DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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when to go back to work with a PE?
Posted by peter
Last Reply April 25, 2015 at 22:39
Started September 24, 2008 at 18:06
Hi everyone, I work in the freight business … in the month of august I ve had an accident that occurred while I was unloading trailer’s , something came down on the back of my left knee and , in the meantime I was not doing bad , kept working I just had a few scratches nothing to be alarmed at, but after about a couple of weeks all of a sudden I ran out of breath… in the first place I thought it was a panick attack or something else like high cholesterol so I decided to check with my family doctor , I was told to go at the hospital immediately , get some blood tests, they made me do a Doppler for my leg and found out that I had a blood clot in the back of my knee and sinceI was having shortness of breath a ct scan was done to see if it had moved to the lungs.. the ct scan did reveal that I have several clots in my lungs…I got treated with 2 shots a day and 1 5mg coumadin pill …for a few days then after 6 days they stopped the shots and I resumed with 8mg for 2 days (inr 1,5) , n... read more

8 replies...

Posted by Laura
Last Reply April 25, 2015 at 19:21
Started April 25, 2015 at 19:21
Two weeks ago, I woke with a leg double its size and toes turning blue. Since
then, the swelling is coming somewhat down because of the Lovenox and
Celebrex. I still cannot wear any of my previous shoes though since my foot and
leg are still huge. Question: for a healthy 34 year old woman with a blood clot out
of the blue, how long can I expect my leg and foot to go back to normal?

0 replies...

Posted by DANIELLE
Last Reply April 25, 2015 at 11:39
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

216 replies...

Mirena, Xareleto, & Factor V Leiden
Posted by Alyssa
Last Reply April 25, 2015 at 08:33
Started April 24, 2015 at 17:11
I have Factor V Leiden and a history of 3 blood clots. I am currently on Xarelto. I
am considering Mirena for birth control but am not sure if it safe for someone
with my condition and history. Has anyone used Mirena with similar experiences?
Thanks for your helo!

1 replies...

Chronic exertional compartment syndrome
Posted by Kate
Last Reply April 24, 2015 at 13:22
Started April 24, 2015 at 13:22
Hi all- my vascular surgeon wants me to go for pressure testing for chrinic
exertional compattment syndrome. I am one year post distal dvt and he doesn't
believe my exercise intolerance could be due to distal dvt alone at this point.. I
get burning pain that does not relieve with elevation ( only a time bit) after any
exertion. The muscle just doesn't recover- even days after excercise... I never had
issues with tight compartments before dvt.. Any thoughts would be appreciated

0 replies...

paragard and coumadin
Posted by jackie
Last Reply April 24, 2015 at 05:29
Started April 24, 2015 at 05:29
I was placed on coumadin about a month ago
and have yet to have a period. Well today
I got paragard inserted and am very very
worried about how my periods are going to
be. has anyone had an ok experience with
theis combo, like u didn't bleed as much
as u thought u were going to?

0 replies...

lump at lovenox injection site
Posted by Claire
Last Reply April 23, 2015 at 16:03
Started April 3, 2010 at 23:04
I've still got a small hard lump at one of the injection sites that Ive had since
November . ocassionally it goes red ( about the size of a quater), it's not hot or
painful, I'm just wondering if anyone else has had this ??, I've still got some very
faint bruises aswell.

9 replies...

Why is high INR dangerous?
Posted by Michelle
Last Reply April 23, 2015 at 14:59
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.


35 replies...

Swelling a little with compression stockings
Posted by Leah
Last Reply April 23, 2015 at 12:44
Started April 23, 2015 at 12:44
Hello all- I am 1.5 years out from my dvts and still swell a bit. My dvt leg swells a
quarter inch while wearing my stockings. Do you find you still swell a bit with
your stockings? I was professionally fitted. My ankle runs on the large side of
small "and my calf runs on the the large size of medium. So the fitter thought I
should go with the medium size. I still have lots of pain whether or not I am
wearing the stockings. Thanks aheAd for your thoughts.

0 replies...

How Long for Pain?
Posted by Michele
Last Reply April 23, 2015 at 07:45
Started June 3, 2009 at 14:28
I am 32 years old and a very active person who was diagnosed with DVT in my right calf about 2 1/2 weeks ago. I was on lovenox for 10 days and am obviously still on coumadin. My question is, how long does it take for the pain to go away? I am still barely able to walk. And definitely unable to drive. My doctor doesn't seem worried and says to allow for a few weeks. I guess the pain gets slightly better each day, but it is still extremely sore and hurts to walk. Not to mention that when I do walk, I move so slowly because of the pain. I've been using crutches to get around too. Does this sound "normal"? How long does it typically take for the pain to go away?

Thanks so much for all your thoughts.


14 replies...

Posted by Laura
Last Reply April 23, 2015
Started April 23, 2015
10 days ago, I ended up at the hospital since I woke with my right leg twice its
size and my toes turning blue. After an ultrasound, blood tests, and a cat scan the
doctors told me I had a massive blood clot impacting all the major veins in my
right leg. I was put on Lovenox shots and Celebrex as well as pain killers. The
pain is subsiding but my leg and foot is still huge and I can't walk more than 30
metres. How long does it usually take for the swelling to go down.? As for cause
of the DVT, docs are not sure yet but are sending me for genetic testing as well as
screenings for cancer. I did fall down the stairs three months ago and now that I
think about it, I had pains in my leg after that. I'm scared about the potential for
cancer and I'm scared that I won't be able to hike and do the things I love to do
anymore. I am only 34 and was relatively healthy before this incident.

0 replies...

Hematoma after clexane injection
Posted by Mel
Last Reply April 22, 2015 at 20:52
Started October 28, 2011 at 08:37
i am currently on clean injections for my DVT and have been going well so far, though i
think i may have developed a hematoma after one of my shots.
has anyone else experienced this and how long before it goes away??

11 replies...

Hematoma in calf
Posted by Nickib
Last Reply April 22, 2015 at 15:18
Started April 22, 2015 at 15:18
Hello all. I was diagnosed with a dvt almost 2 months ago. I've been on lovenox
injections twice a day since then. Yesterday I noticed I have a hard red lump on
my other calf with a big bruise all around it. The red area is warm to the touchable
about 2 inches.
Is this just a normal part of being on blood thinners in that I bruise easily now?
Is there any telltale signs of when to call the dr or how to tell when a bruise
warrants a call to the dr? Thank you so much in advance.

0 replies...

Posted by jewel
Last Reply April 22, 2015 at 12:00
Started April 22, 2015 at 09:34
Hello I went to A&E last night as had mild calf and chest pain, my leg is not red or swollen and my chest pain seems muscular to me slight sharp pain when coughing but no shortness of breath?

I was a bit worried as googled calf pain when walking could be serious.even if mild.

The DR gave me full examination, blood test for clots, ECG, and chest Xray.

conclusion was blood test was boarderline, so as I am on HRT my pulse was fast ( due to nerves)I also have been inactive recently after a night in hospital. she has decided to give me blood thinners to take home and inject,to be safe...I have to go back for a scan in 3 days time to scan my leg and chest.

She said she is not sure if I have a DVT or not? but the injections wont be harmfull.

I am beside myself with worry my symptoms seem much the same but I have noticed today that when on my lap top I twist my leg to support my laptop and also sometimes hold it up on my left side where my chest discomfort is? maybe this is ... read more

1 replies...

intermittent pain on outside of right calf - s
Posted by jeanb
Last Reply April 22, 2015 at 05:10
Started December 20, 2008
I've just been reading messages on blood clots on this forum because I have been experiencing several times a day, a dull ache/pinching feeling sensation in right calf, on the outside and always in the same spot.

I have not been to a doctor and I am not taking any drugs at all.

What I have noticed is that the 'pinching/pulling' sensation happens in exactly the same place on the outside calf area and only the right leg. After a few times I marked a X on the area with a biro and it's always that same place!

I usually feel it when I'm sitting at the PC where most of my work is done or if I sit with my leg on a chair. I don't really feel it the same when standing or walking so is there anyone else with similar syptoms please?

My worst fears are a blood clot but there is no swelling, no redness and no warmth, which seems to be possible symptoms and the pain is what I would call fairly minor, but is intermittent and never lasts for long.

Someone said it might be nerve rel... read more

22 replies...

Posted by Shirley
Last Reply April 22, 2015 at 04:38
Started April 10, 2011 at 20:24
I am worried that I might have been misdiagnosed. I have been in constant excruciating pain for four months in mostly my left leg but also in my right leg to a lesser extent. The doctor just gave me tramadol and naproxen and wants to blame it on arthritis but the pain is nothing like anything I've ever felt before, I walk with a stick because I can't walk properly, I have pain in my calves, thighs, hips and groin area. How would I know if this is a DVT and what happens if it doesn't get diagnosed?

16 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply April 22, 2015
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

183 replies...

Do these symptoms suggest DVT risk?
Posted by Ross
Last Reply April 21, 2015 at 17:01
Started April 21, 2015 at 17:01
Hi, 4 months ago I had sclerotherapy in both lower legs to treat
varicose veins, and about a month after I had a really nasty bout
of phlebitis (could hardly walk). This, after being given strong
anti-inflammatory meds, gradually subsided.

In the last couple of weeks I took a coach trip (3 hours of
sitting) to visit a friend. We spent a lot of time sitting
chatting or in the cinema (more sitting...although there was
walking in between), and upon my journey home my legs were both
aching/hurting behind my knees. I put it down to where the
compression stockings I now wear daily were gripping, and again
the ache subsided.

Now a week later, following a brief walk last night, I developed
an ache in my lower left leg. It seems to cover the area on the
lower, inner, back of my leg and goes from my Achilles to as far
as my lower calf, although I've had the odd twinge further up. The
back of my lower leg also feels tighter than normal. I get
intermittent ac... read more

0 replies...

Posted by Lisa
Last Reply April 21, 2015 at 10:04
Started August 23, 2007 at 20:38
Is anyone taking Nattokinase or know of any side effects of taking it. I just want to hear straight from a person whose taking Nattokinase what it's like. I found this site

about it and I can't seem to find anything bad about it. I just want to know anyone whose currently taking it, what you think about it and what kind of side effects you have had from it?

163 replies...

DVT after surgery
Posted by Paul
Last Reply April 20, 2015 at 18:32
Started April 17, 2015 at 05:45
Ill try to make this short.

I recently had spinal surgery done. They did a great job because i can already feel my back getting stronger by the day. However, i did have a complication called DVT. I never heard of this before and was shocked when they told me.

They gave me shots in the morning and evening for a week. I was told that these were blood thinners.Then i was put on pills apixaban 10mg in the am and 10 in the pm for 5 days. now 5 mg in the am and 5 in the pm.

I thought these would make my blood thinner and thus dissolve the blood clots.

Now, I'm reading all these stories online and it is shocking. These pills don't do any of that. They only prevent me from getting new clots.

I'm sure we are not all the same. For instance, i never had swelling, my calf just became really hard. I had pain in any position i would be in...standing..sitting...lying.

Now i don't have pain when lying down. my calf is soft as it always was, but i still cannot walk normal. Sta... read more

7 replies...

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