DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Recovery time from DVT
Posted by Lisa
Last Reply April 26, 2016 at 16:55
Started January 3, 2008 at 15:58
Hello, everyone - I am not sure how this all works. My husband had back surgery two weeks ago and now has what they call "extensive deep vein thrombosis" starting at the top of his thigh and extending down to just above his knee. They have him on the self-injectable Lovenox and oral warfarin for now. His family doctor is going to put him on long-term anticoagulant therapy after that. My question is, how long does it take for any improvement in symptoms to appear? Only because I want to be able to follow his progress to know if things are not going as they should so I can get the appropriate care - and also because if I can tell him that he will start to feel better after so many days or whatever, he will have something to work for as he is very blue about all of this. Can anyone help? Thanks so much.

75 replies...

Coumadin Doesn't dissolve but...
Posted by Karl
Last Reply April 26, 2016 at 16:05
Started August 11, 2009 at 03:05
I know that Coumadin/Warfarin Does not dissolve clots but only thins out the blood in order to prevent new clots from forming and present clots for getting bigger but, does this action of thinning out the blood in any way make it easier for the body's own ability to to dissolve clots?



17 replies...

Greenfield Filter
Posted by Lisa
Last Reply April 25, 2016 at 17:55
Started June 10, 2008 at 23:06
Does anyone have a greenfield filter? Would like some info on it. I have one and it is occluded

66 replies...

DVT From PICC, hospital trying to discharge
Posted by Katie
Last Reply April 25, 2016 at 11:35
Started April 25, 2016 at 11:35
Hello, my father was diagnosed with osteomyelitis of his hand. Before being
discharged from the hospital they placed a PICC line so he could receive
antibiotics at home. My dad had the PICC for about 2 weeks when he developed
severe Chest pain. My mother brother my dad to the closest hospital as she
feared it could be a heart attack. The closest hospital by us is a very small
community hospital & doesn't have the best reputation. 2 weeks ago they actually
misdiagnosed my dad, he originally went there for the hand pain, they missed the
osteomyelitis & sent him home. The pain got much worse & a couple days later
went to another hospital who diagnosed him. But back to my main concern.
Yesterday this small community hospital did an ultrasound of my dads arm,
diagnosed him with a DVT from the picc, the report says "extensive DVT,
thrombus in subclavian vein, axillary vein, and brachial vein". They removed the
picc line, gave my dad a shot of lovenox. My dad has n... read more

0 replies...

DVT Caused MY Above Knee Amputation
Posted by Freddy
Last Reply April 24, 2016 at 22:09
Started August 30, 2010 at 03:30
On September 21, 1979 while sitting at home watching The Roper's on TV I got this pulled groin feeling in my left leg when I got up to get a beer. I was alone at the time. It did not seem like a big deal at first then about 10 minutes later I noticed my jeans getting tighter.

I went upstairs to change them when I noticed my swollen and blue/purple thigh as my toes began to lose feeling. I made it back downstairs to the phone and called an EMT friend of my father. When he saw the leg his eyes almost bulged out of their sockets. He simply said what hospital do you want to go to?

It took about 30 minutes to get to the UMASS Medical Center. By this time I could not feel anything below my knee. The doctors in the ER were residents and interns who asked the same set of stupid questions.
Finally, one asked me what I thought was wrong and I said, "I have blood clot in my leg." Their response was, "twenty-four year-olds do not have blood clots." Brilliant!

By this time the pain was... read more

4 replies...

How Long for Pain?
Posted by Michele
Last Reply April 24, 2016 at 17:55
Started June 3, 2009 at 14:28
I am 32 years old and a very active person who was diagnosed with DVT in my right calf about 2 1/2 weeks ago. I was on lovenox for 10 days and am obviously still on coumadin. My question is, how long does it take for the pain to go away? I am still barely able to walk. And definitely unable to drive. My doctor doesn't seem worried and says to allow for a few weeks. I guess the pain gets slightly better each day, but it is still extremely sore and hurts to walk. Not to mention that when I do walk, I move so slowly because of the pain. I've been using crutches to get around too. Does this sound "normal"? How long does it typically take for the pain to go away?

Thanks so much for all your thoughts.

Michele


15 replies...

blood thinners only for travel
Posted by Jean
Last Reply April 24, 2016 at 14:37
Started April 24, 2016 at 14:37
Feeling that I don't need to be on blood thinners constantly but worry
about when I travel. Anyone out there doing some kind of regiment just
for travel purposes?

0 replies...

Long term use of Arixtra
Posted by John in Dallas
Last Reply April 24, 2016 at 12:24
Started August 11, 2008 at 18:20
Sharon,

There has been a study done on long term use of Arixtra but it hasn't been released by the company. It is available to read if you go to your pharmacy and have your pharmacist request it from the manufacturer, however, they won't give you a copy. You have to read it there. I read it and it told me a little more than I already knew. It is the only thing I know that is written about long term Arixtra use. I just thought I'd mention it.

40 replies...

Doctors in Portland OR area
Posted by Les
Last Reply April 23, 2016 at 13:46
Started April 23, 2016 at 13:46
Hi Does anyone have a recommendation for a vascular doctor in the
Portland area. I've had DVT for many years(20+). Went off the coumadin
7 or 8 years ago and managed until a recent flight. Got a new clot.
Wondering where to go from here. My vascular system is really bizarre
so am looking for a doctor who can think out of the box and LISTEN.
Any recommendations?

0 replies...

How do you tell if clot is new or old
Posted by DSD
Last Reply April 22, 2016 at 18:16
Started April 21, 2016 at 15:44
My wife had extensive dvts in Dec 2014, started in groin spread down legs, to
abdomen and then Pe. No reason was ever found and was put down to
contraceptive pill. Has been off riveroxaban for 10 months with no problems at
all. On Friday last week she did some Aqua fitness and both her calf muscles
were hurting. Left it a couple of days and they were getting better but thought
would just check with doctor all was ok. She ordered scan which found blood clot
in groin. Doctors are being useless as they don't know if this is old of new, told
her to take riveroxaban until they can work it out. She is pain free no swelling in
any leg. Does anyone know if ultra sound can tell the difference between new clot
and old one? Thanks

2 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply April 22, 2016 at 17:11
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

90 replies...

My experiences with EKOS thrombolysis procedur
Posted by Dale
Last Reply April 22, 2016 at 14:14
Started May 26, 2014 at 20:36
I've referred to this forum many times in the past six months, so I thought I would contribute my experiences with the EKOS ultrasound accelerated thrombolysis procedure, in the hopes it would help someone else.

Brief background on me: I am (was) a healthy, fairly active 41 year old male. In Nov/Dec I had a silent DVT and serious PE, leading to partial cardiac failure. Spent several days in the hospital. After three months, my PCP took me off warfarin. My clots came back within three weeks. This time the DVT was much worse, a full occlusion running from just below the knee up to the groin. It was comprised of both old (five month) and new clots.

After a month of referral/scheduling/insurance nightmares (another post), I went in for the EKOS treatment. At this point, my clots were six months and 40 days old, still 100% occluded. The IRU doc warned me - the chance of success was slim, to the point of being experimental (just don't tell your insurance that!).

The initi... read more

19 replies...

You can be not very eye-catching but say the r
Posted by Boklse Aplmer
Last Reply April 21, 2016 at 05:47
Started April 21, 2016 at 05:47
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0 replies...

PAIN WHEN WEARING COMPRESSION STOCKINGS
Posted by JACOB
Last Reply April 21, 2016 at 04:14
Started March 28, 2012 at 22:30
Hi everyone. Im Jacob, age 29. After the last DVT in January 2012 (4th
in my life) I was put on warfarin for a life-time. I was also advised
to wear those bloody compression stockings. Everyone says they are a
must, and they do the job. But I just cannot wear them.

I got one in Poland and I could not wear it at all. It caused a pain.
The skin around my ankle is already very soft and I felt very
uncomfortable after 20 minutes of wearing that bloody sock !

And now Im living in the UK... they gave me another sock. The leg was
measured etc. but unfortunately it is the same thing. Pain and pain.
It makes more pain than it is without that stocking.

Has anyone experienced that as well ? What should I do? If I don't
wear that stocking, is it gonna be more harmful for me ?

Pls help !

40 replies...

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Last Reply April 21, 2016 at 02:09
Started April 21, 2016 at 02:09
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0 replies...

TIPS -Transjugular intrahepatic portosystemic
Posted by Christy
Last Reply April 20, 2016 at 13:10
Started April 20, 2016 at 13:10
I need advice on whether or not to allow our Interventional
Radiologist to place a TIPS in my husband if it is determined he
needs one for proper blood flow.

Background:
My 27 year old husband got SMVT and PVT in both portal veins most
likely from appendicitis. He has no other health issues. Since
he is so young, they are going to do thrombolysis (we are so lucky
to be able to get care at UCLA) because the intervenetional
radiologist thinks that the old clots may cause him serious
problems down the road as he gets older. If he were older now,
they would not do the thrombolysis. However, my concern is that
after he performs the thrombolysis, they will watch to see if the
blood is going through correctly, if it is not, he wants to place
a TIPS to get the flow out of the liver correctly. Currently,
there are no problems because his body created so many collaterals
and I am terrified of the brain swelling that can be caused by
TIPS. I dont want to... read more

0 replies...

I'm considering getting A week off coaching an
Posted by Qakol Hudage
Last Reply April 20, 2016 at 04:14
Started April 20, 2016 at 04:14
I'm considering getting A week off coaching and having them
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a lot on testing. Interesting research, but N=15 is not a very big
example dimension though Perhaps it's something to always consider
including in a differential research. Perhaps, more documents
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0 replies...

back/abdominal pain IVC Filter failed removal
Posted by DFWSarah
Last Reply April 19, 2016 at 12:49
Started November 13, 2010 at 17:06
Hi guys. I've been reading this forum since I had my dvt in late July. I'm 27 and
everything has been fine after I went through 2 thrombolisis procedures, and have
full function of my right leg again. I also found out I have the Factor Five Leiden
abnormality.

My question today is about extreme back pain after a IVC filter retrieval. My
vascular surgeon attempted to remove my IVC filter yesterday morning - what
should have taken 45 minutes took 3 hours, and he even brought in another
surgeon to try to remove the filter, with no success. So my vas. surgeon said with
my factor five history it's more likely that I'll clot again, so he thought it better that
they just leave it in since they couldn't get it out. I have been in extreme back and
abdominal pain since my procedure yesterday - I called my vas. surgeon and his
nurse said it was normal and to take motrin and it should subside. I can't even walk
for any length of time without wanting to fall on the floo... read more

15 replies...

Xarelto
Posted by Dharma
Last Reply April 18, 2016 at 16:35
Started May 5, 2013 at 15:55
Just wondering if anyone is taking Xarelto instead of the other more common blood thinners. I was on Coumadin for several months after having my chronic (2 year old) dvt removed and stented and since January have been on xarelto. I feel 100% better on this newer blood thinner and I am symptom free. The Coumadin made me tired, bruised and caused severe hair loss. The switch to xarelto was my hematologist idea. He said it is as good at preventing clots as Coumadin. I know there is currently no known reversal agent but I live a pretty low risk lifestyle so for me it is worth the risk.

I have been on it everyday since January 2013 and plan on taking it for at least another year...maybe longer. Has anyone else been put on this for dvt prevention? If so have you had any side effects?

91 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply April 18, 2016 at 03:01
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

138 replies...

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