DVT deep vein thrombosis forum |
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Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.
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Vascular surgery to remove hardened blood clot
Posted by Jim |
Last Reply May 20, 2012
at 04:27
Started May 9, 2012 at 20:47 |
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I have DVT in the left leg, was given Warfarin as my only treatment. Three months later, I was discharged by a vascular surgeon, told to wear a sock and "handle it." WEll, I am not going to "handle it." I will now get a second opinion and will not back down until I find a vascular doctor and an interventional radiologist to remove the hardened clots in my leg. Could anyone share their success stories regarding surgery to remove hardened blood clots? |
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16 replies... |
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Prickly Rash on Feet post DVT
Posted by CJ |
Last Reply May 20, 2012
at 03:31
Started May 9, 2012 at 12:47 |
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Hi All i was diagnosed with a DVT in left and right leg in feb this year i was started on cleaxane injections and warfarin i then went onto have a PE which again i was started on clexane injections as my blood was out of its theraputic range. I was on bed rest and have just returned to work after a slow recovery. I have woken today to a red prickle unraised rash on my feet has anyone else had similar experience? Any advice/help would be great thankyou |
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1 replies... |
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ATTRACT Trial - DVT
Posted by Chuck |
Last Reply May 20, 2012
Started May 20, 2012 |
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At the end of March, I was diagnosed with DVT accompanied by a small- medium pulmonary embolism and immediately placed on Warfarin, which is standard protocol therapy. After I was released from the hospital, I found this website and discovered the ATTRACT Study through Mallinckrodt Institute of Radiology at the Washington University School of Medicine. The ATTRACT Study is comparing two commonly-used DVT treatment strategies to determine which is best. If they get the answer from this study, doctors will be better able to help the many thousands of people who develop DVT each year. Therefore, participating in the ATTRACT Study is a great way for a person with blood clots (DVT) to receive an outstanding level of care while also helping other people with DVT. The Principle Investigator, Dr. Suresh Vedantham, M.D., replied to my email the same day to help me find a study location in Orlando, FL. Bottom line is that I am a participant in the study and h... read more |
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0 replies... |
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Compression stocking won't stay in the proper
Posted by Brandon |
Last Reply May 19, 2012
at 23:05
Started May 18, 2012 at 21:31 |
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Hello everyone. So I have been diagnosed with a dvt in nearly my entire left leg. So I'm doing the standard treatment, warfarin + compression stocking. So I've been through two types of thigh high stockings so far, the most basic regular banded stockings, and also the silicon ribbed one (both of the jobst brand). Seems after about a week of wearing them they simply stretch out too much, and begin to perpetually slink down to my knee and sometimes my entire leg. The orthotist I went to said I should also consider purchasing a garter to keep them up. Now Im aware that this is no time to be macho but, I just feel like there HAS to be another way to keep them in place and fitting properly. Anyone have suggestions? Should I try a different brand? (Jobst claims to make the best product but I'm not convinced). |
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2 replies... |
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Skin Lump at Injection Site
Posted by Jeannette |
Last Reply May 19, 2012
Started April 9, 2008 |
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Is anyone familiar with this side effect from subcutaneous injections? I have been on 1st Lovenox for 1 week and then Fragmin for past 3 weeks, and am injecting myself in my stomach. I noticed after one bad bruise, a small, round, hard lump formed under the skin. It is tender to the touch, and has not gone away after a couple weeks. Then yesterday I got a bad bruise after an injection in another site, and now I have a 2nd lump in this new location. Am I doing something wrong? Or is this a normal side effect? Do you know if they go away? Compared to my DVT/ PE symptoms, this isn't a huge concern (LOL), but am just wondering if anyone else has experienced this or knows how to prevent? Thanks to all. |
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50 replies... |
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Only having side effects stopping Warfarin
Posted by Tom |
Last Reply May 19, 2012
Started February 29, 2012 at 15:51 |
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Hi, I was wondering if anybody has this experience. I'm 28, I went on Warfarin 6 months ago after having a DVT and had some side effects to begin with, mainly light headed and lack of energy... But then my body seemed to adjust and I was completely fine on the drug, I was doing as much exercise as I normally do, drinking, I was completely fine. I was on a fairly large dose of 10mg-12mg also. However, when I stopped 10 days ago I've had some fairly horrible side effects, tingly limbs, light headed, no energy, foggy head, tight chest, shortness of breath, heart palpitations and racing heart along with vertigo when I go to bed... On sunday(7days after coming off the drug) I had a horrible experience where I thought I was having a heart attack and almost collapsed in the street. I've been to the hospital and everything checked out fine so that's good but yeah, it was a horrible experience and although it was probably a panic attack I'm sure the physi... read more |
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2 replies... |
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5 Years with Clot
Posted by Marie |
Last Reply May 18, 2012
at 22:12
Started May 17, 2012 at 19:24 |
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Five years ago after the birth of my third child i developed a clot in my right leg behind my knee. It went all the way up and into my vena cava vein. I also had multiple PE's and was in the hospital for a long time. Since than I have tried everything. Massage, Accupunture, bodytalk, you name it I have tried it. (Except surgery w/ stents) I am currently back on coumadin and my leg hurts all the time from the moment I wake up until I fall asleep it hurt. I wear a compression sock almost all the time. I find i need moments to feel free to feel the air on my leg. I have been reading allot of what you all have to say and I was wondering if there are other people out there that have been suffering as long as I have. 5 years is a long time and I just want to be able to fix it. My kids are still young and i have such a hard time keeping up with them and suffer so much at the end of the day. I am just looking for any advise anyone can give me??? Will this ever go away or is this really my l... read more |
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1 replies... |
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Ultrasound
Posted by Rui |
Last Reply May 18, 2012
at 19:59
Started May 16, 2012 at 16:32 |
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Anyone know whether ultrasound technology can differentiate between a "hardened" and a "live" clot? Rui |
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1 replies... |
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Coming off Warfarin
Posted by Rob, UK |
Last Reply May 18, 2012
at 15:33
Started October 2, 2010 at 09:36 |
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I have been advised this week that I am to stop taking warfarin from next Tuesday. After 6 weeks (this is the length of time I was told it takes to clear my system), I will need to have a full blood check to look for any genetic disorders etc. I have been on warfarin since January this year, and although I am 'looking forward' to identifying the likely cause of my clotting issues, I do have some trepidation about the sudden ending of my medication. Will there be any noticeable 'cold turkey' symptoms or contra- indications ? I am wearing compression stockings as instructed and will continue my rather gentle walking regime at the gym- do you know if it's safe to use the vibration equipment to improve my circulation? I have also been instructed to eliminate the risk factor associated with driving up to 1000 miles per week for my job- so I am either going to work from home, or if that is not considered a feasible option, I will have to take long-term paid sic... read more |
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21 replies... |
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Is it dvt?
Posted by Gemma |
Last Reply May 18, 2012
at 13:48
Started May 17, 2012 at 11:16 |
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I gave birth last Monday then this Monday i woke up in the night with cramp in my right leg. next morning it felt like id pulled a muscle quite badly and had a line of swelling halfway down my leg at the side going across about 3 inches. by Tuesday i had swelling and pain all down the back of my calf so i googled it and dvt kept coming up. Then yesterday the swelling was still there but it was nowhere near as painful. today its barely swollen but when i woke up the swollen bits were red but that's gone now. the pains only really there now if i press on it. that's what's confusing me, from what I've read it gets worse not better and the pain is really bad and stops people walking. My midwife is coming round this afternoon so I'll be asking her but just wondered if anyone's had anything like this and what happened. |
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4 replies... |
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FACTOR V LEIDEN DEFICIENCY?
Posted by LOULAR |
Last Reply May 18, 2012
at 03:52
Started May 15, 2012 at 11:50 |
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Hi, Just looking through the net having been diagnosed with 'factor v leiden deficiency' only to find that factor v leiden and factor v deficiency are two different types how do i know which i have? I have had over 10 DVTs in 6yrs and 3 PEs this has all been whilst on warfarin and heparin injections i have to have my INR checked 3-5 times a week and its getting me down i feel i live my life around the doctors surgery and hospital appointments. I also had 4 stents placed in my left iliac vein in my stomach with a fistula to keep the blood flowing but 2 weeks after surgery with an INR of above 6 i re-clotted and have blocked the stents and closed of the fistula. Has anyone got any ideas to which i should state i have? Thanks in advance, |
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3 replies... |
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Post DVT 6 months - factor 5?
Posted by Karen |
Last Reply May 17, 2012
at 22:22
Started May 17, 2012 at 22:22 |
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Been here for a long time - post DVT in November 2011 - have been looking into getting my tubes tied, and been sent to hematologist this week. AFter seeing him, we did some routine blood tests for disorders, but came back negative, then they learned of my mother who had cancer 2 years ago, and clotted after the surgery to remove it - this has now sent them to test me for factor 5 - I'm scared and nervous - I only found out today that my great grandfather had a blood disorder of some type, and I'm trying to find out if anyone else has, although the answer seems to be no, besides my mom who clotted after surgery. So I have to wait 5 weeks to get the answer, my life seems to be hanging in the balance, and I'm so stressed out. I can come off my warfarin anyday now and go back to a normal life, (i have post thrombotic syndrome but can live with it).....anyone out there to help shed some light on this disorder...is there really a chance that my great grandfather... read more |
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0 replies... |
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Compression Stockings - wear to sleep?
Posted by Ian T |
Last Reply May 17, 2012
at 18:48
Started September 8, 2009 at 02:38 |
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I was prescribed grade 1 compression stockings because of the DVT I had in May. The doctor told me to make sure I put them on first thing in the morning, after my shower, and that I can take them off when I go to bed, or otherwise if I'm laying down and can keep my legs elevated. My question: Can I wear them while I sleep? Or are there negative side effects from wearing compression stockings 24 hours a day? I only ask because a couple of times I was just too tired at night to take them off before sleeping.. you know how difficult those things are to put on and take off. When I wake up in the morning my legs and ankles feel stiff, but on those nights where I didn't bother removing my stockings, I woke up with my legs feeling a little itchy at the top of the stockings, but otherwise fine and free of stiffness. |
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17 replies... |
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Portal Vein Thrombosis
Posted by Dana |
Last Reply May 17, 2012
at 08:13
Started September 25, 2006 at 18:10 |
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In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience. |
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53 replies... |
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military exceptance
Posted by wwat1213 |
Last Reply May 17, 2012
at 06:06
Started October 27, 2010 at 20:17 |
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Hi, I have been on warafin for about 2years now. I had a clot in my calf. I was on the medication for about 2 months before I was able to get off of it. Then 4 months later I had another clot in the same place. Now I am on it for the rest of my life or until they find a cure. That was in 2008, I haven't had another clot since. I stay active and exercise minimum of 3 times per week. I am looking to get back in the military. I have been out for over 20 years. I lost my job this year and work is hard to find. Does anyone know if I am able to join with the medication I am taking. |
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23 replies... |
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What does it feel like when DVT becomes PE?
Posted by Tammy |
Last Reply May 16, 2012
at 21:10
Started December 4, 2010 at 14:34 |
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I'm newly diagnosed with DVT as of Monday. Still dealing with the shock of it all. My doc has been very helpful with understanding treatment, long term effects, etc. without overwhelming me. What has me the most paranoid is that she said call paramedics if I get pain in chest, back, or worst headache ever. I am pretty sure I'd know if I was having my worst headache ever but have no idea what type of chest/back pain warrants a call to paramedics. Can someone who has been through DVT moving to PE give some info about what it feels like? I get a slight gas pain and I find myself asking "hmmm, is that a chest pain? am I short of breath? nah, just a gas pain." I'm sort of driving myself nuts : ) |
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13 replies... |
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pregnant ?DVT
Posted by chlo |
Last Reply May 16, 2012
at 20:10
Started May 14, 2012 at 17:29 |
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Im 14 weeks pregnant. Few weeks ago i woke in the night with spasm ever since my left calf was painful achey and felt like cramp. week went by and than another and the pain behind my left knee top of calf is worse than ever. Its constantly aching i cant sit down because it hurts, if i stand for a long period my leg aches and i cannot straighten my leg at all if i bend my toes up my calf knee and thigh hurts. Ive never had a dvt before could this be one? I have had no swelling that i have noticed but the veins on that leg are very blue and more noticable than usual .It seems each day as if my left leg is getting stiffer |
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2 replies... |
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finally an answer two femoral veins, anyone?pl
Posted by michelle |
Last Reply May 16, 2012
at 18:37
Started October 15, 2010 at 21:05 |
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Please respond if you can, my daughter is only 11, and was diagnosed on Aug.24th with dvt in femoral vein, all genetic tests came back negative and we did not know why this would happen at such a young age. i had a protein S deficiency but only when I was pregnant and was on lovenoux. She has been on lovenoux, but the leg has stayed approx. i inch bigger than the normal one. They did a repeat ultrasound today and discovered she has a duplicate femoral vein, and Dr. says when you are born with two(he says 1 in 100 are) the extra vein has limited blood flow and at risk of developing a clot, he says it has to eventually clot and die off, and sometimes the clot never fully goes away, it just remains, she has complete flow in the other femoral vein, so thats good, I just wonder if her leg will always be an inch bigger than the other one, if that is the worst of it, I'm okay. he took her off lovenoux after 2 months, because he feels these type of clots are not dangerous and might remain, ... read more |
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11 replies... |
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low INR
Posted by julie |
Last Reply May 16, 2012
at 12:31
Started November 19, 2008 at 10:02 |
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i am 3 weeks post DVT and although my INR was once 2.5 it is now 1.5 or 1.7.my GP does not sem worried-she says my blood is still thinner than a 'normal' person,which is 1.i know a too high INR has the risk of bleeding,but are there risks with it too low,other than another clot might form?im really asking if i should worry or if it stays like this for the 6 months i am on warfarin,will it be ok? |
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79 replies... |
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being proactive about your warfarin dosage
Posted by pamela |
Last Reply May 16, 2012
at 01:09
Started March 9, 2010 at 04:07 |
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My dosage just as soon as it got regulated was 3.75 6x 2.5 1x week. And it was good and stable through Oct, Nov, Dec, early part of Jan. But then in Jan I finally got control of the swelling. In Jan I started working out regularly- I realized I could not tolerate high-intensity cardio day after day, but I could alternate it with strength training, yoga, etc. and do 6 days a week reliably. No INR test has given me any confidence since Jan. I test, it's low, they say, take 5 instead of 3.75 the night they call and then go back to the regular schedule, take a test 3 weeks later. I do, and what do you know, it's low again (and I suspect I've been low and therefore not theraputic all that time) so they say do the 5 again, come back in a week (2.2) and they say, ok, come back in 3 weeks. I do, and it's even lower than the last one. And I'm going to Las Vegas, so I call and ask to talk to the doc, because I want to know if I have more than one drink a week- ... read more |
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11 replies... |
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