DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4103) - Page 2 of 206
Posted by DANIELLE
Last Reply August 30, 2014 at 19:09
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

147 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply August 30, 2014 at 14:40
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

136 replies...

Diagnosed: Post-thrombotic Syndrome
Posted by Michelle
Last Reply August 30, 2014 at 12:23
Started April 3, 2007 at 03:13
Hello everyone: had a very depressing appt. with my Hematologist today - not sure if you all know what PTS is - but that's what I have, as a result of my DVT (knee to groin - lead to many PE's as well). I'm so angry! Ahh!

I am offically finished coumadin therapy (after 8 months). but I always thought that that would mean I am better. Not so! I'm 26, and I will have to wear compression stockings and deal with the pain, swelling, tingling/numbness forever (or so the Specialst says) - part of me still thinks there are more answers out there.

I'm trying to stay positive, but it's hard. This is a disability now - can't stand OR walk OR sit with my knees bent longer than 30 minutes without symptoms. She said it's too late to refer to a Vascular specialist - the damage to my veins is done.

Any tips / advice from others with PTS? For those who don't know it's basically complications that may follow deep vein thrombosis (DVT) (includes, persistent swelling, pain, purpura ... read more

50 replies...

Is it dvt?
Posted by Gemma
Last Reply August 30, 2014 at 06:11
Started May 17, 2012 at 11:16
I gave birth last Monday then this Monday i woke up in the night with cramp in my
right leg. next morning it felt like id pulled a muscle quite badly and had a line of
swelling halfway down my leg at the side going across about 3 inches. by Tuesday i
had swelling and pain all down the back of my calf so i googled it and dvt kept
coming up. Then yesterday the swelling was still there but it was nowhere near
as painful. today its barely swollen but when i woke up the swollen bits were red
but that's gone now. the pains only really there now if i press on it. that's what's
confusing me, from what I've read it gets worse not better and the pain is really
bad and stops people walking.
My midwife is coming round this afternoon so I'll be asking her but just wondered
if anyone's had anything like this and what happened.

9 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply August 30, 2014
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

75 replies...

Bee stings and Coumadin/Warfarin
Posted by Audrey
Last Reply August 29, 2014 at 21:57
Started November 15, 2009 at 19:41
Has anybody has unusual reactions to bee/wasp sting while on Coumdin or warfarin?

Its been many years since I have been stung by a bee or a wasp, but somehow I manged to get stung twice in the last three months while on Coumadin. The first sting had a reaction that lasted two weeks and my INR went up to 3.3 from previous readings of 1.9 and 1.7.

I was stung again this week and two days later, my hand swelled considerably, turned bright red and was hot to the touch. Benadryl did not stop the swelling. The doctor prescribed antibiotics and within 36 hours my hand is back to normal.

I researched the web, but cannot find anything to address this. I'd love to know if others have had similar experiences.

9 replies...

INR levels
Posted by Emma
Last Reply August 29, 2014 at 20:04
Started January 26, 2010 at 02:52
So far my INR has never made it up to 2, so I understand I am not at a theraputic level yet. Would this mean, that the warf would have not had any affect on my DVT? I'm pretty annoyed at my Dr, she just tells me to keep on with my 4mg even though Im only 1.4 - 1.7., so as of this week Im just going to do my own warf dosage, because I don't see the point of being non theraputic, I've put myself on alternating 4 - 5mg daily and Ill see how that goes.

24 replies...

Protein C deficiency
Posted by Elisabeth
Last Reply August 29, 2014 at 17:41
Started August 28, 2014 at 17:41

I had a proximal DVT almost a year ago and I was on warfarin for 6
months. I was taking birth control pill, so I was advised to quit,
which I did. I'm in my late thirties.

I received the results of the genetic blood tests and other tests that
I underwent. Everything was fine, except for the protein C: normal
levels go from 70 to 140 and I have 52 only:(. I have seen three
different haemathologists to know what to do: either start blood
thinners again or hope for the best and go on with my life... Two of
them told me 52 is not that low, and once I've quit the contraceptive
pill I should be fine. But one of them told me I should re-start blood
thinners immediately!She said that protein C deficiency is very
dangerous and that I will have another DVT (or even worse - a PE)
almost for sure! I am so scared now. I can't figure out what to do!

Could you give me your opinion, please? Are there anyone here with
this deficiency? What were you told by yo... read more

3 replies...

Upper limb DVT cause and effect
Posted by Shaun
Last Reply August 29, 2014 at 07:48
Started August 29, 2014 at 07:48
Hi, I am a regular masters swimmer and weight lifter. About a month ago I woke up with a COMPLETLY dead right arm after sleeping on my side all night. Its happened before but now I have a near constant aching under my armpit and sometimes elbow. Ive been seeing physios for a year with trap,lat,romboid and teres major tightness from repeated training and i know the artery goes through a small gap between these muscles.

I have found my right hand is sometimes allot colder and sometimes goes dead when swimming. Online (patient.co.uk) says: '80% occur in dominant arm', 'also seen in otherwise young healthy individuals who participate in repetitive upper limb exercises', 'more likley to be younger with a lower bmi'. This is all me but dont want to jump to conclusions.

Any help would be good as its really hurting

0 replies...

flying after being diagnosed with DVT 7days ag
Posted by mair
Last Reply August 28, 2014 at 10:54
Started August 28, 2014 at 10:52
I'm stressed to the Max at the moment on Tuesday I was diagnosed with
small blood clot in my right leg under my knee. I'm taking clexane 150mg
daily but I am meant to go on holiday next Thursday 10 days after the
diagnosis first doctor said it should be OK but the blood nurse told me
I shouldn't be flyin so I rang my gp and he said that I should be ok
aswell . I don't know what's best any help would be grateful

1 replies...

is flying without clexane safe?
Posted by Jenny
Last Reply August 27, 2014 at 19:17
Started August 27, 2014 at 04:32
I had a DVT in April eight years ago. I have no risk factors, no
medication. I was on clexane 6 months. Have had no problems since.

I am going on a 2 hr international flight in a few weeks. I have
compression stockings to wear but my doctor said I need no clexane
injections. Is that OK? Iam worried..

any advice would be appreciated, thanks.

5 replies...

Nattokinase and Warfarin
Posted by Megan from New Zealand
Last Reply August 27, 2014 at 14:00
Started November 5, 2013 at 23:09
I have just been diagnosed with a second blood clot in my leg (10
years after the first). I have two - one in my calf and one behind my
knee and two prothrombins Factor V Leiden and Protein C deficiency.
As I'm extremely active I want to get back to exercise quickly and am
exploring options to break down the clot. I'm on Warfarin for the
next 3-6 months but wanted to check out maybe combining this with
Nattokinase. My concern is that the Nattokinase will cause bits of
the clot to break off and head upwards or that there will be issues
with the Nattokinase and INR tests. Is there anyone who has combined
the two? What sort of dosage did you use for the Nattokinase?
Anything to watch out for?

2 replies...

When can i fly
Posted by Tom Burgess
Last Reply August 27, 2014 at 04:28
Started September 21, 2007 at 16:09
Was diagnosed with DVT this week after a fracture to my left leg. I'm on the usual injections and Warfarin for three months. I was meaant to be flying long haul (10 hour flight) in two months but will now be cancelling this holiday.
Does anyone know when i can fly after my treatment finishes?
Also is there a restriction to the length of flights i can go on?

51 replies...

stubbed toe and on Warfarin
Posted by jo uk
Last Reply August 26, 2014 at 23:36
Started August 25, 2014 at 20:07
Hi all, about an hour ago I stubbed my little toe on corner of furniture. I'm on 10.5mg of warfarin daily my last INR was 2.5 (finally settled) although may of changed as I can't eat much at the moment! Should I be concerned? Its starting to bruise and feels warm. Don't want to make a fuss but just don't know if I should just leave it. I have 2 thrombophlebitis in opposite leg have been on Warfarin for 3 months. It will be ok won't it?? Thankyou

2 replies...

anyone heard of the new drug pradaxa??
Posted by sara
Last Reply August 26, 2014 at 23:34
Started April 8, 2010 at 12:43
been doing some resurch into alternatives to warfarin as i am so fed up with all the side effects that the doctors choose to tell us dont exist!! like tiredness, hair loss, feeling cold all the time e.t.c....im not talking about herbs and stuff i know that we all have to take warfarin, as the alternative is risking having another clot. but last year a new drug called pradaxa was cleared for use and is allready used in some cases in the uk but only for people who have had knee and hip operations. ive looked at all the studies and trails and none have the same side effects as warfarin exept the usual bleeding bruising etc as with any blood thinner; also there are no daily/weekly blood tests as the way it thins the blood is so diffrent. would really lie to know if any one else has heard of it or has used it??
thanx. x

240 replies...

My experiences with EKOS thrombolysis procedur
Posted by Dale
Last Reply August 26, 2014 at 22:53
Started May 26, 2014 at 20:36
I've referred to this forum many times in the past six months, so I thought I would contribute my experiences with the EKOS ultrasound accelerated thrombolysis procedure, in the hopes it would help someone else.

Brief background on me: I am (was) a healthy, fairly active 41 year old male. In Nov/Dec I had a silent DVT and serious PE, leading to partial cardiac failure. Spent several days in the hospital. After three months, my PCP took me off warfarin. My clots came back within three weeks. This time the DVT was much worse, a full occlusion running from just below the knee up to the groin. It was comprised of both old (five month) and new clots.

After a month of referral/scheduling/insurance nightmares (another post), I went in for the EKOS treatment. At this point, my clots were six months and 40 days old, still 100% occluded. The IRU doc warned me - the chance of success was slim, to the point of being experimental (just don't tell your insurance that!).

The initi... read more

13 replies...

DVT newbie
Posted by Chris
Last Reply August 26, 2014 at 17:35
Started August 24, 2014 at 13:57
Hello DVT world..About a month ago I found out that I have DVT. Had pain behind
my knee and calf and didn't think anything of it because I'm 27 and I always hurt
or sprain myself due to my heavy lifting job at times. But pain got much worse
second week where I was limping at work barely bending my ankle so I don't feel
that horrible sharp pain in my calf. Went to the dr and they did a sonogram and
found a "bad" DVT by my groin. Sent me straight to the hospital and stayed there
for ten days getting shots in my stomach and started coumadin 3rd day. Even
though I was getting both the shots and coumadin. My inr would not increase
until my 7th day there and that's because they bumped up my dose to 15mg of
Coumadin. Got out the tenth day and now on 10mg of Coumadin at night and inr
is at about 2.8-3.0. I'm on the no vitamin k diet. My whole stay in the hospital and
now my second week out seems to be worse mentally then the actual process of
healing. I think maybe ... read more

11 replies...

Prickly Rash on Feet post DVT
Posted by CJ
Last Reply August 26, 2014 at 04:16
Started May 9, 2012 at 12:47
Hi All i was diagnosed with a DVT in left and right leg in feb this year i was started on cleaxane injections and warfarin i then went onto have a PE which again i was started on clexane injections as my blood was out of its theraputic range. I was on bed rest and have just returned to work after a slow recovery. I have woken today to a red prickle unraised rash on my feet has anyone else had similar experience? Any advice/help would be great thankyou

2 replies...

Pls Explain
Posted by Bharati
Last Reply August 25, 2014 at 21:48
Started February 24, 2009 at 04:26
Hii Friends
I got Low INR In my last blood checkup. [ 1.4 to 1] now after changing my tablet into 5 mg it showed two days back my INR as 1.7
i was totally avoided carrot and root items and spinach and took plenty of water and glucose also perday two times [ totally 8 spoons glucose]. i kept watching my diet without rice much and i took chapati instead. within 8 days i got result as 1.7. my question is due to my tab5mg or due to my diet? really dont know the logic of this DVT. i m willing to work soon. so naturally i have to be away from my family and will have outside food. so i need some suggestion regarding food taking from outside. will it affect my INR level? if anyone comeacross any problem like this pls let me know.
thanks in advance.

14 replies...

Nattokinase usage in dvt tx
Posted by eden
Last Reply August 25, 2014 at 19:11
Started October 28, 2010 at 06:54
Hi all, my 15 year old son was diagnosed with massive DVT two months ago. Once they found the problem, they tied clot busters but they did not help as it was already over two weeks by then since the onset of symptoms. His symptoms were very mild and vague which misled us all. I dont even want to start talking about the ordeal he has been through. What makes it even harder is that he loves soccer so much and I do not know if he will be able to play again. My heart is breaking everyday; but, I am also grateful that he is alive, and relatively speaking, ok, so far.

I would appreciate any iformation or experience anybody has with the use of Nattokinase which is said to have strong clot dissolving capacity.

Thanks and keep up the good faith!

14 replies...

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