DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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DVT and Work
Posted by Stephanie
Last Reply February 25, 2015 at 17:47
Started February 23, 2015 at 20:06
Hi everyone
I am 44 years old. I was diagnosed 3 weeks ago
with a right DVT and 2 pulmonary embolisms. I was
in the hospital and I am home now. I was put on
zerato and I go back to see my doctor soon. I am a
nurse and I work on a busy unit 12 hour ling shifts.
My leg is still a bit swollen and I have pain in my
leg and I get short of breath easily. I was wondering
how long should I be off from work? When should I
go back to work? Any suggestions?

1 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply February 25, 2015 at 13:24
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

102 replies...

tattoo's on warfarin!
Posted by chir jones
Last Reply February 24, 2015 at 13:31
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

89 replies...

BLOOD CLOT IN LEG
Posted by SHAWNEE
Last Reply February 24, 2015 at 07:18
Started April 17, 2008
I am 30 yr old female, weight is 135,don't smoke and don't drink. My left legs hurts really bad. Started numbness and tingling in butt from sitting on chair at computer. Then pain was in the crease of bottom of left butt cheak. As time went on the pain went further down. It hurts now to sit on my butt on the chair and pain, tingling and soreness goes down my whole left leg now. Been happening for about 4days now. When i stretch out my calf it feels like the muscle been stretched too far already. I have not gotten hurt or did any thing to hurt my leg.
Sometimes i get sharp pains in my leg. There is no swelling,reddness or skin that feels hot. Although sometimes it feels warm on the inside. It hurts to push on certain areas on the back of my thigh and down. Skin feels very sensitive to touch. Like having the flu.
I was diagnosed w/3 leaky heart valves and i am taking propranolol for high heart racing. I was soooo scared that i had a blood clot in the leg that i rushed to the ER and ... read more

78 replies...

Does Water intake effect INR
Posted by M. Dean
Last Reply February 24, 2015 at 05:29
Started August 14, 2013 at 19:15
My INR stays withing range usually, meaning they have not changed my dose for a couple of years. Last week when I went in my INR was 3.2. I remembered that I had had a salad at Olive Garden, but that should have made the INR go down. I have been drinking an extra amount of water the last few weeks.

I work out in the hot usually and haven't been drinking enough water, which may be the base cause of the DVT that I experienced. I am just curious. My doctor says that I will be on Warfarin for the rest of my life, so I want to be sure to take proper care lest the stuff tries to kill me.

2 replies...

low INR
Posted by julie
Last Reply February 23, 2015 at 16:38
Started November 19, 2008 at 10:02
i am 3 weeks post DVT and although my INR was once 2.5 it is now 1.5 or 1.7.my GP does not sem worried-she says my blood is still thinner than a 'normal' person,which is 1.i know a too high INR has the risk of bleeding,but are there risks with it too low,other than another clot might form?im really asking if i should worry or if it stays like this for the 6 months i am on warfarin,will it be ok?

90 replies...

Anti-embolism/Compression Stockings Study
Posted by A
Last Reply February 23, 2015 at 12:37
Started February 23, 2015 at 12:37
Hi All! I am doing a final year pharmacy project looking into the use of anti-
embolism/compression stockings.
I would be really interested to hear patients' views on these stockings and have created
a short questionnaire. It takes less than 10 minutes and will be kept completely
confidential and anonymous.
If you would be interested in filling out my questionnaire, the link is here:
http://goo.gl/forms/GFkdTHMMLf.
Just 1 thing: if you're not from the UK, please can you just state that. (Near the end,
there's a space for any other comments, so jet write which country you're from there.)
Thank you!! :D

0 replies...

Why is high INR dangerous?
Posted by Michelle
Last Reply February 23, 2015 at 04:41
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.

Thanks!

34 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply February 22, 2015 at 12:02
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

66 replies...

flying while still having dvt
Posted by magnet
Last Reply February 22, 2015 at 04:04
Started September 5, 2007 at 07:52
i am due to go on holiday in two weeks.the flight is for two and half hours.Has anyone else flown while still having dvt.i know that i will have to use socks and move my leg around but has any one else got any other advice.
i have the dvt in my left low leg.
i am 32 years old

52 replies...

DVT while on warfarin?
Posted by Elizabeth
Last Reply February 21, 2015 at 17:23
Started August 8, 2006 at 01:46
Has anyone here ever had a DVT while on therapeutic doses of warfarin?

16 replies...

Greenfield filter pain
Posted by marie
Last Reply February 17, 2015 at 10:51
Started March 9, 2008
Hi there, I was recently diagnosed with May-Thurner and Factor II mutation complicating the matter. I had a procedure done a couple of days ago to place a stent in the iliac vein and a greenfield filter in my IVC. Has anyone experienced severe right flank pain after having the greenfield filter put in? My doctors did a CT scan to make sure that there was no internal bleeding and it looked normal. They suggested that the pain may be from the procedure or the filter. Thank you for your input

31 replies...

heparin, whilst flying
Posted by Sue from England
Last Reply February 16, 2015 at 22:15
Started September 26, 2009 at 11:30
Come off warfarin next week after being on for 15mths. I have been told i can only fly if i learn how to self adminster heparin and inject 2 hrs before each flight i take.Is there anyone else out there that has to take heparin to be able to fly? is it safe? How do you go on at the airport with your injections?getting them through customs? How do you have to present them? is there a room available? or do you do it in the toilets? Its just about getting my head around it all.

3 replies...

Flying after dvt
Posted by Linda
Last Reply February 14, 2015 at 22:39
Started February 14, 2015 at 04:41
Hi there! I've had 2 blood clots in the last two years in my lower left leg,and both
times was treated successfully with heparin & warfarin. My last clot was February
2014, and I was wondering if it would be safe to fly long haul in the future? Will
ask my doctor when I next visit, but was wondering if anyone on here as
experienced this? Thanks

1 replies...

balance issues/back of knee pain
Posted by pamela
Last Reply February 14, 2015 at 22:22
Started February 13, 2010
Two questions for those of you sometime out from your DVT. Mine was 4th toe to
thigh in July 09. I am now working out regularly, have even taken some other steps to
help my health, such as going to a physical therapy class to deal with knee pain going
back to working out (beginnings of patellofemoral syndrome, probably no association
to my clot, and mild in both knees.) Feeling some discomfort at the HR/cardio level I
was at before, I've stepped back just a bit a few days a week and have attempted to
return to a little balance, reincorporating strength training and yoga.

Does anyone else have balance issues with their DVT leg, as if muscle, soft tissue, etc.
just aren't working together properly?

My DVT was diagnosed after 3 1/2 weeks of swelling, I endured at least 3 weeks more
before the swelling went down by any noticeable amount. One of the triggers that
made me go back to the doc was the pain behind my knee every time I bent it. Does
anyone else... read more

1 replies...

Gout in knee and now painful swelling calf.
Posted by Paula
Last Reply February 12, 2015 at 18:10
Started July 31, 2009 at 20:09
Can an attack of gout cause a DVT or phlebitis. Had gout for a few days and now my calf of the affected leg is swollen and painful. Has anyone ever heard of this.

13 replies...

Just released taking Previscan
Posted by Lore
Last Reply February 12, 2015 at 10:00
Started March 18, 2008 at 19:10
Hi,

I was just released from the hospital today after suffering from multiple small DVTs throughout my left leg and a minor PE. I am 35 years old and otherwise healthy. I was taking low dose estrogen birth control pills and had taken two 6 hour flights over 2 days. I am American but living long term in France and I am currently taking 5 mg of Previscan. I understand that Previscan is widely used in France, but not so much elsewhere. Does anyone have any experience with this drug? Any side effects or things to be concerned about? Also any advice for dealing with my condition? I have not yet had a chance to see what my mobility limits are but the swelling has gone down considerably in my leg and I am getting around my apartment without much trouble or pain. I felt a little winded when I went up the stairs quickly.

Thanks, Lore


55 replies...

Will the swelling ever go away?
Posted by Kelly
Last Reply February 11, 2015 at 20:54
Started December 14, 2010 at 15:25
Two years ago, I fell downstairs and twisted my ankle pretty well. End up to ER and doctor said there is just a sprinted and put me on boot for my leg/ankle. As I was on the boot, and while asleep, I couldn't sleep so well for 3 days straight, the pain gotten so worst. It's like something is growing inside from my ankle to my knee.....thankful Texas Photo forum saved my life telling me to go ER again. Once I went back to ER and the doctor found blood clot in my leg and of course I was so devastating that is my first blood clot ever. So I stayed in hospital for a week to have those shot in my tummy. And I got on warfart for 8 months and now it's dissolved. I have wore compressed stocking but man it wasn't comfortable at all so I got rid of it after 3 months wearing it. Now it's been 2 years and I still get swelling. Will the swelling ever go away? As of right now I weight 220, 5'4 (I am female) and I am 31 years old. Could the overweight still giving me problem with swelling? I could... read more

15 replies...

DVT Leg Swelling
Posted by kb
Last Reply February 9, 2015 at 08:29
Started January 2, 2009 at 17:18
Hey all, I am about a month into my warfarin treatment for a DVT left leg (thigh high to calf) and subsequent PE in each lung. I personally believe the clot was in my leg for some time before what I thought was a muscle pull in my calf revealed the DVT. I am active (jog, sports).
When does the swelling in the leg go away? My case is calf down to ankle - no thigh swelling. Has anyone had swelling, then after DVT treatment it is gone? I am reading some threads where people have swelling for life. My doctors say it is normal to see swelling for a couple of months until the clot dissolves back into the body and depending on vein damage the swelling might never go away. I am curious to hear other stories.
I am currently wearing compression stockings during the day which if I am on my feet part of the day I have no swelling. I also read that wearing stockings after being diagnoses with DVT you can reduce your chances of chronic issues later on.
I don't mind the healing process, but ... read more

57 replies...

Physical Damage of DVTS
Posted by Stuart
Last Reply February 9, 2015 at 06:40
Started May 20, 2008 at 20:40
I have two had two DVTs in the same leg over the past two years. i have been off work for several months and i am permanently on warfarin now, the leg i had the clot in still feels weaker is bigger than the unaffected leg. i have been advised by a medical professional that DVTs have no physical effect on leg strength etc and that there is no reason not to return to work. as there is clearly a difference between both legs i am confused and wondered if anyone could clarify this for me as i had been previously told the valve in my leg had been affected with my first clot.

11 replies...

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