DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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warfarin tablets
Posted by marino
Last Reply July 29, 2015 at 23:47
Started December 5, 2010 at 01:19
I was diagnosed with DVT 6 days ago and put on clexane 80 mg. twice a day for 10 days. i do not trust the doctor who saw me because twice he wanted to send me home for a leg pain and slight swelling. If my wife did not push for an ultrasound the DVT would not have been found and i might have just ended up dead. I will have another appointment to my regular doctor this monday.
when should the doctor put me on warfarin treatment? in the leaflet it says within 72 hours with clexane but the stupid doctor told me it means 72 hours before the last dose of clexane. also how about the blood test monitoring? i know it is very important because i might have too much and bleed.

17 replies...

Normal Post-DVT Condition?
Posted by Bryan
Last Reply July 29, 2015 at 23:22
Started January 28, 2011 at 05:14
I had deep vein thrombosis in one of my legs six years ago. I have been quite active, aerobically, since that time -- as I certainly was before the clot. I run several miles a week, and have for years. But there is still a problem.

I was told, by health care professionals, that my leg would "probably" never be the same again, after the clot. And, well, my leg hasn't been the same, either. My leg will "shrink" back to its normal size when I go to bed at night; but then, after I wake and am up and about for just a little while, my leg starts to swell -- and the bruising, which I've also had since the clot, starts to darken (and may even be expanding).

Tell me, please, if anyone can, is this truly a normal, post-DVT condition? Will I have this swollen, bruised leg for the rest of my life? Any light that can be shed on this will be greatly appreciated.

8 replies...

IVC filter not retrievable
Posted by Melanie S
Last Reply July 29, 2015 at 23:00
Started January 28, 2015 at 19:13
I had a dvt 3 weeks postpartum with my 7th child. Damaged vein required stents
and the clot was 20 cm long. IVF filter was attempted to be removed yesterday as
clot is completely gone. Vascular surgeon spent 3 hours trying to get it out. It had
migrated and tilted and despite his efforts was not able to get it. I will be on
xarelto for one more month. I currently plan to leave the filter in. Has anyone kept
it successfully? What at the risks for me given this was a unique situation and I
don't expect more clots. I am 42 years old and otherwise in good health.

3 replies...

Thrombophilia screen/ Pradaxa
Posted by Rob- UK
Last Reply July 29, 2015 at 19:55
Started July 13, 2010 at 12:51
I have been on Warfarin since January this year, and it looks as if I will be kept on it until the haematologist decides it is 'safe' for me to come off it so he can undertake a thrombophilia screen. He believes that there may be a family history of clotting that needs to be investigated-however, if I come off warfarin totally, am I not then at risk if I do indeed have a clotting problem? Is there not another test that can determine this without the possible risk associated risk of coming off warfarin altogether ?
Also, I was wondering if any of you have changed over to Pradaxa as an alternative to warfarin. I have approached my GP about this possibility if I should have to stay on drugs for life, but was not given a definitive answer.
Many thanks .

5 replies...

Warfarin headaches
Posted by Claire
Last Reply July 29, 2015 at 13:02
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

85 replies...

bunching on ankles of compression socks
Posted by compression stocikings
Last Reply July 29, 2015 at 07:49
Started July 29, 2015 at 07:49
I was diagnosed with dvt in my left leg last
October but am only now getting compression
stockings. I was just looking for some advice..my
socks are bunching when I stand on the bend by
the ankle on top of the foot. Is this ok or have
I got incorrect sizing? Also I wear stockings on
both legs even though only my left was diagnosed
with dvt is this safe to do?
Many thanks

0 replies...

Posted by CC
Last Reply July 29, 2015 at 02:49
Started November 23, 2011 at 18:53
I received my one and only acupuncture treatment and 3 days later had DVT in both legs. Does this sound familiar to any of you?

7 replies...

Lifetime blood thinner prothrombin II mutatio
Posted by Wendy
Last Reply July 28, 2015 at 15:19
Started July 28, 2015 at 15:19
Five months ago, I had a DVT related to being in a cast for a
dislocated ankle. Further testing showed I have the Prothrombin
II mutation, heterozygous. I have now been prescribed a lifetime
of Xarelto, which makes me very uncomfortable. I don't feel well
at all since starting on the medication. Body aches, fatigue and
have gained 20+ pounds but haven't had an appetite. All of that
plus ther is no antidote in the case of excessive bleeding. I am
wondering if after only one event (I am 47 years old), what are
the chances of a reoccurrence if I stop the medication. Over the
years, I have had 12 knee surgeries, 2 abdominal surgeries and
have been on birth control pills and have never had a blood clot!
I have gone from being a very active former professional athlete,
to feeling like I am 90 years old! Help!!!!

0 replies...

If you heard about the Weight Loss System
Posted by Andrew Hughess
Last Reply July 28, 2015
Started July 28, 2015
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0 replies...

Diagnosed: Post-thrombotic Syndrome
Posted by Michelle
Last Reply July 27, 2015 at 17:21
Started April 3, 2007 at 03:13
Hello everyone: had a very depressing appt. with my Hematologist today - not sure if you all know what PTS is - but that's what I have, as a result of my DVT (knee to groin - lead to many PE's as well). I'm so angry! Ahh!

I am offically finished coumadin therapy (after 8 months). but I always thought that that would mean I am better. Not so! I'm 26, and I will have to wear compression stockings and deal with the pain, swelling, tingling/numbness forever (or so the Specialst says) - part of me still thinks there are more answers out there.

I'm trying to stay positive, but it's hard. This is a disability now - can't stand OR walk OR sit with my knees bent longer than 30 minutes without symptoms. She said it's too late to refer to a Vascular specialist - the damage to my veins is done.

Any tips / advice from others with PTS? For those who don't know it's basically complications that may follow deep vein thrombosis (DVT) (includes, persistent swelling, pain, purpura ... read more

55 replies...

Off topic: DCA a Cure for Cancer?
Posted by N
Last Reply July 27, 2015 at 16:42
Started February 16, 2009 at 07:08

Researchers believe it's a cheap and simple drug that kills almost all cancers. You heard that right! The real story is..you can't have it! Not because it is unsafe but because it doesn't make any money.


A very interesting article about DCA was on first page in a major Norwegian newpaper the "Verdens Gang" on Wednesday December 3, 2008. Inside the paper, on pages 10-11, is an article how this 45 year old man with a brain tumor went to Canada and was treated at a private clinic in Toronto. The tumor was reduced 50% over a short period of time. However, the Norwegian authority later returned the DCA package because it's not legal in Norway.



After the news story in the Belgium press of two te... read more

3 replies...

Sodium triiodo-L-thyronine
Posted by tcsgroupk
Last Reply July 27, 2015 at 05:59
Started July 27, 2015 at 05:59
Thyroid hormone drugs are natural or synthetic preparations containing tetraiodothyronine (T4, levothyroxine) sodium or triiodothyronine (T3, liothyronine) sodium or both. T4 and T3 are produced in the human thyroid gland by the iodination and coupling of the amino acid tyrosine. T4 contains four iodine atoms and is formed by the coupling of two molecules of diiodotyrosine (DIT). T3 contains three atoms of iodine and is formed by the coupling of one molecule of DIT with one molecule of monoiodotyrosine (MIT).

Both hormones are stored in the thyroid colloid as thyroglobulin.

Thyroid hormone preparations belong to two categories: (1) natural hormonal preparations derived from animal thyroid, and (2) synthetic preparations. Natural preparations include desiccated thyroid and thyroglobulin. Desiccated thyroid is derived from domesticated animals that are used for food by man (either beef or hog thyroid), and thyroglobulin is derived from thyroid glands of the hog. The United... read more

0 replies...

intermittent pain on outside of right calf - s
Posted by jeanb
Last Reply July 26, 2015 at 23:01
Started December 20, 2008
I've just been reading messages on blood clots on this forum because I have been experiencing several times a day, a dull ache/pinching feeling sensation in right calf, on the outside and always in the same spot.

I have not been to a doctor and I am not taking any drugs at all.

What I have noticed is that the 'pinching/pulling' sensation happens in exactly the same place on the outside calf area and only the right leg. After a few times I marked a X on the area with a biro and it's always that same place!

I usually feel it when I'm sitting at the PC where most of my work is done or if I sit with my leg on a chair. I don't really feel it the same when standing or walking so is there anyone else with similar syptoms please?

My worst fears are a blood clot but there is no swelling, no redness and no warmth, which seems to be possible symptoms and the pain is what I would call fairly minor, but is intermittent and never lasts for long.

Someone said it might be nerve rel... read more

29 replies...

Tooth extraction while on warfarin/coumadin
Posted by Michael
Last Reply July 26, 2015 at 03:31
Started October 30, 2008 at 14:14
Hi guys,
Just want to know if anyone of you had experienced tooth extraction while on warfarin/coumadin? Is the risk of bleeding too high?
Because I have a severely painful tooth which I wanted to be extracted asap. I am on my 3rd month of warfarin. My hematologist wants me to finish to 6 months.

69 replies...

Posted by DANIELLE
Last Reply July 25, 2015 at 18:35
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

271 replies...

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Last Reply July 25, 2015 at 06:52
Started July 25, 2015 at 06:52
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0 replies...

Pulmonary embolism survival rates thes days!
Posted by Ali
Last Reply July 25, 2015
Started December 22, 2008 at 16:08
I wasn't sure how to title this but wanted to say that I lost my mum 32 years ago, (who I never ever remember her having any illnesses whatsoever) after she took ill with leg pain one day, she phoned the doctor who sent her to hospital and 36 hours later she very sadly passed away as the clot had moved to her lung.

What has changed from then until now regarding the treatment of a blood clot? My mother had never been ill in her life but suffered with varicose veins so presumabaly the blood clot stemmed from that!

I have read so many posts on here where people have DVT, clots etc and receive treatment and survive what would have killed someone 30+ years ago but I suppose it's like everything, medical research just progresses all the time.

I would be interested in hearing what anyone has to say and if they know people who died several years ago and who would probably easily survive these days!

Thanks Ali

55 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply July 24, 2015 at 20:28
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

73 replies...

Compare side effects of warfarin
Posted by Amandajane
Last Reply July 24, 2015 at 13:23
Started November 14, 2008 at 07:16
Hi everyone,
I read all the time how you guys dont feel well on warfarin. I have been on it for over 5 years and dont suffer from it. I am curious to know what your side effects are. I used to get alot of headaches in the first year or so but not so much any more. About the only side effect I have now is the fear of a brain bleed!
Amandajane Queensland

21 replies...

Why is high INR dangerous?
Posted by Michelle
Last Reply July 24, 2015 at 12:29
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.


38 replies...

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