DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Go to doc or not?
Posted by Luz
Last Reply January 26, 2015 at 18:34
Started January 26, 2015 at 13:34
Hi all- I was hoping to get the opinions of some people who have experience with
DVT.

I have a protein C deficiency, so I'm at a heightened risk of developing clots. Last
night I got a pain in my left calf that hurt worse when I stood up and made me
limp. I don't remember hitting my leg on anything. The pain is still there today
plus my thigh feels achy.

I have no other symptoms- no redness or swelling.

I would normally wait at least a while longer before thinking about going to see a
doc (who I think will send me to the ER). But, I'm we're expecting a big blizzard
here so If I don't go within the next few hours it may be another 24 hours before I
could get to a doctor. This changes my risk calculus a bit.

What would you do? Thanks!!!!



1 replies...

Confused and still no answer
Posted by Jeff
Last Reply January 25, 2015 at 11:00
Started November 7, 2014 at 05:47
Long but want to explain it all. On Oct 25th I noticed swelling and an irritated
feeling in my leg. I had an ultrasound done at the ER on the 27th I think. Went
back to the ER on the 29th and they just said it was muscle and skeletal pain.
Problems and swelling persisted so I went to a different ER Friday the 31st and
they did an ultrasound and didn't find anything. Wednesday the 5th I went back to
that same ER and they did another ultrasound and a ddimer. Doctor said Ddimer
was normal <150 I think and the ultrasound said phlebitis. Yesterday had trouble
breathing and went to another ER as I was traveling for work and they monitored
my heart for awhile and did blood tests which everything was normal including
ddimer which again was <150. Said the swelling was probably phlebitis as the
other hospital stated and that an injury I had month ago combined with this
recent job that is sitting and driving lots has made things more prevalent. I just
don't know where ... read more

22 replies...

crystal meth and dvt
Posted by ron
Last Reply January 23, 2015 at 22:41
Started November 7, 2008 at 16:33
I started experimenting with meth about 3 monthsago I wanted too see what all the fuss was about. Wow What an amazing rush. you feel invincible ten times better than coke lasts longer and is 1/4 the price . Sound good ? Think again two days later you go into a horrible deppresion.nothing can cheer you up insanely horrible dreams and to top it of I was addmittted to emergency with blinding pain in my big toe . turned out to be deep vein thrombosis in my foot. I am convinced this was caused by the corrosive action of the smoke on my lungs... bottom line i had to have my toe amputated. I am recovering alright i guess but i wish i could incinerate every fragment of that drug that exists. this shit is pure and absolute poison i wouldnt use that for $100,000 just my experience hope it helps someone

40 replies...

septic pencil
Posted by nell
Last Reply January 23, 2015 at 18:14
Started January 23, 2015 at 18:14
can you use a septic pencil to stop bleeding from tooth extraction
Has anyone tried that?


0 replies...

Is the Willow Curve laser o.k.?
Posted by Marilyn S.
Last Reply January 23, 2015 at 16:26
Started January 23, 2015 at 16:26
After a fall on my arthritic knee 1 mo. Ago, I got a small DVT in that calf. I was taken
off xeralto after blood pooled in leg. No longer swollen but knee pain. Would the
clot be affected if I tried a Willow Curve Anti-infllammatory Smart Laser? Could it
make it break loose and travel? Please answer asap. THANK YOU! MARILYN

0 replies...

Is the Willow Curve laser o.k.?
Posted by Marilyn S.
Last Reply January 23, 2015 at 16:20
Started January 23, 2015 at 16:20
After a fall on my arthritic knee 1 mo. Ago, I got a small DVT in that calf. I was taken
off xeralto after blood pooled in leg. No longer swollen but knee pain. Would the
clot be affected if I tried a Willow Curve Anti-infllammatory Smart Laser? Could it
make it break loose and travel? Please answer asap. THANK YOU! MARILYN

0 replies...

Your symptoms?
Posted by Michelle
Last Reply January 23, 2015 at 06:41
Started September 19, 2010 at 01:46
I am going to the Dr. in a couple of weeks. But I was wondering what were your symptoms of DVT?

I noticed about two months ago I started having cramping in my right calf. My husband would rub it and it would go away. Now it is a constant aching, cramping, fluttering, throbbing feeling through out my leg all day on and off. It doesn't hurt when I stand on it or put pressure. I did the whole bending my foot up to check and see if I felt pain when stretching and I only just felt the pull from stretching not a sharp distinct pain. Basically my muscles felt really right and it almost felt hard to stretch. I don't have redness or bruises. But one thing that does concern me is on the back left side of my right calf there is a pea size lump. It doesn't really hurt but of course my whole back of my thigh has been hurting so its part of the pain. Feels like it is by a big vein.

I honestly feel the throbbing/twitching feelings when I sit on my bed at night the most. Like I said I feel it... read more

45 replies...

Clot in inner vena cava
Posted by Ryan
Last Reply January 23, 2015 at 03:29
Started January 22, 2015 at 23:49
42 year old male with a 8" clot,(solid as bone), in the inner vena cava starting just
above the illeac. Can a filter be placed in and clot removed?

1 replies...

How aggressively should I start exercising?
Posted by Fred Doors
Last Reply January 21, 2015 at 19:23
Started January 7, 2015 at 14:31
After "muscle pain" that wouldn't go away over xmas, 2 days ago I got
diagnosed with DVT, a nonocclusive clot in the popliteal vein, right
behind the knee.

I started warfarin yesterday, and am 48 hours into the lovenox
injections. So far, I see pretty much no improvement: I can't walk,
only limp around (can't fully extend my leg), and anything but
sitting or lying down with my leg in the air quickly becomes painful
because of the pooling blood.

I guess that's normal, reading around I don't see any people talking
about improvements until at least a week has gone by. My question is,
how aggressively should I start exercising my legs? Should I wait
until I can walk mostly normally again, or should I take "limps
around the block" now?

What about activities that involve bending the knee? Given the
position of the clot, I'm scared that anything that requires a lot of
knee bending (e.g. cycling) might cause the clot to break, and I'd
very very much like ... read more

15 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply January 20, 2015
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

169 replies...

Inr dropping
Posted by Mayra
Last Reply January 17, 2015 at 15:15
Started January 14, 2015 at 07:35
So I went into the er 4 days ago for a faint leg pain my gp shrugged off after a
negative d dimer result. I wanted to clear my concern with a cat scan and lo and
behold I have a dvt on my left leg. I was admitted to the hospital and have been
on lovanox shots and cuomodin. However my pain since being here has
worsened and is now in my right leg. They're not concerned bc I'm on treatment,
and my levels went up 1.8 the second day, and 2.1 yesterday. However this
morning I'm at 1.5! What does this mean yes my clot is getting bigger and
developing more?? I'm so scared right now and just don't trust what the doctors
are telling me, which is that I'll be fine.

3 replies...

clexane lifelong
Posted by karen
Last Reply January 17, 2015 at 03:02
Started January 22, 2012 at 01:05
hi every1, im 38 yrs old was on warfarin for 4 yrs as i get recurrent p.e but discontinued it due 2 bad side effects "tiredness, coldness and weight gain" they have now put me on clexane injections 4 life, does any1 who is longterm on clexane experience of any side effects simalar 2 the ones i was getting on the warfarin?

4 replies...

Compression socks lose effectiveness?
Posted by patrick
Last Reply January 16, 2015 at 18:48
Started January 16, 2015 at 13:23
I have a prescription pair of compression socks that are about 5 years old. Do they their
effectiveness (meaning, do the socks themselves lose the ability to 'compress' as well as
they did when they are new)?

Thanks in advance.

2 replies...

pe's and ivc filters
Posted by renae
Last Reply January 16, 2015 at 13:47
Started January 14, 2015 at 22:44
y #22 by renae Posted: January 14, 2015 at 22:35
I have had several pulmonary embolisms....1st in 2008, second in 2009,
and then most recently i had numerous in each lung aug 2014...the latest
episode caused a pulmonary infarction. I too have an ivc filter. They
tried to remove it in december 2014 but couldnt because it had clots
attached even tho my inr was where it was suppose to be taking warfarin.
My dr has no clue whats causing my clots but still wants the ivc
removed. He wants to try again in a few weeks because it is more
dangerous to have in. The risks are that the filter could break causing
metal fragments to travel or it can become completely clogged which
would cause your body to find an alternate route to supply your heart
with blood. Idk what to think anymore but i know that the pain in my
lings and body has yet to decrease and i pray i dont have to spend the
rest of my life like this

1 replies...

Vascular Surgeon
Posted by deb57
Last Reply January 16, 2015 at 08:43
Started January 15, 2015 at 08:00
Hi to all. My Question is why my Vascular Surgeon does Not want to do surgey on my old blood clots. Had bilateral dvts in 9/2014. Yesterday went for an app. to check both legs which showed old blood clots in the legs and lower adomen. In Sept 2014 had blood clot busters done on both legs. Yet the clot busters did not get all the clots out. Could there be a way to get rid of old clots. I am also on Eliquis 5mgs 2x a day =(

2 replies...

Teens and DVT
Posted by Maddie
Last Reply January 16, 2015 at 06:48
Started January 3, 2015 at 23:56
Hi everyone. I am seventeen years old and was diagnosed last week with severe
DVT--my entire leg was clotted. I went to the ER after severe swelling and a slight
purple tinge alerted my GP that something was wrong.
I have no medical conditions, was pretty active, and in a healthy weight range. As
far as we know, no genetics contributed, except a rare pro-thrombin gene. I went
from self sufficient senior in high school to barely able to stand in a matter of five
days. Now I must use a walker to get around the house, inject myself twice a day
with Lovenox, and am on heavy pain medicine because this hurts so bad!! I'm
angry and totally unprepared for this. I also had a small pulmonary embolism, and
an interventional radiologist put an IVC filter in my vein to prevent any more
serious issues.
The questions I have:
How long am I looking at in recovery time?
When will my mobility return?
Will this give me any long lasting health issues?
When will my swelling go do... read more

7 replies...

Occlusion of Common Iliac Vein
Posted by Essie
Last Reply January 16, 2015
Started March 28, 2010 at 11:48
Hello!!

In Oct 2007 I was diagnosed with a large Above-Knee DVT in my left leg following hospital stay for pneumonia. I was 34 at the time

On Warfarin for the usual 6mths, then told to continue wearing compression stockings for 2yrs.

Swelling symptoms & pain have been a feature of everyday life since then, I have changed my car to an automatic as driving was very painful & haven't been able to walk without pain since the clot.

My friend recently qualified as a community nurse & suggested that my GP refer me to a Vascular Surgeon to see if they could help me.

A Doppler & MRI later & I have been diagnosed with a complete occlusion of the left common iliac vein. I have been told that a bypass is not a possibility due to the pressure in my legs & the futher clotting risk, laser treatment/stenting is not possible to due to the occlusion being a solid mass of scar tissue. I have been told not to 'push' my leg, slow down walking & do upper body exercise only, as the vein... read more

34 replies...

coming off warfarin with a vena cava filter
Posted by alan
Last Reply January 14, 2015 at 22:35
Started April 2, 2010 at 03:38
hello all im alan im 26 in aug 08 i was diagnosed with dvt throughout my left leg and 3 clots in my lungs one large one in right side two (i guess you would say normal sized) in my left. the vena cava filter was put in and have been on warfarin since.

doctors said im lucky to be alive, and dont understand how im still alive and so on so forth.

my doctor told me on my last visit that he wanted to take me off of the warfarin next month. it kinda worries me because of the filter being there, and was wondering is this safe? has anyone here been taken off warfarin with the filter? and what was their experiance with this?


22 replies...

What is an "Old Blood Clot"??
Posted by Mike from Pacifica, CA
Last Reply January 14, 2015 at 20:01
Started October 12, 2010 at 01:59
Im 27, I've had 2 Pulminary Embolisms or P.E.'s about 8 or so years ago, they did a scan of my legs to see if they could find a DVT to explain the P.E. however at the time they didn't find anything, after a few blood tests and a few days later they determined I had a clotting disorder called a Factor 5 Diffeciency or something to that effect. A few weeks ago I got a bruise on my leg from doing something maybe a little foolish but I'm a carpenter and I get bruises all the time, the bruise seemed to be getting better, didn't hurt very much and then 3 days ago my calf swelled up and was really painful....as a result of that I went to the Emergency Room having a history of blood clots I figured it would be a good idea to get check out, so they did an ultrasound of my calf and all the way up my leg etc...the ER Dr. told me that they didn't find any "new" clots however they did see a few "old" clots in my leg probably from my previous DVT/PE's.

My question is this:

What the heck is... read more

16 replies...

DVT - Recovery time?
Posted by Colleen
Last Reply January 14, 2015 at 19:13
Started February 4, 2010 at 01:34
I was wondering how long it takes to completely recover (if possible) from DVT? I had ankle reconstruction surgery on 12/1/09 and by 1/15/10, my PT sent me directly to the ER due to extreme swelling (rock solid hard), redness in the calf, warm to the touch. The ultrasound indicated a clot from the bottom of my calf to above my groin close to my lung. I had to self-inject Lovenox 2x a day and started immediately on Coumadin. My PT/ INR levels are finally good at 2.4. But my leg isn't really improving. I know it hasn't been long but will I have permanent damage to the veins? I realize that a PE is still possible at this stage. Are there specialists out there other than a GP that can be consulted? Lots and lots of questions here... Just looking for some insight. Thank you.

25 replies...

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