DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Stents in the Iliac Vein and exercise
Posted by Donna
Last Reply March 24, 2017 at 19:11
Started April 20, 2008
Hello,
Are there any restrictions to do strenuous exercises if you have stents in your Iliac Vein (Abdomen)?

13 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply March 24, 2017 at 17:10
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

538 replies...

Green Relief in USA
Posted by Green Relief
Last Reply March 24, 2017 at 01:15
Started March 24, 2017 at 01:15
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0 replies...

How long does it take DVT swelling to go down
Posted by Lucy G
Last Reply March 23, 2017 at 19:57
Started January 1, 2012 at 13:19
I developed a DVT in September after I sustained some serious knee
damage which left me very immobile. Despite me seeing the doctors
about it a number of times it wasn't diagnosed until I had a PE, about
4 weeks after the leg swelling started. They did a dopler scan and
said there was a clot behind my knee and started me on warfarin which
has delayed my surgery to fix the original knee injury. It is still
red and swollen (especially my foot) if I don't wear a support
stocking and the nurse at the DVT clinic said it would probably always
be a bad leg but that she wouldn't do a repeat scan. What I want to
know is whether it is likely to improve at all now or whether it will
be like this forever. Might it improve a little as the months
continue? I am hoping that once my knee is unlocked, that might help
but I can't get any information from anyone.

15 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply March 22, 2017 at 18:39
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

93 replies...

bruising while on warfarin
Posted by suzanne
Last Reply March 22, 2017 at 18:27
Started September 14, 2009 at 19:41
Was just wondering why you get asked when go for inr test if you have any unexplained bruising?I have noticed today that i have 3 small bruises on my dvt leg,but cant remember knocking my leg.

62 replies...

crystal meth and dvt
Posted by ron
Last Reply March 22, 2017 at 12:01
Started November 7, 2008 at 16:33
I started experimenting with meth about 3 monthsago I wanted too see what all the fuss was about. Wow What an amazing rush. you feel invincible ten times better than coke lasts longer and is 1/4 the price . Sound good ? Think again two days later you go into a horrible deppresion.nothing can cheer you up insanely horrible dreams and to top it of I was addmittted to emergency with blinding pain in my big toe . turned out to be deep vein thrombosis in my foot. I am convinced this was caused by the corrosive action of the smoke on my lungs... bottom line i had to have my toe amputated. I am recovering alright i guess but i wish i could incinerate every fragment of that drug that exists. this shit is pure and absolute poison i wouldnt use that for $100,000 just my experience hope it helps someone

45 replies...

Possible returning blood clot
Posted by Nick
Last Reply March 22, 2017
Started March 14, 2017 at 11:47
In July 2015 I was not feeling well. My leg was hurting and there
was some swelling and a warm to touch spot. My wife (a nurse)
woke up in the middle of the night and told me she thinks I have a
blood clot. A week later, I finally I went to the Dr because I
was having chest pain and they told me that I had FOUR PEs, two in
each lung. Fast forward to present...I have been having leg pain
starting my my ankle and it has worked its way up to my groin.
After a week I have started getting a cough and chest pain. I
went to the ER and they did a D Dimer and it came back no clot.
Previously, my clots has "landed" in my lungs and were not moving.
Not not feeling and better and have chest pain....any thoughts? My
D Dimer was 120 so they did no scan or ultrasound.

2 replies...

Elevated d dimer w/out cause??
Posted by Chris
Last Reply March 21, 2017 at 13:06
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

73 replies...

PERIODS ON BLOOD THINNERS
Posted by DANIELLE
Last Reply March 21, 2017 at 11:23
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

374 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply March 20, 2017 at 21:19
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

262 replies...

Femoral vein bypass surgery
Posted by Don
Last Reply March 20, 2017 at 15:55
Started August 2, 2008
What does anyone know about using your Saphenous vein, cadaver or a synthetic to bypass the bad portion of vein that the clot is in and/or the valves are destroyed?
Anyone had this done, thinking about it or have any info on it?

13 replies...

DVT Doctors in Mumbai
Posted by Saj
Last Reply March 20, 2017 at 10:58
Started November 6, 2009 at 06:48
Hi

I would like to consult DVT specialists Doctors in Mumbai. I have only come across cardiovascular surgeons and would like to know of someone who has past experience of dealing in complicated DVT cases.

Regards

Saj

5 replies...

Long term use of clexane injection
Posted by Kellie Green
Last Reply March 19, 2017 at 17:26
Started May 18, 2008 at 18:49
Hi everyone
I have had 2 dvt's and a few years ago multiple clots in both lungs.
Warfarin was not agreeing with me and made me feel really ill - they were putting my dose higher and higher and my inr was not coming down.
I have now been on clexane for nearly 3 years with a 40mg injection daily - I just wondered if anyone else out there is on clexane injections long term as my haematologist does not know of anyone else in the same situation as me.
I am also on a high dose of calcium as one of the possible long term side effects (although they do not have enough research yet to benchmark) is osteophorosis - as im only 38 and have three kids needless to say I am quite concerned about the future - would be really grateful for anyones advice.
Incidentally, I have sporadic episodes of positive anitcardio lipins blood tests ?
Thanks - Kellie :-) x

107 replies...

Warfarin and Chloramphenicol (red eyes drops)
Posted by jordi77
Last Reply March 18, 2017 at 17:30
Started March 18, 2017 at 17:30
Hi,

I was diagnosed with a DVT in my left arm 6 weeks ago. After reaction to Apixaban, I have been on Warfarin. I take now 9 mg/day and my last INR (6 days ago) was 3.2.

Since the reaction to Apixaban, I've had some red veins in both my eyes. After waiting a few weeks for this to disappear, it hasn't. Three days ago I consulted my GP, who gave me a prescription for Chloramphenicol eye drops (0.5% w/v) twice a day. I could see that when he chose the medicine, the computer flag a pop-up with warning signs, which he quickly closed. I asked if this medicine was ok with Warfarin, to which he said yes.

However, I have now seen online that it is not recommended to take this (there's a review article from 2005 in JAMA Archives Internal Medicine) as there is possibly a moderate interaction. I am now concerned, and unsure to put on the drops or not. I have my next INR test scheduled for monday.

Anyone has been on these eye drops (which contain an antibacterial) while on Warfarin?

0 replies...

Foot pain and swelling
Posted by Susy
Last Reply March 17, 2017 at 22:32
Started August 3, 2010 at 08:02
Has anyone experienced this after a DVT? I had my DVT back in December/Jan and am now off Warfarin. Everything has been fine up until a week or so ago when I started having this foot pain, worse in one foot than the other. It has gradually been getting worse and my feet feel really heavy and painful.

20 replies...

High Doses of warfarin
Posted by Sharon
Last Reply March 17, 2017 at 19:29
Started February 6, 2010 at 17:58
Here I am again my daughter is 19 and on 10/11mg daily she is bleeding heavily (constant period) but blood levels are good at 2.3 never been higher than 3.5 - Does anyone else take such large doses??

31 replies...

Greenfield Filter
Posted by Lisa
Last Reply March 17, 2017 at 03:40
Started June 10, 2008 at 23:06
Does anyone have a greenfield filter? Would like some info on it. I have one and it is occluded

68 replies...

Warfarin headaches
Posted by Claire
Last Reply March 16, 2017 at 07:50
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

100 replies...

lifetime clots
Posted by will
Last Reply March 15, 2017 at 14:44
Started March 15, 2017 at 14:44
hello
i was in a car accident back in 86. spent two months at duke hospital. while
there i was diagnosed with blood clots. doctors put me on coumadin for 6
months.
Back in 2001 i fell off the roof of the house. didnt break or hurt anything. a
month later i was in ICU with DVT and clots all up my legs and waist. Doctor at
the time mentioned something about me not having an IVC.
Last year i had wrist and knee surgery. in November last year i went to doc
about tenderness in my waist area. come to find out i had superficial clots. I
have been taking warfarin for 20 years at this point. New doc put me on eliquis
for 3 months. in December i went back to Head of Vascular at local hospital.
(doc who saw me when i was in ICU) He knew my clotting history, with more
clots in groin area. He put me on Lovanox for a month. Last month they did an
Endoscopy to see if there were any veins to put stents in to help the flow. He
went up my leg and down my neck and couldnt find... read more

0 replies...

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