DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Posted by Jan
Last Reply October 21, 2014 at 22:53
Started October 13, 2014 at 02:40
Almost 5yrs ago I was diagnosed with an
occluded DVT of the left leg and abdomen.
When CT was performed I was also informed
I did not have a IVC. I had thrombolysis
preformed 4 days after clot formation.
Only to have it fail and I reclotted.
Dr's are now going to do a MRI to see if I
am a candidate for some type of bypass
surgery. I am interested in seeing if
anyone else was born without a Inferior
Vena Cava (IVC)? If so what type of
treatment have you had. My pain in getting
worse by the month. I am at a loss I don't
want to do anything any more. Laying
around legs kill me if I am up doing
things I am also in pain. I am just
looking for anything that could help me.

3 replies...

shoe Lifts
Posted by AngeloTuh
Last Reply October 21, 2014 at 21:29
Started October 21, 2014 at 21:29
Other options include taking your shoe lift inserts along when you buy shoes and searching for a brand with more stretch than your normal shoes


0 replies...

Newly diagnosed
Posted by Kay
Last Reply October 21, 2014 at 21:19
Started October 16, 2014 at 21:37
I was diagnosed on Saturday, given Lovenox, and sent home with xarelto. I never
had swelling, redness or warmth. My clot is partially occluded by my knee in left
thigh. I have kept it elevated all week. Today I sat up more with it on pillows and
got up more often. Tonight it started burning again and feels a bit warm. Is this
normal for over doing it a bit? I am worried since I didnt have warmth before.

3 replies...

how long does the pain in the leg last
Posted by Angela
Last Reply October 21, 2014 at 17:31
Started July 3, 2010 at 21:38
i had dvt in my left leg abt a week ago and was hospitalized for 5 days, am now on warfarin. i would like to know how long it will take for the pain in the leg to go away cos the pain is simply unbearable. would also like to know when i can go back to work. has any one gone through the same out there. pls help

42 replies...

Playing contact sports on Warfarin?
Posted by Steve
Last Reply October 21, 2014 at 16:58
Started August 3, 2007 at 15:40
Hi everyone,

I am on lifelong warfarin and have been advised not to play contact sports. I am only 31 years of age and find this advice hard to accept, as I loved playing football. Has anyone out there had any experience or advice contrary to the usual no contact sports?

4 replies...

Can calf dvt be missed by US
Posted by Esme
Last Reply October 21, 2014 at 15:31
Started October 21, 2014 at 15:31
Has anyone any experiences to share?
How accurate is US in detecting calf dvt?
I've previous history of DVT, usual symptoms and positive d dimer but nothing found on US today so no follow up or treatment being continued.

0 replies...

Lovenox blood testing
Posted by Laurie
Last Reply October 21, 2014 at 15:08
Started August 28, 2008 at 23:29
I am fairly new to all this... and have been reading this site for a few weeks.. and I have learned so much from all of you. and I just wanted to say thanks! I do have a question to ask and hope someone will be able to give me advise. My PA.. says I don't need to worry about having my blood tested. I was on warfarin but after 4 months my blood clott hadn't changed much and I had developed two more, so I was taken off warfarin and put on lovenox 2 shots per day. How often should my blood be tested? It has been 20 days..How do I know its not too high or low.. ? I know I can't do INR test, but I would think there must be some kind of time line for blood tests... Please help! thanks again.. Laurie..

18 replies...

Exercise after massive DVT?
Posted by Jennifer K.
Last Reply October 21, 2014 at 14:53
Started July 3, 2006 at 01:13
I was 35, fit, healthy, never took birth control pills, no serious injuries... and then out of nowhere I had a massive dvt in January 2005 and nearly died. My left leg and left side of abdomen and groin were affected and I am still using a walker (frame) to get around. I'm on Coumadin daily, and also am eating some spinach every day (for me, the vitamin k helps my inr levels to stabilize).
I have gained approx. 100 lbs and am by far the largest I have ever been. My doctors tell me in the same breath that I must lose weight, but to not do anything to elevate my blood pressure (which is low) or my heart rate!
There's a serious risk with having lyposuction, etc, so other than that, how am I supposed to lose weight?! I DO watch what I eat, am careful about what I eat and how much and am eating far less than what I ate when healthy and fit (pre-dvt), but I'm huge. My pharmacist pointed out side effects to Coumadin such as weight gain, insomnia, hair loss, and I have all the side effec... read more

338 replies...

Skin Lump at Injection Site
Posted by Jeannette
Last Reply October 21, 2014 at 14:30
Started April 9, 2008
Is anyone familiar with this side effect from subcutaneous injections? I have been on 1st Lovenox for 1 week and then Fragmin for past 3 weeks, and am injecting myself in my stomach. I noticed after one bad bruise, a small, round, hard lump formed under the skin. It is tender to the touch, and has not gone away after a couple weeks. Then yesterday I got a bad bruise after an injection in another site, and now I have a 2nd lump in this new location. Am I doing something wrong? Or is this a normal side effect? Do you know if they go away? Compared to my DVT/ PE symptoms, this isn't a huge concern (LOL), but am just wondering if anyone else has experienced this or knows how to prevent? Thanks to all.

58 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply October 21, 2014 at 13:31
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

94 replies...

Warfarin Skin Rash
Posted by Fawzia
Last Reply October 21, 2014 at 12:10
Started October 21, 2014 at 12:10
Ive been on Warfarin for about 6 months. About 5 months into it Ive developed sparadic skin rashes on my hands and arms. They are about 1/2 inch big.Scratching lightly. Initially, I tought it was masquito bites...but they are not. Anyone else with this problem?

0 replies...

tattoo's on warfarin!
Posted by chir jones
Last Reply October 21, 2014 at 12:02
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

84 replies...

second clot, what will happen?
Posted by mmims
Last Reply October 21, 2014 at 11:07
Started October 20, 2014 at 14:04
Hi, I had first DVT about 5 years ago. Just been to hospital today with new leg pain for nearly two weeks, some swelling ect and I have had a positive d dimer again. Scan tomorrow.
I'm all nervous again but I'm just wondering now if this means long term anticoagulants?
I was on warfarin last time and heparin during pregnancies but they have put me on Riboboxan? Today.
Does anyone have experience of this anticoag?

11 replies...

d dimer positive because of menstruation
Posted by mimms
Last Reply October 21, 2014 at 07:38
Started October 21, 2014 at 07:38
I went for scan at dvt clinic today after a positive d dimer (0.87?)
Nothing found on scan even though leg has been painful for nearly two weeks and is swollen. I also have had a previous dvt in the same leg 5 years ago....
Anyway nothing found on scan so they've put it down to 'muscle pain' (anyone else had this really annoying patronising outcome?!)
When I asked why my d dimer was high they said it was because I wan my period?
I know it can be high in pregnancy so is this really a possibility?

0 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply October 21, 2014 at 06:16
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

144 replies...

Posted by ShelleyPip
Last Reply October 21, 2014 at 03:07
Started October 21, 2014 at 03:07

Описание: Эмма Харди разработала новаторский подход и создала новое направление по уходу за кожей "Великолепное лицо". Ее программа учит Вас, как подтяl... read more

0 replies...

xarelto and hair loss
Posted by Jessie
Last Reply October 20, 2014 at 14:35
Started October 17, 2014 at 05:08
I suffered bilateral pe's shortly after
the induction of anesthesia for a gall
bladder surgery. I was started on
coumadin in the hospital. The drs wanted
to switch me to Xarelto, selling it as a
wonder drug.

Since taking it, I've experienced terrible
hair loss. (I was at work the other day,
took out my pony tail and ran my fingers
through my hair. I threw away the
resulting clump. My friend came over to
talk, saw the hair and wanted to know why
I cut my hair at work).

Has anyone else had this issue? After a
discussion with my drs, we're switching
blood thinners. I hope the hair loss

3 replies...

Hematoma after clexane injection
Posted by Mel
Last Reply October 20, 2014 at 08:13
Started October 28, 2011 at 08:37
i am currently on clean injections for my DVT and have been going well so far, though i
think i may have developed a hematoma after one of my shots.
has anyone else experienced this and how long before it goes away??

10 replies...

Can Activity aggravate a clog and risk PE?
Posted by Carl
Last Reply October 20, 2014 at 06:37
Started May 21, 2010 at 13:25
I have had an extensive DVT up to mid thigh for about 3 months now and started treatment 2 weeks ago after a scan. I feel concerned that if I am walking, cycling and bending my leg that it might aggravate the clot causing it to break off thus giving me a PE. But doing no activity at all would surely make it worse. The nurses just tell me to do gentle exercise half hour a day but they are reluctant to answer most of my questions. They just tell me all will be fine and not to worry. The GP also says this as a PE is very rare.
So does activity aggravate a clot?

Thank you in advance for your answers!

5 replies...

Posted by DANIELLE
Last Reply October 20, 2014
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

161 replies...

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