DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Anyone else taking Xarelto?
Posted by Ken
Last Reply February 26, 2015 at 16:58
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

176 replies...

right side bellybutton pain
Posted by Jo
Last Reply February 26, 2015 at 16:12
Started February 26, 2015 at 10:56
Ok well last year June to October I was on warfarin and cleaned
injections, I did have lumps/bruising as one expects but now 7
months later I am experiencing pain in the same place, like a
stinging sensation that hurts to the touch. I don't know if it's
related? I am about to have a hip operation in 2 weeks what should
I do? I don't want my op cancelled again and I'm not sure if it's
related. Can't get go appt as fully booked and may not really be
urgent? Any ideas? It's a couple of inches right side of

1 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply February 26, 2015 at 15:58
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

80 replies...

Posted by Renee
Last Reply February 26, 2015 at 12:44
Started February 26, 2015 at 12:44
hi guys, I was just diagnosed with DVT Feb 2, 2015. The ER told me
that I could start working out again after a month. I'm on xarelto,
and I wanted to start the thirty day shred. Would this be okay?

I have no leg pain at all anymore, (Thank God), but my leg is still
red and just a tad swollen.

0 replies...

help please
Posted by Amar M
Last Reply February 26, 2015 at 06:57
Started February 13, 2015 at 15:50
I was diagnosed with DVT in my right and left leg seven months ago, i wanted to know if anyone had fever during firs few days up to two weaks of diagnosis? and how long do i have to wait until i can run again or play basketball?
I walk every day and i wear compression socks and my legs dont swell at all, i dont feel pain but my doctor said i couldnt run for few years and i dont believe it takes that long.

2 replies...

Pain when I walk
Posted by Aki
Last Reply February 25, 2015 at 20:02
Started February 14, 2015 at 10:53
Should I be walking and doing light exercises ?i just finished injecting my self 10
times in 5 days.. I'm down to two wandfine pills (or whatever it's called) I just feel
this pain in my leg and I don't like it. Is it good to keep walking on it ?

1 replies...

DVT and Work
Posted by Stephanie
Last Reply February 25, 2015 at 17:47
Started February 23, 2015 at 20:06
Hi everyone
I am 44 years old. I was diagnosed 3 weeks ago
with a right DVT and 2 pulmonary embolisms. I was
in the hospital and I am home now. I was put on
zerato and I go back to see my doctor soon. I am a
nurse and I work on a busy unit 12 hour ling shifts.
My leg is still a bit swollen and I have pain in my
leg and I get short of breath easily. I was wondering
how long should I be off from work? When should I
go back to work? Any suggestions?

1 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply February 25, 2015 at 13:24
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

102 replies...

tattoo's on warfarin!
Posted by chir jones
Last Reply February 24, 2015 at 13:31
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

89 replies...

Chronic DVT help
Posted by Rich Daniel
Last Reply February 24, 2015 at 08:40
Started February 11, 2015 at 13:57
I'd like to share something very significant with you all. A good friend said he had an
important story to capture and he asked if I would help. A long journey with seemingly
insurmountable odds was coming to a close. Over the course of these last few months I
have found Jenny McDaniel to be a courageous woman . Her story has since inspired
The DVT Hope Project .
Jenny underwent an experimental surgery to reopen veins in her legs that had shut
down more than a year ago due to Deep Vein Thrombosis (DVT) saving her leg and
her life. After two failed traditional surgeries, this experimental technique restored
nearly normal blood flow in her legs in less than three hours.
The public and the wider medical community seem largely unaware of this
breakthrough procedure. Only 200 operations using this technique have been
performed to date; yet there are up to 1,000,000 patients in the U.S. for whom it could
bring immediate relief. I encourage you to visit WWW.DVTHO... read more

1 replies...

Posted by SHAWNEE
Last Reply February 24, 2015 at 07:18
Started April 17, 2008
I am 30 yr old female, weight is 135,don't smoke and don't drink. My left legs hurts really bad. Started numbness and tingling in butt from sitting on chair at computer. Then pain was in the crease of bottom of left butt cheak. As time went on the pain went further down. It hurts now to sit on my butt on the chair and pain, tingling and soreness goes down my whole left leg now. Been happening for about 4days now. When i stretch out my calf it feels like the muscle been stretched too far already. I have not gotten hurt or did any thing to hurt my leg.
Sometimes i get sharp pains in my leg. There is no swelling,reddness or skin that feels hot. Although sometimes it feels warm on the inside. It hurts to push on certain areas on the back of my thigh and down. Skin feels very sensitive to touch. Like having the flu.
I was diagnosed w/3 leaky heart valves and i am taking propranolol for high heart racing. I was soooo scared that i had a blood clot in the leg that i rushed to the ER and ... read more

78 replies...

Does Water intake effect INR
Posted by M. Dean
Last Reply February 24, 2015 at 05:29
Started August 14, 2013 at 19:15
My INR stays withing range usually, meaning they have not changed my dose for a couple of years. Last week when I went in my INR was 3.2. I remembered that I had had a salad at Olive Garden, but that should have made the INR go down. I have been drinking an extra amount of water the last few weeks.

I work out in the hot usually and haven't been drinking enough water, which may be the base cause of the DVT that I experienced. I am just curious. My doctor says that I will be on Warfarin for the rest of my life, so I want to be sure to take proper care lest the stuff tries to kill me.

2 replies...

low INR
Posted by julie
Last Reply February 23, 2015 at 16:38
Started November 19, 2008 at 10:02
i am 3 weeks post DVT and although my INR was once 2.5 it is now 1.5 or 1.7.my GP does not sem worried-she says my blood is still thinner than a 'normal' person,which is 1.i know a too high INR has the risk of bleeding,but are there risks with it too low,other than another clot might form?im really asking if i should worry or if it stays like this for the 6 months i am on warfarin,will it be ok?

90 replies...

Anti-embolism/Compression Stockings Study
Posted by A
Last Reply February 23, 2015 at 12:37
Started February 23, 2015 at 12:37
Hi All! I am doing a final year pharmacy project looking into the use of anti-
embolism/compression stockings.
I would be really interested to hear patients' views on these stockings and have created
a short questionnaire. It takes less than 10 minutes and will be kept completely
confidential and anonymous.
If you would be interested in filling out my questionnaire, the link is here:
Just 1 thing: if you're not from the UK, please can you just state that. (Near the end,
there's a space for any other comments, so jet write which country you're from there.)
Thank you!! :D

0 replies...

Why is high INR dangerous?
Posted by Michelle
Last Reply February 23, 2015 at 04:41
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.


34 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply February 22, 2015 at 12:02
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

66 replies...

flying while still having dvt
Posted by magnet
Last Reply February 22, 2015 at 04:04
Started September 5, 2007 at 07:52
i am due to go on holiday in two weeks.the flight is for two and half hours.Has anyone else flown while still having dvt.i know that i will have to use socks and move my leg around but has any one else got any other advice.
i have the dvt in my left low leg.
i am 32 years old

52 replies...

DVT while on warfarin?
Posted by Elizabeth
Last Reply February 21, 2015 at 17:23
Started August 8, 2006 at 01:46
Has anyone here ever had a DVT while on therapeutic doses of warfarin?

16 replies...

Warfarin headaches
Posted by Claire
Last Reply February 21, 2015 at 10:11
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

76 replies...

Greenfield filter pain
Posted by marie
Last Reply February 17, 2015 at 10:51
Started March 9, 2008
Hi there, I was recently diagnosed with May-Thurner and Factor II mutation complicating the matter. I had a procedure done a couple of days ago to place a stent in the iliac vein and a greenfield filter in my IVC. Has anyone experienced severe right flank pain after having the greenfield filter put in? My doctors did a CT scan to make sure that there was no internal bleeding and it looked normal. They suggested that the pain may be from the procedure or the filter. Thank you for your input

31 replies...

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