DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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tattoo's on warfarin!
Posted by chir jones
Last Reply November 20, 2015
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

101 replies...

"What Symptoms Should Prompt Me & My Doctor To
Posted by Sharon
Last Reply November 19, 2015 at 02:16
Started June 2, 2008 at 04:46
The most common question from those who have not been diagnosed, is in one form or fashion, one wording or another--"Does this pain I have mean that I have DVT or should be tested for DVT? The next question is, "What tests should I have?" The most common question for all of us w/ confirmed DVT is, in one form or another--"Am I clotting again or is this new pain a result of Post Thrombotic Syndrome" (damaged valves in the vein from past DVT).

I wrote the following in response to someone wondering why their doctor refused to test them for DVT when they had symptoms. Thought I would post it under its own topic so everyone can chime in. I ask specific questions of those who have been diagnosed w/ confrimed DVT/PE at the end. I have not had a PE, so I think it might be good to have a similar article on that topic if someone w/ experience and good doctors as advisors can write that one. I hope this info helps others:

You are wondering why the doctor did not test youwith a Dopplar U... read more

29 replies...

Swelling years after DVT
Posted by Jim
Last Reply November 19, 2015 at 02:05
Started March 25, 2010 at 21:43

17 years ago I was in a wreck and broke my leg and developed a DVT in ny calf. I had major problems with this leg swelling for months.I was put on Cumadin( for approx 6 mon.) after a week's stay in the hospital.
The leg continues to swell not nearly as bad and has some numbness.
Is this swelling normal ?I have to be very careful about some activities, socks/shoes I wear, standing. I have lived with the pain from this for years. I'm not very trusting of vascular surgeons.
Recently I had to have hip replacment,(due to a old injury) on the opposite leg and developed a small DVT in that leg. I am back on Cumadin, but there are no ongoing swelling issues in that leg.

Has anyone else had these issues YEARS after a DVT ?

9 replies...

Sudden Drop in INR
Posted by Paula
Last Reply November 18, 2015 at 05:15
Started October 28, 2009 at 21:39
I have been taking warfarin for 13 weeks now and for the past 6 weeks have been in range between 2.0 and 3.0.

On Monday my INR dropped to 1.4. I haven't missed any doses, changed my diet or taken any other medication.

The clinic doctor was stumped and upped my dosage to 11mg on Monday and 9mg yesterday. Went for another check this morning and my INR was 1.6.

Now he has upped my dosage to 12mg tonight and tomorrow, 8mg on Friday and 9mg Sat/Sun and another check on Monday.

I am a little concerned about how much warfarin he has asked me to take and also about why my INR has suddenly dropped so low.

Has anybody else experienced this during their treatment?

46 replies...

Post-DVT and Exercise
Posted by Machka
Last Reply November 17, 2015 at 16:39
Started January 10, 2010 at 11:40
I developed DVT on June 12, 2009 and was diagnosed and admitted to hospital on July 29, 2009 with blood clots throughout my entire left calf and one clot above the knee.

I was a very active person (mainly cycling), but it's been months now and I seem to be having a lot of trouble returning to my pre-DVT activity level.

How many months did it take you to return to your pre-DVT fitness and activity level?

26 replies...

xarelto and hair loss
Posted by Jessie
Last Reply November 17, 2015 at 14:21
Started October 17, 2014 at 05:08
I suffered bilateral pe's shortly after
the induction of anesthesia for a gall
bladder surgery. I was started on
coumadin in the hospital. The drs wanted
to switch me to Xarelto, selling it as a
wonder drug.

Since taking it, I've experienced terrible
hair loss. (I was at work the other day,
took out my pony tail and ran my fingers
through my hair. I threw away the
resulting clump. My friend came over to
talk, saw the hair and wanted to know why
I cut my hair at work).

Has anyone else had this issue? After a
discussion with my drs, we're switching
blood thinners. I hope the hair loss

14 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply November 16, 2015 at 13:30
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

82 replies...

High Doses of warfarin
Posted by Sharon
Last Reply November 15, 2015 at 15:24
Started February 6, 2010 at 17:58
Here I am again my daughter is 19 and on 10/11mg daily she is bleeding heavily (constant period) but blood levels are good at 2.3 never been higher than 3.5 - Does anyone else take such large doses??

28 replies...

First possible blood clot, scared
Posted by Dee
Last Reply November 15, 2015 at 14:18
Started November 15, 2015 at 14:18
I'm 21 years old, have two kids and never had any sort of blood clot problems in
my life and my family doesn't have history of them. I've been resting quite a bit
meaning being a couch potatoe for awhile but getting up for my kids and eating
and bathroom. Anyways I noticed my right leg was swollen, had no pain at all or
redness. I went to er to get it checked out, they did a ultrasound on my leg and
dime blood test and other blood tests, anyways they said my d dime test was just
a tiny bit over normal and they said there might be a possible small blood clot by
my groin pelvic area but the vascular surgeon specialist said he's not concerned
about that at all since there's not a big or clear sign I have one. He wants to see
me for himself so I am seeing him in a day & a half to examine me and etc for
himself. Anyways, they also don't wanna give me anything for no reason since
they're not really sure and that was the specialists recommendations. I really
hope th... read more

0 replies...

Posted by SHAWNEE
Last Reply November 14, 2015 at 19:44
Started April 17, 2008
I am 30 yr old female, weight is 135,don't smoke and don't drink. My left legs hurts really bad. Started numbness and tingling in butt from sitting on chair at computer. Then pain was in the crease of bottom of left butt cheak. As time went on the pain went further down. It hurts now to sit on my butt on the chair and pain, tingling and soreness goes down my whole left leg now. Been happening for about 4days now. When i stretch out my calf it feels like the muscle been stretched too far already. I have not gotten hurt or did any thing to hurt my leg.
Sometimes i get sharp pains in my leg. There is no swelling,reddness or skin that feels hot. Although sometimes it feels warm on the inside. It hurts to push on certain areas on the back of my thigh and down. Skin feels very sensitive to touch. Like having the flu.
I was diagnosed w/3 leaky heart valves and i am taking propranolol for high heart racing. I was soooo scared that i had a blood clot in the leg that i rushed to the ER and ... read more

87 replies...

stretching legs
Posted by John
Last Reply November 14, 2015 at 07:48
Started November 14, 2015 at 07:48
Hi, I'm a 41 yr. old male, on Xarelto for 8 months. before I was on coumedin for 4 yrs.
Am wondering if I should be getting up to stretch my legs every two hours while on
Xarelto. Every two hours I walk continuously for three minutes. Is this excessive? It
gets in the way of my life. Do people on Xarelto not get up to stretch legs and walk on
ordinary non travelling days?

0 replies...

Your symptoms?
Posted by Michelle
Last Reply November 13, 2015 at 14:41
Started September 19, 2010 at 01:46
I am going to the Dr. in a couple of weeks. But I was wondering what were your symptoms of DVT?

I noticed about two months ago I started having cramping in my right calf. My husband would rub it and it would go away. Now it is a constant aching, cramping, fluttering, throbbing feeling through out my leg all day on and off. It doesn't hurt when I stand on it or put pressure. I did the whole bending my foot up to check and see if I felt pain when stretching and I only just felt the pull from stretching not a sharp distinct pain. Basically my muscles felt really right and it almost felt hard to stretch. I don't have redness or bruises. But one thing that does concern me is on the back left side of my right calf there is a pea size lump. It doesn't really hurt but of course my whole back of my thigh has been hurting so its part of the pain. Feels like it is by a big vein.

I honestly feel the throbbing/twitching feelings when I sit on my bed at night the most. Like I said I feel it... read more

50 replies...

To ER, or not to ER? Calf pain weirdness
Posted by Jessica
Last Reply November 12, 2015 at 21:54
Started November 12, 2015 at 21:54
So, Tuesday morning I woke up to a muscle
spasm in my left calf, which I massaged
until the pain was mostly gone and went
back to sleep. It was a little sore during
the day, but in the evening the pain
returned and this time massage was no
help. I tried stretching, heat, ice,
massage, muscle relaxers, and exercise,
but the pain has not gone away yet. I am
on a new birth control pill as of 3.5
weeks ago, and I should also mention that
due to other medical conditions I take
strong narcotic pain meds daily. This pain
is strong enough to cut through the
narcotics and make it hard to walkor put
weight on, unless I am at the peak
effective times of my painkillers. As a
chronically ill woman I am generally
treated like a drug seeking, hypochondriac
whiner at emergency rooms. I have an
appointment with a new gyn tomorrow, do
you think they will be able to look for a
dvt or advise me how to deal with this?

Also, I don't know if it's relevant bu... read more

0 replies...

How long have you been on Warfarin?
Posted by Tina
Last Reply November 12, 2015 at 21:33
Started May 18, 2010 at 21:00
Hi, I have just found this forum, can't believe I've not seen it before!

Anyway, I have just replied to another post and it occurred to me, who
has been on Warfarin the longest? I have been on it for 16 years, has
anyone else been on it this length of time?

I have recently been starting to worry about the long term side effects
but my doctor just says it's the side effects of not taking it that I
should be worried about ie getting another clot :-(

25 replies...

DVT yes or no??????
Posted by Anna Mtz
Last Reply November 9, 2015 at 20:16
Started November 9, 2015 at 20:16
I was diagnosed with small blood clot in femoral vein on 10/19 by ultrasound it
was attached to wall age undetermined. D dimer same day was negative. No
swelling or redness just had pain that would come and go not constant. Put on
Eliquis for 4 days than saw my primary dr to follow up. She ordered another
ultrasound because I only had pain and d dimer negative. Even though
ultrasound + and new ultrasound was negative and since than 5 more
ultrasounds negative?????? No clot seen on them. She stopped my Eliquis after
first negative Doppler so 5 days in but ER radiologist and imaging place that
found positive says I need to stay on Eliquis because it was there :( my PCP says
no more I still have leg pain and scared of every pain I get :( This all started leg
pain on 10/13 and ER + 10/19 and started Eliquis 10/19 and stopped 10/24 but still
having problems

0 replies...

Posted by ruby chaudhary
Last Reply November 9, 2015 at 08:07
Started November 9, 2015 at 08:07
iam 23 year male non smoker liviing at the hight of 1400 mts .having
19 hb and 53 hct .no other problem and all other component of blood
are normal. rt pcr negative .jak2 negative.bone marrow normal . now
doctor are asking to perform jak2 exon 12. is it important because
iam tired now after having so many test.

0 replies...

Posted by ruby chaudhary
Last Reply November 9, 2015 at 08:07
Started November 9, 2015 at 08:07
iam 23 year male non smoker liviing at the hight of 1400 mts .having
19 hb and 53 hct .no other problem and all other component of blood
are normal. rt pcr negative .jak2 negative.bone marrow normal . now
doctor are asking to perform jak2 exon 12. is it important because
iam tired now after having so many test.

0 replies...

Vascular surgery to remove hardened blood clot
Posted by Jim
Last Reply November 8, 2015 at 23:42
Started May 9, 2012 at 20:47
I have DVT in the left leg, was given Warfarin as my only treatment. Three months later, I was discharged by a vascular surgeon, told to wear a sock and "handle it." WEll, I am not going to "handle it."

I will now get a second opinion and will not back down until I find a vascular doctor and an interventional radiologist to remove the hardened clots in my leg.

Could anyone share their success stories regarding surgery to remove hardened blood clots?

57 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply November 7, 2015 at 19:54
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

217 replies...

Vascular Eczema
Posted by becy_roberts
Last Reply November 7, 2015 at 15:20
Started January 9, 2007 at 12:35
My dad got his 2nd DVT in his left leg in Oct (2nd one in 2 years) and his INR is still all over the place although he has reached the theraputic rnage. His doctor say's that the discoloration and swelling on his leg will never truelly go away, but recently he started to complain of a constant itch on his leg and when he went the docs they said that it was vascular eczema caused by the blood clot, he was given steriod cream and a cooling cream but his leg has began to smell like damp straw from a rabbit hutch!! Has anybody else had any similar experiences? Were all really worried as we have not heard of this before.
Thank you

26 replies...

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