DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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IVC Filter
Posted by Khalid
Last Reply November 30, 2016 at 23:27
Started October 7, 2009 at 11:23
Hi All,

I have been in touch with this forum for more than a year now. I have sufffered 3 DVTs and PE twice, once it was extensive.
I have an IVC filter implanted on 29th March 2008.

I was wondering how many of us who visit this forum wear IVC filters.

I remember some times back one of the visitor had started a topic inviting all those who suffered DVT due APL syndrome.

Generally you don't get to meet people with IVC filter, is it OK to form a list of people who have IVC filter in this post?

If you think its OK, please mention your name, type of filter, when it was implanted and any special comment you want to share.

1.) Khalid - Gunther Tulip Retrievable filter, but now its permanent - 29th March 2008.

18 replies...

Collagen,
Posted by http://skinsephora.com/ev-derma/
Last Reply November 30, 2016 at 11:53
Started November 30, 2016 at 11:53
Collagen, that's liable for the elastic strength. whilst collagen is
produced in proper quantity your pores and skin grows higher and also
you turn out to be capable of update your lifeless and badly coloured
pores and skin with healthy and right coloured pores and skin. t may
dispose of stretch marks. just a few
.
http://skinsephora.com/ev-derma/

0 replies...

Your Experiences with Post Thrombotic Syndrome
Posted by Sarah
Last Reply November 25, 2016 at 21:47
Started October 12, 2008 at 21:37
Hi All,
for those of you that have had your dvts for awhile, I'm curious about your experiences with PTS. I'm 8 months past my initial diagnosis. Lately I've been feeling some slight pain in my vein in the upper/inner thigh. I know this is where my clot was, and I know I have residual clot there as I never had thrombolysis. I had a follow up ultrasound 2 days ago to assess for reflux so I know this is not new clot. The discomfort is usually not too bad, and seems to subside after awhile. Have any of you all felt this as well? Not much swelling, just this vein stuff that I think is happening a little more often than it used to. If anyone cares to describe what PTS is like for them I would be intersted in hearing your stories.
Sarah

98 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply November 25, 2016 at 17:39
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

252 replies...

When is it OK to return to work?
Posted by ergomaniac
Last Reply November 22, 2016
Started February 14, 2008 at 12:39
Hi everyone. I am totally new to this area and am struggling to get information. Brief history is that 2 weeks ago I was diagnosed with bilateral lower limb DVT and bilateral pulmonary edema. I was started on Fragmin injections with coumadin whilst I was in hospital but then when I went home it was just the coumadin. I am only 40 and have a hectic physical job and a 3 hour commute to and from work each day. I know it is all individual but I'm just trying to get a handle on how long most people tend to have to stay off work for. The doctors are still trying to stabilise my INR - last night it dropped to 1.6 so I had to go to the hospital to get a Fragmin shot and they doubled the coumadin dose to 6mg. Any help/advice for a newbie would be very gratefully received. Thanks :)

17 replies...

how long does the pain in the leg last
Posted by Angela
Last Reply November 20, 2016 at 11:36
Started July 3, 2010 at 21:38
i had dvt in my left leg abt a week ago and was hospitalized for 5 days, am now on warfarin. i would like to know how long it will take for the pain in the leg to go away cos the pain is simply unbearable. would also like to know when i can go back to work. has any one gone through the same out there. pls help

71 replies...

7 wks into dvt treatment now pain again
Posted by KarenB
Last Reply November 18, 2016 at 12:46
Started November 18, 2016 at 12:46
I have been on Eliquis for 7 weeks for
treatment of bilateral DVT in my calves. A
few days ago my legs started swelling
again and a couple days ago became red
again and painful to stand. What to do? I
see heme on Monday.

0 replies...

How long to wait after DVT before hysterectomy
Posted by Beth
Last Reply November 18, 2016 at 01:20
Started September 17, 2007 at 03:43
This forum is great. I just had DVT and PE diagnosed - not confirmed but speculation given no other health or travel issues is the large fibroid pushing into my vein. If that is really the cause, I'd like to have it out ASAP. It appears most people have surgery, then DVT - not the opposite. Any that needed surgery after DVT and PE know how long you have to wait or what test you have to pass before you can have major surgery?

18 replies...

Greenfield filter pain
Posted by marie
Last Reply November 17, 2016 at 15:36
Started March 9, 2008
Hi there, I was recently diagnosed with May-Thurner and Factor II mutation complicating the matter. I had a procedure done a couple of days ago to place a stent in the iliac vein and a greenfield filter in my IVC. Has anyone experienced severe right flank pain after having the greenfield filter put in? My doctors did a CT scan to make sure that there was no internal bleeding and it looked normal. They suggested that the pain may be from the procedure or the filter. Thank you for your input

36 replies...

Low White Blood Cell count on Warfarin
Posted by DHY
Last Reply November 14, 2016 at 06:00
Started August 15, 2009
Hi everyone, I recently had a Complete Blood count taken and it showed my white blood cell count had dropped to a bit below the normal range since I started on Warfarin. All other counts in the test came back ok.

Has anyone else noticed that their white blood cell count decreased whilst on Warfarin?

Thank you.

13 replies...

How Long To Dissolve
Posted by Jim H
Last Reply November 13, 2016 at 21:01
Started February 10, 2009 at 19:15
Hi,
I was diagnosed w/ DVT in October/08 after Orth. knee surgery. I've been through the regimen of Lovenox and now warfarin with blood draws every two weeks. I've had my last ultrasound 1/21 which showed the clot still present. I go back again in a week, but by judging the discomfort in my calf, I would have to guess there still present. Anyone care to share how long it took them to rid themselves of this horrible problem or any suggestions that may be helpful. I'm begining to get frustrated. I've been out of work for nearly five months & about to run out of STD checks

11 replies...

What happens to a clot if not dissolved
Posted by Megan
Last Reply November 13, 2016 at 20:13
Started May 23, 2013 at 18:07
Hi there,
I was diagnosed with DVT & PE after giving birth 8mths ago. I have/had DVT in
my leg and a complete blockage in my right lilac vein. A recent ultrasound
showed the complete block and some clot in leg still exisiting. My specialist said
the clot solidified in to scar tissue? And my body has directed the blood (because
I have no pain or swelling).

Can someone explain this to me, they want me to stop taking Warfarin. I'm
concern as I don't understand if its correct that just because its been 8months it's
a sure thing it's now scare tissue? And the bits in my legs that are still there, the
same?

Thanks in advance :-)

10 replies...

A compound called rutin shown to inhibit the
Posted by N
Last Reply November 13, 2016 at 20:01
Started May 9, 2012 at 01:11
ScienceDaily (May 8, 2012) A compound called rutin, commonly found in fruits
and vegetables and sold over the counter as a dietary supplement, has been
shown to inhibit the formation of blood clots in an animal model of thrombosis.

These new findings, led by investigators at Beth Israel Deaconess Medical Center
(BIDMC) and published in online in The Journal of Clinical Investigation (JCI),
identify a novel strategy for preventing thrombosis, and help pave the way for
clinical testing of this popular flavonoid as a therapy for the prevention and
treatment of stroke and heart attack, as well as deep venous thrombosis (DVT)
and pulmonary embolism.

continue reading:

http://www.sciencedaily.com/releases/2012/05/120508124545.htm


2 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply November 11, 2016 at 23:48
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

106 replies...

Long term use of clexane injection
Posted by Kellie Green
Last Reply November 10, 2016 at 17:01
Started May 18, 2008 at 18:49
Hi everyone
I have had 2 dvt's and a few years ago multiple clots in both lungs.
Warfarin was not agreeing with me and made me feel really ill - they were putting my dose higher and higher and my inr was not coming down.
I have now been on clexane for nearly 3 years with a 40mg injection daily - I just wondered if anyone else out there is on clexane injections long term as my haematologist does not know of anyone else in the same situation as me.
I am also on a high dose of calcium as one of the possible long term side effects (although they do not have enough research yet to benchmark) is osteophorosis - as im only 38 and have three kids needless to say I am quite concerned about the future - would be really grateful for anyones advice.
Incidentally, I have sporadic episodes of positive anitcardio lipins blood tests ?
Thanks - Kellie :-) x

105 replies...

Do Wayfarin and Lovenox cause anxiety/depressi
Posted by Paige
Last Reply November 9, 2016 at 19:15
Started November 9, 2016 at 19:15
Hi, I am just wondering if Wayfarin and/or Lovenox could be causing
anxiety and depression. I had a big drop when they cut my Lovenox
injections cold turkey. You would think I would be happy! But I just
haven't felt right while taking these blood thinners. I'm not sure if
it's the fear of what could have been with my DVT or if these
medications actually mess with your moods. What do you think?
Paige

0 replies...

Do Wayfarin and Lovenox cause anxiety/depressi
Posted by Paige
Last Reply November 9, 2016 at 19:14
Started November 9, 2016 at 19:14
Hi, I am just wondering if Wayfarin and/or Lovenox could be causing
anxiety and depression. I had a big drop when they cut my Lovenox
injections cold turkey. You would think I would be happy! But I just
haven't felt right while taking these blood thinners. I'm not sure if
it's the fear of what could have been with my DVT or if these
medications actually mess with your moods. What do you think?
Paige

0 replies...

anxiety and depression after dvt
Posted by amanda
Last Reply November 9, 2016 at 19:09
Started January 31, 2010 at 18:46
I have posted on this site on numerous occasions with dvt anxieties, and thanks to all that have replied. I need help again please as im suffering with anxiety and depression quite bad. My leg is fine, no swelling or pain, thank goodness, and i know that the clot has gone as i have had scans and d dimer blood tests, all negative, and as it was caused by injury,am unlikely to suffer another. Has anyone else felt like this and after 18 months surely i should be feeling better than i am. Please help.

7 replies...

Possible DVT?
Posted by Marcus
Last Reply November 9, 2016 at 14:08
Started November 9, 2016 at 14:08
Hi,
I have been having health problems that doctors currently have been unable to diagnose. I suspect that it has something to do with thrombosis. I get cramps and palpitations in my lower legs, even in my feet. Pains in my calf and the back of my knees and sometimes in the lower hamstring. When the sensations are most prominent, and I feel my worst, I feel a strong rushing, as though blood squeezing through the veins in my legs. When I try to stretch them out by bending over and touching my toes my lower legs almost feel like they are vibrating! Rather strange. And my calves - especially the calves - and hamstring are uncharacteristically tight. Does this sound like DVT?

0 replies...

xarelto and hair loss
Posted by Jessie
Last Reply November 5, 2016 at 22:35
Started October 17, 2014 at 05:08
I suffered bilateral pe's shortly after
the induction of anesthesia for a gall
bladder surgery. I was started on
coumadin in the hospital. The drs wanted
to switch me to Xarelto, selling it as a
wonder drug.

Since taking it, I've experienced terrible
hair loss. (I was at work the other day,
took out my pony tail and ran my fingers
through my hair. I threw away the
resulting clump. My friend came over to
talk, saw the hair and wanted to know why
I cut my hair at work).

Has anyone else had this issue? After a
discussion with my drs, we're switching
blood thinners. I hope the hair loss
improves.

29 replies...

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