DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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How long does it take for the clot to go away?
Posted by Sue
Last Reply September 30, 2014 at 21:33
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

93 replies...

Sex drive and warfarin
Posted by Lucy
Last Reply September 30, 2014 at 14:50
Started January 14, 2010 at 01:12
Hi...
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,
Lucy

75 replies...

PAIN WHEN WEARING COMPRESSION STOCKINGS
Posted by JACOB
Last Reply September 30, 2014 at 14:48
Started March 28, 2012 at 22:30
Hi everyone. Im Jacob, age 29. After the last DVT in January 2012 (4th
in my life) I was put on warfarin for a life-time. I was also advised
to wear those bloody compression stockings. Everyone says they are a
must, and they do the job. But I just cannot wear them.

I got one in Poland and I could not wear it at all. It caused a pain.
The skin around my ankle is already very soft and I felt very
uncomfortable after 20 minutes of wearing that bloody sock !

And now Im living in the UK... they gave me another sock. The leg was
measured etc. but unfortunately it is the same thing. Pain and pain.
It makes more pain than it is without that stocking.

Has anyone experienced that as well ? What should I do? If I don't
wear that stocking, is it gonna be more harmful for me ?

Pls help !

22 replies...

XARELTO
Posted by Zeb
Last Reply September 29, 2014 at 19:32
Started October 2, 2012 at 04:29
Folks Xarelto is so much better than Warfrin! Less side effects no INR checks ever! It has been shown to be more effective at preventing specifically DVT's than Warfrin or Lovenox. It is approved in Canada all of Europe and most of Asia for DVT prevention. I hated Warfrin so bad I convinced my doctor to put me on Xarelto. Best decision ever. Ask/beg your doctor for Xarelto you will be happy you did!

35 replies...

Worried this is DVT, some help please?
Posted by Turneep
Last Reply September 29, 2014 at 12:29
Started September 18, 2014 at 05:19
Hi guys. Just found this forum this morning and had a quick read of 4 or 5 pages
and it's made me more nervous so I thought I would make a post. I am a 26 year
old male. I don't really have any risk factors apart from sitting down at a desk for
large portions of the day.

Anyway for the last week maybe even 10 days I have been having leg pains. I just
assumed it was an injured hamstring as the pain seemed to be mainly focuse on
the back of my thigh. But in the last few days the pain has been moving from calf,
to behind the knee. Back up to thigh etc.

Yesterday, I had no pain when I woke up in the morning. Nor did I have any pain
throughout the day until about 3pm when I sat at my desk for 3 hours. Then when
I got up the pain started again. It wasn't too bad. Manageable. This morning
however I was in agony walking to the train. The pain was all up the back of my
leg and at the front of my knee. The more I walked. The more the pain seemed to
ease.

Righ... read more

3 replies...

DVT and avascular necrosis
Posted by 39andhip :)
Last Reply September 29, 2014 at 04:31
Started September 27, 2014 at 01:17
Hi everyone - I'm happy to have found this forum. I semi-recently (almost three months ago) had hip surgery and, as a result, developed acute DVT. After four weeks of complaining about severe leg pain, I was finally diagnosed with a blood clot extending from my calf into my proximal femoral vein. I have now been on Xarelto for about two months, and my leg feels much better, which makes me think my clot is resolving. However, my hip pain is excruciating - worse than before the surgery - despite having a cortisone injection a few weeks ago. Since my doctor does not seem worried about this ("It will just take time!") I have been getting second opinions from Dr. Google. :) I was wondering if anyone here had DVT leading to avascular necrosis in the hip joint. It is just an idea that I have and was curious if anyone knew about a correlation between these two conditions. Or... if anyone has experience with DVT after hip arthroscopy and can comment on how it affected the recovery, I would l... read more

7 replies...

How Accurate Are D Dimer Tests?
Posted by Kerri
Last Reply September 28, 2014 at 22:51
Started February 1, 2011 at 20:59
I had a D Dimer test reccently due to pain in my groin it came back negative so the doctor sent me home with pain meds, I haven't taken them cause I hate taking pain medicine but anyways the pain is still there so I was wondering just how accurate D Dimer tests are could it have been wrong?

9 replies...

Swelling years after DVT
Posted by Jim
Last Reply September 28, 2014 at 22:04
Started March 25, 2010 at 21:43

17 years ago I was in a wreck and broke my leg and developed a DVT in ny calf. I had major problems with this leg swelling for months.I was put on Cumadin( for approx 6 mon.) after a week's stay in the hospital.
The leg continues to swell not nearly as bad and has some numbness.
Is this swelling normal ?I have to be very careful about some activities, socks/shoes I wear, standing. I have lived with the pain from this for years. I'm not very trusting of vascular surgeons.
Recently I had to have hip replacment,(due to a old injury) on the opposite leg and developed a small DVT in that leg. I am back on Cumadin, but there are no ongoing swelling issues in that leg.

Has anyone else had these issues YEARS after a DVT ?

6 replies...

First Rib Resection Experiences Please
Posted by Becks
Last Reply September 28, 2014 at 16:21
Started August 16, 2012 at 08:35
Hello,

I am a 26 year old active and otherwise fit and healthy female that was admitted to
hospital in January with a very swollen right arm (there was a 4cm diameter difference
from the left arm), it was a distinct purple/grey colour and all of the veins that were
hidden deeper under the skin were visible and the normally visible green veins were
almost protruding.

Turns out I had a 20cm clot running through my shoulder and down my arm in the
subclavian vein. I had surgery straight away to dissolve then vacuum out the clot with
good results. The specialists all tried to put the cause down to being on the pill even
through I had been on it for 10 years, it wasn't until after a venogram that showed my
vein was compressed in my thoracic outlet by the collar bone and first rib that we knew
I had a mechanical issue.

I was on warfarin for 6 months, have now been off it for 2 weeks. The problem is that I
am constantly experiencing a dull ache generally along... read more

5 replies...

lower leg dvt has it moved to my thigh
Posted by Lisa
Last Reply September 28, 2014 at 06:03
Started September 27, 2014 at 12:25
I was diagnosed with a dvt in my calf 5 weeks ago. Had problems with my
INR now 1.8. Had pains in inner thigh went to hospital now waiting for
a scan. They have put me back on clexaine injections. I am worried sick
incase some of the clot has broke away and on the move. The dr I saw
thinks it may have done. I am terrified. Has anyone has the same?

2 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply September 27, 2014 at 22:18
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

142 replies...

INR Changes
Posted by Helen
Last Reply September 27, 2014 at 14:49
Started November 18, 2009 at 19:10
Hi I had a clot in my left thigh when I was 29 weeks pregnant. Since having my baby in June I have been on warfarin and was told I would be on it for 6 months. My INR levels have been stable around 2 for most of the time I've been on it. In the last month my INR level dropped to 1.9 and now to 1.7 so I've had to increase my dosage. I don't know what may have caused this as I have not changed my diet. Can feeling stressed or an increase in exercise affect your INR. I was really hoping that I would be able to stop the warfarin next month but now I'm not so sure. Just wondered if anyone else had a similar experience and if they have any advice?


57 replies...

deer hunter
Posted by shadowgun
Last Reply September 27, 2014 at 12:35
Started September 27, 2014 at 12:35
Be the humanity's first hope as you brawl off endless flood of cosmic enemies. When your call of duty called you'll have to embark on an epic campaign while murdering dead invader bugs. The dead space has brought an earth assault and you are the only modern warfare frontline commando to kill it. Don't be afraid and strap a big shadowgun. Fighting and winning will be tiresome yet you can hold that finger on gun's dead trigger. As you proceed with the free fun you shall run in destroyed cities on the verge of doom. The modern warfare battlefield shall make you heed your call of duty. Stand your ground and use two guns at the same time. Post apo battlefield will require hard domination on the leaderboards. Live, die repeat. Win the fate's favor and defeat the hardly aggravating odds as you shall get on with your call of duty. This fps (first person shooter) experience will provide you with loads of free game on google play. Fight as the best terminator and alien deer hunter. The invadi... read more

0 replies...

Previous DVT in right leg, another in my left?
Posted by DVT25
Last Reply September 26, 2014 at 23:17
Started February 18, 2008 at 12:13
I am a 25 year old male. I was diagnosed with a DVT in my right let at the age of 19 since then it has went away but left damage in the deep vein causing some minor circulation problems but nothing like it was before. I can now walk freely without pain for long periods of time.

Recently I have a problem in my left leg. About 2 months ago i went into emergency with a very painful lump on the left side of my groin. At first the doctors thought it was a hernia, but later changed their minds and said it was a stone problem and after testing found that it was niether. The lump stayed but the pain went away so i left it alone. A couple days ago i went back into emergency with pain from the same lump but now is efecting my whole left leg. The symptoms are the same as my DVT 6 years before minus the swelling and discoloring. I cannot walk more then 100 feet without having to rest. I feel pain from my inner quad and groin. After resting for a couple minutes I can walk for another 1... read more

19 replies...

PERIODS ON BLOOD THINNERS
Posted by DANIELLE
Last Reply September 25, 2014 at 23:19
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

158 replies...

Occlusion of Common Iliac Vein
Posted by Essie
Last Reply September 25, 2014 at 19:25
Started March 28, 2010 at 11:48
Hello!!

In Oct 2007 I was diagnosed with a large Above-Knee DVT in my left leg following hospital stay for pneumonia. I was 34 at the time

On Warfarin for the usual 6mths, then told to continue wearing compression stockings for 2yrs.

Swelling symptoms & pain have been a feature of everyday life since then, I have changed my car to an automatic as driving was very painful & haven't been able to walk without pain since the clot.

My friend recently qualified as a community nurse & suggested that my GP refer me to a Vascular Surgeon to see if they could help me.

A Doppler & MRI later & I have been diagnosed with a complete occlusion of the left common iliac vein. I have been told that a bypass is not a possibility due to the pressure in my legs & the futher clotting risk, laser treatment/stenting is not possible to due to the occlusion being a solid mass of scar tissue. I have been told not to 'push' my leg, slow down walking & do upper body exercise only, as the vein... read more

33 replies...

how long does the pain in the leg last
Posted by Angela
Last Reply September 25, 2014 at 18:12
Started July 3, 2010 at 21:38
i had dvt in my left leg abt a week ago and was hospitalized for 5 days, am now on warfarin. i would like to know how long it will take for the pain in the leg to go away cos the pain is simply unbearable. would also like to know when i can go back to work. has any one gone through the same out there. pls help

40 replies...

warfine
Posted by william noble
Last Reply September 25, 2014 at 15:43
Started September 25, 2014 at 15:43
why am i busting a nut in 10 seconds now ???

0 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply September 25, 2014 at 11:21
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

53 replies...

Anyone had only 1 DVT and how long ago?
Posted by Sarah
Last Reply September 25, 2014 at 07:44
Started September 25, 2014 at 07:44
Hi, I am due to come off warfarin end of next month, they say it was caused from my contraception injection and possibly my brca1 gene. I cannot find any happy stories of people not having a recurring clot and I'm worrying about having another and being on warfarin for life. My first 7 weeks on warfarin have been horrendous, enflamed intestines, pressure all through my internal organs, couldn't function, nausea, hairloss, memory loss and pains throughout my body. Look forward to reading all replies

0 replies...

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