DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4182) - Page 1 of 210
Posted by DANIELLE
Last Reply October 25, 2014 at 22:53
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

162 replies...

Exercise after massive DVT?
Posted by Jennifer K.
Last Reply October 25, 2014 at 21:25
Started July 3, 2006 at 01:13
I was 35, fit, healthy, never took birth control pills, no serious injuries... and then out of nowhere I had a massive dvt in January 2005 and nearly died. My left leg and left side of abdomen and groin were affected and I am still using a walker (frame) to get around. I'm on Coumadin daily, and also am eating some spinach every day (for me, the vitamin k helps my inr levels to stabilize).
I have gained approx. 100 lbs and am by far the largest I have ever been. My doctors tell me in the same breath that I must lose weight, but to not do anything to elevate my blood pressure (which is low) or my heart rate!
There's a serious risk with having lyposuction, etc, so other than that, how am I supposed to lose weight?! I DO watch what I eat, am careful about what I eat and how much and am eating far less than what I ate when healthy and fit (pre-dvt), but I'm huge. My pharmacist pointed out side effects to Coumadin such as weight gain, insomnia, hair loss, and I have all the side effec... read more

339 replies...

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Last Reply October 25, 2014 at 12:54
Started October 25, 2014 at 12:54
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0 replies...

Posted by NatashaPita
Last Reply October 25, 2014 at 08:19
Started October 25, 2014 at 08:19

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0 replies...

Trading Warfarin for natural anticoagulants?
Posted by Ken
Last Reply October 25, 2014 at 03:00
Started June 27, 2011 at 14:11
Has anyone here had the courage to substitute their Warfarin prescription with fish oil or nattokinase, or any other natural blood anticoagulants with success? The only way to see if you don't get another blood clot is to actually quit taking the Warfarin and start on the natural thinners. And I suppose that if your calf starts to swell or hurt you can have 5 days worth of Lovenox immediately available by your side for your rescue. My hemotologist says "that's like playing Russian Roulette". I've tried going off Warfarin once albeit with no change in lifestyle and no blood thinners and I got a new blood clot in about 10 days. My calf started to swell and hurt, but I noticed it right away, verified it with the Ultrasound and immediately went to Lovenox and Warfarin. Now I'm thinking about quitting the Warfarin again, this time with lifestyle changes (more exercise and moving) and natural blood thinners. It didn't seem particulary risky last time I quit taking the Warfarin. Doe... read more

24 replies...

could this be a DVT?
Posted by Ethan
Last Reply October 24, 2014 at 17:08
Started December 13, 2008 at 03:45
Hi, I'm asking this question for my wife. She's had leg pain for about 4 weeks now and is concerned that it could be a DVT.

It started off in her right leg focused primarily behind her knee cap and the back of her leg behind the knee. Over time the pain has moved both up and down her leg, either down to her calf or up her groin. It's both a burning and aching pain. It isn't always there and it gets worse at night.

She waited about 7-10 days before the first D Dimer test and it came back negative at around 186 (the cutoff level for the test is 500). The following week she had another D Dimer and that came back at 289. In addition she has had 3 EKGs, all of which have come back normal, if not slightly fast. Her blood pressure has remained normal throughout all of this.

Yesterday she went into the ER for dehydration & tachycardia (she also has systemic mastocytosis which could cause these things) and received two litres of fluids. In addition, her PCP put her on 20mg of... read more

3 replies...

Posted by CC
Last Reply October 23, 2014 at 10:18
Started November 23, 2011 at 18:53
I received my one and only acupuncture treatment and 3 days later had DVT in both legs. Does this sound familiar to any of you?

6 replies...

Can calf dvt be missed by US
Posted by Esme
Last Reply October 23, 2014 at 04:31
Started October 21, 2014 at 15:31
Has anyone any experiences to share?
How accurate is US in detecting calf dvt?
I've previous history of DVT, usual symptoms and positive d dimer but nothing found on US today so no follow up or treatment being continued.

1 replies...

Posted by WilliamMl
Last Reply October 23, 2014 at 01:55
Started October 23, 2014 at 01:55
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0 replies...

ultra sound test would it show blood clot?
Posted by bev
Last Reply October 22, 2014 at 23:44
Started January 23, 2010 at 13:49
Plz help at my wits end had severe calf pain for 3 weeks now had an ultra sound 10 days ago and came bk negative no clot. Should i b reassured by this?

38 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply October 22, 2014 at 20:03
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

78 replies...

second clot, what will happen?
Posted by mmims
Last Reply October 22, 2014 at 14:51
Started October 20, 2014 at 14:04
Hi, I had first DVT about 5 years ago. Just been to hospital today with new leg pain for nearly two weeks, some swelling ect and I have had a positive d dimer again. Scan tomorrow.
I'm all nervous again but I'm just wondering now if this means long term anticoagulants?
I was on warfarin last time and heparin during pregnancies but they have put me on Riboboxan? Today.
Does anyone have experience of this anticoag?

13 replies...

Posted by Jan
Last Reply October 21, 2014 at 22:53
Started October 13, 2014 at 02:40
Almost 5yrs ago I was diagnosed with an
occluded DVT of the left leg and abdomen.
When CT was performed I was also informed
I did not have a IVC. I had thrombolysis
preformed 4 days after clot formation.
Only to have it fail and I reclotted.
Dr's are now going to do a MRI to see if I
am a candidate for some type of bypass
surgery. I am interested in seeing if
anyone else was born without a Inferior
Vena Cava (IVC)? If so what type of
treatment have you had. My pain in getting
worse by the month. I am at a loss I don't
want to do anything any more. Laying
around legs kill me if I am up doing
things I am also in pain. I am just
looking for anything that could help me.

3 replies...

shoe Lifts
Posted by AngeloTuh
Last Reply October 21, 2014 at 21:29
Started October 21, 2014 at 21:29
Other options include taking your shoe lift inserts along when you buy shoes and searching for a brand with more stretch than your normal shoes


0 replies...

Newly diagnosed
Posted by Kay
Last Reply October 21, 2014 at 21:19
Started October 16, 2014 at 21:37
I was diagnosed on Saturday, given Lovenox, and sent home with xarelto. I never
had swelling, redness or warmth. My clot is partially occluded by my knee in left
thigh. I have kept it elevated all week. Today I sat up more with it on pillows and
got up more often. Tonight it started burning again and feels a bit warm. Is this
normal for over doing it a bit? I am worried since I didnt have warmth before.

3 replies...

how long does the pain in the leg last
Posted by Angela
Last Reply October 21, 2014 at 17:31
Started July 3, 2010 at 21:38
i had dvt in my left leg abt a week ago and was hospitalized for 5 days, am now on warfarin. i would like to know how long it will take for the pain in the leg to go away cos the pain is simply unbearable. would also like to know when i can go back to work. has any one gone through the same out there. pls help

42 replies...

Playing contact sports on Warfarin?
Posted by Steve
Last Reply October 21, 2014 at 16:58
Started August 3, 2007 at 15:40
Hi everyone,

I am on lifelong warfarin and have been advised not to play contact sports. I am only 31 years of age and find this advice hard to accept, as I loved playing football. Has anyone out there had any experience or advice contrary to the usual no contact sports?

4 replies...

Lovenox blood testing
Posted by Laurie
Last Reply October 21, 2014 at 15:08
Started August 28, 2008 at 23:29
I am fairly new to all this... and have been reading this site for a few weeks.. and I have learned so much from all of you. and I just wanted to say thanks! I do have a question to ask and hope someone will be able to give me advise. My PA.. says I don't need to worry about having my blood tested. I was on warfarin but after 4 months my blood clott hadn't changed much and I had developed two more, so I was taken off warfarin and put on lovenox 2 shots per day. How often should my blood be tested? It has been 20 days..How do I know its not too high or low.. ? I know I can't do INR test, but I would think there must be some kind of time line for blood tests... Please help! thanks again.. Laurie..

18 replies...

Skin Lump at Injection Site
Posted by Jeannette
Last Reply October 21, 2014 at 14:30
Started April 9, 2008
Is anyone familiar with this side effect from subcutaneous injections? I have been on 1st Lovenox for 1 week and then Fragmin for past 3 weeks, and am injecting myself in my stomach. I noticed after one bad bruise, a small, round, hard lump formed under the skin. It is tender to the touch, and has not gone away after a couple weeks. Then yesterday I got a bad bruise after an injection in another site, and now I have a 2nd lump in this new location. Am I doing something wrong? Or is this a normal side effect? Do you know if they go away? Compared to my DVT/ PE symptoms, this isn't a huge concern (LOL), but am just wondering if anyone else has experienced this or knows how to prevent? Thanks to all.

58 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply October 21, 2014 at 13:31
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

94 replies...

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