DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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tattoo's on warfarin!
Posted by chir jones
Last Reply June 27, 2016 at 12:06
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

104 replies...

ACL Injury Causes Clot
Posted by Scott
Last Reply June 27, 2016 at 06:41
Started February 13, 2009 at 21:06
I am 17 years old and I got a blood clot after I tore my ACL playing basketball. The clot that ranges from my calf to my groin has put my surgery on hold for 4 months. I am still waiting to get another ultra sound to see if the clot is still there, however, I still feel pain from time to time in my thigh. Has anyone else had this similar occurrence after a serious injury? Also, is the pain I am feeling due to the blood clot? This whole series of events has really been a downer on my life and I have lost a whole year of my life due to this. I cannot do the one thing I love which is playing basketball. :(
Has anyone else had a similar experience or any words that can help me cope with this?

23 replies...

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Posted by ReoHaugh
Last Reply June 27, 2016 at 06:16
Started June 27, 2016 at 06:16
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0 replies...

DVT Leg Swelling
Posted by kb
Last Reply June 26, 2016 at 13:51
Started January 2, 2009 at 17:18
Hey all, I am about a month into my warfarin treatment for a DVT left leg (thigh high to calf) and subsequent PE in each lung. I personally believe the clot was in my leg for some time before what I thought was a muscle pull in my calf revealed the DVT. I am active (jog, sports).
When does the swelling in the leg go away? My case is calf down to ankle - no thigh swelling. Has anyone had swelling, then after DVT treatment it is gone? I am reading some threads where people have swelling for life. My doctors say it is normal to see swelling for a couple of months until the clot dissolves back into the body and depending on vein damage the swelling might never go away. I am curious to hear other stories.
I am currently wearing compression stockings during the day which if I am on my feet part of the day I have no swelling. I also read that wearing stockings after being diagnoses with DVT you can reduce your chances of chronic issues later on.
I don't mind the healing process, but ... read more

63 replies...

XARELTO
Posted by Zeb
Last Reply June 26, 2016 at 13:17
Started October 2, 2012 at 04:29
Folks Xarelto is so much better than Warfrin! Less side effects no INR checks ever! It has been shown to be more effective at preventing specifically DVT's than Warfrin or Lovenox. It is approved in Canada all of Europe and most of Asia for DVT prevention. I hated Warfrin so bad I convinced my doctor to put me on Xarelto. Best decision ever. Ask/beg your doctor for Xarelto you will be happy you did!

52 replies...

stopping warfarin
Posted by suzanne
Last Reply June 25, 2016 at 16:44
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

152 replies...

Problems with heat and blood thinners
Posted by Chris
Last Reply June 25, 2016 at 15:37
Started July 17, 2012 at 18:02
I've read a lot about heat sensitivity and anticoagulants, blood thinners. I have
previously had some problems with heat. This year with the extra heat and
humidity I am really having issues. If I go outside and do anything more than go
to the car and turn on the a/c I run a real risk of severe heat exhaustion. E.g. 0 to
flat on my back with my heart racing in five minutes. I'm currently on lovenox, but
I had a similar problem on Coumadin. I am in good shape, walk on treadmills, do
yoga 2x weekly. These problems have come on in the last month as the heat has
skyrocketed. I've been trying to gradually acclimate but that doesn't seem to be
helping. Maybe I need to be more patient? I've tried looking on the web and it's
clear that issues with heat aren't uncommon on these drugs but i haven't found
any ideas about what can be done about it.... Any suggestions from the group?
I'm getting really tired of spending the summer indoors.

7 replies...

PERIODS ON BLOOD THINNERS
Posted by DANIELLE
Last Reply June 22, 2016 at 14:37
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

351 replies...

Which activity is safe?
Posted by Moontrev
Last Reply June 22, 2016 at 11:01
Started June 22, 2016 at 11:01
Hi all, a quick question, is either cycling or scuba diving safe after a DVT?
If so, what precautions should be taken?
Also, is kneeling up kayaking safe?
Cheers
Trev

0 replies...

Which activity is safe?
Posted by Moontrev
Last Reply June 21, 2016 at 19:02
Started June 21, 2016 at 19:02
Hi all, a quick question, is either cycling or scuba diving safe after a DVT?
If so, what precautions should be taken?
Also, is kneeling up kayaking safe?
Cheers
Trev

0 replies...

Foot pain and swelling
Posted by Susy
Last Reply June 21, 2016 at 08:21
Started August 3, 2010 at 08:02
Has anyone experienced this after a DVT? I had my DVT back in December/Jan and am now off Warfarin. Everything has been fine up until a week or so ago when I started having this foot pain, worse in one foot than the other. It has gradually been getting worse and my feet feel really heavy and painful.

19 replies...

Horse chestnut - leg pain
Posted by Chris
Last Reply June 21, 2016 at 07:52
Started October 25, 2013 at 09:06
Hi all,
I just wanted to mention. I have tried a number of things of the years for my PTS,
leg pain, I have been taking horse chestnut over the last month and the pain and
to a lesser amount, swelling, have gone down significantly. I still use things like
compression boots and nattokinase but I have been very pleasantly surprised at
how well the horse chestnut seems to have reduced the pain and some of the
physical symptoms. Talk to your doctor, it might be something to try. I've just
been buying the solaray product off of amazon and taking two capsules.

Best

Chris

1 replies...

Lovenox and liver enzymes
Posted by Rick
Last Reply June 21, 2016
Started December 11, 2008 at 18:37
I had to be taken off Lovenox last week because
my liver enzymes continued to elevate. Put on Arixtra
until INR gets back to 2-3 range.
If it helps anyone else although its rare...make sure your
doctor checks your liver enzymes while on Lovenox.
Within a few days my levels have come back down to normal range.


24 replies...

DVT/Bilateral PE /Lyme Disease
Posted by Greg66
Last Reply June 19, 2016 at 06:59
Started February 8, 2008 at 05:30
Hi All,
I think I have read all the posts in this forum. All the stories have been very helpful and informative.


Pomfret, Connecticut USA:
I was diagnosed with extensive DVT in my left leg, from the groin down the femoral artery into the calf on 1/12/08. On 1/13/08 I was diagnosed with bilateral PE/3 PEs, and I had no symptoms other than an elevated pulse of 110 b/min. I was being treated for Lyme Disease since 9/08. I first noticed soreness in both of my calves on 12/5/08, which persisted with the left calf worse than the right. On 1/10/08 I had some soreness on the inside of my left knee. The whole time I had these symptoms I thought they were part of the muscle/joint pain/soreness associated with Lyme Disease. My wife was rubbing my calves for a month, not a good thing in retrospect... On 1/12/08 my left calf was slightly red and warm to the touch/soreness behind and on the right inside of my left knee. I actually took a hot bath and rubbed my leg in the bath, the... read more

22 replies...

New blood clot on warfarin possible?
Posted by Karen
Last Reply June 18, 2016 at 02:59
Started January 2, 2012 at 03:20
Okay so what would I do without this forum? Ha, I don't know!
I do have a question though, and I hope it's not just paranoia as this
blood clot has for sure scared me. I have had a few tinges and pains
in my right calf now, and throughout for the last 2 weeks or so. My
clot is in my left upper thigh and I've been on warfarin for over a
month now with that one. Never really stable on my meds, been 2.5 and
2.92 for one or two times, the rest of them 1.7 or around there.
My question is can i have another blood clot in my right leg while i'm
on warfarin? It is so achey, but I keep thinking that maybe I have
just used that leg so much for weight balance since my left one feels
heavy that I;m just pulling and using muscles...but god it feels odd.
Anyway I'm babbling and I'm nervous. So can you get another blood clot
in the opposite leg while on warfarin? thanks.

40 replies...

DVT and dyeing hair
Posted by debbie
Last Reply June 17, 2016 at 16:12
Started November 9, 2009 at 10:35
Hi
Just wondering if anyone has had bad experiences with colouring their hair with a DVT. I know that hair thinning is a side effect and thought that I experienced this in the beginning (about 6 months ago) but think it is ok now - (could also have been paranoia after reading lots about it)
Thanks!

12 replies...

xarelto and dizziness
Posted by Jennifer
Last Reply June 17, 2016 at 12:04
Started June 17, 2016 at 12:04
Hi I just started Xarleto 4 days ago due to DVT - I think it is making me lightheaded.
Not enough to make me feel like I will pass out just enough to be annoying. No
shortness of breath, chest pain or headache. It seems to start about an hour after
taking it and be bad for a few hours and then gradually lessen but not completely.
Is this something people adjust to or should I see about switching to a different
med?

0 replies...

IVC Filter
Posted by Khalid
Last Reply June 17, 2016 at 07:35
Started October 7, 2009 at 11:23
Hi All,

I have been in touch with this forum for more than a year now. I have sufffered 3 DVTs and PE twice, once it was extensive.
I have an IVC filter implanted on 29th March 2008.

I was wondering how many of us who visit this forum wear IVC filters.

I remember some times back one of the visitor had started a topic inviting all those who suffered DVT due APL syndrome.

Generally you don't get to meet people with IVC filter, is it OK to form a list of people who have IVC filter in this post?

If you think its OK, please mention your name, type of filter, when it was implanted and any special comment you want to share.

1.) Khalid - Gunther Tulip Retrievable filter, but now its permanent - 29th March 2008.

15 replies...

Coming off Warfarin
Posted by Sarah
Last Reply June 17, 2016 at 02:48
Started January 6, 2009 at 19:21
Hi all,
I'm back for a bit of advice/your experiences. I'm about to go off warfarin after being on it for nearly 11 months. My history with dvt is: was taking birth control pills, had recently fallen on left hip and fractured elbow in the process; was quite a bit more sedentary as a result. I've been on warfarin longer than they wanted me to be, but did so because I wanted to continue it over the holidays because of air and car travel.

So, I'm contemplating weaning myself off of it, simply because I think it would be easier on my peace of mind. Hemo did tell me however that I could quit cold turkey. I would like to start taking something in place of it, perhaps fish oil or vitamin E, if for no other reason than the "placebo effect"... I've gotten so used to taking my meds at 7 pm every day that I think I may panic if I don't do that any longer.

For those of you who have come off warfarin, what has been your experience? any body re-clotted? anybody taking natural supplement... read more

147 replies...

legs aching after swimming
Posted by Claire
Last Reply June 17, 2016 at 02:30
Started April 8, 2010 at 15:26
i've started excersizing again since my dvt in August last year,walking mainly- about 3 miles around my subdivision several times a week,but just last week finally it was warm enough to go swimming,i did a fair bit,but boy do my legs ache now.Is this normal ??

6 replies...

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