DVT deep vein thrombosis forum

       Home    1

number of replies (13) - Page 1 of 1
D Dimer test
Started by Confused
Posted: September 17, 2008 at 15:27
I recently had a D Dimer test which came back positive. He couldnt think of a reason why it was positive other than that I may have an ongoing blood clot issue (I'm young, not pregnant etc). I was diagnosed with a clot in a vein in my head some months back which wasnt treated and it scares me it is connected.

My GP wasn't that concerned and told me to take aspirin for afew weeks until I see a specialist to discuss the results. I'm a little concerned about this, and now for the last 4 weeks I've got pain in my leg which feels like a muscle pull or pinched nerve from groin to inside knee but I can't think of anything I might have done to it. Is there anything else that might cause the D Dimer to be false positive if you're young, havent had any operations, not pregnant etc?
8822
Re: D Dimer test
Reply #1 by Sarah
Posted: September 17, 2008 at 17:50
Confused,
if you are having leg pain, have a positive d-dimer, and a history of of blood clots, you need to get in for an ultrasound asap. I don't mean to alarm you, but what is your doctor thinking? It is my understanding that a d-dimer is used to partially rule OUT a blood clot if it is negative, and if it is positive then further testing needs to be done. There is no "wait a few weeks" to this situation. You should either insist to your GP that he schedule an ultrasound for you or go in to the ER yourself.

I too am relatively young (33), was not pregnant (was on birth control), no surgeries, no family history of clotting. These things can just happen sometimes. With your history of a previous clot, and the fact that you have leg pain, not to mention the positive d-dimer, I am alarmed that your GP is not "concerned".

Be proactive, get in to have further tests done and keep us posted.
Take care, Sarah
8823
Re: D Dimer test
Reply #2 by Catherine
Posted: September 18, 2008 at 12:37
I definitely agree with Sarah! When I was at the hospital with a suspected DVT the consultant told me that a positive D-Dimer meant that I had to have an ultra sound scan - even though he didn't initially think I had a DVT!!

I was diagnosed in February this year - I'm 30, hadn't been on a long flight, hadn't had surgery, don't smoke etc etc. It can happen to anyone!

The only symptoms I had was a feeling that I'd pulled a muscle in my calf. It was only when I was searching the internet to see why my "pulled muscle" hadn't gone away after 2 weeks that I found out it could be a DVT and went straight to hospital!
8832
Re: D Dimer test
Reply #3 by Confused
Posted: September 18, 2008 at 14:16
Thanks for the replies. I will insist on further tests, my GP has now suggested maybe I should see a blood specialist about it, but I'm struggling to get an appointment earlier than 3-4 weeks away.

I have an appointment booked to see a vascular specialist I faxed him the results showing a positive D Dimer and very high fibrinogen reading, and asked for an appointment. His secretary phoned me back and told me it was too complex for him to discuss over the phone and his earliest appointment was 5 weeks away and told me the aspirin wouldnt hurt so I may as well take it in the meantime. He obviously wasnt concerned about the D Dimer being positive.

I seem to have very bad luck with doctors, they just don't seem to care. Luckily I seem to have survived the untreated blood clot in my head, although I wouldnt recommend going through that to anyone. I am rather concerned I may have some underlying blood clot problem which I dont know about and I can't stand the fact I can now hardly walk. Oh well, guess I'll just take each day as it comes.

Thanks for your concern, you guys seem a little more informed about thisthan my doctors!
8834
Re: D Dimer test
Reply #4 by Shannon Phelps
Posted: September 18, 2008 at 15:13
Confused,
Please make every effort to get to a Dr. that will pay attention to this. M
ost larger cities have Thrombilia specialists, research hospitals, anywhere but small
hospitals!
My husband nearly lost his life and leg because of conservative treatment when he left
the hospital. Plus, our hospital is pretty progressive, but certainly did not have any
answers, answers have to be found by us, this forum is great to help you in that way.
Get on the phone and internet and find a Dr. willing to see you ASAP!!
Please let us know what you find out. We live in Indiana,not sure where you are.

Shannon
8835
Re: D Dimer test
Reply #5 by Shannon Phelps
Posted: September 18, 2008 at 15:14
Confused,
Please make every effort to get to a Dr. that will pay attention to this. M
ost larger cities have Thrombilia specialists, research hospitals, anywhere but small
hospitals!
My husband nearly lost his life and leg because of conservative treatment when he left
the hospital. Plus, our hospital is pretty progressive, but certainly did not have any
answers, answers have to be found by us, this forum is great to help you in that way.
Get on the phone and internet and find a Dr. willing to see you ASAP!!
Please let us know what you find out. We live in Indiana,not sure where you are.

Shannon
8836
Re: D Dimer test
Reply #6 by Confused
Posted: September 18, 2008 at 15:25
Thanks for your concern everyone. I'm confused my doctors aren't concerned about this and aren't suggesting follow up tests.

I'm not in the US (Australia), the doctors here don't seem to take blood clots very seriously in my opinion, or perhaps its just me, and they just dont care.

Nevertheless I will take the message I have got from this forum and insist on some further tests/ investigations tomorrow. I am very worried about it, just my drs arent (guess they don't have to live with the thought/worry of a blood clot like I do). Will let you know how I go.
8837
Re: D Dimer test
Reply #7 by dero/www.lifeafterdvt.forumotion.com
Posted: September 21, 2008 at 17:23
Dear confused,
If you can not get a doctor to see you, FORCE the issue, go to the hospital at the Emergency Room EMMIDIATLY and say that you have a blood clot, that you need to see a hematologist...
Do not wait until it's too late.
This is serious, actually it's a matter of life and death, you never know when that clot will start moving, in your case this could be a cerebral embolism and/or a pulmonary embolism.

DO NOT DELAY, GET YOURSELF TO THE HOSPITAL RIGHT NOW!!!!!
8869
Re: D Dimer test
Reply #8 by Confused
Posted: September 22, 2008 at 16:34
Thanks, I asked to get ultrasound and leg was OK.

I still don't understand why my D Dimer is high. I'm waiting to find a haematologist, GP has suggested now maybe I should see one after I told him I had alot of sharp chest pain afew months back doctor then put it down to chest wall pain.
8877
Re: D Dimer test
Reply #9 by na
Posted: October 3, 2011 at 19:35
I have been having chest pain for 4 days which comes and go. It is a pressure like feeling. I have a history of a heart murmur but asymptomatic and i do not take any medications. I was in emergency yesterday and my d dimer was elevated with all other labs normal. chest x ray and ct scan was also negative. I wonder what this could be? Other differential diagnosis of elevated d dimer are dvt, pe, colon cancer. I dont have any abdominal pain. At this current moment, I do not have any more chest pain.
22673
Re: D Dimer test
Reply #10 by Michelle
Posted: October 4, 2011 at 07:21
I went to the ER with a very swollen left leg, they did a D-Dimer on me and it was just a hair under 3. "Normal" is under .5, so it was like 6 times what it should have been, needless to say I was whisked away for ultrasounds and CT scans that discovered my gigantic completely occluded left leg. If you have a positive D-dimer there is a reason!
22677
Re: D Dimer test
Reply #11 by Nikki
Posted: May 22, 2012 at 16:37
i have lots of upper leg pain. My d dimer test came back at 532, i had a hysterectomy that removed ovaries and now take hormone replacement thearpy. I had an ultrasound done on my leg and they said there wasn't any dvt. it feels like its moving to pelvic area. i"m really tired, dizzy and nauesa. my docotor thinks im totally crazy. No one seems to worried about the issue. What should I do? Is there any other conditions that would make a d dimer test be positive
25001
Re: D Dimer test
Reply #12 by Julia
Posted: May 22, 2012 at 22:35
Does anyone know if hillwalking/hiking can cause clotting/dvt. I had a dvt in my thigh 15 months ago. Until then I was a keen hillwalker. I have tried to do a couple of relatively easy hillwalks since. Each time I have no trouble doing the hillwalk but about three days later I get pain and discomfort in my leg and feel very nauseous. My doctor and specialist both advised that the hillwalking would be good for me and should not bring on a clot. Just wondering if anyone has had a similar experience
25003
Re: D Dimer test
Reply #13 by beth
Posted: January 27, 2014 at 14:37
What is a normal d dimer result I recently had d dimer and got 11 I dont understand
they told me it was all fine but im gettin under 5 is normal then another post 532 its
confusing??
28571
   1
Reply to this topic    or     Start New Topic

Your Name:
Reply Subject: Re: D Dimer test
Comments:
(You may enter up to 3001 characters)

characters left

Type the characters shown in the image for verification 2: