DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Risk of old clot traveling?
Posted by Will
Last Reply April 1, 2015 at 20:17
Started March 21, 2015 at 14:56
I tore a MCL and then formed a blood clot. The doctor has me on blood thinners
which I realize prevent blot clots from forming and growing larger. But I also
understand it takes months for the blood clot I have to dissolve. Aren't I therefore
at the same risk of the blood clot breaking free and traveling to my head and
lungs that I was before going on the thinners? I mean the clot is still there, so it
could break free at any time correct?
Pretty scary, so any feedback would be greatly appreciated!

Will

2 replies...

LUPUS ANTICOAGULANT
Posted by CLAIRE
Last Reply April 1, 2015 at 18:51
Started January 28, 2010 at 15:16
I saw my hema Dr today for a follow up and was told I tested borderline for the Lupus anticoagulant,he wants to test it again in August and do another ultrasound as my one done last week showed the clots still there,but with good blood flow ,there is a possibility I may have to stay on Coumadin for life,which is ok,I have come to terms with this,in my opinion its no different to a diabetic taking insulin every day, the alternative doesn't appeal to me.

Does anyone else have this Lupus anticoagulant thingy ??

22 replies...

Leg cramps
Posted by Juliet
Last Reply April 1, 2015 at 17:07
Started June 29, 2009 at 23:14
Hi all, recently ive been experiencing some painful cramping in my left thigh. The pain
goes from the top of my knee and shoots up my thigh, the cramp always seems to be
there, although it peaks and its very painful. Its always in the one leg, the right one,
which is were my large clot was. It got so bad, i was crying last weekend and ended up
in A&E, they told me it was muscular and to go home and take some paracetamol. Ive
had the pains again yesterday and today. Im on Warfarin for life. Im just wondering if
anyone else has experienced this type of pain? Thank you.

8 replies...

Just released taking Previscan
Posted by Lore
Last Reply March 31, 2015 at 13:35
Started March 18, 2008 at 19:10
Hi,

I was just released from the hospital today after suffering from multiple small DVTs throughout my left leg and a minor PE. I am 35 years old and otherwise healthy. I was taking low dose estrogen birth control pills and had taken two 6 hour flights over 2 days. I am American but living long term in France and I am currently taking 5 mg of Previscan. I understand that Previscan is widely used in France, but not so much elsewhere. Does anyone have any experience with this drug? Any side effects or things to be concerned about? Also any advice for dealing with my condition? I have not yet had a chance to see what my mobility limits are but the swelling has gone down considerably in my leg and I am getting around my apartment without much trouble or pain. I felt a little winded when I went up the stairs quickly.

Thanks, Lore


56 replies...

Warfarin headaches
Posted by Claire
Last Reply March 31, 2015 at 12:02
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

79 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply March 30, 2015 at 18:32
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

69 replies...

dvt in the arm
Posted by Laura
Last Reply March 30, 2015 at 14:03
Started February 10, 2011 at 21:39
hi,
i have a blood clot in my arm and has been on warfarin for 2 months. it has took the whole 2 months to get my inr to 2.2.
after the first month of being on warfarin my arm swelled and got really heavy so i had to go back 2 hospital, this was because the doctors had not given me the correct dose and my inr had come down to 1.3 but should of been 2.5, so the clot had no treatment for 2 weeks which caused the clot to get bigger.
after 2 months i still get swelling and heavyness in my arm every morning and if i do alot with my arm it swells and get tingly. as i am only 24 if i have any problems i struggle to get an answer from the doctors cause they say i am a guinea pig for them cause they have not had any one so young to get a clot and normally people get them in there leg and not in there arm.
is there any 1 else out there that is young and has one in there arm.
im sure there is more than just myself.

25 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply March 29, 2015 at 20:45
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

522 replies...

PE and drug interactions
Posted by Mike day
Last Reply March 29, 2015 at 13:10
Started March 29, 2015 at 13:10
Hi all, six months ago l had two coronary stents fitted to my arteries, and was
prescribed 20 msg of an anti platelet drug called Prasugrel to be taken Dailey.
Unfortunately this caused a bleed in my bladder (probably due to prostate
surgery six years ago)
I was admitted to hospital and catheratised and spent 6 days having my bladder
irrigated to clear the blood.
On the 7 th day they finally took me to theatre where they cauterised the prostate
and stopped the bleeding.
Unfortunately l developed a pulmonary embolism whist in hospital and given
claxine to inject into my stomach for 8 days and put on Warferin.
At present I am taking 5.5 Mgs of Warferin and will have to take this for 6 months.
My cardiologist wants me to carry on taking Prasugrel for a further six months
because he is worried about my two new stents blocking up.
I would gravely appreciate any input on this posting as I am not sure if anyone
else has similar problems or any thoughts on how likely ... read more

0 replies...

switching from warfarin to lovenox
Posted by Elaine
Last Reply March 29, 2015 at 02:18
Started March 26, 2015 at 20:14
My hematologist wants me to switch from the warfarin my primary prescribed to lovenox. I picked up the lovenox today but realize I don't know how to end one and start the other. Can anyone help?
Thank you

1 replies...

PERIODS ON BLOOD THINNERS
Posted by DANIELLE
Last Reply March 28, 2015 at 22:11
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

209 replies...

how long does the pain in the leg last
Posted by Angela
Last Reply March 28, 2015 at 20:02
Started July 3, 2010 at 21:38
i had dvt in my left leg abt a week ago and was hospitalized for 5 days, am now on warfarin. i would like to know how long it will take for the pain in the leg to go away cos the pain is simply unbearable. would also like to know when i can go back to work. has any one gone through the same out there. pls help

45 replies...

Any alternate for warfarin for DVT & Hughes
Posted by kelly
Last Reply March 27, 2015 at 16:32
Started March 27, 2015 at 16:32
Hi, I am 28 years old, after 2 severe dvt incidents and
pulmonary embolism, I was detected with anti phospho lipid
antibody syndrome or hughes syndrome.prescribed lifelong
warfarin.i would like to know if there are any alternates to
warf.i am getting planning to get married and start a family
soon. Any solutions? Pls suggest.

0 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply March 27, 2015 at 12:25
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

180 replies...

Coping with post DVT pain
Posted by Iestyn
Last Reply March 27, 2015 at 09:48
Started June 25, 2010 at 15:27
Hi I had DVT in December 2008 and thankfully do to treatment it was cleared up. Unfortunatly for the last year or so I've been suffering from pain in the DVT afflicted leg. The pain sometimes feels like heat, othertimes a dull ache or sometimes a combination of the two. It's really starting to get me down now. I was given knee high compression socks but I find them very uncomfortable and they dont really help the pain. Any advice would be most welcome.

Thanks

6 replies...

DVT Leg Medical Display
Posted by Jim
Last Reply March 26, 2015 at 14:07
Started March 26, 2015 at 14:07
Does anyone know where I could get a model leg showing DVT for an educational event in
the Los Angeles area? Ideally, it would be a rental or something we could borrow for a one
day event.

Thanks for any suggestions!

0 replies...

still have dvt after 7 months
Posted by jackie
Last Reply March 25, 2015 at 17:50
Started March 25, 2015 at 17:50
I was diagnosed with a dvt (groin to knee)
last August when I was 12 weeks pregnant.
my new doctor just sent me for an
ultrasound to see if the clot's still
there and sure enough it is. Our plan was
for me to go off blood thinners on tuesday
so we could then test my blood 2 weeks
after to see what caused the dvt to begin
with. Now I'm scared and don't know what's
going to happen. I go in on the 1st so I
guess I'll discuss all of this with my
doctor but I was just wondering if people
with similar situations ended up on
thinners for life? And what happened with
the coot?



0 replies...

Sex drive and warfarin
Posted by Lucy
Last Reply March 25, 2015 at 15:31
Started January 14, 2010 at 01:12
Hi...
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,
Lucy

78 replies...

Greenfield filter pain
Posted by marie
Last Reply March 25, 2015 at 13:08
Started March 9, 2008
Hi there, I was recently diagnosed with May-Thurner and Factor II mutation complicating the matter. I had a procedure done a couple of days ago to place a stent in the iliac vein and a greenfield filter in my IVC. Has anyone experienced severe right flank pain after having the greenfield filter put in? My doctors did a CT scan to make sure that there was no internal bleeding and it looked normal. They suggested that the pain may be from the procedure or the filter. Thank you for your input

33 replies...

how soon can I fly after a dvt
Posted by marie hall
Last Reply March 22, 2015 at 22:40
Started April 4, 2006 at 15:57
I am taking doxium 500mg 2 a day and 1 aspirin a day, have been on clexane injections for 8 days 2 to go and I have finished

thankinf you in advance


68 replies...

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