DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4675) - Page 2 of 234
Do I have a blood clot?
Posted by missjg1322
Last Reply May 18, 2017 at 11:50
Started May 13, 2017 at 21:00
I have a mild pain in my left leg. Its not
constant or severe, just annoying. I have
no swelling or redness either. Ive had it
for 3 days though and nothing seems to
help it. Ive tried painkillers, magnesium
and applying heat. Could it be a blood
clot? Im a 30 year old female, I dont
smoke and Im.not on birth control. I also
havent been on any long flights lately. I
cant recall doing any injury to my leg

1 replies...

Vein Transplant
Posted by Mel
Last Reply May 17, 2017 at 14:50
Started April 2, 2007 at 11:38
Hi guys. I have been suffering with DVT for 6 years now and have constant pains and pins and needles in my legs. Both my legs, from the tip of my toes into my pelvic area are completely clotted. After 6 years the clots are still there and have not been disolved.

From having constant problems with my legs, and having to be on warfarin for life I was wondering if there is anyway a vein transplant can be done? Is there such a thing?

13 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply May 17, 2017 at 12:06
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

145 replies...

Recovering/from DVT & PE
Posted by With hold
Last Reply May 17, 2017
Started May 17, 2017
Hello, first I would like to say to everyone
facing with this conditions! My deepest sincer
to all that are dealing with this illness. As I
have experience with the same just differeley.
I'm recovering and getting my self educated the
best and more for self care. I give thanks to
this site and the people that give ur story.
Thank you so much! I think lets get all the
knowledge that is best for our care. Let's
continue our love on self to find the cure.Be
well everyone. May we all find in gods hands
the best care!! Be well, be care active.

0 replies...

Questions about May-Thurner
Posted by Sarah
Last Reply May 16, 2017 at 10:42
Started May 1, 2008
Well hi. I've just recently started posting here, have been on a couple other dvt support sites but this one seems to get a bit more daily action and feedback...

I'm 33 and got my dvt on February 14th (happy valentines day to me!) It is in my left leg, groin to below my knee, probably closer to my ankle, and the whole thing was hugely swollen and purple/blue. Blood tests before going on coumadin came back normal except for protein s deficiency, which my hemo said could be attributed to birth control. Will test again in a few months. So, I seem to be a perfect candidate for May-Thurner, altho no one mentioned this to me during my hospital stay or during follow up with my hemo. My GP of course didn't even know what it was when I asked him about it yesterday. I know there is quite a group of people on here who have M.T. and was curious what type of doctor diagnosed you. I could make an appointment with my hemo but thought maybe I should start looking for a vascular specialist or int... read more

13 replies...

DVT and hot tubs
Posted by Michelle
Last Reply May 16, 2017 at 01:29
Started August 5, 2008 at 17:55
I just wanted to check with everyone to see if anyone else got the same advice I did. I was told never to use a hot tub - as the heat will cause the veins to dialate - which could widen the vein enough to allow the clot to move / dislodge. The theory makes sense. Has everyone else been told the same thing?
Does this also apply to any heat source - saunas, hot bath tub, hot summer days, etc??? Should I be packing my bags and moving to the Yukon? I'm already in Canada, but we do have some pretty steamy days here in the summer.

13 replies...

Stent in Iliac Vein
Posted by Diane
Last Reply May 15, 2017 at 18:51
Started October 24, 2007 at 05:26
Has anyone had a venous stent inserted into their Iliac vein following a DVT. This was done to keep the vein open and relieve pressure on it from an adjoining artery. My question is for those who have a Wallstent. Do you still have pain in that stented vein? I continue to have pain three years after the DVT.

22 replies...

What Can Vita Nerve Provide for You?
Posted by jolique1
Last Reply May 15, 2017 at 08:48
Started May 15, 2017 at 08:48
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0 replies...

Wear compression stockings when running?
Posted by Athenian
Last Reply May 13, 2017 at 05:07
Started April 14, 2017 at 04:08
Should they be worn or not? I had contradictory advice from different
vascular surgeons. One stated that the blood when running goes up
really fast in the veins and that wearing stockings could create skin

I have femoropopliteal DVT (diagnosed 5 months ago) and use class II
thigh-high stockings. Again, here some suggest knee-high instead.

1 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply May 12, 2017 at 21:15
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

109 replies...

How Long for Pain?
Posted by Michele
Last Reply May 12, 2017 at 14:05
Started June 3, 2009 at 14:28
I am 32 years old and a very active person who was diagnosed with DVT in my right calf about 2 1/2 weeks ago. I was on lovenox for 10 days and am obviously still on coumadin. My question is, how long does it take for the pain to go away? I am still barely able to walk. And definitely unable to drive. My doctor doesn't seem worried and says to allow for a few weeks. I guess the pain gets slightly better each day, but it is still extremely sore and hurts to walk. Not to mention that when I do walk, I move so slowly because of the pain. I've been using crutches to get around too. Does this sound "normal"? How long does it typically take for the pain to go away?

Thanks so much for all your thoughts.


17 replies...

What are the Ingredients utilized in it?
Posted by endovex1
Last Reply May 12, 2017 at 09:01
Started May 12, 2017 at 09:01
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0 replies...

Why is high INR dangerous?
Posted by Michelle
Last Reply May 12, 2017 at 07:28
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.


53 replies...

Alcohol and long term warfarin
Posted by Amandajane
Last Reply May 12, 2017 at 03:58
Started December 15, 2008 at 10:42
Hi, Does anybody else out there enjoy a glass of alcohol every now and then. I find it doesnt change my inr much. Has anybody got any idea of why some doctors say no problem and others say only have one. I am confused and dont know if I am drinking too much while on warfarin. Im on it for life. Thanks

13 replies...

Zyacin Will Include The Additional Enjoyment T
Posted by Zyacin3
Last Reply May 12, 2017 at 01:08
Started May 12, 2017 at 01:08
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0 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply May 11, 2017 at 05:31
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

540 replies...

rivoroxaban for travel
Posted by ruth
Last Reply May 9, 2017 at 09:33
Started September 8, 2015 at 07:53
I intend to take rivoroxaban when I fly over 4 hours - does anyone else do this and do you also take it for long car journeys?

3 replies...

Iliac vein stents
Posted by Rachel
Last Reply May 8, 2017 at 23:10
Started June 30, 2009 at 18:02
Okay I am a 14 year old female and I have May Thurner Syndrome and I have a vascular surgeon Dr.Franz he is awesome! Well I have had 2 angioplastys and he is was not planning on putting a stent in until I was about 23 and stopped growing.Well he found a stenosis that might be growing and getting progressively worst.So he said that he will be putting the stent in in august after I go back for my regular 3 month appointment and testing as usual I will have a venous duplex(ultra sound)and an mrv.I currently have a dvt and have been on coumadin for 7 months when I go back to him in august I will come off the coumadin yay! I am worried about having the stent placed because I might grow and then I don't know what will hapopen and he said that once the stent is in there he can't move it. So yeah I am kind of scared.How was your or is your experience with the stent?!?

30 replies...

xarelto and hair loss
Posted by Jessie
Last Reply May 8, 2017 at 14:20
Started October 17, 2014 at 05:08
I suffered bilateral pe's shortly after
the induction of anesthesia for a gall
bladder surgery. I was started on
coumadin in the hospital. The drs wanted
to switch me to Xarelto, selling it as a
wonder drug.

Since taking it, I've experienced terrible
hair loss. (I was at work the other day,
took out my pony tail and ran my fingers
through my hair. I threw away the
resulting clump. My friend came over to
talk, saw the hair and wanted to know why
I cut my hair at work).

Has anyone else had this issue? After a
discussion with my drs, we're switching
blood thinners. I hope the hair loss

35 replies...

foods to avoid
Posted by laura vincent
Last Reply May 5, 2017 at 19:18
Started November 8, 2006 at 19:44
My brother has dvt in right calf. They can't seem to get his levels to anything higher than 1.9. He's been in the hospital for 15 days (46 yrs. old - healthy, dvt caused by trauma - he fell of his bike and bumped his leg). Part of diet in the hospital includes fruit. Should he be avoiding fruit? He said he has been told to avoid green leafy vegetables but that's all. Any info would be appreciated.
Thanks so much.

65 replies...

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