DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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d dimer negative
Posted by freya
Last Reply December 20, 2014 at 10:01
Started December 20, 2014 at 10:01
Just wondering if anyone has experienced
this...I was diagnosed with a calf dvt but my
d dimer was negative!! I thought maybe this
was because I might have caught it early but
the scan showed my vein fully occluded!! Has
anyone experienced this? Or does anyone know
why this may happen? Thanks

0 replies...

2 months warfarin-calfdvt new deep ache
Posted by All new for me
Last Reply December 20, 2014 at 09:37
Started December 20, 2014 at 09:37
Just over 2 months ago I was diagnosed with
calf dvt, I had little to no symptoms apart
from swollen leg and some funny twinges. After
starting warfarin my pain actually increased
with pressure spreading up my leg. Now two and
half months later my leg has a deep ache which
goes from groin to calf which sometimes wakes
me up at night. The pain seems to be ok while
walking but when resting it gets worse. Has
this happened to anyone? Would a calf dvt with
little to no pain cause deep aching in the
whole leg this far into treatment? Any
information will be soooo appreciated :)

0 replies...

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Last Reply December 20, 2014 at 04:15
Started December 20, 2014 at 04:15

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0 replies...

Think birds eye with point of one
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Last Reply December 20, 2014
Started December 20, 2014
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0 replies...

anyone heard of the new drug pradaxa??
Posted by sara
Last Reply December 19, 2014 at 17:14
Started April 8, 2010 at 12:43
been doing some resurch into alternatives to warfarin as i am so fed up with all the side effects that the doctors choose to tell us dont exist!! like tiredness, hair loss, feeling cold all the time e.t.c....im not talking about herbs and stuff i know that we all have to take warfarin, as the alternative is risking having another clot. but last year a new drug called pradaxa was cleared for use and is allready used in some cases in the uk but only for people who have had knee and hip operations. ive looked at all the studies and trails and none have the same side effects as warfarin exept the usual bleeding bruising etc as with any blood thinner; also there are no daily/weekly blood tests as the way it thins the blood is so diffrent. would really lie to know if any one else has heard of it or has used it??
thanx. x

242 replies...

Side Effects?
Posted by Emmab
Last Reply December 19, 2014 at 08:09
Started June 3, 2008 at 14:51
Hi All: Well, my husband has been on Rivaroxaban now since mid April. We have to go on this research study until Mid July and then hopefully get another dopplar and his knee surgery.
Since this med is still like Coumadin, I'm wondering what the side effects are of Coumadin? He's been getting queasy and having tummy trouble. They only check his blood about every four weeks or so and are supposed to tell him if anything is wrong. Very scary. I wish he had chosen the old fashioned route, but he didnt and doesnt want to quit now.
He has no swelling, no bleeding issues, no more clot pain (though hard to tell since his knee is shattered at the moment).
Anyway, wondering if queasy is normal or no?

14 replies...

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Last Reply December 19, 2014
Started December 19, 2014
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0 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply December 18, 2014 at 19:01
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

159 replies...

Pulmonary embolism survival rates thes days!
Posted by Ali
Last Reply December 18, 2014 at 18:57
Started December 22, 2008 at 16:08
I wasn't sure how to title this but wanted to say that I lost my mum 32 years ago, (who I never ever remember her having any illnesses whatsoever) after she took ill with leg pain one day, she phoned the doctor who sent her to hospital and 36 hours later she very sadly passed away as the clot had moved to her lung.

What has changed from then until now regarding the treatment of a blood clot? My mother had never been ill in her life but suffered with varicose veins so presumabaly the blood clot stemmed from that!

I have read so many posts on here where people have DVT, clots etc and receive treatment and survive what would have killed someone 30+ years ago but I suppose it's like everything, medical research just progresses all the time.

I would be interested in hearing what anyone has to say and if they know people who died several years ago and who would probably easily survive these days!

Thanks Ali

40 replies...

Only having side effects stopping Warfarin
Posted by Tom
Last Reply December 18, 2014 at 15:41
Started February 29, 2012 at 15:51

I was wondering if anybody has this experience. I'm 28, I went on
Warfarin 6 months ago after having a DVT and had some side effects to
begin with, mainly light headed and lack of energy... But then my body
seemed to adjust and I was completely fine on the drug, I was doing as
much exercise as I normally do, drinking, I was completely fine. I was
on a fairly large dose of 10mg-12mg also.

However, when I stopped 10 days ago I've had some fairly horrible side
effects, tingly limbs, light headed, no energy, foggy head, tight
chest, shortness of breath, heart palpitations and racing heart along
with vertigo when I go to bed... On sunday(7days after coming off the
drug) I had a horrible experience where I thought I was having a heart
attack and almost collapsed in the street. I've been to the hospital
and everything checked out fine so that's good but yeah, it was a
horrible experience and although it was probably a panic attack I'm
sure the physi... read more

5 replies...

flying with levels all over the place
Posted by darryn
Last Reply December 18, 2014 at 13:36
Started December 18, 2014 at 09:34
Hi, been on warfrin since june 2014.
i ended up an entire leg clot 2 weeks after being sent home from
surgery. I started on 9mg of warfrin and my GP had me on 17mg until
just recently when the levels went sky high. My levels have gone from
ideal range 2 to 3 any where as high as 4.4 and as low as 1.3. When i
went to 1.3 the GP put me on clexane injection for about 5 days until
levels reached 2.3. Recently my levels reached 4.4 and my GP told me to
stop taking warfrin for a few days. This has been over a 4 week period
whilst on holidays. Stressful...
im now flying home in morning and dont know my inr result from my last
test i thinking i have a clexane before i fly to be safe. My GP never
called me. Am i crazy to fly... P.S i have been getting tested every 4
days for the last 12 weeks.

2 replies...

Posted by DANIELLE
Last Reply December 18, 2014 at 08:01
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

181 replies...

Calf DVT but now getting pains in my thigh
Posted by Rachel
Last Reply December 18, 2014 at 01:47
Started September 17, 2008 at 22:10
Hello, I am new to this. I was told I have below knee DVT just over a week ago, after having ankle surgery. I was diagnosed after having severe pains in my calf for over a week, but i now have pains in the back of my knee going up my thigh and not much pain in my calf. Can anyone help. Im worried if the clot has moved at all even though my INR is 2.7 and they want it at 2.5.
Any advise please? x

28 replies...

What did it feel like/how did it start?
Posted by Anni
Last Reply December 17, 2014 at 22:55
Started December 17, 2014 at 19:31

I apologize if this topic has been discussed. I used the search feature on this site to find any info with no luck. If there is a same topic, please post the links.

I would like to know your experience of what a blood clot feels like and the story of how it started.I think I possibly have one, but without speaking to anyone on what it feels like, and basically looking up the symptoms online, I just don't know.

Whatever is going on with me, happened during thanksgiving. I noticed a slight tingling/numbness sensation right behind my left knee. I looked online and sciatica came up. I did feel pressure around my lower back at the time, and my spine was out of wack, so I made an appt with my chiropractor. He treated me twice now, but the feeling is still the same, constant numbness and tingling. And now today my calf hurts, it hurts when stretching, it didn't before and now I when I touch it, it feels like a sore muscle, kinda tight. This goes all the way down to my achil... read more

1 replies...

How long does it take DVT swelling to go down
Posted by Lucy G
Last Reply December 17, 2014 at 19:59
Started January 1, 2012 at 13:19
I developed a DVT in September after I sustained some serious knee
damage which left me very immobile. Despite me seeing the doctors
about it a number of times it wasn't diagnosed until I had a PE, about
4 weeks after the leg swelling started. They did a dopler scan and
said there was a clot behind my knee and started me on warfarin which
has delayed my surgery to fix the original knee injury. It is still
red and swollen (especially my foot) if I don't wear a support
stocking and the nurse at the DVT clinic said it would probably always
be a bad leg but that she wouldn't do a repeat scan. What I want to
know is whether it is likely to improve at all now or whether it will
be like this forever. Might it improve a little as the months
continue? I am hoping that once my knee is unlocked, that might help
but I can't get any information from anyone.

10 replies...

Superficial Thrombophlebitis
Posted by Karen
Last Reply December 17, 2014 at 11:47
Started December 17, 2014 at 11:47
Can anyone comment on how long the pain from a superficial
thrombophlebitis lasts? I have developed it in the left thigh,
following varicose vein treatments. They stripped below the knee
and did sclerotherapy near the groin. Today, the pain has extended
down into my calf. An ultrasound ruled out Deep Vein Thrombosis
but I have been put on an antibiotic (Keflex) to ensure that an
infection isn't also contributing to the pain and swelling. There has
been no relief from the pain yet and I am wondering if anyone can
comment on recovery times for this? Thanks!

0 replies...

Superficial Thrombophlebitis
Posted by Matt
Last Reply December 17, 2014 at 11:42
Started January 5, 2008
Hello All!

A Happy New Year to everyone! I spent New Years Eve in the hospital getting going on anti-coagulants after going in for a doppler exam that revealed a sizable clot in the Greater Saphenous Vein of my left leg from just above the knee extending up 6 or so (my first clot of any kind). I have no risk factors to speak of. I was told from the start that I had DVT. Technically the GSV is not a deep vein, its a superficial vein which carries roughly 18% of the blood back from the leg so Im pretty sure that what I have is technically referred to as Superficial Thrombophlebitis (STP). I was told to go to the emergency room straight away and begin anti-coagulant treatment in my opinion this was the right move because my clot was growing towards the saphenofemoral junction this is where the superficial GSV joins up with the deep femoral vein.

Has anyone in the group experienced this? Id love to chat with you.


62 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply December 15, 2014 at 14:06
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

100 replies...

D-dimer tests
Posted by NB
Last Reply December 15, 2014 at 03:58
Started April 25, 2007 at 14:07
Does anyone have any experience of d-dimer testing in relation to DVT ?

I was given a d-dimer test as part of my initial DVT diagosis - after the 2nd positive d-dimer they agreed for me to have an ultrasound scan of my leg. I have since read quite a lot about d-dimers in Research papers etc and there is some literature which points towards d-dimer measurement being a useful indicator of DVT recurrence.

Now that I'm off warfarin (after 6 month course) I pursuaded my GP to send me for a repeat d-dimer. Its come back positive again, although at a lower level then when I had my DVT diagnosis. He has suggested that I have another d-dimer in June but I am likely to be back on warfarin by then, as i am temporarily off while have my thrombophilia tests done.

Does anyone know if d-dimer readings can be affected by warfarin (coumadin) - my GP was a little bit vague on this(!. I would also be interested in whether any of you have been having regular d-dimer tests or know any more abou... read more

6 replies...

coming off warfarin with a vena cava filter
Posted by alan
Last Reply December 14, 2014 at 15:12
Started April 2, 2010 at 03:38
hello all im alan im 26 in aug 08 i was diagnosed with dvt throughout my left leg and 3 clots in my lungs one large one in right side two (i guess you would say normal sized) in my left. the vena cava filter was put in and have been on warfarin since.

doctors said im lucky to be alive, and dont understand how im still alive and so on so forth.

my doctor told me on my last visit that he wanted to take me off of the warfarin next month. it kinda worries me because of the filter being there, and was wondering is this safe? has anyone here been taken off warfarin with the filter? and what was their experiance with this?

21 replies...

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