DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Warfarin and Chloramphenicol (red eyes drops)
Posted by jordi77
Last Reply March 18, 2017 at 17:30
Started March 18, 2017 at 17:30

I was diagnosed with a DVT in my left arm 6 weeks ago. After reaction to Apixaban, I have been on Warfarin. I take now 9 mg/day and my last INR (6 days ago) was 3.2.

Since the reaction to Apixaban, I've had some red veins in both my eyes. After waiting a few weeks for this to disappear, it hasn't. Three days ago I consulted my GP, who gave me a prescription for Chloramphenicol eye drops (0.5% w/v) twice a day. I could see that when he chose the medicine, the computer flag a pop-up with warning signs, which he quickly closed. I asked if this medicine was ok with Warfarin, to which he said yes.

However, I have now seen online that it is not recommended to take this (there's a review article from 2005 in JAMA Archives Internal Medicine) as there is possibly a moderate interaction. I am now concerned, and unsure to put on the drops or not. I have my next INR test scheduled for monday.

Anyone has been on these eye drops (which contain an antibacterial) while on Warfarin?

0 replies...

Foot pain and swelling
Posted by Susy
Last Reply March 17, 2017 at 22:32
Started August 3, 2010 at 08:02
Has anyone experienced this after a DVT? I had my DVT back in December/Jan and am now off Warfarin. Everything has been fine up until a week or so ago when I started having this foot pain, worse in one foot than the other. It has gradually been getting worse and my feet feel really heavy and painful.

20 replies...

High Doses of warfarin
Posted by Sharon
Last Reply March 17, 2017 at 19:29
Started February 6, 2010 at 17:58
Here I am again my daughter is 19 and on 10/11mg daily she is bleeding heavily (constant period) but blood levels are good at 2.3 never been higher than 3.5 - Does anyone else take such large doses??

31 replies...

Greenfield Filter
Posted by Lisa
Last Reply March 17, 2017 at 03:40
Started June 10, 2008 at 23:06
Does anyone have a greenfield filter? Would like some info on it. I have one and it is occluded

68 replies...

Warfarin headaches
Posted by Claire
Last Reply March 16, 2017 at 07:50
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

100 replies...

lifetime clots
Posted by will
Last Reply March 15, 2017 at 14:44
Started March 15, 2017 at 14:44
i was in a car accident back in 86. spent two months at duke hospital. while
there i was diagnosed with blood clots. doctors put me on coumadin for 6
Back in 2001 i fell off the roof of the house. didnt break or hurt anything. a
month later i was in ICU with DVT and clots all up my legs and waist. Doctor at
the time mentioned something about me not having an IVC.
Last year i had wrist and knee surgery. in November last year i went to doc
about tenderness in my waist area. come to find out i had superficial clots. I
have been taking warfarin for 20 years at this point. New doc put me on eliquis
for 3 months. in December i went back to Head of Vascular at local hospital.
(doc who saw me when i was in ICU) He knew my clotting history, with more
clots in groin area. He put me on Lovanox for a month. Last month they did an
Endoscopy to see if there were any veins to put stents in to help the flow. He
went up my leg and down my neck and couldnt find... read more

0 replies...

how long does the pain in the leg last
Posted by Angela
Last Reply March 15, 2017 at 10:46
Started July 3, 2010 at 21:38
i had dvt in my left leg abt a week ago and was hospitalized for 5 days, am now on warfarin. i would like to know how long it will take for the pain in the leg to go away cos the pain is simply unbearable. would also like to know when i can go back to work. has any one gone through the same out there. pls help

75 replies...

flying with clexane
Posted by kyasa
Last Reply March 14, 2017 at 02:39
Started June 30, 2010 at 04:06
Hi all
I had a DVT and multiple PE in April last year caused by birth control pill, which I have since stopped taking. I have no other risk factors. I Was on Warfarin until Dec. Have had no problems since.

I am going on a 9.5 hr international flight in a few weeks. I have compression stockings to wear and my doctor has prescribed clexane injections. My question relates to the dosage of clexane.

My doctor said I should have one 60ml injection the night before my flight, another one 12 hours later (a few hours before boarding), and then a third injection 12 hours later (about an hour before landing). Are 3 injections necessary? Is it enough to just have one a few hours before the flight?

any advice would be appreciated, thanks.

32 replies...

DVT and Tattoos
Posted by Del
Last Reply March 13, 2017 at 06:05
Started July 15, 2010
after a massive dvt and pe I am now on 2.5 mg wafarin/inr 2.3, lungs clear, clot almost gone and back hiking and mtn. biking. Here's the question; I am heavily tattooed and want to continue. Does anyone or has anyone been tattooed after dvt and what were results or opinions?

4 replies...

Extreme pain after DVT diagnosis- home from ho
Posted by Kara
Last Reply March 11, 2017 at 08:05
Started October 2, 2010 at 10:03
I am really hoping someone out there has answer for me. After the first day home from the hospital, I starting developing some really extreme pain in my leg from the DVT. It was in my femerol vain and the pain streches from the groin to my ankle. The swelling is almost completely gone but my calf muscle is killing me an it is very very tight. My husband think I strained it when I started walking again after laying in a hospital beed for 5 days. My INR is 2.2 at last check (2 days ago.) I called my dr and he wasn't concerned, but I can barely breathe through this pain. Should I go back to the emergency room?

17 replies...

Garlic prevents blood clots
Posted by Bob Anderson
Last Reply March 11, 2017 at 01:06
Started July 1, 2011 at 20:36
Garlic is a natural treatment that is very effective, inexpensive and has no real unpleasant side effects. Garlic is probably the best of all foods at inhibiting platelet aggregation; that is, preventing blood clots from forming.

People who eat garlic every day develop a natural ability to inhibit the formation of blood clots as long as the garlic is in their systems. When they quit eating the garlic, it takes a few days for the effects to wear off and then the blood clots normally again.

If one is taking Warfarin or any other anticoagulant, it is wise to inform your doctor you are eating garlic, especially if you eat a lot of garlic and that your prescription may need to be adjusted downward some to compensate. Your doctor can do a prothrombin time (INR) test to adjust your prescription. Same thing if you are taking garlic pills. Most doctors don't really understand how garlic works because herbal medicine is not taught in med school.

Garlic is not approved by the FDA for... read more

17 replies...

IVC filter-stuck
Posted by Emily
Last Reply March 8, 2017 at 16:46
Started April 1, 2011 at 01:57
Hey All,
I've posted a few times on here, and everyone always is so helpful, so here I go again. I had a 2.5 foot clot in my right leg and multiple bi-lateral PE's in November. I had several surgeries (angioplasty, venagrams, thrombolysis, TPA therapy) to remove as it was blocking my vena cave. I wear compression hose and am on Coumadin. I had a tulip retrievable filter put in at my community hospital before I transferred to Cleveland Clinic. There was a big debate about whether I should have the filter removed or not. I chose to have it removed, but it's stuck. They say it's embedded on my vena cava. Supposedly this is okay and there's nothing I can do. Has anyone else had this happen to them?

5 replies...

Can clexane dissolve clots or just stop new
Posted by Sarah
Last Reply March 8, 2017 at 05:07
Started March 8, 2017 at 04:58
Hi everyone, I just had my first follow-up ultrasound for a dvt below the knee. It looks stable and hasn't increased in size :)

The sonographer said he has heard that clexane (low molecular heparin) could help dissolve a clot. But I've seen info that says it only stops new clots forming.

My only treatment at the moment is 150mg aspirin, compression socks, keeping hydrated etc. And resting.
I had a couple of leg operations last year and would really like to make sure I'm doing everything I can to get past this complication.

Any thoughts would be appreciated.

1 replies...

Sever calf pain after ACL surgery
Posted by John Smith
Last Reply March 5, 2017 at 08:05
Started March 5, 2017 at 08:05
How's it going everybody! I had an ACL surgery about 5 days ago. Last night I
woke up from a pain in my calf. My calf is someone swollen no redness or
anything. It is tender to touch and hurts more when I stand up even if I don't put
pressure on it just standing up hurts. A lot! Could it be a blood clot? I've been
taking aspirin 325 mg like the doctor recommended once a day. The first 3 days
didn't move much just stayed in bed. The 3rd day I started therapy didn't hurt to
bad. The 4th day I did some excercises at home and all was well didn't really hurt
much. I could walk on it putting about 30% weight on it. Usually I have calf pain
but if I continue to walk on it it goes away . Still tender to touch though . If I flex
my calf I don't feel much pain.

0 replies...

Potential DVT?
Posted by Lena
Last Reply March 4, 2017 at 18:09
Started June 4, 2007 at 05:07
Since Friday noon, have been having this strange pain on my thigh. It started in the thigh area above the knee - mostly on the outer side of my thigh. The pain is not constant but is a sudden quick sharp pain (which is not that painful but just noticeable) and then it goes away. It comes whenever it feels like it. When I move/walk or stand, the pain is actually less [or I don't notice it] .. and occurs mostly when I am sitting or lying down. In the past two days, I have not noticed it happening while walking/moving but only "at rest".

I started working out sometime in March, running a few weeks ago so at first thought it was a muscle ache/pain. The pain seems to be different at times. Plus remembered that I was in bed for most of Tuesday am to Wednesday (vertigo - lots of sleep) from about 3am to 11am, then 12-ish to 7 etc. Recovered enough to head to work on Thurs, Fri.

About work, I work in the IT industry so tend to stay at my desk a lot - although I do take restroom/wate... read more

24 replies...

avascular necrosis
Posted by anne
Last Reply March 4, 2017 at 17:30
Started December 19, 2010 at 12:29
I have had a pain in my knee going up to my thigh since july, doc done mri nd exray, all clear, got worse by the week, after quite a lot of painkillersand acupuncture etc, still in pain getting worse, I said there must be something wrong, in between times I was flying backward and forward to London from jersey short flight but done 6, so he exrayed again and found my hip to have avascular necrosis, which had hppened in 3 months, he couldnt understand this, put on surgeons list for a hip replacement, in between waiting for a slot to have op, i started to cough upa small amount of blood was rushed into hos, dvt also Pulmory embolism in lung, my legs were scanned next day, found clot behind my knee, which I have had pain in since july, have I had this since then, is this why my hip died, please if you can help, im now on warfarin so cant have op, on morphine patches for pain, i feel like a walking timebomb thank you.

15 replies...

Natural or C-Section with DVT
Posted by Mel
Last Reply March 4, 2017 at 17:03
Started January 13, 2008 at 13:02
Hi All

I first had DVT in 2001, in both legs. I've gone through the whole compression stockings and tests etc.. I have to be on warfarin for the rest of my life though. The doctors did warn me that I should plan when I wanted to have a child. Anyway, had a bit of a whoops and am now pregnant.

I have stopped warfarin and am on clexane injections. At around 22 weeks pregnant I suffered another clot, but it was in the superficial vein, the Haematologist said he was not worried about it at all.

I am now 31 weeks pregnant, and the doctor STILL cannot tell me if I am going to be having a c-section or if its safe enough to have natural. I would like to have natural, but would obviously do what is safest for me and baby.

Can anyone give me some advice about what you have gone through with giving birth and what options you were offered, and what the procedure is during birth.

I am really panicking about it and would appreciate any input.


9 replies...

Posted by Cw
Last Reply March 4, 2017 at 17:02
Started March 4, 2017 at 17:02
I have had knee inflammation for a few years now and this year it has gotten
worse, my knee cap and calf is swollen. My calf is also tight. It hurts a lot and the
pain hasn't gone away with any medication.

0 replies...

military exceptance
Posted by wwat1213
Last Reply March 1, 2017 at 23:31
Started October 27, 2010 at 20:17
Hi, I have been on warafin for about 2years now. I had a clot in my calf. I was on the medication for about 2 months before I was able to get off of it. Then 4 months later I had another clot in the same place. Now I am on it for the rest of my life or until they find a cure. That was in 2008, I haven't had another clot since. I stay active and exercise minimum of 3 times per week. I am looking to get back in the military. I have been out for over 20 years. I lost my job this year and work is hard to find. Does anyone know if I am able to join with the medication I am taking.

41 replies...

Trading Warfarin for natural anticoagulants?
Posted by Ken
Last Reply March 1, 2017 at 03:48
Started June 27, 2011 at 14:11
Has anyone here had the courage to substitute their Warfarin prescription with fish oil or nattokinase, or any other natural blood anticoagulants with success? The only way to see if you don't get another blood clot is to actually quit taking the Warfarin and start on the natural thinners. And I suppose that if your calf starts to swell or hurt you can have 5 days worth of Lovenox immediately available by your side for your rescue. My hemotologist says "that's like playing Russian Roulette". I've tried going off Warfarin once albeit with no change in lifestyle and no blood thinners and I got a new blood clot in about 10 days. My calf started to swell and hurt, but I noticed it right away, verified it with the Ultrasound and immediately went to Lovenox and Warfarin. Now I'm thinking about quitting the Warfarin again, this time with lifestyle changes (more exercise and moving) and natural blood thinners. It didn't seem particulary risky last time I quit taking the Warfarin. Doe... read more

31 replies...

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