DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply July 24, 2015 at 20:28
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

73 replies...

Compare side effects of warfarin
Posted by Amandajane
Last Reply July 24, 2015 at 13:23
Started November 14, 2008 at 07:16
Hi everyone,
I read all the time how you guys dont feel well on warfarin. I have been on it for over 5 years and dont suffer from it. I am curious to know what your side effects are. I used to get alot of headaches in the first year or so but not so much any more. About the only side effect I have now is the fear of a brain bleed!
Amandajane Queensland

21 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply July 24, 2015 at 09:49
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

124 replies...

flying with clexane
Posted by kyasa
Last Reply July 24, 2015 at 07:13
Started June 30, 2010 at 04:06
Hi all
I had a DVT and multiple PE in April last year caused by birth control pill, which I have since stopped taking. I have no other risk factors. I Was on Warfarin until Dec. Have had no problems since.

I am going on a 9.5 hr international flight in a few weeks. I have compression stockings to wear and my doctor has prescribed clexane injections. My question relates to the dosage of clexane.

My doctor said I should have one 60ml injection the night before my flight, another one 12 hours later (a few hours before boarding), and then a third injection 12 hours later (about an hour before landing). Are 3 injections necessary? Is it enough to just have one a few hours before the flight?

any advice would be appreciated, thanks.

31 replies...

tattoo's on warfarin!
Posted by chir jones
Last Reply July 23, 2015 at 11:53
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

91 replies...

Greenfield Filter
Posted by Lisa
Last Reply July 23, 2015 at 11:31
Started June 10, 2008 at 23:06
Does anyone have a greenfield filter? Would like some info on it. I have one and it is occluded

54 replies...

Leg cramps
Posted by Juliet
Last Reply July 23, 2015 at 07:49
Started June 29, 2009 at 23:14
Hi all, recently ive been experiencing some painful cramping in my left thigh. The pain
goes from the top of my knee and shoots up my thigh, the cramp always seems to be
there, although it peaks and its very painful. Its always in the one leg, the right one,
which is were my large clot was. It got so bad, i was crying last weekend and ended up
in A&E, they told me it was muscular and to go home and take some paracetamol. Ive
had the pains again yesterday and today. Im on Warfarin for life. Im just wondering if
anyone else has experienced this type of pain? Thank you.

9 replies...

Does Warfarin cause itching and rashes?
Posted by Ken G
Last Reply July 23, 2015 at 05:37
Started March 31, 2011 at 17:07
Anyone else experiencing this? I have some "itchy spots" developing. On my back,neck,shoulders, and now just recently a couple of spots on my stomach. My head has started to itch. And now some mild rash in my armpits. Now what do I do? I think it is related to Warfarin as I found this other thread:



Can I get a substitute anticoagulant? I don't think I continue like this as it seems to be spreading....... all started after about 6 months on Warfarin

3 replies...

Skydiving on Warfarin
Posted by Janine
Last Reply July 22, 2015 at 16:07
Started August 19, 2008 at 17:17
My boyfriend recently bought me a tandem sky diving adverture for my birthday and wants me to go at the end of Sept.

Even though this petrifies me, I was wondering if it is actually safe for me to do this whilst I am on warfarin?

28 replies...

DVT Discovered last night!
Posted by Abbi Cooper
Last Reply July 22, 2015 at 13:01
Started September 5, 2007 at 17:57
Hello, I just found this site, I have had a very sore claf for 3 days and last night my partner came home from work and looked at it and said it could possibly be DVT, I phoned NHS Direct who asked questions and then advised me to go to A&E which I did and was seen immediately! They think its DVT as I had blood test which came back positive to thickening blood and have FRAGMIN to inject each day into my tummy, I have to go on Friday for a scan, can anybody tell me what will happen after the scan etc etc? Thanks very much, Abbi -

12 replies...

Vascular surgery to remove hardened blood clot
Posted by Jim
Last Reply July 21, 2015 at 20:11
Started May 9, 2012 at 20:47
I have DVT in the left leg, was given Warfarin as my only treatment. Three months later, I was discharged by a vascular surgeon, told to wear a sock and "handle it." WEll, I am not going to "handle it."

I will now get a second opinion and will not back down until I find a vascular doctor and an interventional radiologist to remove the hardened clots in my leg.

Could anyone share their success stories regarding surgery to remove hardened blood clots?

54 replies...

Going to doctor for calf pain?
Posted by LaurenR
Last Reply July 21, 2015 at 13:12
Started May 13, 2010 at 09:48
I'm wondering if anyone who has been diagnosed and had calf pain can help me.

I woke up yesterday morning and my right calf felt extremely sore. At first I thought
that I had just pulled something but as the day went on it got worse and now I am
having serious trouble walking. It feels like I need to stretch it but it only makes it
worse. It also hurts when I press my calf. It doesn't feel like the cramps you get when
you're low on certain vitamins, etc. And I haven't exercised recently (seeing as my
finals start tomorrow) so I know I didn't strain anything while running or anything.

I was thinking of going to the doctor because I am on birth control pills and I know
that that could be something that puts me at risk. The only thing is that I do not have
any other symptoms, besides the increasing pain. No redness, noticeable swelling, etc.
Do you think that going to the doctor is too premature seeing as it has only been two
days? Has anyone had these same s... read more

10 replies...

stopping warfarin
Posted by suzanne
Last Reply July 21, 2015 at 11:30
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

131 replies...

Warfarin Weight Gain
Posted by Claire
Last Reply July 21, 2015 at 04:41
Started June 2, 2014 at 06:44
I have visited this site a number of times throughout my treatment and have found it such a comfort to not feel alone. I believe that there is not enough information out there for people going through the diagnosis, treatment for DVT. I am a mum of two, 41 years old, non smoker usually slim and active I have been on Warfarin since Dec 13 following a large DVT in my right calf. It took a long time to get my INR stable. I am so relieved to read all of this -
The worst thing for me has been the fatigue and joint pain, my knees, hips and lower back all give me a lot of trouble - I feel about 100 years old some days. Initially I lost weight but now think that that was the shock and stress of being diagnosed. I am due to end my treatment this week and cannot wait for the day to arrive. I have gained at least 30 pounds and my breast size has also increased considerably. I have always been slim and can only describe the feeling as being unbelievably bloated and uncomfortable. I am hopin... read more

1 replies...

Xarelto and exercise
Posted by CJ
Last Reply July 20, 2015 at 15:20
Started July 20, 2015 at 15:20
I have been on Xarelto for 4 months. I am trying to exercise but still
feel so fatigued. I was very active before my DVT/PE ( 1/2 marathons,
cycling, lifting) and just having a hard time feeling normal when
exercising. Feel very out of breathe when only running 3-5 miles. Can't
seem to run more than 5 miles now! Anyone else experience this? Also I
have gained about 10 lbs and can't seem to lose it! Feeling very

0 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply July 20, 2015 at 07:15
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

527 replies...

Blood clotting disorder
Posted by Savannah
Last Reply July 20, 2015 at 02:31
Started July 20, 2015 at 02:31
Hi I am 18 years old and I had a DVT back in January that ran from my calf to the
base of my vena cava. They removed it through surgery and now I am taking
xarelto and wearing compression socks. When they did the surgery they found
out I had May thurners syndrome and now I may have to get stints put in my leg.
My doctor wants to test me for lupus anticoagulant and I was wondering if
anyone else was or is getting tested for this and if they have any symptoms. I
always feel light headed and I have the purple laced skin rash that I think is called
livedo reticularis (I know I spelled it wrong) it's on my hands feet and thighs. I
also have been having heart palpitations lately and I passed out the other day.
Can someone please help me if they have this disease or know someone with it.
Thank you. Ps I go to the doctor soon

0 replies...

Posted by Dolores
Last Reply July 20, 2015 at 02:16
Started July 13, 2015 at 18:59
I had a dvd 2 years ago. Took warfarin for 6 months. My leg still
swells, although not a lot. Well, it's enough to bother me, I guess:(
The big problem here is stiffness. Around the calf area, the DVT leg
is stiffer than the "good" leg, so it looks more swollen than it
really is. When I wake up the legs seem almost similar but with the
hours going by the DVT calf gets kind of hard and it seems that my
right leg is really swollen:( I wear compression stockings during
Autumn and Winter but now (here) it's Summer, I can't stand them! And
I don't feel good walking with a swollen leg. I'm only 23 and I love
shorts and short skirts...Will this get better? Is there something I
can do to help?
Thank you so much.

3 replies...

18 and had my first DVT
Posted by chloegawlik
Last Reply July 20, 2015 at 02:10
Started April 10, 2015 at 16:52
I am 18 and I'm in my first year at uni and I had my first DVT in march. I was
diagnosed with two blood clots, one behind my left knee and the other in my left
I was in a lot of pain and kept in hospital for 5 days whilst they figured out why I
got these clots. They narrowed it down to the fact I was on the contraceptive pill.
Fortunately i had a CT scan and they found that I had no artery from my left leg to
my heart, instead I have my own system of veins and arteries all around my body.
The doctors said this saved my life and otherwise I would of had to have had
surgery to remove or filter the clot.

I have now been on warfarin for 3 weeks and I have finally got into the range of
INR that they wanted me in. I have also finally started to be able to walk again
without pain and the pain has disappeared all together which fills me with hope
that my clot is dissolving.

The fact I cannot drink more than 3 units of alcohol for 3-6 months is upsetting as... read more

1 replies...

Sex drive and warfarin
Posted by Lucy
Last Reply July 19, 2015 at 22:31
Started January 14, 2010 at 01:12
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,

83 replies...

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