DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Multiple PEs (DVT), Coumadin Side Effects!!!
Posted by Jonathan A
Last Reply September 2, 2014 at 19:10
Started November 11, 2009 at 17:04
Hi,

I'm a 23 year old male recently released from the hospital with multiple bilateral pulmonary emboli. Doctors said there was major blockage with infarction in both lungs. Massive clots.
Ultrasound revealed no additional clots in the legs which is good news.

Tests revealed genetic pre-disposals (Protein C deficient) so I'm a lifer for coumadin.

Started dose at 10mg per day, then slowly dropped to 7.5, then 5 and now at 2.5 after a week at my INR being over 4. I'm in the low 3s and have my next blood test here in about an hour. While I was in the hospital I was taking 2 lovenox injections per day. After 7 days of Lovenox they took me off and now I only take the coumadin. I've been on coumadin since Oct 21, its now Nov 11.

I started noticing some side effects, but after reading here and other sites I'm very concerned that nothing is going to help.

I have extreme lower back pain. Headaches every single day. Frontal lobe headaches that hurt worse when I cough. I have ... read more

17 replies...

How long have you been on Warfarin?
Posted by Tina
Last Reply September 2, 2014 at 18:31
Started May 18, 2010 at 21:00
Hi, I have just found this forum, can't believe I've not seen it before!

Anyway, I have just replied to another post and it occurred to me, who
has been on Warfarin the longest? I have been on it for 16 years, has
anyone else been on it this length of time?

I have recently been starting to worry about the long term side effects
but my doctor just says it's the side effects of not taking it that I
should be worried about ie getting another clot :-(

21 replies...

no valve insufficiency = swelling?
Posted by Isabella
Last Reply September 2, 2014 at 16:09
Started September 2, 2014 at 09:40
Hi all,

I had a proximal DVT July last year. Lovenox 5/6 days & warfarin for 6
months. I had an ecodoppler las month that says that my popliteal is
now narrower, that is, it has thickened due to residual clot. But
that's all! It says that that I have no significant valve damage.
Nonetheless, I have a swollen leg all the time, and my calf
circumference is ALWAYS larger in the DVT leg, about an inch. I have
been told that if my valves were ok, then my leg wouldn't swell but it
seems that is not true. I'm so disappointed:(! I'm in my late
twenties, I was taking the pill but cut it right away, when the clot
was found. I do have protein c deficiency but the hematologist says I
shouldn’t be worried because it is not too low (however, I've read in
this forum that it is a big deal...I'm puzzled...) But my point is: is
it possible that my leg stops swelling one day? I wear compression
stocking all the time, as my vascular surgeon said I should wear it
for two y... read more

2 replies...

Elevated d dimer w/out cause??
Posted by Chris
Last Reply September 2, 2014 at 11:11
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

33 replies...

Call of Duty Advanced Warfare
Posted by shadowgun game mobile
Last Reply September 2, 2014 at 05:18
Started September 2, 2014 at 05:18

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Whether you love to shoot your opponents from immediate vicinity or to snipe them from hundreds of meters. Follow the call of duty and go on a gunfire binge as you will be the apex hunter, killing cosmic bugs like deer in the forest. It is almost like Dead Trigger only featuring space zombies. Unknown to the humanity in past, kind found in the depths of the Moon. Armaments that will come to your disposal are not distant and wide, but they are adequate enough to face any problem you'll ever meet. In the midst of the red dunes of Jupiter fps experience shall be broad and fascinating.
Survive the limitless influx of interplanetary horror, waste the space bugs dead and observe them wither and perish. Exclusively the grandest stunts of modern combat shall transform the tide of this cosmic combat. Made on android app source code, this edge of tomorrow simulator shall bring y... read more

0 replies...

When to go back to gp
Posted by Ali
Last Reply September 2, 2014 at 03:34
Started September 2, 2014 at 03:34
I'm in week 2 of a dvt and i had one week of warfarin and clexane and now on just
warfarin, my pain disappeared for a while and is now back in my calf, do I need to
be concerned and contact my gp or not worry

0 replies...

Multiple distal dvt same leg
Posted by Jennifer
Last Reply September 1, 2014 at 16:33
Started August 18, 2014 at 18:30
Hi all- my dvt leg has regressed in the past 5 weeks or so increasingly becoming
harder to stand still.. Burning pain. By the end of the day I am useless. I am 39
years old 115 lbs was very athletic before dvt that came on because of minor calf
tear along with birth control pills . I was misdiagnosed for 5 weeks so my leg was
blue and cold before I got on warfarin therapy. After 3 months on warfarin my leg
was much much improved so I discontinued warfarin and boom new clot same
leg in 3 weeks time.. So back on warfarin and I'm about 2-3 weeks or do leg was
much improved again. One month later I have regressed terribly ( I did get an
ultrasound no new clot) I feeling hopeless that I won't be able to stand strong on
my own two feet again for any amount of time. This is affecting my life and
relationships big time. Doctors just shrug shoulders and say distal dvts usually
have good outcomes just elevate and take a hot bath. I do all that. Anyone else go
through... read more

27 replies...

Sex drive and warfarin
Posted by Lucy
Last Reply September 1, 2014 at 11:14
Started January 14, 2010 at 01:12
Hi...
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,
Lucy

68 replies...

nerve damage due to DVT?
Posted by wrigley
Last Reply September 1, 2014 at 06:54
Started October 11, 2007 at 22:45
Has anyone experienced numbness and/or nerve damage due to a long lasting, but never treated dvt? My legs have both had clots- (but I they were not discovered until after the damamge had occurred and the clot had dissloved) Now I am experiencing numbness in my foot and leg all the way up to my upper thing area. sometimes when I lay down at night one or both of my legs will go completely numb -

My hubby just got out of the hospital from having a heart attack and stroke- so I can't be laid up in bed or the hospital- I have to take care of him.

has anyone had this sort of thing ?



5 replies...

Vitamin A
Posted by Mick C
Last Reply September 1, 2014 at 03:12
Started August 29, 2014 at 12:24
20 days ago I was injected with Vitamin K ,in hospital, as my INR was high at 3.5 but then discharged the next day.
I was immediately started on Warfarin again but despite increased dosage my INR has not gone higher than 1.3. My belly is sore with the Tinzaparin injections I am having to cover for the low INR.
How long does it take for warfarin to "kick in" after Vitamin K is administered

6 replies...

Warfarin & pizza????
Posted by Chris
Last Reply August 31, 2014 at 23:57
Started August 30, 2014 at 16:56
Hello DVT world. I'm on 10mg of warfarin everynight and my inr has been
consistent at 2.9. My vitamin k diet is little to none(I know I should've continued
eating vitamin k. But didn't see myself being able to eat the same amount of it
daily). Would I be able to eat dominos pizza? Would tomato sauce or marinara
sauce effect my inr? I'm dying to eat a large dominos pizza with extra beef with
either tomato sauce or marinara sauce lol thank you!

3 replies...

Dale? Stefan? Advice place
Posted by Chris
Last Reply August 31, 2014 at 23:42
Started August 30, 2014 at 19:25
Hello all. Dale & Stefan or anyone that can help, if your reading this. You both
have gave me very helpful advice. You both didn't know the extent of my DVT. On
my report it says "extensive left lower extremity DVT involving the whole length
of SFV and the pop vein which are not compressible" I'm not sure if you guys
remember me but I was in the hospital for ten days and got out close to a month
now and I'm on 10mg of warfarin and inr is steady at 2.9. How bad is this? Long
term problems? Will I make a full recovery? Are there any other options to get rid
of it? And I'm feeling some discomfort in my other leg for about two days now, is
it possible to get another bloodclot while on warfarin? Sorry for all the questions.
Any info anyone can give me I'd appreciate it ALOT!! Thanks a ton!

6 replies...

stopping warfarin
Posted by suzanne
Last Reply August 31, 2014 at 22:55
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

122 replies...

Long term breakdown?
Posted by Kay
Last Reply August 31, 2014 at 20:02
Started August 25, 2014 at 01:34
I am a 20 year old girl who was diagnosed at age 15 with a pulmonary embolism
DVT I currently still have it and I am using arixtra to keep blood clots away.

Going on 4 years of taking arixtra with no side effects.

However, I am to be on it for the rest of my life and at age 20 I am already failing
to continue to inject myself every 24 hours. I understand the value and risks and
sometimes that still isn't enough. I am in search of advice of how many of you
who take arixtra for a long period of time deal with it and if you have any ways of
helping you stay on top of it?

My biggest mistake was skipping my very first time, which lead to a lot of
skipping and now it seems so hard to break habit of it. I have only been
consistent with 3 days before I fail again.

Any advice is much appreciated?



8 replies...

HELP
Posted by Anne
Last Reply August 31, 2014 at 07:32
Started February 5, 2011 at 07:15
DOES ANYONE ELSE HAVE TROUBLE FINDING THEIR RECENT MESSAGES IM ONLY GETTING JAN MESSAGES ON HERE CAN ANYONE HELP HERE THANKS

1 replies...

When to test INR after change in dose?
Posted by Audrey
Last Reply August 31, 2014 at 07:13
Started June 29, 2009 at 20:35
I'm just beginning this long journey on warfarin/coumadin after being diagnosed with DVT.

I did a lot of research on warfarin and understnd that it has a very long half life, which means that it can take the body a considerable amount of time to adjust to changes in dosage levels, on top of its complex reaction to changes in the metabolism. So my question is, if your dosage level is changed significantly, when is the optimal time to have your INR levels restested?

I was on 5 mg. per day starting on a Saturday. My intial INR prior to starting was 1.1. I was tested again on Monday, with an INR of 1.2. On Wednesday, after almost 96 hours at that dosage level at which time the med should have reached maximum effect in my system, I still tested 1.2. My dosage was increased by 40% to 7 mg. starting Wednesday night. Blood was drawn on Saturday morning, or 60 hours after increasing the dose. INR was 2.2, with a targeted level of 2.5. My doctor called me on Sunday and has dropped my do... read more

9 replies...

Braces
Posted by Mick C
Last Reply August 31, 2014 at 03:49
Started August 31, 2014 at 03:49
I wear braces to keep my trousers up.
Well what is this to do with DVT one might ask.
Im injecting Tinzaparin into my belly and are having problems with bruising.
This morning I have noticed that the bruising is the same pattern as the braces.Ouch
Problem solved don't wear braces. Now what do I do to stop my trousers falling down

0 replies...

dvt and elevated liver?
Posted by Lynn
Last Reply August 31, 2014 at 03:38
Started September 1, 2010 at 04:35
Hi I was diagnosed with a dvt behind my left knee a week ago. For some reason the pain is far worse now then it was then. My blood work came back with elevated liver values.. anyone else have that? I was wondering if it was caused by the medication.

13 replies...

DVT in arm
Posted by Angela
Last Reply August 31, 2014 at 03:38
Started June 16, 2012
There isn't much feedback on DVT in your arm, but that's what I have had. I'm still
on Warfarin and still don't understand why I got it. My arm is not looking that
great and after a month, after complaining, I was told I should have been wearing
a stocking from day one. My arm is still slightly 'bigger' than my left and the veins
are still a bit large. Is there anyone that is suffering the same?

5 replies...

Mountain biking after DVT.
Posted by dero
Last Reply August 31, 2014 at 02:20
Started December 3, 2007 at 03:27
My question is, "are there other riders here that have kept on riding while on warfarin?"
I was diagnosed with DVT(lucky for me,no PE) in july 07, was clogged from my ankle tomy groin, been on warfarin since then. I used to wear the compression socks but I had an allergic reaction to it,so the Dr. told me to stop wearing it. I just had a check-up last week(doppler test...) leg still hurts and sweeling is a daily occurance, but nothing like the original swelling. Dr. also told methat she is putting me on Warfarin for "long term" she's talking of at least a year...
For some this is a no brainer question, if you don't ride, but if you ride you will understand my querry.
It's not that easy to give up a way of living because it's not just a hobby or pass time.
If there are other riders, how do you protect yourselves from cuts or scratches (talking Crosscountry not DH). Do you wear a full armour or what...?
The Dr. does not understand me, she is telling me to simply give it up, jus... read more

30 replies...

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