DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4088) - Page 2 of 205
flying with clexane
Posted by kyasa
Last Reply August 11, 2014 at 02:30
Started June 30, 2010 at 04:06
Hi all
I had a DVT and multiple PE in April last year caused by birth control pill, which I have since stopped taking. I have no other risk factors. I Was on Warfarin until Dec. Have had no problems since.

I am going on a 9.5 hr international flight in a few weeks. I have compression stockings to wear and my doctor has prescribed clexane injections. My question relates to the dosage of clexane.

My doctor said I should have one 60ml injection the night before my flight, another one 12 hours later (a few hours before boarding), and then a third injection 12 hours later (about an hour before landing). Are 3 injections necessary? Is it enough to just have one a few hours before the flight?

any advice would be appreciated, thanks.

27 replies...

Pycnogenol
Posted by Louise
Last Reply August 10, 2014 at 20:10
Started September 3, 2009 at 16:33
Hi
I am a warfarin 'lifer' after suffering an extensive DVT whilst pregnant a year ago.
I take 7mg warfarin/day to keep my INR around 2.3-2.5.
I'd like to use other supplements to keep my INR up whilst reducing my warfarin. I'm aware that both Pycnogenol and Glucosamine are reported as raising INR 'naturally'. Has anyone out there experimented with taking either of these whilst on warfarin? If so, I would love to hear how you got on; what effects it had on your INR; if you had to reduce your warfarin dose etc.

I am self-monitoring and would ideally like to get to a position where I could take less warfarin and still keep my INR within the right range.

Take care everyone
Louise (UK)


8 replies...

Pain relief for d.v.t.
Posted by Marika
Last Reply August 10, 2014 at 08:47
Started April 15, 2008 at 23:53
My husband (68) has had a d.v.t. in his calf for 1 week. He is in agony if he does anything other than sitting with his leg elevated. He is taking Tramacet (Tramadol + paracetamol) but to be honest it only helps for a relatively short while. Is there anything else which might be more effective? And - will the pain lessen when his INR reaches the right level, or is it determined by something else? Please help...

43 replies...

Coming off Warfarin
Posted by Rob, UK
Last Reply August 10, 2014
Started October 2, 2010 at 09:36
I have been advised this week that I am to stop taking warfarin from
next Tuesday. After 6 weeks (this is the length of time I was told it
takes to clear my system), I will need to have a full blood check to
look for any genetic disorders etc.
I have been on warfarin since January this year, and although I am
'looking forward' to identifying the likely cause of my clotting
issues, I do have some trepidation about the sudden ending of my
medication. Will there be any noticeable 'cold turkey' symptoms or
contra- indications ? I am wearing compression stockings as instructed
and will continue my rather gentle walking regime at the gym- do you
know if it's safe to use the vibration equipment to improve my
circulation?
I have also been instructed to eliminate the risk factor associated
with driving up to 1000 miles per week for my job- so I am either
going to work from home, or if that is not considered a feasible
option, I will have to take long-term paid sic... read more

39 replies...

INR 2.0 and I have new clots
Posted by David Moulton
Last Reply August 9, 2014 at 23:50
Started August 24, 2010 at 04:19
I am 33, had a very active life style, was cycling 40 to 60 miles a day. I went to the ER a few months ago and had 7 PE's, and a DVT in my right leg. I spent some time in the hospital. It took 11.5mg of Coumadin to keep my blood levels above a 2.0. That was all four months ago. Two weeks ago, I went to the ER and another DVT. MY INR level at the time of the DVT was at least a 2.0. I am now taking 14.5mg of Coumadin a day and lovnex shots twice a day in my stomach. my higest level since the lovnex shots started two weeks ago and the raise in Coumadin has been a 2.6. I am very aware about vitamin k and I have a very low vitamin k intake. Has this happened to anyone else? This condition got me medically retired from the Coast Guard after 14 years of service. I am now at home in North Carolina and going to find the best doc through the VA. any help, suggestions anything would help. my email address is DavidMoulton76@gmail.com

6 replies...

Sex drive and warfarin
Posted by Lucy
Last Reply August 9, 2014 at 19:40
Started January 14, 2010 at 01:12
Hi...
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,
Lucy

66 replies...

Why is high INR dangerous?
Posted by Michelle
Last Reply August 9, 2014 at 16:16
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.

Thanks!

26 replies...

What are chances 2 ultrasounds missed it?
Posted by Jeremy
Last Reply August 9, 2014 at 08:31
Started July 25, 2014 at 21:12
Will try to keep this short. Started almost 3 weeks ago in left leg with pain around
knee and through calf. A few days into it.. While on vacation I decided to visit an
ER and get it checked because pain was now in hamstring, thigh and inner knee.
Ultrasound was done and was negative. They checked groin, part of way down
thigh, behind knee and right above ankle. So 2 weeks later pain was a bit worse
and off and on in different areas of leg. Mostly calf and back of thigh. Along with
occasional shin and ankle pain. My shin also at times has this weird numb but
tingly feeling. Was back at home so yesterday went to local ER and asked for
another ultrasound. They checked it exactly the way the ER did in another
city/state and said it was clear. Also did a PAD test which was also normal. The
pain 2 nights ago has been the worst it's been so far. Almost felt like a severe
growing pain. The pains have gone from tingling, burning, stabbing, aching,
cramping and al... read more

2 replies...

Previscan Versus Warfarin
Posted by Eva
Last Reply August 9, 2014 at 07:24
Started March 20, 2010 at 13:29
Has anyone tried asking their Doctor in France to change from Previscan
to Warfarin and what was the Doctors response? I intend doing this the
next time I see my Doc and wondered if anyone had already been down that
road.

1 replies...

Vein Transplant
Posted by Mel
Last Reply August 8, 2014 at 21:09
Started April 2, 2007 at 11:38
Hi guys. I have been suffering with DVT for 6 years now and have constant pains and pins and needles in my legs. Both my legs, from the tip of my toes into my pelvic area are completely clotted. After 6 years the clots are still there and have not been disolved.

From having constant problems with my legs, and having to be on warfarin for life I was wondering if there is anyway a vein transplant can be done? Is there such a thing?

11 replies...

Warfarin and smoking
Posted by Bonnie
Last Reply August 8, 2014 at 17:35
Started August 8, 2014 at 09:25
My husband had an idiopathic DVT in late 2012. He has been taking Warfarin ever
since, and has recently been told he will be on it for life due to being a smoker. He is
desperate to be in a position to stop taking it and has recently stopped smoking. He
realises this won't happen immediately but has no idea how long it is likely to take
to get to that position. Does anyone have any idea what kind of time frame for
coming off the Warfarin after stopping smoking is likely? He won't be starting
smoking again!

1 replies...

Traveling/elevation change after DVT
Posted by Nancy
Last Reply August 8, 2014 at 16:25
Started August 8, 2014 at 09:35
Hi everyone
6 days since dx with a DVT in the lower left calf. I met with my hematologist two
days ago and he approved a trip (driving) starting at 12-16 days past dx. I forgot
to ask him if there was any danger in going up into elevation in the mountains-
6,288 ft at the top.
Has anyone been told that higher elevation after DVT is dangerous?
Thanks! :)

2 replies...

flying while still having dvt
Posted by magnet
Last Reply August 8, 2014 at 01:08
Started September 5, 2007 at 07:52
i am due to go on holiday in two weeks.the flight is for two and half hours.Has anyone else flown while still having dvt.i know that i will have to use socks and move my leg around but has any one else got any other advice.
i have the dvt in my left low leg.
i am 32 years old

49 replies...

antibiotics
Posted by becky
Last Reply August 7, 2014 at 22:46
Started August 7, 2014 at 12:11
I'm just curious! Do any of you know if there are any antibiotics that
do not work well with Xarelto? I get uti frequently and normally take
Bactrim for that.

Becky

1 replies...

Nicotine Patch
Posted by Laura
Last Reply August 7, 2014 at 21:48
Started August 7, 2014 at 21:48
Just curious if anyone else developed DVT after long term use of the nicotine
patch? I was diagnosed with my first clot in May 2014 and I have given a
tremendous amount of thought to the cause. I have not had a recent surgery,
injury, or traveled anywhere. I am not on birth control. Neither of my parents or
siblings have clotted. I am not overweight and I am fairly active. I am 37 and
otherwise healthy. The one culprit I can identify is the nicotine patch. I quit
smoking and have used the patch daily for 3 years. The patch is deemed healthier
than smoking but nicotine is not without it's faults. From what I have read, it's
nicotine that restricts blood vessels and makes them more prone to clotting. Has
anyone experienced or heard of the nicotine patch potentially causing blood
clots?

0 replies...

antibiotics
Posted by becky
Last Reply August 7, 2014 at 12:10
Started August 7, 2014 at 12:10
I'm just curious! Do any of you know if there are any antibiotics that
do not work well with Xarelto? I get uti frequently and normally take
Bactrim for that.

Becky

0 replies...

tattoo's on warfarin!
Posted by chir jones
Last Reply August 6, 2014 at 15:42
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

83 replies...

DVT calf 21 weeks pregnant-lots of questions!
Posted by Nancy
Last Reply August 6, 2014 at 14:20
Started August 4, 2014 at 20:41
Hi everyone!
After 3.5 months of my calf hurting (initially due to injury, I'm a distance runner.)
and FIVE ultrasounds, they found a DVT in my lower left calf. I wasn't admitted-
only put on Lovenox 2x/day. CT scan was negative for PE. I see my hematologist
on Wednesday but a few questions for the group:

Is it normal to just be put on Lovenox?

When will this calf pain go away?

The ER dr encouraged me to walk as much as I could. Does this advice sound
right or should I be taking it easy?

I'm paranoid about even bumping my calf right now. Can I dislodge the clot from
accidentally bumping it?

This anxiety following the DVT sucks. It's not a question but a mere statement. I'm
very grateful that they caught it and I'm here though!

Thank you! :)


7 replies...

PE
Posted by Becky
Last Reply August 6, 2014 at 14:06
Started August 1, 2014 at 11:49
I have multiple clots in my lungs and I am on Xarelto. How long before I start to
feel better and my heart rate slows down? I feel it shoot up with just a few steps!
Any thoughts? Thanks

5 replies...

Xarelto
Posted by Dharma
Last Reply August 6, 2014 at 09:47
Started May 5, 2013 at 15:55
Just wondering if anyone is taking Xarelto instead of the other more common blood thinners. I was on Coumadin for several months after having my chronic (2 year old) dvt removed and stented and since January have been on xarelto. I feel 100% better on this newer blood thinner and I am symptom free. The Coumadin made me tired, bruised and caused severe hair loss. The switch to xarelto was my hematologist idea. He said it is as good at preventing clots as Coumadin. I know there is currently no known reversal agent but I live a pretty low risk lifestyle so for me it is worth the risk.

I have been on it everyday since January 2013 and plan on taking it for at least another year...maybe longer. Has anyone else been put on this for dvt prevention? If so have you had any side effects?

74 replies...

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