:33
Started May 11, 2015 at 19:22
I heard from a dancer that fishnet professional dance tights
provide some compression, so I bought a pair to check it out for
my PTS. They work very well. They provide about a 30 mm
compression, they are very breathable and cool with the mesh
fabric unlike the heavy fabric of regular compression hose. They
were $28.00 which is far less than compression hose. Two
disadvantages however, if one needs 40 mm compression or more they
probably wouldn't work, and they are a full tight or pantyhose
which a lot of men might not want to wear. By the way men , they
come in a light tan that are hardly noticeable even if you want to
wear shorts with them. I wouldn't recommend black with a back seam
that tap dancers wear LOL. Think outside the box and try them.

7 replies...

Stents for May Thurner Syndrome
Posted by Leann
Last Reply May 17, 2015 at 09:13
Started June 30, 2009 at 18:25
Can anyone help? I'd like to hear of anyones experience of having stents fitted due to May-Thurner syndrome.How was the pain after surgery? How long were you down? How soon were you back to your normal activity?I have had two angioplastys and After surgery I had to lay flat on my back without moving for 6 hours and then I was sent home that evening.Will it be similar to anything like this? Any advice to get me through this would greatly appreciated. I will be having a stent placed due to May Thurner Syndrome in Late August.I am 16 years old.

Thanks!

11 replies...

when can one exercise
Posted by wendy
Last Reply May 16, 2015 at 12:14
Started May 16, 2015 at 12:14
my inr is now 2.1 can I exercise and what form of execrise

0 replies...

can i fly if my inr is yet to be 2
Posted by wendy
Last Reply May 16, 2015 at 11:44
Started May 13, 2015 at 06:33
i hv just been diagnosed with dvt three weeks ago.my inr is 1.5 yet to reach optimal level of 2, can i fly

5 replies...

Sex drive and warfarin
Posted by Lucy
Last Reply May 16, 2015 at 01:48
Started January 14, 2010 at 01:12
Hi...
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,
Lucy

80 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply May 15, 2015 at 22:53
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

67 replies...

Stent in Iliac Vein
Posted by Diane
Last Reply May 15, 2015 at 18:16
Started October 24, 2007 at 05:26
Has anyone had a venous stent inserted into their Iliac vein following a DVT. This was done to keep the vein open and relieve pressure on it from an adjoining artery. My question is for those who have a Wallstent. Do you still have pain in that stented vein? I continue to have pain three years after the DVT.

7 replies...

charlie horse in DVT leg
Posted by chriskura
Last Reply May 15, 2015 at 17:59
Started June 1, 2007
I had a charlie horse lastnight in the leg where my DVT occured (9 months ago). I still have swelling and am still on warfarin. Has anyone experienced a charlie horse or do any of you know if it is a warning sign?


44 replies...

Questions to ask Hematologist ?
Posted by Michelle
Last Reply May 14, 2015 at 23:39
Started March 18, 2007 at 18:24
Hi all... have not posted in awhile - my case: July '06 DVT knee to groin, multiple PE's both lungs after knee injury & immobility / birth control pills (do not smoke, healthy weight, 25 years old etc.)

I still have chest pain quite frequently - esp. after activity. Went for a follow-up CT Scan / EKG a couple weeks ago and all clear no new clots and old clots are all gone. YAAY what a relief - only explanation for chest pain has been "chest wall inflammation" which I don't understand.

I'm still on coumadin (8th month now) for my DVT - leg still turns blue / tingles / red "lace" patterns on calf but there is next to no swelling or pain. I never actually had any swelling with my DVT (very lucky here). I still wear good compression stockings every day to help with tingling / colour changes.

OKAY so now my question! I have an appt. on April 2 with a Hematologist to see if I have any genetic / hormonal clotting factors. If it turns out there is nothing then I can stop c... read more

34 replies...

back to normal ?
Posted by alan
Last Reply May 14, 2015 at 22:18
Started May 14, 2015 at 05:53
I am on a phased return to work after 2 months off with DVT . I would be interested to
know how long others had taken to return to full time work [ I do 11hr shifts with breaks
].At the moment I am only doing 4 hours a shift which has got better now the 2nd week is
coming to an end. But I worried about over doing it to quickly

2 replies...

PVT - Why do I have it?
Posted by Brittany Brown
Last Reply May 14, 2015 at 18:44
Started May 6, 2015 at 17:18
For three months I was super fatigued, loss my appetite, had a
small fever every now and again and I lost 12 pounds in the course
of a month and half. I am only 24 years old and did not understand
why I felt so run down and full all of the time. Originally, I
went to see my Oncologist/Hematologist for a lymph node that had
not gone away for 5 months. She ordered me to have a CT scan done
of my neck and chest. When she received the results I remember her
saying, “please do not freak out, but we have found 2 lesions in
your liver and one in your Kidney.” At that point I thought the
worse, obviously, I thought it was cancer. She ordered me to have
an MRI that next day of my abdomen. When we got the results back
we were relieved and confused by the results. I was told I had
intrahepatic portal vein thrombosis (PVT) in the right branches
effecting lobes V, VII and VIII of my liver. My kidney luckily
was just another incidental finding that was benign. My doct... read more

1 replies...

Possibly a blood without any symptoms?
Posted by Erica
Last Reply May 14, 2015 at 10:29
Started May 2, 2015 at 20:46
Hello everyone thank you in advance for
reading my concerns. I am 21 I am 5'6 135
pounds. I am active, I have no medical
history . I eat healthy. Two years ago I
went on an aluminum boat and foolishly stood
up in the boat lost balance and I fell
really hard in the boat I hurt my right leg.
I had a huge bruise starting two inches from
bottom of my knee going down to four inches
above the ankle I was badly bruised for
about two weeks. I have noticed for at least
a year a soft lump on the right side of my
right leg right where the impact of the
fall/bruise was located well I only now have
been more curious about the lump. The lump
is soft and not visible I only can feel by
touch of my hand when flexing my leg or
while squating I have no pain no redness or
swelling around area nothing weird besides
the small lump which is about the size of a
quarter but feels like skin. I am Concerned
this may be a blood clot.. I do have a bit
of hypercond... read more

4 replies...

DVT how do I know it has gone?
Posted by liz
Last Reply May 14, 2015 at 05:50
Started January 31, 2012 at 17:22
I had a post surgery DVT after a small op. The NHS has been shocking, the nurses
telling me to "Google it" if I have any questions!!!!!! I feel I have never really got to the
bottom of it. I was given support stockings to wear during the operation, but as I had
never been in hospital before I didn't know what they were and they certainly weren't
tight. After trying to remove them to leave the hospital the day of the surgery, the
nurse who helped me remove them said I should have kept them on as I have
varicose veins, but removed them anyway! I was still on morphine so they really
should have taken that into account more. 2 days later I woke up with the swollen
painful leg. I have been on warfarin for 3 months but stopped last week. They pain
has come back in my calf. I am loathed to go back to the hospital after such a bad
experience....... I might add, the Dr doing my leg scan said no you dont have any clots
after scanning the front of my leg. I asked her if ... read more

4 replies...

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