DVT deep vein thrombosis forum

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Re: side effects of warfarin
Reply #220 by Shannon
Posted: July 7, 2010 at 05:36

I have had my DVT for 2-3 months now and have had the side effect of Thrush so am wanting to try and clear that naturally with a change in diet and adding pro-biotics. Does anyone know (as there seems to be some discussion around the subject) whether probiotics have an effect on INR levels? Any ideas or thoughts?
Re: side effects of warfarin
Reply #221 by Griff
Posted: July 7, 2010 at 15:20
Hi Shannon, I have just been for my INR check and it was 4.8 (desired range 3-4) The pharmacist asked me if I have been taking anything else because this is the second week it has been that high even after reducing warfarin dosage for the past week. I mentioned that I had started using pro biotic drinks for a couple of weeks now and she says it may have an effect......She could not recall the information she had read and phoned a colleague (who was unavailable) and she is on holiday next week so it will be a fornight before I will see her again, but when I do I will ask her again and post what she says on here.....

Regards, Mick.
Re: side effects of warfarin
Reply #222 by Aaron of NZ
Posted: July 11, 2010 at 12:02
About 4 years ago i had a DVT in my left leg, was put on Warferin for 6 months and had been given all clear. 6 weeks later they found a SVT (shallow vain thromboius)didn't worry about that one they can't move. October 07. I left for work with shortness of breath and chest pains not knowing what was wrong i picked up my truck and drove 1100 km's did my jobs then call my doctor he said go to A&E drove 450 km's to to hospital they found DVT's in my right leg and a large PE had the injections for 2 weeks and warferin, been on warferin now for 2and a 1/2 years 15mg a day for rest of life. some side effects to watch for ( tiredness,numbness and pins & needles in hands and feet,skin iritations/rashers.Watch what you eat and keep up your blood tests. be well
Re: side effects of warfarin
Reply #223 by Tracy Hampshire UK
Posted: July 22, 2010 at 21:09
Hi All, my sympathy goes to you all with those awful side effects - but I'm sooooo pleased it's not just me! I'm on 7mg daily since December 09 due to a double PE and a clot on my heart, thought to have been caused by a DVT from my driving job. The hospital couldn't exactly locate the DVT, as they has to dissolve the PE's immediately, I was in recuss for 5 hours after collapsing. My symptoms include - tiredness, lack of concentration, forgetfullness, heavy/irregular periods, weight gain and aching limbs. Why do my limbs feel like they're full of concrete when the 'thinner' blood should be coursing my veins? I've tried to eat healthy lately, to try and lose the weight I've put on (as I haven't had the energy to pound the treadmill at the gym) but all the extra salad has reduced my INR I think, it was 1.9 this week after a steady 2.3 for the past two months. I feel a bit better now I've read all your comments, I thought I was going mad! Take care.
Re: side effects of warfarin
Reply #224 by Diana
Posted: July 29, 2010 at 12:01
I am on warfarin for life. Been on it for years after multiple DVTs. The tiredness and swelling is more likely to be due to your body having to recover from the damage done such as restricted blood vessals.
The worst side effect that is definitely due to Warfarin is dry skin. I use a good hydrating cream all over, something like E45 cream keeps it in check.
Other side effect are the amazing rainbow bruises that appear from no where!!
Do check your diet carefully too. I found even a small amount of red lettuce or mango sent my inr loopy. Try to avoid cauliflower, broccoli, spinach and of course cranberries. Anything that is "good" for most people and contains Vit K should be treated carefully with us warfarin takers.
Personally I view warfarin as a life saver and careful management actually makes us less susceptible to strokes etc than the norm.
Good luck to you all and keep taking the pills!!!
Re: side effects of warfarin
Reply #225 by Rob, Devon UK
Posted: July 29, 2010 at 15:36
I am so pleased that I have found this site ! When my DVT was diagnosed in January this year, I was basically told that I had a DVT, that it could be fatal, to take these drugs and to go home !! The aftercare from the hospital was nil and even my GP could not advise me of the effects of warfarin. Rubbish really, eh?
I must admit that I thought I was the only one who had symptons of feeling washed out, short-term memory loss (anyone else had this?), some weight gain after the initial drop, bad complexion/ dry skin, vivid dreams etc but this seems to affect most of us.
Tracy from Hampshire- my consultant is convinced that my DVT is also a direct result of driving (some 50000 miles a year) and spending hours constantly at the wheel without a break. My right leg is now very painful and I am unable to drive for more than an hour at a time without a break to walk around. Have you approached your employers about your problem? Mine have been somewhat less than understanding, but when I mentioned 'disability discrimination' they soon changed their tune ! I am now looking to work from home for a couple of days a week- this will only be for a short time as I am sure that they will not tolerate this for long.
Take care all,
Re: side effects of warfarin
Reply #226 by Aussie Ben
Posted: August 2, 2010 at 23:05
interested in John dallas side effects....I have been on warfarin for 2 weeks and also a cocktail of pain killers all of which cause drowsiness. In the last 3 days i have stopped the pain meds and have found myself wide awake for most of the night and also continually tossing from side to side in an agitated state. I initially thought it to be withdrawal but has continued for 3 nights now.
Re: side effects of warfarin
Reply #227 by Amanda Wilkes
Posted: August 4, 2010 at 17:26
I had a PE in my left leg that went to my lungs. I was implanted with a filter in my groin, which will catch any further ones. I take warfarin and utterly hate it. Side effects include the nastiest smelling urine, my hair falling out, dry and itchy skin, lethargy, dizziness and an occasional burning sensation on my skin. I take 8mg a day and really want to come off it, though because my clots are caused by a genetic clotting disorder that is probably unlikely. My INR fluctuates from 1.6 to 5.4 on a weekly basis and the nurses and Doctors are unable to stablise me, and constantly on my case saying I must be missing doses when I'm not. I did hear that a new drug is in development but is unlikely to be allowed by NICE for 3 years as warfarin is cheap. Let's hope that when we do get it, it won't have the nasty side effects. Good health to all and my best wishes
Re: side effects of warfarin
Reply #228 by Tracy Hampshire UK
Posted: August 6, 2010 at 08:10
Regarding my comment on 22 July 2010 about eating healthy with salads etc - my INR WAS affected by eating salads and greens. My stable INR of 2.3 went down to 1.9, so I've stopped eating everything green, peppers, cucumber, watercress, anything in a mixed bag of salad, and my INR went from 1.9 to 2.9 in 10 days!!! I looked on DR Gourmet website and it said that everything green was high in Vit K, which would reduce your INR. So this may help some of you if you can monitor it! I'm going to re-test in 10 days, and hopefully, can reduce my daily 7mg/8mg Warfarin down, if I keep of the greens. Take care all.
Re: side effects of warfarin
Reply #229 by linda
Posted: August 8, 2010 at 02:21
warferin seems to calm me as i have really bad anxiety but am scared to get off of it for surgery what should i do and what do i tell my doctor????? thanks for any information you can give me too help me Linda
Re: side effects of warfarin
Reply #230 by Kaela
Posted: August 12, 2010 at 02:47
Hi I'm a 27 year old female who recently suffered from DVT and moderate multiple pulmonary emboli in both lungs. I was self-injecting Fragmin and taking Warfarin (Coudamin) orally, now am only taking the Warfarin but am still adjusting the dosage. My biggest complaint is an incessant hunger. There is a constant nawing in my chest/throat and it only subsides while I'm eating. Sometimes it feels as though if I don't eat, my body will begin to consume itself. It's painful, and I'm concerned about weight gain. Over the last year I've lost 25 pounds and I really don't want to put it back on. Along with the increased appetite, my doctor has also told me to basically cease exercise (due to reduced lung capacity and fear that more clots will move from my legs to my lungs). How soon after starting Warfarin treatment can I begin exercising again? Has anyone else been told to cease exercising? As well as hunger, I have increased gas (burping a lot which I never do), cold feet, tired, lethargic, foggy. I'm losing words. I will be talking and completely blank on a word which is not the norm for me. Oh, also headache and constant thirst. Haven't been to a specialist yet, and seems the only risk factor I have is taking birth control. Doctor also doesn't want me travelling pretty much at all but I have to get back to the city I work in as I'm staying with my parents at the moment. My doctor admits not to be an expert in the realm of DVT, PE or Warfarin. Now that I'm on the meds, is there really a great fear that car travel will increase my risk of experiencing another PE? So many questions ...
Re: side effects of warfarin
Reply #231 by Milton
Posted: August 12, 2010 at 06:05
I have been on warfarin for 9 years now due to having a pacemaker.I have an avarage 2.5 INR. I take one third of a cup of cabbage or cauliflower or bukchoy for VitK a day as I am a vegetarian. Also I take 3mg one day then 4mg the next day and so on for the rest of the week. That way my INR is kept to a safe level. I do not have any side effects to my knowledge. I am 81 yrs of age.
Re: side effects of warfarin
Reply #232 by Tony
Posted: August 13, 2010 at 18:25
Ive been having SEVERE lower back pains IN flank areas with an INR of 3.7 i was told it could be a side effect. Ive been taking Coumadin for 1month. I was tested for stones,uti,infection the works all negative. Blood work is good. I stopped taking my Coumadin for 3 full days and my Inr dropped to 2.2 and my pain is almost gone. Theyve prescribed me a lower dose and a new goal of 2.5. I also have a appt with a hematologist on wed.
Re: side effects of warfarin
Reply #233 by fred
Posted: August 14, 2010 at 13:49
taking warfarin and bilocor 5 for high riske atrial fillbration
get tired and red in face
can i rather take aspirin instead of both of these
Re: side effects of warfarin
Reply #234 by Umar
Posted: August 14, 2010 at 15:04
I dont know much about either Warfarin or DVT, is it absolutely necessary to use warfarin? Can other things be taken in conjunction with warfarin?

There is a juice brand called SIRCO which is reputed to be very good for both heart disease and DVT. This is an off the shelf product in supermarkets that does not require prescription due to lack of side effects. If warfarin is causing you pain, why not ask your doctor for alternatives?
Re: side effects of warfarin
Reply #235 by Tracy Hampshire UK
Posted: August 14, 2010 at 21:17
Replying to Kaela #230. About 3 months after my severe double PE - from DVT's - my GP said it was ok to resume some light exercise at the gym, but be careful not to knock myself on any of the equipment. I go weekly to stretch, do weights and leg & stomach crunches, but if I do any cardio stuff, I can't move the next day! I feel completely wrung out. R/E travelling - I've been told if I'm driving far, I should stop every half hour, but thats not practical! I'm better being a passenger, then I can wiggle my legs. Take care all.
Re: side effects of warfarin
Reply #236 by Diana
Posted: August 19, 2010 at 18:25
Im really glad I found this site as Ive been on warfarin for a couple of months now following knee op which caused DVT in my leg. Thought it was just me but feel so tired at times as though someone is draining energy from my legs! Also mood goes up and down like a yoyo and never really know how I'll feel from minute to minute - it helps to know that Im not alone as my son was getting worried about my tiredness levels
Take care everyone Diana
Re: side effects of warfarin
Reply #237 by sue
Posted: August 21, 2010 at 16:04
hi , so glad i found this site , i have a dvt in my upper leg and have
been on warfarin now for 3 weeks , my leg and foot are still very
swollen and limit my activity , does anyone know approx how long the leg
can take to return to normal ? , my inr is now at target and although
the pain has settled the swelling is taking its time , many thank s
Re: side effects of warfarin
Reply #238 by sue
Posted: August 21, 2010 at 16:11
hi , so glad i found this site , i have a dvt in my upper leg and have
been on warfarin now for 3 weeks , my leg and foot are still very
swollen and limit my activity , does anyone know approx how long the leg
can take to return to normal ? , my inr is now at target and although
the pain has settled the swelling is taking its time , many thank s
Re: side effects of warfarin
Reply #239 by claire
Posted: August 21, 2010 at 16:22
Hi Sue

Are you wearing compression srockings ??, if not get some asap, these help enormously with swelling.
My leg took at least 6 weeks for the pain & swelling to disappear & go back to normal, but everyone is different. I wear Jobst compression stockings, knee high, 30-40 mmhg, they are extremely tight, but really help & will also help prevent post thromotic syndrome.
Good luck x
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