DVT deep vein thrombosis forum

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Calf DVT but now getting pains in my thigh
Started by Rachel
Posted: September 17, 2008 at 22:10
Hello, I am new to this. I was told I have below knee DVT just over a week ago, after having ankle surgery. I was diagnosed after having severe pains in my calf for over a week, but i now have pains in the back of my knee going up my thigh and not much pain in my calf. Can anyone help. Im worried if the clot has moved at all even though my INR is 2.7 and they want it at 2.5.
Any advise please? x
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Re: Calf DVT but now getting pains in my thigh
Reply #1 by Johanna
Posted: September 18, 2008 at 11:39
Sorry I don't have any answers for you but the exact same thing is happening to me. Severe pain in calf due to DVT (diagnosed 4 weeks ago), the calf pain almost disappeared after a couple of weeks of treatment but instead I'm now feeling pain at the back of my knee and sometimes the pain travels up through my thigh to the groin. So I'm also wondering if the clot is moving, especially considering my INR has been below range for the past two weeks (1.7/1.8 instead of the 2.5-target)? Or is it possible that my low INR is causing increased pain in different location?
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Re: Calf DVT but now getting pains in my thigh
Reply #2 by Rachel
Posted: September 18, 2008 at 13:17
Hi Johanna, I have contacted the hospital about this today as it has been going on for a couple of days and i just dont feel right leaving it be. I will write back and let you know once they have called me back.
fingers crossed!!
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Re: Calf DVT but now getting pains in my thigh
Reply #3 by Johanna
Posted: September 18, 2008 at 20:18
Thanks, it would be great to hear what your hospital had to say. I've got an appointment with the doctor on Monday but it's difficult not to worry about these things...
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Re: Calf DVT but now getting pains in my thigh
Reply #4 by Rachel
Posted: September 19, 2008 at 16:58
hiya, they didnt call me back yesterday but i had an appointment to see them this morning.

they told me it can be normal for some people to get more pain then others and that the pains can spred up the leg, they also said it could be some nerve damage.
their only concern was that my eye went totally blurred for a few hours the other day.

if you get any more luck from your doctor can you let me know as i am still so confused about all of it.

hope you ok! x
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Re: Calf DVT but now getting pains in my thigh
Reply #5 by Alison
Posted: September 19, 2008 at 17:03
Hello - I have never replied to one of these sites before but was moved to write as your experiences are so similar to mine. I had a PE while on holiday in Spain a month ago and they also diagnosed two DVTs in my leg. Like you I have started to have groin pain over the last couple of days and it has left me worried that one of the clots has moved. I went back to work this week and wondered whether the extra activity has caused a problem. My INR has been well within the 2 to 3 range for at least two weeks. My GP thinks it is just a groin strain. Maybe this is just a feature of the recovery process - still it is very scary. I'd love to hear if you have any further investigations. I certainly never want to go through sufferring a PE again so I'm extra sensitive to every little pain.

Good luck
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Re: Calf DVT but now getting pains in my thigh
Reply #6 by Char
Posted: September 19, 2008 at 19:24
Somewhere I read and was told that the leg pain is caused by the clot going thru the vein. Apparently clots damage veins and valves, making for incompetence of the veins. I have had groin pain that is getting better; also some of the pains could be side effects of the Coumadin.
Wearing support hose has helped lessen the leg pains. Have had different pain areas in my legs. No new clots after more ultrasounds.
Never Give Up


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Re: Calf DVT but now getting pains in my thigh
Reply #7 by Rachel
Posted: September 20, 2008 at 15:27
Thank you both for your replies. I am feeling a little better about it all now, after hearing its not just me that is getting these other pains. I some times feel at the moment i am being over sensitive about any pain that I get in my leg, but i am only 22 and it is a scary thing for any one to go through.

What I was wondering is what people do with DVT when they work in an office. I have taken this week off to make sure things are a bit more stable, but i am back on monday and will be sitting for the day.
how long should i be leaving it before i need to start moving around?

xx
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Re: Calf DVT but now getting pains in my thigh
Reply #8 by Kaya
Posted: September 21, 2008 at 12:28
Hi Rachel
My boyfriend has had DVT some years ago and was on Warfarin for over 3 months. It went better then but just 10 days ago after a long flight back from South Africa his lower calf was in real pain again. When he went to A&E, they just said it was an infection and no DVT and not to worry. However, his pain started to move up his leg and I nagged him to go back and see another doctor. As it was weekend he went to the same A&E again and suprise after another Ultrasound & bloodtest they this time admitted that it could be DVT again. Have a look on Wikipedia under Deep Vein Thrombosis (http://en.wikipedia.org/wiki/Deep_Vein_Thrombosis) which gives you a good first insight.
Having grown up in a different European Health System I am always quite suspicious towards NHS doctors and in particular GPs. In so many cases they have just given rubbish advice and are not knowledgeable enough in specialised areas to diagnose a patient. If you have pain, swelling and redness in your lower leg and it keeps traveling up, get it treated asap, as it can cause a lung embolism if it travels past the groin. Get an ultrasound done and D-Dimer test (blood test which indicates the blood clotting, keep your leg raised and cool (you could maybe put it up on a chair at work and keep a cool towel or ice pack on it. Keep moving the leg (walk around every 15-30 min) but don't do any strenuous exercise. Even lifting your heels of the floor as often as you can helps circulation in your veins which is what you want.
In any case, I would press to get it checked thoroughly and inform yourself on the net, so you can face GP prepared and he can't fob you off with some lame excuse or diagnosis.
My mum had thrombosis and they measured bloodflow in her veins, check blood consistency (D-Dimer test) and in the end pulled one of the affected veins where the valve was damaged. UK doctors seem very reluctant to do this and drive a far more passive approach, even though a good friend of mine has this done 1 month ago and is pain free now. The minor veins will take over blood flow and one will develop into a bigger vein to replace the pulled one, so often the best option as you eliminate having trouble in that vein again. Lifestyle obviously plays a big role as well. The more fatty foods you at the more chance of clogged up veins and arteries and the heavier you are the more pressure on the veins in your legs. Aerobic exercise is the best as it creates a regular circulation in the body and legs. Avoid sports such as tennis or squash where you stopped abruptly which results blood being pumped in sudden bursts which is not good for the damaged veins. Swimming & cycling are very good and jogging. Keep legs cool, keep them up when sitting down, don't cross your legs as you cut off blood flow in veins under your knee and avoid long drives or standing.
Anyway, sorry for waffling on but hope this helps a litte.
Hope you get better soon Kaya
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Re: Calf DVT but now getting pains in my thigh
Reply #9 by Mary
Posted: September 21, 2008 at 17:18
I am struggling with DVT starting at my left foot and up to my groin, following a long car trip. I've been told it is one long clot and the only cure is elevation of my leg and a compression stocking when I'm up. I started getting a burning sensation off and on and worse in the middle of the night.Like a bad sunburn. The vascular specialist said there was nothing to help this, but I found that Tylenol helped a little. Also, I get out of bed and walk around, message the area and put ice packs around it. Mostly I just have to wait it out. I've told it may take six months for swelling to go down.
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Re: Calf DVT but now getting pains in my thigh
Reply #10 by Johanna
Posted: September 22, 2008 at 17:55
Hi Rachel, just to update you on my visit to the doctor today. My GP believes the pain is due to inflammation in the superficial veins. It will take a few weeks to settle and under normal circumstances they would recommend ibroprufen gel but as ibroprofen isn't allowed when on warfarin she said to try ice packs. Hope your first day back at work went ok!
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Re: Calf DVT but now getting pains in my thigh
Reply #11 by Rachel
Posted: September 29, 2008 at 12:03
Hello again, I am off work again this week!
Went back to the DVT Clinic at the hospital today and my INR levels have dropped and now they say I have a small PE. Im really worried now. I knew something was not right. I still have the pains in my calf and thigh but I am worried that the hospital doesnt seem to take any action until its too late. I tried telling them that something was not right and now I am left with DVT and a PE. Instead of going back next monday I am back on thursday.
I now need advise about the PE. I have been told to sleep with a few more pillows so I am not lying down flat, and told to take painkillers.
Is it sensible for me to go back to work on wednesday? xx
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Re: Calf DVT but now getting pains in my thigh
Reply #12 by Char
Posted: September 29, 2008 at 17:36
Hey Rachel
After my Bilateral PE, it was activity as tolerated. I am retired so therefore did not have any work questions. But do you wear support hose at work, flex your feet, get up and briefly walk around. Anyhow my lung blood clots dissolved rapidly and repeat CT after 2 months showed no emboli.
Can you see a Hematologist for another opinion? I see a GP, have not had your clotting problems after diagnosis and treatment.
FYI I had awful leg pains with no swelling or redness after starting warfarin, now this week I notice mostly gone but I have been having laser closure of the incompetent saphenous veins.

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Re: Calf DVT but now getting pains in my thigh
Reply #13 by sonja
Posted: May 8, 2010 at 06:16
i am also suffering pain in my right calf, getting cramp like feelings on my thigh, i have no swelling or warmth, its just a constant pain
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Re: Calf DVT but now getting pains in my thigh
Reply #14 by Dorethia jenene Malone
Posted: May 18, 2010 at 19:20
i have not been diagnosed with DVT but i have the same problem with my right calf. my calf swells some but it is really really tight. feels like iv had a hardwork and its just tight. no pains. no warmth. it wasnt until today that i notice the only time i experience this is when im at work. i do customer service. by the time my first break comes my right calf and only my right calf is swollen and tight. eventually going away by the end of the day but the nurse helped me to realize its my chair cutting off my circulation. i go to the doc tomorrow so i hope to get test done to make sure i have no clots or developing them.
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Re: Calf DVT but now getting pains in my thigh
Reply #15 by Neil Hayler
Posted: May 27, 2010 at 09:13
hello i have a dvt in my left leg that started with a swollen calf after a short walk at first the doctor thought it was a tendon problem and put me on anti inflamatories this got rid of the swelling but not the pain after a scan i was found to have a dvt .the pain then mooved from my calf to my groin and inner thigh i am told this is normal ,i have been layed on the soffa for three weeks now and things are getting better slowley day by day .i found that a warm bath kills the pain for a while and helps with the curculation also laying with my leg up as high as i can get it helps, when in bed i lay with a memmory foam pillow in between my thighs helps me get a full nights sleep insted of wakeing up every four hours to take pain killers i am also on warfrin for 3-6 months and had inhep injections for three days my inr is 2.1 at the moment .these things take time i quess good luck to you all .
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Re: Calf DVT but now getting pains in my thigh
Reply #16 by Carl
Posted: May 28, 2010 at 11:11
I've been on warfarin for 3 weeks and my INR is now stable at 2.5. I had the DVT for 6 weeks before diagnosis. It was in my calf but extended to my thigh. I only felt pain severe in my calf but evertime I go for a bike ride I get pain in my thigh, it's where the clot ends. When I walk I get the pain in my calf, where the clot begins. When I rest I get no pain. This is normal ,all part of the recovery process, it gives you an indication of where the clot starts and ends. Keep concious of this because if the pain moves you know that the clot is extending or decreasing.

As for a job sitting or standing I would avoid it. Ive fully given up my job now and am claiming Employment Support Allowance. Get a sick note from your doctor. My nurse told me I would have to give it up because of standing. I read on the NHS site under DVTs a man who got a dvt from a long haul flight and he was cured after 6 months. However it returned quickly and he got a PE and that was due to the desk job that he had. If you keep your job keep your legs elevated and go for a 15min walk every hour.ALso keep doing feet exercises whilst your sitting down.

Wishing you a full recovery!
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Re: Calf DVT but now getting pains in my thigh
Reply #17 by Kristopher
Posted: October 2, 2010 at 05:40
I had a clot in my lung a few months ago. I'm 34. I have two
mutations in my blood that increase my chances for clotting 20 fold,
so as a result i'll be on 12-15mg per day of Warfarin for life. Since
I've been taking the Warfarin I've had what seems to be tendinitis.
It started in my left ankle then stopped. Suddenly the tendon in my
left thumb became really sore for about a week and a half, but I had
done nothing to injure it. When that subsided I had some pretty heavy
neck pain. This week my right forearm is very very sore on top where
my tendons are, and again, I haven't done anything that would cause
this. I have never had any problems with pain or tendinitis in my
life, all this started after my clot. So far twice I've had a burning
sensation when I urinate despite that all I drink is water. My Doctor
cant really prescribe any anti-inflammatory drugs because of the
warfarin. He has tried two types of muscle relaxers but those have
had no effect on my issue. If anyone else has experienced anything
like this I would love to talk to you. I know it sounds crazy but
there has to be a reason for this.
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Re: Calf DVT but now getting pains in my thigh
Reply #18 by Ray
Posted: January 9, 2011 at 11:11
Re DVT (Not confirmed) Whilst on holiday i experienced pain in my right calf some days later i became aware of acute tenderness in my r/thigh so signed up with the local GP who spent about 3 minutes examining me and stated its thrombosis - very matter of fact and prescribed fluclocillin 500mg confirming I was on blood thinning tabs. No explanation of the risks and only by looking at this site made me aware of the risk. I'm 75
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Re: Calf DVT but now getting pains in my thigh
Reply #19 by Ray
Posted: January 9, 2011 at 11:12
Re DVT (Not confirmed) Whilst on holiday i experienced pain in my right calf some days later i became aware of acute tenderness in my r/thigh so signed up with the local GP who spent about 3 minutes examining me and stated its thrombosis - very matter of fact and prescribed fluclocillin 500mg confirming I was on blood thinning tabs. No explanation of the risks and only by looking at this site made me aware of the risk. I'm 75
19642
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