DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Venowave bothering knee?
Posted by Kate
Last Reply July 7, 2015 at 09:37
Started July 7, 2015 at 09:37
Hi - the venowave has been helping with my pts symptoms more than anything
else so I need to wear it all day long ( for the past 2 months) the last week my
knee is starting to feel weak and is bothering me. I think it is the weight of the
venowave. Anyone else have this problem? Thanks.

0 replies...

Off topic: DCA a Cure for Cancer?
Posted by N
Last Reply July 7, 2015 at 04:29
Started February 16, 2009 at 07:08

Researchers believe it's a cheap and simple drug that kills almost all cancers. You heard that right! The real story is..you can't have it! Not because it is unsafe but because it doesn't make any money.


A very interesting article about DCA was on first page in a major Norwegian newpaper the "Verdens Gang" on Wednesday December 3, 2008. Inside the paper, on pages 10-11, is an article how this 45 year old man with a brain tumor went to Canada and was treated at a private clinic in Toronto. The tumor was reduced 50% over a short period of time. However, the Norwegian authority later returned the DCA package because it's not legal in Norway.



After the news story in the Belgium press of two te... read more

3 replies...

DVT in arm
Posted by Kitten19
Last Reply July 7, 2015 at 01:28
Started September 26, 2010 at 05:37
I was diagnosed with a dvt in my left armpit a few months ago. I am still on Warfarin, and the clot is not dissolving. I still get alot of pain when I use that arm alot, and I was wondering how long the pain and discomfort can last? I also notice that the arm is much weaker than my right. Will I regain all of my strength?

26 replies...

2 DVTs within 1 week...
Posted by Ashley
Last Reply July 6, 2015 at 21:10
Started July 6, 2015 at 21:10
I was diagnosed with my 1st DVT in my right calf
13 days ago. On Day 8, I suspected another DVT in
my left calf. My Dr. Said that since we are
already treating the 1st DVT, an ultrasound isn't
necessary and my INR is 3.8...so my blood is too
thin anyway.Dr. is adjusting my meds, but my
question is...Is the 2nd DVT ultrasound necessary
since the treatment is the same, and my blood is
thin? He said we'd ultrasound both calves again
in 3 months. Thoughts?

0 replies...

foods to avoid
Posted by laura vincent
Last Reply July 6, 2015 at 16:43
Started November 8, 2006 at 19:44
My brother has dvt in right calf. They can't seem to get his levels to anything higher than 1.9. He's been in the hospital for 15 days (46 yrs. old - healthy, dvt caused by trauma - he fell of his bike and bumped his leg). Part of diet in the hospital includes fruit. Should he be avoiding fruit? He said he has been told to avoid green leafy vegetables but that's all. Any info would be appreciated.
Thanks so much.

62 replies...

Warfarin and stopping smoking
Posted by Joanne uk
Last Reply July 6, 2015 at 14:45
Started July 8, 2014 at 08:46
Hi, I am currently on Warfarin 10mg a day my INR is 3.2 today my ratio
is 2-3. Anyway I smoke...but I want to try and give up...will electronic
vapourisers help (vape)only I know that apparently giving up smoking
affects the Warfarin. Has anyone else given up whilst on Warfarin and if
so what effects did they have on their results.Did docs advise not to
give up yet?? I dont know what to do?? It seems daft that smoking is bad
but not supposed to give up on Warfarin. I want to improve my health and
get better from 2 superficial thrombophlebitis but treated as DVT's. Any
advice out there. (no one answered my last 2 posts yesterday :( )

5 replies...

Side and stomach pains
Posted by Terry
Last Reply July 6, 2015 at 07:41
Started July 6, 2015 at 07:41
Have been on Warfsrin for 9 months following DVT to several leg veins which
have not cleared.Never had so many pains to both sides of ribs and a bloated
feeling .Has anybody had something similarly.

0 replies...

DVT and PE history with no diagnosis ...
Posted by MValenta
Last Reply July 5, 2015 at 18:59
Started June 25, 2015 at 15:14
Hello - I am 38 years old. I had my first DVT (calf to belly button) when I was only 16. I took 2 shots per day through all 3 pregnancies and have had several 'clot scares' over the years.

In 2010 I had double PE w/o incident that did not begin as a DVT and told I would be a lifer. I was horrible with meds and went on and off for years. At the end of 2014 I decided to try to be diligent again and spoke with my pulmonologist who put me on Xarelto. I took it for a couple months and then fell off again when I lost my father. In April I developed another DVT (one in calf and one in thigh - same leg)and was hospitalized and put back on Xarelto. My Dr wanted a follow up ultrasound and after 1.5 months of taking my thinners w/o fail they told me I still had an active clot in my leg and it had not been reabsorbed. He sent me to a hematologist that had managed my care through my pregnancies for further blood screening and all them have come back negative. I'm scared and very fru... read more

1 replies...

Calf DVT but now getting pains in my thigh
Posted by Rachel
Last Reply July 5, 2015 at 18:50
Started September 17, 2008 at 22:10
Hello, I am new to this. I was told I have below knee DVT just over a week ago, after having ankle surgery. I was diagnosed after having severe pains in my calf for over a week, but i now have pains in the back of my knee going up my thigh and not much pain in my calf. Can anyone help. Im worried if the clot has moved at all even though my INR is 2.7 and they want it at 2.5.
Any advise please? x

35 replies...

tattoo's on warfarin!
Posted by chir jones
Last Reply July 5, 2015 at 12:17
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

90 replies...

Dissolved dvt- keep warafin going?
Posted by Heath
Last Reply July 5, 2015 at 11:29
Started June 30, 2015 at 04:20
Hi all I was diagnosed with dvt in lower leg about 9 weeks ago (resulted from an
ACL rupture/knee injury) anyway I know I should listen to my dr but have some
doubt! He told me to stop using warafin bc the clot has gone. Another dr told me
to keep going for 3 months??? Hmmm thoughts? Thx

5 replies...

Warfarin headaches
Posted by Claire
Last Reply July 4, 2015 at 22:02
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

83 replies...

Coming off Warfarin
Posted by Donna
Last Reply July 4, 2015 at 09:14
Started September 13, 2007 at 17:09
Hi there, my husband has been on Warfarin for just over 6 months and is on 10mg - INR now at 2.8.

Do you come off it cold turkey or do you gradually come off it? The doctor also told him to stop wearing his stocking.

I would appreciate any advice from anyone who has come off the Warfarin and what to expect! Kind Regards, Donna Robertson

51 replies...

Son doesnt realise there is a problem
Posted by geoff A
Last Reply July 4, 2015 at 06:15
Started July 4, 2015 at 06:15
Hi, hope someone can help. my son is now nearly 19 and has had dvt's in both legs and is on warfarin since age 16. we allways made sure he took medication but he is now basically refusing to take meds as he thinks there is nothing wrong with him. we have pulled our hair out but to no avail.
can anyone suggest a way to make him take meds and attend appts?

0 replies...

Second dvt
Posted by Max
Last Reply July 4, 2015 at 03:10
Started July 4, 2015 at 03:10
The first happened a couple of years ago while my leg was in plaster from a crack
in the ankle. Did the warfarin, was signed off and thought that was the end of it.
Have just been on holiday doing lots of walking and feeling five, then yesterday
had pain starting in the calf then spreading up the thigh until it was very painful
to put weight on it. Urgent care gave me a warfarin injection and a prescription for
two more days, and now I'm waiting till Monday for a scan etc. Very disappointed
to be back here, and would like to know when the pain might ease - it's hard to
stand at all at the moment.

0 replies...

Bigger sneaker size after dvt?
Posted by Jennifer
Last Reply July 3, 2015 at 10:34
Started July 3, 2015 at 10:34
Anyone else experience this? 1.5 years post dvt- suddenly my sneaker of the
affected leg is too tight. Wondering if this is just because its summer?

0 replies...

shortness of breath on coumadin / warfarin
Posted by Claire
Last Reply July 3, 2015 at 07:16
Started May 14, 2010 at 01:56
has anyone noticed a shortness of breath being a side effect of being on
warfarin/ coumadin ? this happens to me sometimes, it really started after I had a
panic attack & that awful feeling of not being able to catch my breath freaked me
out. I know I can breathe because when I'm busy I forget about it.
it's horrible .

9 replies...

Posted by MattBNub
Last Reply July 2, 2015 at 17:49
Started July 2, 2015 at 17:49
A church was created with the thinking that if Indiana’s budding law protected faithful practices, then it should also permit marijuana utilize as division of a broader devotional philosophy.

0 replies...

Posted by DANIELLE
Last Reply July 2, 2015 at 12:46
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

243 replies...

Food doesn't taste right on Coumadin
Posted by Karl
Last Reply July 2, 2015 at 06:19
Started September 14, 2009 at 20:41
I have been on Coumadin for a couple months now and beside all the other crappy side effect, food doesnt taste good anymore. I don't even feel like eating much anymore.

23 replies...

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