DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4462) - Page 2 of 224
Negative D Dimer and Normal Ultrasound pain
Posted by Dvt newbie
Last Reply February 8, 2016 at 04:11
Started February 8, 2016 at 04:11
I wear compression thigh sleeves because I get low Blood Pressure standing. I
am supposed to wear the socks but they look like a grandma. I have worn the
thigh sleeves for 2 years but sometimes when I wear them they completely cut off
circulation to below my knee and my high ankle/calf hurts. I usually stop wearing
them 1-2 days and the cramping tightness goes away. Well the last 2.5 weeks it
hasnt went away and has gotten worse especially when laying down. I went to a
cardiologist a few days ago and requested an ultrasound. I got it the next day. It
came back normal except at the time the pain had moved to my ankle and they
said they cant ultrsound my ankle, then over the weekend as I would walk in it the
pain moved up to my hamstring and right buttocks area. I was getting nervous a
clot was traveling so I went to the ER. I asked for a D-Dimer. The D-Dimer came
back normal. I read there was only a 1% chance I had a clot after those results.
But a) the ultras... read more

0 replies...

My experiences with EKOS thrombolysis procedur
Posted by Dale
Last Reply February 7, 2016 at 17:41
Started May 26, 2014 at 20:36
I've referred to this forum many times in the past six months, so I thought I would contribute my experiences with the EKOS ultrasound accelerated thrombolysis procedure, in the hopes it would help someone else.

Brief background on me: I am (was) a healthy, fairly active 41 year old male. In Nov/Dec I had a silent DVT and serious PE, leading to partial cardiac failure. Spent several days in the hospital. After three months, my PCP took me off warfarin. My clots came back within three weeks. This time the DVT was much worse, a full occlusion running from just below the knee up to the groin. It was comprised of both old (five month) and new clots.

After a month of referral/scheduling/insurance nightmares (another post), I went in for the EKOS treatment. At this point, my clots were six months and 40 days old, still 100% occluded. The IRU doc warned me - the chance of success was slim, to the point of being experimental (just don't tell your insurance that!).

The initi... read more

14 replies...

Warfarin destroys your bones!
Posted by Ken
Last Reply February 6, 2016 at 23:03
Started April 12, 2011 at 18:50

Anyone having major problems out there with Warfarin destroying your bones? Any fractures? Vitamin K in necessary for the health of your bones and Warfarin blocks it out.

After initial reports that warfarin could reduce bone mineral density, several studies have demonstrated a link between warfarin use and osteoporosis-related fracture. A 1999 study in 572 women taking warfarin for deep venous thrombosis, risk of vertebral fracture and rib fracture was increased; other fracture types did not occur more commonly.[22] A 2002 study looking at a randomly selected selection of 1523 patients with osteoporotic fracture found no increased exposure to anticoagulants compared to controls, and neither did stratification of the duration of anticoagulation reveal a trend towards fracture.[23]
A 2006 retrospective study of 14,564 Medicare recipients showed that warfarin use for more than one year was linked with a 60% increased risk of osteoporosis-related fracture in men; ... read more

29 replies...

life span of greenfield filter
Posted by marilynne VenJohn
Last Reply February 6, 2016 at 17:53
Started February 6, 2016 at 17:53
My MD informed me that the filter was only good for about a year. I have
had mine for 14 years. No adverse reactions. I may have to have a heart
procedure soon. I have already had PE twice and nearly died both times,
hence the decision to have the filter put in. It is a Greenfield
stainless steel one. Will it still protect me?

0 replies...

My INR is 1.1 is that ok?
Posted by Carl
Last Reply February 5, 2016 at 14:03
Started May 14, 2010 at 16:54

Ive been on the injections for 6 days and warfarin for 3 days and my first INR came back as 1.1. The Nurse said this was normal. As a second opinion is this ok?


21 replies...

Do I have DVT?
Posted by John
Last Reply February 4, 2016 at 21:06
Started February 4, 2016 at 21:06
Two days ago I sat on my legs in a slanted way. My heart beated faster but it did not hurt. I took my legs out of that position after that. They were only in that position for about 5 seconds. I believe I had an adrenaline rush for an hour later because I was shaking. I could have been cold though.
I've been having a feeling in my legs, feet, and around my knees.
It's not painful. My right foot has a full feeling. Sometimes it feels weird walking on my right foot. I just have feelings that come and go around my legs, feet and around my knees.
I've taken 325mg aspirin, 100mg niacin, 1g vit C, and a bit of turmeric today and yesterday.
I'm 17.

0 replies...

Posted by JEAN
Last Reply February 4, 2016 at 12:08
Started August 9, 2008 at 05:45

37 replies...

Make certain that you are making
Posted by binajainy
Last Reply February 4, 2016 at 06:00
Started February 4, 2016 at 06:00
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0 replies...

Posted by CC
Last Reply February 3, 2016 at 19:53
Started November 23, 2011 at 18:53
I received my one and only acupuncture treatment and 3 days later had DVT in both legs. Does this sound familiar to any of you?

10 replies...

Skin Lump at Injection Site
Posted by Jeannette
Last Reply February 3, 2016 at 18:42
Started April 9, 2008
Is anyone familiar with this side effect from subcutaneous injections? I have been on 1st Lovenox for 1 week and then Fragmin for past 3 weeks, and am injecting myself in my stomach. I noticed after one bad bruise, a small, round, hard lump formed under the skin. It is tender to the touch, and has not gone away after a couple weeks. Then yesterday I got a bad bruise after an injection in another site, and now I have a 2nd lump in this new location. Am I doing something wrong? Or is this a normal side effect? Do you know if they go away? Compared to my DVT/ PE symptoms, this isn't a huge concern (LOL), but am just wondering if anyone else has experienced this or knows how to prevent? Thanks to all.

75 replies...

Recurrent DVT while on xeralto
Posted by Sally
Last Reply February 3, 2016 at 17:35
Started January 30, 2016 at 17:15
I'm 32, female and active. In October, I attended
hospital where it was confirmed that I had DVT
behind my left knee.
I was prescribed Xeralto 15mg twice a day for 3
weeks and then 20mg once a day for 3 months.
Everything was going great until about a week
before I was due to finish the course of Xarelto. I
started experiencing pain down my calf and it
starting swelling up again. I thought nothing of it
as I had recently started back doing a 40min walk.
The day after I took my last Xarelto, I was due back
to my GP, when he seen my leg he sent me back
into A & E, where it was again confirmed that I had
DVT in my left leg.
I thought the whole point of these anti-coag's was
to stop the blood from clotting. My Gp and the
hospital can't explain why I have a clot again.
When I was first diagnosed, they said it was a
combination of the pill and smoking, both of which
I stopped. I've been prescribed another 20mg for
30 days.
Anyone else had these problems... read more

2 replies...

Posted by Dharma
Last Reply February 3, 2016 at 14:22
Started May 5, 2013 at 15:55
Just wondering if anyone is taking Xarelto instead of the other more common blood thinners. I was on Coumadin for several months after having my chronic (2 year old) dvt removed and stented and since January have been on xarelto. I feel 100% better on this newer blood thinner and I am symptom free. The Coumadin made me tired, bruised and caused severe hair loss. The switch to xarelto was my hematologist idea. He said it is as good at preventing clots as Coumadin. I know there is currently no known reversal agent but I live a pretty low risk lifestyle so for me it is worth the risk.

I have been on it everyday since January 2013 and plan on taking it for at least another year...maybe longer. Has anyone else been put on this for dvt prevention? If so have you had any side effects?

87 replies...

stopping warfarin
Posted by suzanne
Last Reply February 2, 2016 at 18:25
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

141 replies...

Menstrual cycle and Coumadin
Posted by Marie
Last Reply February 2, 2016 at 14:22
Started August 9, 2008 at 14:50

Hi all, thanks for the info.. Faye, what is Paracetamol? Can anyone tell me what to expect since I am still having a menstrual cycle and on Coumadin. On Thursday 8/7 I had my first cycle since the DVT/PE diagnosis. I am having the worst cramps, back pain, dizziness, nausea and of course I'm flowing like a fountain thanks to the Coumadin. Could this cause me to become anemic?

168 replies...

Hair Loss on Warfarin
Posted by Sarah C
Last Reply January 31, 2016 at 10:58
Started February 18, 2008 at 10:51
Hi there,

I just wondered if anyone had had any specific experience of hair loss while on Warfain? I was diagnosed with a massive dvt in right thigh last September, and am now on Warfarin until the end of April. No real problems so far - except my hair suddenly seems to be falling out! I understand it can be a side effect - but obviously just want to check that in addition to having one leg much larger than the other I am not also going to be bald!


261 replies...

Posted by Jan
Last Reply January 30, 2016 at 16:53
Started October 13, 2014 at 02:40
Almost 5yrs ago I was diagnosed with an
occluded DVT of the left leg and abdomen.
When CT was performed I was also informed
I did not have a IVC. I had thrombolysis
preformed 4 days after clot formation.
Only to have it fail and I reclotted.
Dr's are now going to do a MRI to see if I
am a candidate for some type of bypass
surgery. I am interested in seeing if
anyone else was born without a Inferior
Vena Cava (IVC)? If so what type of
treatment have you had. My pain in getting
worse by the month. I am at a loss I don't
want to do anything any more. Laying
around legs kill me if I am up doing
things I am also in pain. I am just
looking for anything that could help me.

4 replies...

Need Opinions
Posted by AJA
Last Reply January 30, 2016 at 12:58
Started June 30, 2008 at 22:51
I am 40 years old and decided I was going to get back in shape. I started to follow the Body for Life workout and was at week 7 when I decided to add Creatine as a supplement. A week or two after starting creatine I noticed some pain in may calf and swelling in my ankle. I thought I pulled a muscle or that my knee which has been injured in the past was causing the problems. I coouldn't get into see my ortho for two weeks because he was booked and I was going to be out of town. I flew 4 hours across country flew back a week later and immediately got into the car and drove 12 hrs for a family vacation. Got back to see ortho who sent me for a doppler ultrasound. I found out I have DVT and the clot was located in a vein behind my knee.
My internist took over from there only to tell me that he feels that because my dvt is at least a month old that he believes I don't need to be treated with blood thinners. He said if I would have come to him with the first symptoms that he would have s... read more

5 replies...

Elevated d dimer w/out cause??
Posted by Chris
Last Reply January 30, 2016 at 09:40
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

48 replies...

intermittent pain on outside of right calf - s
Posted by jeanb
Last Reply January 28, 2016 at 20:58
Started December 20, 2008
I've just been reading messages on blood clots on this forum because I have been experiencing several times a day, a dull ache/pinching feeling sensation in right calf, on the outside and always in the same spot.

I have not been to a doctor and I am not taking any drugs at all.

What I have noticed is that the 'pinching/pulling' sensation happens in exactly the same place on the outside calf area and only the right leg. After a few times I marked a X on the area with a biro and it's always that same place!

I usually feel it when I'm sitting at the PC where most of my work is done or if I sit with my leg on a chair. I don't really feel it the same when standing or walking so is there anyone else with similar syptoms please?

My worst fears are a blood clot but there is no swelling, no redness and no warmth, which seems to be possible symptoms and the pain is what I would call fairly minor, but is intermittent and never lasts for long.

Someone said it might be nerve rel... read more

33 replies...

xarelto and hair loss
Posted by Jessie
Last Reply January 28, 2016 at 12:05
Started October 17, 2014 at 05:08
I suffered bilateral pe's shortly after
the induction of anesthesia for a gall
bladder surgery. I was started on
coumadin in the hospital. The drs wanted
to switch me to Xarelto, selling it as a
wonder drug.

Since taking it, I've experienced terrible
hair loss. (I was at work the other day,
took out my pony tail and ran my fingers
through my hair. I threw away the
resulting clump. My friend came over to
talk, saw the hair and wanted to know why
I cut my hair at work).

Has anyone else had this issue? After a
discussion with my drs, we're switching
blood thinners. I hope the hair loss

21 replies...

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