DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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warfarin
Posted by rick barry
Last Reply August 28, 2015 at 16:50
Started August 28, 2015 at 16:50
Since starting warfarin in July, 2015, I've experienced; night sweats headaches,
difficulty concentrating, ear ringing, restless legs! I'm on a retirement fixed income
and, was told an alternative is much more expensive! Any opinions!

0 replies...

Warfarin headaches
Posted by Claire
Last Reply August 28, 2015 at 16:47
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

90 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply August 28, 2015
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

206 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply August 27, 2015 at 21:56
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

126 replies...

PAIN WHEN WEARING COMPRESSION STOCKINGS
Posted by JACOB
Last Reply August 27, 2015 at 13:20
Started March 28, 2012 at 22:30
Hi everyone. Im Jacob, age 29. After the last DVT in January 2012 (4th
in my life) I was put on warfarin for a life-time. I was also advised
to wear those bloody compression stockings. Everyone says they are a
must, and they do the job. But I just cannot wear them.

I got one in Poland and I could not wear it at all. It caused a pain.
The skin around my ankle is already very soft and I felt very
uncomfortable after 20 minutes of wearing that bloody sock !

And now Im living in the UK... they gave me another sock. The leg was
measured etc. but unfortunately it is the same thing. Pain and pain.
It makes more pain than it is without that stocking.

Has anyone experienced that as well ? What should I do? If I don't
wear that stocking, is it gonna be more harmful for me ?

Pls help !

36 replies...

High altitude climbing/hiking
Posted by Derek
Last Reply August 27, 2015
Started January 17, 2010 at 07:37
Was wondering if anybody out there has done any hiking/climbing at high altitude 12,000 feet or more while being on coumadin/warfarin. If so did you experience any difficulties with circulation or did you sense any clotting symptoms. I have been on Warfarin for close to two years because of a left leg DVT and multiple PEs in the lungs. Before all of this I was an avid mountain climber/hiker - but since have done absolutely no climbing above 3,000 feet. Been a basket case and a nervous wreck to even think about getting back into climbing anything significant. Any feedback on this would be greatly appreciated.
Thank you

13 replies...

Confused and still no answer
Posted by Jeff
Last Reply August 26, 2015 at 03:19
Started November 7, 2014 at 05:47
Long but want to explain it all. On Oct 25th I noticed swelling and an irritated
feeling in my leg. I had an ultrasound done at the ER on the 27th I think. Went
back to the ER on the 29th and they just said it was muscle and skeletal pain.
Problems and swelling persisted so I went to a different ER Friday the 31st and
they did an ultrasound and didn't find anything. Wednesday the 5th I went back to
that same ER and they did another ultrasound and a ddimer. Doctor said Ddimer
was normal <150 I think and the ultrasound said phlebitis. Yesterday had trouble
breathing and went to another ER as I was traveling for work and they monitored
my heart for awhile and did blood tests which everything was normal including
ddimer which again was <150. Said the swelling was probably phlebitis as the
other hospital stated and that an injury I had month ago combined with this
recent job that is sitting and driving lots has made things more prevalent. I just
don't know where ... read more

23 replies...

Prostate and dvt
Posted by Clarissa
Last Reply August 25, 2015 at 15:06
Started August 25, 2015 at 15:06
My partner has dvt which he got in hosputal,
After being in hosputal for three days

0 replies...

Cellulite due to DVT
Posted by Arslan Ahmad
Last Reply August 25, 2015 at 14:19
Started August 25, 2015 at 14:19
I am 30 years old male suffering from
dvt since 2003. I have been to alot of
physicians and vascular surgeons but
they all made it clear to me that I
have to live with this disease with the
rest of my life except the fact that
the intake of warfarin will reduce the
chances of any fatal implications.

I am at peace with my medical condition
and have accepted the consequences. The
only issue I am seriously concerned
about is the cellulite which developed
around 4 years ago on my lower right
limb due to that dvt. It is causing
serious pain and burn since then. I
have taken many antibiotics to catter
this cellulite. I even quit my job for
this. I am applying "clobederm cream
(clobetasol propionate cream USP) 10
gm". It is effective but in a passive
way I.e only if I stay in bed and dont
walk unnecessarily. I dont know what
should I do regarding this. I am
seriously worried as I am the head of
the household and have to make earning
for my... read more

0 replies...

Temporary vs. Permanent IVC filters
Posted by Ali
Last Reply August 25, 2015 at 12:25
Started December 4, 2010 at 02:18
My orthopedic surgeon wants me to have an IVC filter installed before my total
knee replacement surgery. A permanent one protects me from PEs until I die,
from embolisms. Can anyone give me any advice as to which one I should
consider? Not being able to walk is SO old. But what is the safest? I need
input from people who have been there and done that. Thanks

45 replies...

Decreased risk for polygenic disease
Posted by Slimera
Last Reply August 25, 2015 at 07:18
Started August 25, 2015 at 07:18
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0 replies...

How long to wait after DVT before hysterectomy
Posted by Beth
Last Reply August 25, 2015
Started September 17, 2007 at 03:43
This forum is great. I just had DVT and PE diagnosed - not confirmed but speculation given no other health or travel issues is the large fibroid pushing into my vein. If that is really the cause, I'd like to have it out ASAP. It appears most people have surgery, then DVT - not the opposite. Any that needed surgery after DVT and PE know how long you have to wait or what test you have to pass before you can have major surgery?

17 replies...

Clexane
Posted by Peter
Last Reply August 23, 2015 at 12:37
Started August 23, 2015 at 12:37
My wife has a Clexane injection every 24 hours, here in UK at 6pm. Soon flying to
Florida, they are 5 hours behind us. How should we adjust the timing going out,
while there and on our return?

0 replies...

Iliac vein stents
Posted by Rachel
Last Reply August 23, 2015 at 11:26
Started June 30, 2009 at 18:02
Okay I am a 14 year old female and I have May Thurner Syndrome and I have a vascular surgeon Dr.Franz he is awesome! Well I have had 2 angioplastys and he is was not planning on putting a stent in until I was about 23 and stopped growing.Well he found a stenosis that might be growing and getting progressively worst.So he said that he will be putting the stent in in august after I go back for my regular 3 month appointment and testing as usual I will have a venous duplex(ultra sound)and an mrv.I currently have a dvt and have been on coumadin for 7 months when I go back to him in august I will come off the coumadin yay! I am worried about having the stent placed because I might grow and then I don't know what will hapopen and he said that once the stent is in there he can't move it. So yeah I am kind of scared.How was your or is your experience with the stent?!?


23 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply August 22, 2015 at 21:40
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

68 replies...

DVT Leg Swelling
Posted by kb
Last Reply August 22, 2015 at 17:42
Started January 2, 2009 at 17:18
Hey all, I am about a month into my warfarin treatment for a DVT left leg (thigh high to calf) and subsequent PE in each lung. I personally believe the clot was in my leg for some time before what I thought was a muscle pull in my calf revealed the DVT. I am active (jog, sports).
When does the swelling in the leg go away? My case is calf down to ankle - no thigh swelling. Has anyone had swelling, then after DVT treatment it is gone? I am reading some threads where people have swelling for life. My doctors say it is normal to see swelling for a couple of months until the clot dissolves back into the body and depending on vein damage the swelling might never go away. I am curious to hear other stories.
I am currently wearing compression stockings during the day which if I am on my feet part of the day I have no swelling. I also read that wearing stockings after being diagnoses with DVT you can reduce your chances of chronic issues later on.
I don't mind the healing process, but ... read more

59 replies...

DVT Healing
Posted by Fred
Last Reply August 22, 2015
Started April 15, 2007 at 23:40
I am confuseed about the healing process of the dvt inmy calf; popliteal vein. My doctors said the body breaks the clot down over time and it is nothing to do with the coumadin. Can anyone explain?

61 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply August 21, 2015 at 23:02
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

80 replies...

xarelto and hair loss
Posted by Jessie
Last Reply August 21, 2015 at 13:15
Started October 17, 2014 at 05:08
I suffered bilateral pe's shortly after
the induction of anesthesia for a gall
bladder surgery. I was started on
coumadin in the hospital. The drs wanted
to switch me to Xarelto, selling it as a
wonder drug.

Since taking it, I've experienced terrible
hair loss. (I was at work the other day,
took out my pony tail and ran my fingers
through my hair. I threw away the
resulting clump. My friend came over to
talk, saw the hair and wanted to know why
I cut my hair at work).

Has anyone else had this issue? After a
discussion with my drs, we're switching
blood thinners. I hope the hair loss
improves.

11 replies...

lovenox, warfarin, and birth control pills
Posted by Amber
Last Reply August 21, 2015 at 01:46
Started August 21, 2015 at 01:46
I had back surgery on July 8, 2015. I was diagnosed with a DVT the following
Thursday. I then found out August 18, 2015 it had gotten bigger. I went to a
vascular surgeon that stated taking birth control pills was ok to take because I am
in a "therapeutic stage" I am taking Lovenox shots every twelve hours and 10mg of
Warfarin every night. I have always heard NO to any birth control hormonal
treatments after a DVT. Can anyone help?! Have you heard this is ok?

0 replies...

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