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Iliac vein stents
Started by Rachel
Posted: June 30, 2009 at 18:02
Okay I am a 14 year old female and I have May Thurner Syndrome and I have a vascular surgeon Dr.Franz he is awesome! Well I have had 2 angioplastys and he is was not planning on putting a stent in until I was about 23 and stopped growing.Well he found a stenosis that might be growing and getting progressively worst.So he said that he will be putting the stent in in august after I go back for my regular 3 month appointment and testing as usual I will have a venous duplex(ultra sound)and an mrv.I currently have a dvt and have been on coumadin for 7 months when I go back to him in august I will come off the coumadin yay! I am worried about having the stent placed because I might grow and then I don't know what will hapopen and he said that once the stent is in there he can't move it. So yeah I am kind of scared.How was your or is your experience with the stent?!?

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Re: Iliac vein stents
Reply #1 by Lori
Posted: June 30, 2009 at 21:02
Hi Rachel,

If you have May Thurners you are at continous risk of DVT until you get that stent placed. I am very suprised to hear that he is taking you off the coumadin in 7 months. Please be sure to ask your doctor how he is certain you won't develop a clot if you are no longer taking Coumadin.

You will find a string on this site for May Thurners describing other peoples experiences with stents. Most people have no problems, there are even some females who wanted to have children and offered their experience for when that time comes for you.


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Re: Iliac vein stents
Reply #2 by Rachel
Posted: June 30, 2009 at 21:44
I have been on coumadin for 7 months and I am coming off of it for the surgery.
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Re: Iliac vein stents
Reply #3 by Lori
Posted: June 30, 2009 at 23:05
Oh, I see you will have the stent put in, sorry I misread your first message. Indeed you might be one of the lucky ones who will no longer need coumadin after you have the stent in place. You might want to ask him if you should have a vena cava filter also placed at the same time to be extra safe. If he says there is no need, go with what he says.


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Reply #4 by Rachel
Posted: June 30, 2009 at 23:19
Oh yes I forgot to mention he said there would be risks with the surgery and he might put a vena cava filter in because I could possibly have a pe and die.So he is also thinking about placing a vena cava filter.
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Re: Iliac vein stents
Reply #5 by Brittany
Posted: July 1, 2009
Hey Rachel

My name is Brittany and I am 20, also with May-Thurner. I just got out of the hospital a couple of weeks ago. I had surgery to remove DVT from my left leg and am on Coumadin for 6 months.

During one of the days of surgery, my surgeon (who I also loved!) put a stent in my vein to prop it open.

If you're going to be taken off the Coumadin and have May-Thurner, you are going to want that stent in there, otherwise your risk of developing another clot will not go away. Provided you don't have any blood disorder, the stent should theoretically fix your problem.

You are so young Rachel, and I would hate for you to have to endure anymore problems with blood clots.

I don't know the specifics on the placement of a stent while you are still growing. But if I find anything out, I will let you know. Like I said I am 20, and he put the stent in. My surgeon did not mention any risks involved with growth etc...but I assume that's because I am 20 and have basically stopped growing. You are much younger! I'm sorry I have no insights for you on that.

What I can tell you, is that every surgery comes with risk and that your age is definitely on your side, as young people have it so much easier during the recovery process. How my surgeon laid it out to me, was: yes, there is risk in the surgery (again, like every surgery), but that there are greater risks in not putting in the stent. Those risks could include post-thrombotic problems with swelling and circulation etc...but the greatest risk would be clotting again.

Is your surgeon planning on leaving the Vena Cava filter in? Or is he just placing it while he puts in the stent? I am not sure if that is typical, and my situation is a little different from yours in that I had surgery to remove my clot, the vena cava filter as a safety measure, and the stent put in.

I know it's kind of a scary thing, have yo looked up pictures of the stent?

This is the kind I have: It's a Cook Zilver Biliary Stent

http://www.whichinterventionaldevice.com/media/67566/zilver%204%20small.jpg
http://www.obex.co.nz/Shared/Products/Images/Thumbnails/Zilver%20Biliary%20Self%20Expanding%20Stent.jpg

I don't think mine is THAT long though.

Your body will just incorporate the stent into your vein overtime. I have had no problems. Don't even know it's there!

I am glad you like your Dr.--it's really important. And it sounds like he is trying to do what is right for you, but sometimes it's scary to hear. I would love to talk to you always and try to share with you the best I can anything about my experience.

I am so sorry to hear you have to go through this at such a young age. But you have such a great attitude about it. Stay strong, Rachel.
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Reply #6 by Rachel
Posted: July 1, 2009 at 17:39
I think he will do it at the same time?!?! I am not exactly sure!

Thak you you have helped me soo much!
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Re: Iliac vein stents
Reply #7 by Brittany
Posted: July 1, 2009 at 18:59
Do you know if he is planning on leaving the Vena Cava filter in or is he just planning on using it while he places your stent?

Either procedure is likely to be done under local anesthesia with probably some intravenous sedatives. That's what I had. So you'll be concious but won't feel pain or really care what is going on.

As far as a know, the procedure goes like this:

They'll give you the local anesthesia...now I am not sure where they will chose to "go in." For me, I think he went up from my knee when he placed the stent and down through my neck when he placed the vena cava filter. I have also heard of surgeon's going in around your groin. SO where ever it may be, you'll have some anesthesia.

My surgery took place on an X-Ray table as the surgeon would inject my veins with dye to use while he guided in the stent and the filter. Both the stent and the filter will be guided in through a catheter. I felt like I was in really good hands, there was a nurse monitoring all my vitals throughout the whole surgery and I was comfortable with my surgeon. It's super important to trust in those guys, so I'm glad you've found someone.

I would expect some "down time" after the surgery as with any surgery, your body gets put through some stress. But you're young, girl, you'll probably have little trouble in recuperating.

Have you talked with your doc about your concerns with the stent being placed while you're still growing? Those docs are great resources. And I am just not to sure about stent placement and maintenance. My doc was like that infomercial about that microwave or soemthing where the guy just screams "Set it and Forget it!" way too many times.(Do you know which I am talking about, haha! I hope so haha) Anyways, he said once it was in, it will be in and there should not ever be a need to replace etc as there sometimes is with patients who need arterial stents etc...

Here's a picture of the vena cava filter:

http://members.tripod.com/Daryl_D/filter101.jpg

If he talks about leaving it in, you are not alone. A bunch of people who've suffered from DVT, PE etc have this filter in permanently. Some peopl who maybe can't take coumadin also have this filter. So, it's not crazy out of the normal.

Hope this helps!!


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Re: Iliac vein stents
Reply #8 by Rachel
Posted: July 1, 2009 at 23:13
Yes he has not really adressed the age and growing thing but he has said that it absalutely HAS to be done or else it get s bad and I have to have clot busting drugs so either way it will be done!
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Re: Iliac vein stents
Reply #9 by Diane
Posted: August 23, 2009 at 04:31
If any of the posters above would be interested in joining the support forum I have created for May-Thurner Syndrome please feel free to write to me for more information at woodcreek12@aol.com
Sincerely,
Diane
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Re: Iliac vein stents
Reply #10 by ben
Posted: March 19, 2010 at 15:42
My little brother needs a stent put in. Does any one no if there is a sush thing as a stent that grows with your body , or has there been a case were as you got older and stop growing that you did not have to replace yours.
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Re: Iliac vein stents
Reply #11 by noreen
Posted: June 19, 2011 at 13:09
diagnosed with venus insufficiency in my right leg due to narrow iliac vein surgeon said no plaque present cause probably congenital.severe swelling of my right leg which i very find disabling only thing recommended by surgeon was compression stocking.thinking of seeking second opinion as this surgeon was very dismissave of me wanting stint.i am 59
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Re: Iliac vein stents
Reply #12 by DR GAURAV SINGAL
Posted: September 15, 2011 at 05:51
I AM A VASCULAR SURGEON BACK IN INDIA.ILIAC VEIN STENTING IS NOW MORE
OR LESS AN ESTABLISHED TREATMENT FOR PATIENTS WITH MTS OR FOR PATIENTS
WITH SECONDARY ILIAC VEIN STENOSIS.ITS A SIMPLE PROCEDURE AND THE
RESULTS ARE GOOD.THOUGH YOU NEED TO CARRY ON WITH CERTAIN PRECAUTIONS
LIKE INTAKE OF ANTICOAGULANTS ETC.YOU CAN VISIT MY BLOG FOR FURTHER
HELP IN VASCULAR DISEASES OR EMAIL ME YOUR QUERIES.I WOULD BE HAPPY TO
ADDRESS YOUR QUESTIONS CONCERNING VASCULAR DISEASES.
BEST REGARDS
GAURAV

www.gauravsingal.blogspot.com

drgauravsingal2@gmail.com
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Re: Iliac vein stents
Reply #13 by mommabear
Posted: February 21, 2012 at 04:57
my daughter is 19 going in for stent tomorrow, this has been very scary! We are putting our faith in our "team of Drs." They have our best intrest in their hands. I have not heard about this filter you are speaking of I will be asking about that tomorrow when I see the dr. before the surgery. Thanks for the insite from people who have been there!
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Re: Iliac vein stents
Reply #14 by Phillip Palello
Posted: June 4, 2012 at 15:26
I had an iliac stent put in about three years ago to relieve some pain in my hip. It worked great. I can know excerise more vigorously with out that nagging burning in my hip. My problem is I cannot get insurance. By the standards of the industry its considered coronary artery disease. I have no issues with my heart or arteries. My doctor tells me my stent and COD are not related. How do I convince the insurance companies of this.
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Re: Iliac vein stents
Reply #15 by Liesa Phillips
Posted: August 12, 2013
I have MTS and just had angioplasty and stenting of my iliofemoral vein. I have read
and was told that after the procedure your leg returns to normal or feels normal
again. After the procedure I have still been having pain, especially back and groining
and my leg is still fatiguing quicker then my right when attempting to walk fast or up
hills and jog. Is this common. I am trying to figure out how I am suppose to feel.
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Re: Iliac vein stents
Reply #16 by Mabel
Posted: December 28, 2013 at 12:04
Has anyone experiences bad pain after the iliac vein stents were put in?
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Reply #17 by Ann B
Posted: March 29, 2014 at 19:11
My name is Ann B I had a collapse Illac vein and had a stent put in, I'm still
having problems with my left side. Suffer from Diabetes, High blood Pressure
andAtherosclerosis, just had total knee replacement, having an angiogram in a
week,booked for Back surgery in a about a month all because of uncontrollably
pain. I've done and repeated so many test and changed Doctors, just praying that
I'm going to get the results that I can have a life
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Re: Iliac vein stents
Reply #18 by Ann B
Posted: March 29, 2014 at 19:13
My name is Ann B I had a collapse Illac vein and had a stent put in, I'm still
having problems with my left side. Suffer from Diabetes, High blood Pressure
andAtherosclerosis, just had total knee replacement, having an angiogram in a
week,booked for Back surgery in a about a month all because of uncontrollably
pain. I've done and repeated so many test and changed Doctors, just praying that
I'm going to get the results that I can have a life
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