DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Tracking Vitamin K
Posted by Pavan
Last Reply January 26, 2015 at 19:40
Started January 26, 2015 at 19:37
www.INRTracker.com just launched a free vitamin k tracking tool. What have you
been using to track your vitamin k?

There are these pages to quickly search:

http://inrtracker.com/food_categories/vitamin-k-in-vegetables-and-
vegetable-products

http://inrtracker.com/food_categories/vitamin-k-in-baked-products

1 replies...

Sauna/Steam room
Posted by Bill
Last Reply January 26, 2015 at 19:32
Started April 4, 2011 at 11:32
Does anyone know if it is ok to go in a sauna or a steam room when on
warfarin, would intensive sweating lower INR ?

5 replies...

Tooth extraction while on warfarin/coumadin
Posted by Michael
Last Reply January 26, 2015 at 19:25
Started October 30, 2008 at 14:14
Hi guys,
Just want to know if anyone of you had experienced tooth extraction while on warfarin/coumadin? Is the risk of bleeding too high?
Because I have a severely painful tooth which I wanted to be extracted asap. I am on my 3rd month of warfarin. My hematologist wants me to finish to 6 months.
Thanks!
Michael


61 replies...

XARELTO
Posted by Zeb
Last Reply January 26, 2015 at 18:41
Started October 2, 2012 at 04:29
Folks Xarelto is so much better than Warfrin! Less side effects no INR checks ever! It has been shown to be more effective at preventing specifically DVT's than Warfrin or Lovenox. It is approved in Canada all of Europe and most of Asia for DVT prevention. I hated Warfrin so bad I convinced my doctor to put me on Xarelto. Best decision ever. Ask/beg your doctor for Xarelto you will be happy you did!

39 replies...

Go to doc or not?
Posted by Luz
Last Reply January 26, 2015 at 18:34
Started January 26, 2015 at 13:34
Hi all- I was hoping to get the opinions of some people who have experience with
DVT.

I have a protein C deficiency, so I'm at a heightened risk of developing clots. Last
night I got a pain in my left calf that hurt worse when I stood up and made me
limp. I don't remember hitting my leg on anything. The pain is still there today
plus my thigh feels achy.

I have no other symptoms- no redness or swelling.

I would normally wait at least a while longer before thinking about going to see a
doc (who I think will send me to the ER). But, I'm we're expecting a big blizzard
here so If I don't go within the next few hours it may be another 24 hours before I
could get to a doctor. This changes my risk calculus a bit.

What would you do? Thanks!!!!



1 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply January 25, 2015 at 12:32
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

522 replies...

Confused and still no answer
Posted by Jeff
Last Reply January 25, 2015 at 11:00
Started November 7, 2014 at 05:47
Long but want to explain it all. On Oct 25th I noticed swelling and an irritated
feeling in my leg. I had an ultrasound done at the ER on the 27th I think. Went
back to the ER on the 29th and they just said it was muscle and skeletal pain.
Problems and swelling persisted so I went to a different ER Friday the 31st and
they did an ultrasound and didn't find anything. Wednesday the 5th I went back to
that same ER and they did another ultrasound and a ddimer. Doctor said Ddimer
was normal <150 I think and the ultrasound said phlebitis. Yesterday had trouble
breathing and went to another ER as I was traveling for work and they monitored
my heart for awhile and did blood tests which everything was normal including
ddimer which again was <150. Said the swelling was probably phlebitis as the
other hospital stated and that an injury I had month ago combined with this
recent job that is sitting and driving lots has made things more prevalent. I just
don't know where ... read more

22 replies...

PERIODS ON BLOOD THINNERS
Posted by DANIELLE
Last Reply January 24, 2015 at 17:01
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

189 replies...

Pulmonary embolism survival rates thes days!
Posted by Ali
Last Reply January 24, 2015 at 04:58
Started December 22, 2008 at 16:08
I wasn't sure how to title this but wanted to say that I lost my mum 32 years ago, (who I never ever remember her having any illnesses whatsoever) after she took ill with leg pain one day, she phoned the doctor who sent her to hospital and 36 hours later she very sadly passed away as the clot had moved to her lung.

What has changed from then until now regarding the treatment of a blood clot? My mother had never been ill in her life but suffered with varicose veins so presumabaly the blood clot stemmed from that!

I have read so many posts on here where people have DVT, clots etc and receive treatment and survive what would have killed someone 30+ years ago but I suppose it's like everything, medical research just progresses all the time.

I would be interested in hearing what anyone has to say and if they know people who died several years ago and who would probably easily survive these days!

Thanks Ali



46 replies...

crystal meth and dvt
Posted by ron
Last Reply January 23, 2015 at 22:41
Started November 7, 2008 at 16:33
I started experimenting with meth about 3 monthsago I wanted too see what all the fuss was about. Wow What an amazing rush. you feel invincible ten times better than coke lasts longer and is 1/4 the price . Sound good ? Think again two days later you go into a horrible deppresion.nothing can cheer you up insanely horrible dreams and to top it of I was addmittted to emergency with blinding pain in my big toe . turned out to be deep vein thrombosis in my foot. I am convinced this was caused by the corrosive action of the smoke on my lungs... bottom line i had to have my toe amputated. I am recovering alright i guess but i wish i could incinerate every fragment of that drug that exists. this shit is pure and absolute poison i wouldnt use that for $100,000 just my experience hope it helps someone

40 replies...

septic pencil
Posted by nell
Last Reply January 23, 2015 at 18:14
Started January 23, 2015 at 18:14
can you use a septic pencil to stop bleeding from tooth extraction
Has anyone tried that?


0 replies...

Is the Willow Curve laser o.k.?
Posted by Marilyn S.
Last Reply January 23, 2015 at 16:26
Started January 23, 2015 at 16:26
After a fall on my arthritic knee 1 mo. Ago, I got a small DVT in that calf. I was taken
off xeralto after blood pooled in leg. No longer swollen but knee pain. Would the
clot be affected if I tried a Willow Curve Anti-infllammatory Smart Laser? Could it
make it break loose and travel? Please answer asap. THANK YOU! MARILYN

0 replies...

Is the Willow Curve laser o.k.?
Posted by Marilyn S.
Last Reply January 23, 2015 at 16:20
Started January 23, 2015 at 16:20
After a fall on my arthritic knee 1 mo. Ago, I got a small DVT in that calf. I was taken
off xeralto after blood pooled in leg. No longer swollen but knee pain. Would the
clot be affected if I tried a Willow Curve Anti-infllammatory Smart Laser? Could it
make it break loose and travel? Please answer asap. THANK YOU! MARILYN

0 replies...

Unknown Cause of DVT and PE
Posted by Amber
Last Reply January 23, 2015 at 11:13
Started January 23, 2015 at 11:13
My husband has been in and out of the hospital 6 times from the last day
of August 2014 to Thanksgiving day 2014......it started as a small blood
clot in leg.....which they say caused his PE's....then the small blood
clot grew into to a DVT that runs the entire length of his leg. They
have him on coumidon 15mg and 10mg alternating.....they say they do not
know what has caused any of his problems and can not run any blood tests
until he is off blood thinners but cant get off of them because of
DVT....there is no history of blood clots in his family, he has Crohns
also....does anyone have any info that could help us out?

0 replies...

Your symptoms?
Posted by Michelle
Last Reply January 23, 2015 at 06:41
Started September 19, 2010 at 01:46
I am going to the Dr. in a couple of weeks. But I was wondering what were your symptoms of DVT?

I noticed about two months ago I started having cramping in my right calf. My husband would rub it and it would go away. Now it is a constant aching, cramping, fluttering, throbbing feeling through out my leg all day on and off. It doesn't hurt when I stand on it or put pressure. I did the whole bending my foot up to check and see if I felt pain when stretching and I only just felt the pull from stretching not a sharp distinct pain. Basically my muscles felt really right and it almost felt hard to stretch. I don't have redness or bruises. But one thing that does concern me is on the back left side of my right calf there is a pea size lump. It doesn't really hurt but of course my whole back of my thigh has been hurting so its part of the pain. Feels like it is by a big vein.

I honestly feel the throbbing/twitching feelings when I sit on my bed at night the most. Like I said I feel it... read more

45 replies...

Clot in inner vena cava
Posted by Ryan
Last Reply January 23, 2015 at 03:29
Started January 22, 2015 at 23:49
42 year old male with a 8" clot,(solid as bone), in the inner vena cava starting just
above the illeac. Can a filter be placed in and clot removed?

1 replies...

post natal DVT
Posted by CherBee
Last Reply January 23, 2015 at 01:20
Started January 23, 2015 at 01:20
My daughter gave birth to her 3rd child, first daughter, a month ago and a
few days ago went to the ER with a swollen and pinkish left leg. She was
diagnosed with a DVT in her femural vein in her upper left leg near the
groin. She is on shots and coumidin right now. She is also part time nursing
her baby. They want to give her something new that is stronger but said she
would have to stop nursing as they don't know the side effects. She is
pretty stressed about all of this. Any advice? Anyome have this experience.I
am so worried about her on so many levels. She is 34 and slightly
overweight. This was after her 3rd C section.

0 replies...

How aggressively should I start exercising?
Posted by Fred Doors
Last Reply January 21, 2015 at 19:23
Started January 7, 2015 at 14:31
After "muscle pain" that wouldn't go away over xmas, 2 days ago I got
diagnosed with DVT, a nonocclusive clot in the popliteal vein, right
behind the knee.

I started warfarin yesterday, and am 48 hours into the lovenox
injections. So far, I see pretty much no improvement: I can't walk,
only limp around (can't fully extend my leg), and anything but
sitting or lying down with my leg in the air quickly becomes painful
because of the pooling blood.

I guess that's normal, reading around I don't see any people talking
about improvements until at least a week has gone by. My question is,
how aggressively should I start exercising my legs? Should I wait
until I can walk mostly normally again, or should I take "limps
around the block" now?

What about activities that involve bending the knee? Given the
position of the clot, I'm scared that anything that requires a lot of
knee bending (e.g. cycling) might cause the clot to break, and I'd
very very much like ... read more

15 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply January 20, 2015
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

170 replies...

Inr dropping
Posted by Mayra
Last Reply January 17, 2015 at 15:15
Started January 14, 2015 at 07:35
So I went into the er 4 days ago for a faint leg pain my gp shrugged off after a
negative d dimer result. I wanted to clear my concern with a cat scan and lo and
behold I have a dvt on my left leg. I was admitted to the hospital and have been
on lovanox shots and cuomodin. However my pain since being here has
worsened and is now in my right leg. They're not concerned bc I'm on treatment,
and my levels went up 1.8 the second day, and 2.1 yesterday. However this
morning I'm at 1.5! What does this mean yes my clot is getting bigger and
developing more?? I'm so scared right now and just don't trust what the doctors
are telling me, which is that I'll be fine.

3 replies...

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