DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Elevated d dimer w/out cause??
Posted by Chris
Last Reply August 23, 2016 at 12:26
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

61 replies...

Long standing calf pain
Posted by Vicky 47
Last Reply August 23, 2016 at 10:45
Started August 20, 2016 at 11:44
I started having calf pain last March, negative d dimer. Despite
numerous GP visits he would not refer me for ultrasound so I paid to see
a vascular surgeon who said I had thrombophlebitis and it would resolve.
He did a quick ultrasound while I was standing. That was mid April.
Slight improvement but saw NHS vascular surgeon in early June. He did
more thorough ultrasound and said no dvt. Inbthe meantime, due to a mix
up I got another NHS appointment for end July. Pain still there but not
as bad. So I went anyway. I think he was a bit peeved as I'd already
been cleared of dvt a month before but I had an ultrasound anyway, it
was clear and he more or less said don't come back!
Well now the pain in my calf is horrendous, I can hardly walk, there is
slight reddening and a large surface vein visible. It hurts all the time
-sitting, standing, walking, lying. Not realy swollen but my whole leg
feels warm inside, I'm very tired as well. Is it. Really possible that ... read more

3 replies...

stopping warfarin
Posted by suzanne
Last Reply August 23, 2016 at 09:09
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

154 replies...

Posted by DANIELLE
Last Reply August 23, 2016 at 04:54
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

358 replies...

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Last Reply August 22, 2016 at 05:57
Started August 22, 2016 at 05:57
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Last Reply August 22, 2016 at 04:12
Started August 22, 2016 at 04:12
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0 replies...

DVT and symtoms dizzy, out of breath
Posted by Wes
Last Reply August 21, 2016 at 15:16
Started September 12, 2006 at 10:17
Hi, I am looking for any information about having symtoms like being dizzy, out of breath, chest and arm pains.
If I do a minemum of work such as bending down and getting up I will be totally winded within 1 -2 min. I can be rested go up two flights of stairs I breath heavy and my legs feel like lead weights. I have had my heart checked wiht stress test, blood work and a angiogram.(I think thats what its called when the run the camera up your leg to the heart, and that was good. I had my DVT to my leg 2 years this Thanksgiving. The pain never left. They did not disolve it, just left it do what ever. If anyone has or knows anyone with this sort of symtoms and being related with DVT I would very much appreciate it. Thanks

21 replies...

May-Thurner's Syndrome
Posted by Jill
Last Reply August 19, 2016 at 19:06
Started December 28, 2007 at 20:30
Hi all,
I was wondering if anyone here has had experience with May-Thurner's Syndrome? I was diagnosed last month as they're still trying to determine the cause of my DVT 6 months ago (I'm still not running or doing stairs to any extent, though most other things are back to normal). I was told about a possible procedure that has been done in about 1000 patients involving putting a stent in the veins (for me, from my belly button to my knee) that May-Thurner's affects. Has anyone here undergone this (or a similar) surgery and can you give me the basics of your procedure/recovery?
Thanks so much!
Happy holidays all!

219 replies...

anyone heard of the new drug pradaxa??
Posted by sara
Last Reply August 19, 2016 at 02:51
Started April 8, 2010 at 12:43
been doing some resurch into alternatives to warfarin as i am so fed up with all the side effects that the doctors choose to tell us dont exist!! like tiredness, hair loss, feeling cold all the time e.t.c....im not talking about herbs and stuff i know that we all have to take warfarin, as the alternative is risking having another clot. but last year a new drug called pradaxa was cleared for use and is allready used in some cases in the uk but only for people who have had knee and hip operations. ive looked at all the studies and trails and none have the same side effects as warfarin exept the usual bleeding bruising etc as with any blood thinner; also there are no daily/weekly blood tests as the way it thins the blood is so diffrent. would really lie to know if any one else has heard of it or has used it??
thanx. x

239 replies...

I gotta rip in my hose!
Posted by Brittany
Last Reply August 19, 2016 at 01:29
Started July 22, 2009 at 04:34

I had my hose all of three weeks before I tore a nice hole in the knee of one of them. Thanks to an anklet.

Has anyone experienced this? What did you do to fix it? Anything? I soooo don't want to buy another pair for $100! I am using the other stocking right now...but...wanted to wear these for a while and am already down to one! Oops!

Have you fixed it yourself? I was thinking of trying that elastic thread...Or have you taken it in? Or just thrown it away?



5 replies...

Pain swelling tingle wearing compression socks
Posted by Pam
Last Reply August 18, 2016 at 17:38
Started August 18, 2016 at 17:38
I have recently been told I had a clot that is right at the knee. Then I was told 2 days ago a month after the clot that I now have another issue with the DVT and need a VNUS closure surgery. I have been told to use compression stockings 20/30 before my surgery. I put them on and my leg swells hurts gets numb feeling the ankle swells and tingles. I have tried different sizes but still the same. The dr. wont hear of going down to the 15/20, so what can I do?

0 replies...

Sciatica symptoms or dvt
Posted by Louise
Last Reply August 18, 2016 at 17:34
Started August 18, 2016 at 17:34
I started with Sciatica symptoms over four weeks ago three days
before I woke up with a swollen left leg which turned out to be a
dbt. I had thrombolysis op & it cleared the clot. I was in hospital
for two weeks where I was on heparin then 2 weeks later in
discharge I was also started on warfarin, my one has stabled at 2.5
so I'm now off the Heparin injections. My worry is I've been
getting Sciatica symptoms again for the past few weeks & I'm a bit
worried it could be a undiagnosed blood clot, no swelling od let
though. Perhaps I just have Sciatica, which ive never had before, &
am worrying for nothing. Anybody any idea? Thanks in advance.

0 replies...

Heart clot
Posted by Leona
Last Reply August 18, 2016 at 12:24
Started August 18, 2016 at 12:24
Average time for this to dissolve. On Warfatin, INR 2-7

0 replies...

can symtpoms come and go?
Posted by zben1
Last Reply August 18, 2016
Started October 29, 2008 at 19:31
I am trying to figure out if my symptoms are DVT or muscular. I didn't do anything to pull a muscle but I have bad pain in my upper calf. There is no swelling or redness but it hurts to touch. The odd thing is that it got a lot better yesterday for most of the day. Today it's really painful again. Can symptoms of DVT come and go? Should I be taking a baby aspirin just in case?

15 replies...

DVT Leg Swelling
Posted by kb
Last Reply August 16, 2016 at 18:24
Started January 2, 2009 at 17:18
Hey all, I am about a month into my warfarin treatment for a DVT left leg (thigh high to calf) and subsequent PE in each lung. I personally believe the clot was in my leg for some time before what I thought was a muscle pull in my calf revealed the DVT. I am active (jog, sports).
When does the swelling in the leg go away? My case is calf down to ankle - no thigh swelling. Has anyone had swelling, then after DVT treatment it is gone? I am reading some threads where people have swelling for life. My doctors say it is normal to see swelling for a couple of months until the clot dissolves back into the body and depending on vein damage the swelling might never go away. I am curious to hear other stories.
I am currently wearing compression stockings during the day which if I am on my feet part of the day I have no swelling. I also read that wearing stockings after being diagnoses with DVT you can reduce your chances of chronic issues later on.
I don't mind the healing process, but ... read more

64 replies...

2nd DVT
Posted by Ian
Last Reply August 15, 2016 at 22:44
Started January 23, 2011 at 21:27
Iíve just had my second DVT diagnosed. The first was last March. Treatment finished in October and having started back on some serious training in January I was hit by this blow just this week.

Apart from being stuck between completely fed up at the thought of surgical stockings for two years and warfarin for life and grateful that it can be treated, my head is buzzing with questions.

How many other people get the second diagnosis despite keeping fit and healthy and having a healthy diet?

So why is it that nobody seems to know where these things come from?

Are there any useful sources of research that can be looked at?

Are there any good sources of advice on the kind of exercise that can be done after a second diagnosis? After the first DVT I didnít seem to be allowed to do anything. Eventually this morphed into a bit of swimming and I could try my hand at a spot of Salsa (nothing wrong with that in itself). Now the consultant that I have seen this week says I ca... read more

12 replies...

Stents for May Thurner Syndrome
Posted by Leann
Last Reply August 15, 2016 at 21:42
Started June 30, 2009 at 18:25
Can anyone help? I'd like to hear of anyones experience of having stents fitted due to May-Thurner syndrome.How was the pain after surgery? How long were you down? How soon were you back to your normal activity?I have had two angioplastys and After surgery I had to lay flat on my back without moving for 6 hours and then I was sent home that evening.Will it be similar to anything like this? Any advice to get me through this would greatly appreciated. I will be having a stent placed due to May Thurner Syndrome in Late August.I am 16 years old.


12 replies...

Your Experiences with Post Thrombotic Syndrome
Posted by Sarah
Last Reply August 15, 2016 at 09:41
Started October 12, 2008 at 21:37
Hi All,
for those of you that have had your dvts for awhile, I'm curious about your experiences with PTS. I'm 8 months past my initial diagnosis. Lately I've been feeling some slight pain in my vein in the upper/inner thigh. I know this is where my clot was, and I know I have residual clot there as I never had thrombolysis. I had a follow up ultrasound 2 days ago to assess for reflux so I know this is not new clot. The discomfort is usually not too bad, and seems to subside after awhile. Have any of you all felt this as well? Not much swelling, just this vein stuff that I think is happening a little more often than it used to. If anyone cares to describe what PTS is like for them I would be intersted in hearing your stories.

95 replies...

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0 replies...

Warfarin headaches
Posted by Claire
Last Reply August 13, 2016 at 15:44
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

95 replies...

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