DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Last Reply May 27, 2015 at 08:58
Started May 27, 2015 at 08:58
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Last Reply May 27, 2015 at 08:22
Started May 27, 2015 at 08:22
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Last Reply May 27, 2015 at 08:20
Started May 27, 2015 at 08:20
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Last Reply May 27, 2015 at 03:46
Started May 27, 2015 at 03:46
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0 replies...

When is it OK to return to work?
Posted by ergomaniac
Last Reply May 26, 2015 at 22:34
Started February 14, 2008 at 12:39
Hi everyone. I am totally new to this area and am struggling to get information. Brief history is that 2 weeks ago I was diagnosed with bilateral lower limb DVT and bilateral pulmonary edema. I was started on Fragmin injections with coumadin whilst I was in hospital but then when I went home it was just the coumadin. I am only 40 and have a hectic physical job and a 3 hour commute to and from work each day. I know it is all individual but I'm just trying to get a handle on how long most people tend to have to stay off work for. The doctors are still trying to stabilise my INR - last night it dropped to 1.6 so I had to go to the hospital to get a Fragmin shot and they doubled the coumadin dose to 6mg. Any help/advice for a newbie would be very gratefully received. Thanks :)

16 replies...

Xarelto and nightmares
Posted by Jane C
Last Reply May 26, 2015 at 16:51
Started January 4, 2014 at 16:36
I have been on Xarelto for 3 months and every time I wake up in a panic after a terrible
dream. The nightmares started the night I started taken the tablet (day 3 in hospital) and
have happened every day since. I am not on any other medication and when I mentioned it
to my Dr said it's not listed on the "side effect list." Has anyone else had side effect?

8 replies...

low INR
Posted by julie
Last Reply May 26, 2015 at 12:32
Started November 19, 2008 at 10:02
i am 3 weeks post DVT and although my INR was once 2.5 it is now 1.5 or 1.7.my GP does not sem worried-she says my blood is still thinner than a 'normal' person,which is 1.i know a too high INR has the risk of bleeding,but are there risks with it too low,other than another clot might form?im really asking if i should worry or if it stays like this for the 6 months i am on warfarin,will it be ok?

92 replies...

Just released taking Previscan
Posted by Lore
Last Reply May 26, 2015 at 12:03
Started March 18, 2008 at 19:10
Hi,

I was just released from the hospital today after suffering from multiple small DVTs throughout my left leg and a minor PE. I am 35 years old and otherwise healthy. I was taking low dose estrogen birth control pills and had taken two 6 hour flights over 2 days. I am American but living long term in France and I am currently taking 5 mg of Previscan. I understand that Previscan is widely used in France, but not so much elsewhere. Does anyone have any experience with this drug? Any side effects or things to be concerned about? Also any advice for dealing with my condition? I have not yet had a chance to see what my mobility limits are but the swelling has gone down considerably in my leg and I am getting around my apartment without much trouble or pain. I felt a little winded when I went up the stairs quickly.

Thanks, Lore


59 replies...

Come off or stay on?
Posted by Debi
Last Reply May 26, 2015 at 11:54
Started May 25, 2015 at 15:07
Hi everyone, I have been given the choice by my consultant whether I want to
carry on taking Wafarin or come off taking it. I had an unprovoked DVT in my leg
from thigh to knee July 2014. I have had lots of blood tests the last couple of
weeks which have all come back ok. Could anyone give me any advice? I am so
scared that if I come off I will get another clot but at the same time scared I might
have a bleed if I stay on! Anyone who has come off Wafarin, have you re clotted?
Such a dilemma !

3 replies...

lump at lovenox injection site
Posted by Claire
Last Reply May 26, 2015 at 11:43
Started April 3, 2010 at 23:04
I've still got a small hard lump at one of the injection sites that Ive had since
November . ocassionally it goes red ( about the size of a quater), it's not hot or
painful, I'm just wondering if anyone else has had this ??, I've still got some very
faint bruises aswell.

10 replies...

low range d dimer but still have pain
Posted by Jen
Last Reply May 24, 2015 at 17:06
Started May 24, 2015 at 17:03
i am in my mid twenties, very healthy female with good family history
besides thyroid issues in family history. having intermittent pain on
my left calf on the outside. had a d dimer done less than a week ago
with results being negative at 85. i have never heard of results being
that low, i know typically under 250 is good, anyone else had a low d
dimer results. thanks for your reply in advance. my stress and
anxiety has been overwhelming, i feel like i am amplifying my pain

1 replies...

stockings
Posted by Sonya
Last Reply May 24, 2015 at 16:40
Started May 13, 2012 at 05:46
I am still searching for the right grade of compression stockings without paying an arm and a leg-I need suggestions please. I believe I am wearing the 20 in a calf sock. Thanks

2 replies...

Tooth extraction while on warfarin/coumadin
Posted by Michael
Last Reply May 24, 2015 at 14:30
Started October 30, 2008 at 14:14
Hi guys,
Just want to know if anyone of you had experienced tooth extraction while on warfarin/coumadin? Is the risk of bleeding too high?
Because I have a severely painful tooth which I wanted to be extracted asap. I am on my 3rd month of warfarin. My hematologist wants me to finish to 6 months.
Thanks!
Michael


65 replies...

Skin discolouration
Posted by Rob UK
Last Reply May 23, 2015 at 11:25
Started June 4, 2013 at 15:12
Hi to you all out there.
I am into my 4th year post-popliteal dvt and have learned to cope with the constant background pain. However, I have noticed over the last 6 months or so that the red/purple/blue discolouration around the bottom of my leg/ankle appears to be spreading up my leg- it's now reached halfway up my calf, but the colour is like a brown iron stain rather than the multi-colour further down. Any ideas? My GP has basically said that this is normal, but I'm not so sure. To me, it's as if the iron from my blood is leaching out into my skin because the blood flow around my leg is not as efficient as it should be.
Your advice/comments would be very welcome. Thanks.

6 replies...

Possible Help w long term DVT
Posted by Mike
Last Reply May 23, 2015 at 09:58
Started May 23, 2015 at 09:58
www.chronicdvtstudy.com

0 replies...

Smoking and DVT
Posted by Sarah
Last Reply May 22, 2015 at 21:30
Started June 19, 2008 at 16:31
So I was diagnosed with DVT in January. Had a clot from my ankle to my kidney. Doc said to quit smoking and stop all birth control pills. I did quit for about a month then things got hectic and I started again. My husband is really on my case. He thinks I will die from smoking. I take 10mg of warfarin a day and have an IVC filter stuck in my neck. Will smoking really affect me that much??? My INR has never really been normal. It usually ranges from 1.5-1.9 They want it to be between 2.0 and 2.5. This never happened even while I was not smoking. When it is low my nurse always asks if I missed a dose, and I tell her no, but I do not mention that I started smoking again. Is this to blame??? Is my husband right? Will it really kill me? I am 27 and I guess in a little denial about the whole DVT thing.

32 replies...

Low White Blood Cell count on Warfarin
Posted by DHY
Last Reply May 22, 2015 at 16:27
Started August 15, 2009
Hi everyone, I recently had a Complete Blood count taken and it showed my white blood cell count had dropped to a bit below the normal range since I started on Warfarin. All other counts in the test came back ok.

Has anyone else noticed that their white blood cell count decreased whilst on Warfarin?

Thank you.

9 replies...

WHAT I DID TO CURE MYSELF OF DVT
Posted by DogoYaro
Last Reply May 22, 2015 at 08:59
Started June 10, 2010 at 11:45
Hi All,


First time here, just to share my personal experience regarding DVT
and what I did to cure myself of it.

BACKGROUND

My job involves lot of sitting down, as I work on the computer. This
could be anything up to 12 or 13 hours a day. A while ago, I noticed
that my calf started aching as well as gradually getting swollen. I
didn't take much notice of it except to massage it or place it next to
the gas fire so as to help with the circulation.

I knew that my problem was due to my having to sit for hours and hours
on end on the computer. Anyway, as time went by, I started noticing
the veins in my legs become more pronounced, in addition to a constant
pain. I also noticed some sort of lump inside my right leg!

This gave me a lot of concern as I consider myself relatively fit,
being that I do physical exercises everyday, on the exercise bike, in
addition to dancing salsa on a regular basis.

Anyway, one day, I heard something about dvt on T... read more

13 replies...

Coming off Warfarin
Posted by Sarah
Last Reply May 22, 2015 at 08:35
Started January 6, 2009 at 19:21
Hi all,
I'm back for a bit of advice/your experiences. I'm about to go off warfarin after being on it for nearly 11 months. My history with dvt is: was taking birth control pills, had recently fallen on left hip and fractured elbow in the process; was quite a bit more sedentary as a result. I've been on warfarin longer than they wanted me to be, but did so because I wanted to continue it over the holidays because of air and car travel.

So, I'm contemplating weaning myself off of it, simply because I think it would be easier on my peace of mind. Hemo did tell me however that I could quit cold turkey. I would like to start taking something in place of it, perhaps fish oil or vitamin E, if for no other reason than the "placebo effect"... I've gotten so used to taking my meds at 7 pm every day that I think I may panic if I don't do that any longer.

For those of you who have come off warfarin, what has been your experience? any body re-clotted? anybody taking natural supplement... read more

139 replies...

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