DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Horse chestnut seed extract
Posted by John in Dallas
Last Reply July 20, 2016 at 14:50
Started July 10, 2008 at 04:57
Has anyone tried using horse chestnut seed extract to help with their PTS? I did some research and it is supposed to help with chronic venous insufficiency. I am going to try it and see what happens.

21 replies...

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Last Reply July 20, 2016 at 07:06
Started July 20, 2016 at 07:06
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0 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply July 19, 2016 at 20:17
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

91 replies...

MAY-THURNER SYNDROME FORUM ON GOOGLE GROUPS
Posted by Diane
Last Reply July 19, 2016 at 14:02
Started March 20, 2008 at 15:24
Anyone who has been diagnosed as having May-Thurner Syndrome is invited to inquire how to join the May-Thurner Syndrome Forum that I have begun on Google Groups.

Simply e-mail me at woodcreek12@aol.com to request a personal invitation to join our group. Our mission is to share information on MTS and stent procedures, as most of us with MTS have stents in our iliac veins.

May-Thurner Syndrome and Iliac Vein Compression Syndrome (IVCS) are the same thing, a congenital abnormality that causes compression on the iliac vein, which over time can lead to a DVT.

4 replies...

back/abdominal pain IVC Filter failed removal
Posted by DFWSarah
Last Reply July 19, 2016 at 12:57
Started November 13, 2010 at 17:06
Hi guys. I've been reading this forum since I had my dvt in late July. I'm 27 and
everything has been fine after I went through 2 thrombolisis procedures, and have
full function of my right leg again. I also found out I have the Factor Five Leiden
abnormality.

My question today is about extreme back pain after a IVC filter retrieval. My
vascular surgeon attempted to remove my IVC filter yesterday morning - what
should have taken 45 minutes took 3 hours, and he even brought in another
surgeon to try to remove the filter, with no success. So my vas. surgeon said with
my factor five history it's more likely that I'll clot again, so he thought it better that
they just leave it in since they couldn't get it out. I have been in extreme back and
abdominal pain since my procedure yesterday - I called my vas. surgeon and his
nurse said it was normal and to take motrin and it should subside. I can't even walk
for any length of time without wanting to fall on the floo... read more

16 replies...

New blood clot on warfarin possible?
Posted by Karen
Last Reply July 19, 2016 at 04:10
Started January 2, 2012 at 03:20
Okay so what would I do without this forum? Ha, I don't know!
I do have a question though, and I hope it's not just paranoia as this
blood clot has for sure scared me. I have had a few tinges and pains
in my right calf now, and throughout for the last 2 weeks or so. My
clot is in my left upper thigh and I've been on warfarin for over a
month now with that one. Never really stable on my meds, been 2.5 and
2.92 for one or two times, the rest of them 1.7 or around there.
My question is can i have another blood clot in my right leg while i'm
on warfarin? It is so achey, but I keep thinking that maybe I have
just used that leg so much for weight balance since my left one feels
heavy that I;m just pulling and using muscles...but god it feels odd.
Anyway I'm babbling and I'm nervous. So can you get another blood clot
in the opposite leg while on warfarin? thanks.

41 replies...

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Last Reply July 19, 2016 at 02:10
Started July 19, 2016 at 02:10
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0 replies...

Stent in Iliac Vein
Posted by Diane
Last Reply July 18, 2016 at 13:14
Started October 24, 2007 at 05:26
Has anyone had a venous stent inserted into their Iliac vein following a DVT. This was done to keep the vein open and relieve pressure on it from an adjoining artery. My question is for those who have a Wallstent. Do you still have pain in that stented vein? I continue to have pain three years after the DVT.

17 replies...

how soon can I fly after a dvt
Posted by marie hall
Last Reply July 17, 2016 at 19:32
Started April 4, 2006 at 15:57
I am taking doxium 500mg 2 a day and 1 aspirin a day, have been on clexane injections for 8 days 2 to go and I have finished

thankinf you in advance


73 replies...

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0 replies...

IVC Filter
Posted by Khalid
Last Reply July 16, 2016 at 14:39
Started October 7, 2009 at 11:23
Hi All,

I have been in touch with this forum for more than a year now. I have sufffered 3 DVTs and PE twice, once it was extensive.
I have an IVC filter implanted on 29th March 2008.

I was wondering how many of us who visit this forum wear IVC filters.

I remember some times back one of the visitor had started a topic inviting all those who suffered DVT due APL syndrome.

Generally you don't get to meet people with IVC filter, is it OK to form a list of people who have IVC filter in this post?

If you think its OK, please mention your name, type of filter, when it was implanted and any special comment you want to share.

1.) Khalid - Gunther Tulip Retrievable filter, but now its permanent - 29th March 2008.

16 replies...

lump at lovenox injection site
Posted by Claire
Last Reply July 11, 2016 at 06:13
Started April 3, 2010 at 23:04
I've still got a small hard lump at one of the injection sites that Ive had since
November . ocassionally it goes red ( about the size of a quater), it's not hot or
painful, I'm just wondering if anyone else has had this ??, I've still got some very
faint bruises aswell.

13 replies...

THIS IS THE REAL DOCTOR THAT CURED MY CANCER
Posted by Hellen
Last Reply July 8, 2016 at 16:20
Started July 1, 2016 at 10:58
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1 replies...

How long before I can walk?
Posted by Karen
Last Reply July 7, 2016 at 16:18
Started December 4, 2011
Hey everyone, so happy to have found this forum.Im a 34 year old
female. I was rushed to the emergency room 10 days ago and had a blood
clot in my left leg from my pelvis to my knee. After figuring out my
INR levels, took 7 days of needles, I'm currently on 3mg of warfarin
daily. I had severe swelling that has currently put me in a wheelchair
to get around anywhere I go. It has gone down a little now but i still
have a lot of PAIN! My question is this, when will I be able to walk
again? I have been told a week to a week and a half, to my last
doctors saying a month or two. i have a two year old little girl that
I'm obviously having difficutly taking care of, I can't work, bathe
myself, or well really do much of anything. I just really want my leg
back and it gets so scary sometimes that I might never be able to
again. any help at all would be greatly apreciated!! thank you

15 replies...

Does ACUPUNCTURE cause DVT?
Posted by CC
Last Reply July 7, 2016 at 15:18
Started November 23, 2011 at 18:53
I received my one and only acupuncture treatment and 3 days later had DVT in both legs. Does this sound familiar to any of you?

12 replies...

Should I be worried
Posted by James
Last Reply July 6, 2016 at 06:45
Started July 6, 2016 at 06:45
Iv been having some discomfort in my right leg for two weeks, changing from calf
to thigh to hip, never really two at the same time.. No swelling, no redness .. In the
two weeks or so Iv had 3 negative duplex ultrasounds done by hospital and a
company that only does ultrasounds , x Ray's ect, all three done by different
techs. I have also had the d dimmer which was negative (0.2) and been seen by
like 6 different doctors , also had all my bloods done, cholesterol , blood sugar
ect everything was fine.

But I'm still very worried they missed a clot!
Am I being to paranoid or should I still be questioning?

I'm a 24 year old male in AUS
No long travels
No family history I'm aware of
No surgery or anything

Just been a bit lazy lately due to being off work with a injury
Just being very concerned reading some peoples story's on the Internet

Thanks

0 replies...

Help! Severe calf pain!
Posted by Toxy
Last Reply July 6, 2016 at 02:03
Started February 15, 2011 at 15:41
Iam very afraid and need advice. August 2010 i was diagnosed with a large
lumbar disk hernuation. I had severe sciatica and stabbing pain all down my left
leg. After months of suffering, the pain in the leg subsided a bit. And bam! I was
diagnosed with a dvt in the same aching leg - in a large vein below the knee. I
was for 5 days in a hospital on IV heparine and then changed to a oral
anticoagulant acenocoumarol (Sintrom). Now, 4 months later i suffer from a
severe stiffness in the calf wherebthe dvt is. After numerous examinations, the
vascular surgeon said that the vein is "reopened" at 30% and tat most probably
the pain comes from the herniation, compressing a nerve root. But it is a bit
strange, since i dont have nerve pain along the leg now, only this severe
stifness of the calf muscle, which is constant and makes me insane. Also I feel
my leg very heavy down there. Its diameter is also with 4cm bigger than the
other unaffected leg. My questions are:
... read more

4 replies...

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stopping warfarin
Posted by suzanne
Last Reply July 3, 2016 at 19:01
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

153 replies...

Is tonic water okay with warfarin
Posted by Diane
Last Reply July 1, 2016 at 14:42
Started June 15, 2011 at 20:52
Hello my husband has sever legs pains and cramps from a blood clot behind his knee. He is on warfarin. Is it okay to give him tonic water to relieve this cramp?

2 replies...

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