DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Why is high INR dangerous?
Posted by Michelle
Last Reply February 7, 2017 at 18:09
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.


50 replies...

Blood clot in pelvis
Posted by Wiffle
Last Reply February 7, 2017 at 10:16
Started January 11, 2011 at 03:20
Has anyone had this?? I have a clot in the illiac vein extending into the vena cava discovered via CT scan for an unrelated issue a few weeks ago. I was on lovenox shots and now just warfarin. I'm going to a hematologist in a couple weeks but so far all the doctors I've talked to rarely heard of this?? It would be nice to know I'm not the only one with this :( I also have factor v leiden, heterogygeous. (I just had a baby 6 weeks ago so the ER doctor said this was most likely the cause of the clot)
Also, last night and today I started having pain in my left abdomen/ hip area. Has anyone had this? It's very bothersome and I am using a heating pad all day today. I talked with a nurse who thought it could be residual from the clot healing but who knows??
Trying to get out of this "woe-is-me" attitude...

30 replies...

servere side effects on warfarin
Posted by bouncer
Last Reply February 5, 2017 at 22:24
Started January 4, 2010 at 05:50
hi, My husband had a dvt and pe 3 months ago, doctors have no idea why he had got this, my husband was very healthy always watched what he ate and went 2 the gym 4 times a week. we havent found out what caused it because the doctors didnt bother checking him before they put him on his medication. For the first 3 weeks he was on the heparin injection and had NO side effects whats so ever, he was ready to go back to the gym 2 days after his dvt and pe and carry on with his life as if nothing had happened. Then he was put on warfarin... thats when all the problems started. He has been getting:-
Servere chest pains
Short of breath
hair loss
Servere rash
pain in both legs
servere dizziness (like hes under water and going to faint)
always tired
pressure headaches
ears popping
cloudiness in the head
numbness in hands and lips
pain in both feet
feeling drained all of the time

he's GP says its anxiety although 4 different doctors in ... read more

23 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply February 5, 2017 at 18:39
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

143 replies...

Coming off Warfarin
Posted by Rob, UK
Last Reply February 5, 2017 at 02:27
Started October 2, 2010 at 09:36
I have been advised this week that I am to stop taking warfarin from
next Tuesday. After 6 weeks (this is the length of time I was told it
takes to clear my system), I will need to have a full blood check to
look for any genetic disorders etc.
I have been on warfarin since January this year, and although I am
'looking forward' to identifying the likely cause of my clotting
issues, I do have some trepidation about the sudden ending of my
medication. Will there be any noticeable 'cold turkey' symptoms or
contra- indications ? I am wearing compression stockings as instructed
and will continue my rather gentle walking regime at the gym- do you
know if it's safe to use the vibration equipment to improve my
I have also been instructed to eliminate the risk factor associated
with driving up to 1000 miles per week for my job- so I am either
going to work from home, or if that is not considered a feasible
option, I will have to take long-term paid sic... read more

44 replies...

intermittent pain on outside of right calf - s
Posted by jeanb
Last Reply February 4, 2017 at 13:13
Started December 20, 2008
I've just been reading messages on blood clots on this forum because I have been experiencing several times a day, a dull ache/pinching feeling sensation in right calf, on the outside and always in the same spot.

I have not been to a doctor and I am not taking any drugs at all.

What I have noticed is that the 'pinching/pulling' sensation happens in exactly the same place on the outside calf area and only the right leg. After a few times I marked a X on the area with a biro and it's always that same place!

I usually feel it when I'm sitting at the PC where most of my work is done or if I sit with my leg on a chair. I don't really feel it the same when standing or walking so is there anyone else with similar syptoms please?

My worst fears are a blood clot but there is no swelling, no redness and no warmth, which seems to be possible symptoms and the pain is what I would call fairly minor, but is intermittent and never lasts for long.

Someone said it might be nerve rel... read more

42 replies...

Lovenox and liver enzymes
Posted by Rick
Last Reply February 4, 2017 at 11:19
Started December 11, 2008 at 18:37
I had to be taken off Lovenox last week because
my liver enzymes continued to elevate. Put on Arixtra
until INR gets back to 2-3 range.
If it helps anyone else although its rare...make sure your
doctor checks your liver enzymes while on Lovenox.
Within a few days my levels have come back down to normal range.

25 replies...

How long does it take DVT swelling to go down
Posted by Lucy G
Last Reply February 2, 2017 at 22:26
Started January 1, 2012 at 13:19
I developed a DVT in September after I sustained some serious knee
damage which left me very immobile. Despite me seeing the doctors
about it a number of times it wasn't diagnosed until I had a PE, about
4 weeks after the leg swelling started. They did a dopler scan and
said there was a clot behind my knee and started me on warfarin which
has delayed my surgery to fix the original knee injury. It is still
red and swollen (especially my foot) if I don't wear a support
stocking and the nurse at the DVT clinic said it would probably always
be a bad leg but that she wouldn't do a repeat scan. What I want to
know is whether it is likely to improve at all now or whether it will
be like this forever. Might it improve a little as the months
continue? I am hoping that once my knee is unlocked, that might help
but I can't get any information from anyone.

13 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply February 2, 2017 at 17:31
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

89 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply February 2, 2017 at 13:17
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

256 replies...

Need urgent advice please help!!
Posted by Patricia
Last Reply February 1, 2017 at 17:20
Started September 11, 2008 at 09:23
Hello my name is patricia and I am currently in hospital in penang Malaysia, where I developed a clot in my right calf one week after surgery. My calf swelled up and I could only walk on tip toe. I went back to the surgeon of the initial surgery who immedediately referred me to another Dr in the hospital. (I dont know what kind, guessing vascular surgeon? - I cant believe I dont know this) He was going into surgery but had a quick look and did an ultrasound. He told me he couldnt see my veins (???!) and that he was admitting me to hosp. I was put on an IV of Heparin and started on Warfarin pills. My calf immediately subsided although was still sore to touch, this is my fourth day in hosp, and my leg looks like a leg again. I have a not too bad pain behind my knee but otherwise can walk fairly well. The doc took blood tests and said dvt was confirmed, and another test today which confirmed I could come off the IV of heparin and be given two injections instead. I tried asking what thi... read more

7 replies...

Posted by DANIELLE
Last Reply February 1, 2017 at 13:34
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

370 replies...

Questions to ask Hematologist ?
Posted by Michelle
Last Reply February 1, 2017
Started March 18, 2007 at 18:24
Hi all... have not posted in awhile - my case: July '06 DVT knee to groin, multiple PE's both lungs after knee injury & immobility / birth control pills (do not smoke, healthy weight, 25 years old etc.)

I still have chest pain quite frequently - esp. after activity. Went for a follow-up CT Scan / EKG a couple weeks ago and all clear no new clots and old clots are all gone. YAAY what a relief - only explanation for chest pain has been "chest wall inflammation" which I don't understand.

I'm still on coumadin (8th month now) for my DVT - leg still turns blue / tingles / red "lace" patterns on calf but there is next to no swelling or pain. I never actually had any swelling with my DVT (very lucky here). I still wear good compression stockings every day to help with tingling / colour changes.

OKAY so now my question! I have an appt. on April 2 with a Hematologist to see if I have any genetic / hormonal clotting factors. If it turns out there is nothing then I can stop c... read more

38 replies...

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Last Reply January 31, 2017 at 22:46
Started January 31, 2017 at 22:46
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0 replies...

Femoral occlusion
Posted by Imtiaz
Last Reply January 31, 2017 at 13:58
Started January 31, 2017 at 13:58
Experiencing alot of pain in sitting
position when leg bent. I start to get a
build up of dullness and pressure build up
in the lower leg the feeling is as though
the leg whats burst the lower calf swells.
If I sit for long periods or sit more than
i walk.I never had worsening of sitting
but since sept 2016 I feel this. Pls
anyone experiencing this and know why???

0 replies...

Pain in left calf area
Posted by Mike
Last Reply January 30, 2017 at 22:26
Started January 30, 2017 at 22:26
Got a bad cramp in left calf area the
other night and it still hurts would a
massage help to ease pain my Calf has no
redness or swelling please help?

0 replies...

Posted by Dharma
Last Reply January 30, 2017 at 16:45
Started May 5, 2013 at 15:55
Just wondering if anyone is taking Xarelto instead of the other more common blood thinners. I was on Coumadin for several months after having my chronic (2 year old) dvt removed and stented and since January have been on xarelto. I feel 100% better on this newer blood thinner and I am symptom free. The Coumadin made me tired, bruised and caused severe hair loss. The switch to xarelto was my hematologist idea. He said it is as good at preventing clots as Coumadin. I know there is currently no known reversal agent but I live a pretty low risk lifestyle so for me it is worth the risk.

I have been on it everyday since January 2013 and plan on taking it for at least another year...maybe longer. Has anyone else been put on this for dvt prevention? If so have you had any side effects?

97 replies...

Stents in the Iliac Vein and exercise
Posted by Donna
Last Reply January 29, 2017 at 16:58
Started April 20, 2008
Are there any restrictions to do strenuous exercises if you have stents in your Iliac Vein (Abdomen)?

12 replies...

Posted by JEAN
Last Reply January 28, 2017 at 17:05
Started August 9, 2008 at 05:45

40 replies...

tattoo's on warfarin!
Posted by chir jones
Last Reply January 28, 2017 at 14:34
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

106 replies...

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