DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Tylenol and INR ?
Posted by Steve
Last Reply July 22, 2017 at 22:39
Started November 22, 2008 at 02:38
I was told that the only pain reliever I should take while caring for my DVT and on Warfarin was Tylenol. Has anyone checked to see how this affects their INR reading? I suspect the danger is taking too much and causing an internal bleed (which would be all the more dangerous if INR is high) ?

And if you do regularly take Tylenol during Warfarin therapy, what dosage do you take ?

Thanks !

14 replies...

can symtpoms come and go?
Posted by zben1
Last Reply July 22, 2017 at 21:42
Started October 29, 2008 at 19:31
I am trying to figure out if my symptoms are DVT or muscular. I didn't do anything to pull a muscle but I have bad pain in my upper calf. There is no swelling or redness but it hurts to touch. The odd thing is that it got a lot better yesterday for most of the day. Today it's really painful again. Can symptoms of DVT come and go? Should I be taking a baby aspirin just in case?

20 replies...

Xarelto : Swollen Glands
Posted by John
Last Reply July 22, 2017 at 16:18
Started May 13, 2014 at 15:32
I have been on Xarelto for 7 weeks after a DVT. I now have developed swollen glands. Is
this a normal symptom. I also read ginger, garlic, horse chestnut and omega 3s can create
adverse reactions. I have taken all of these but am now stopping. Can anyone provide
guidance from their experience?

4 replies...

Stopping Xarelto after 90 days
Posted by Charles G
Last Reply July 22, 2017 at 14:10
Started December 30, 2013 at 18:18
I had a DVT/PE episode. The doctor in the hospital suggested either Xarelto or Coumadin until my lab results were reviewed by a pulmonary physician. I selected Xarelto for this temporary treatment (15mg twice a day for 15 days then 20mg once a day for 90 days). My Pulmonary physician reviewed my lab results and has concluded that my DVT/PE was an isolated event with no genetic or environmental reason. He suggested stopping the Xarelto after the 90 days. Does anyone have a transition program to stop taking Xarelto? Would it be prudent to take an antiplatelet (low dose aspirin) after discontinuing Xarelto? I am concern about the stroke potential of stopping Xarelto?

2 replies...

Problems with heat and blood thinners
Posted by Chris
Last Reply July 22, 2017 at 13:43
Started July 17, 2012 at 18:02
I've read a lot about heat sensitivity and anticoagulants, blood thinners. I have
previously had some problems with heat. This year with the extra heat and
humidity I am really having issues. If I go outside and do anything more than go
to the car and turn on the a/c I run a real risk of severe heat exhaustion. E.g. 0 to
flat on my back with my heart racing in five minutes. I'm currently on lovenox, but
I had a similar problem on Coumadin. I am in good shape, walk on treadmills, do
yoga 2x weekly. These problems have come on in the last month as the heat has
skyrocketed. I've been trying to gradually acclimate but that doesn't seem to be
helping. Maybe I need to be more patient? I've tried looking on the web and it's
clear that issues with heat aren't uncommon on these drugs but i haven't found
any ideas about what can be done about it.... Any suggestions from the group?
I'm getting really tired of spending the summer indoors.

10 replies...

Deciding weather to stop treatment
Posted by Kayleigh
Last Reply July 22, 2017 at 12:57
Started July 22, 2017 at 12:57
I've been on warfarin since July 2014! I got my first dvt in 2013 whilst pregnant
and got another clot in the same place in the July '14. Doctors can't tell if it was
the same clot or a new clot. Been told I can stop taking warfarin if I like but afraid
of getting a 3rd clot which I'm told could be fatal. Has anyone any experience on
getting 2 clots in the same place and then stopping warfarin therapy?

0 replies...

Posted by DANIELLE
Last Reply July 22, 2017 at 12:48
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

386 replies...

Questions about compression socks and pants
Posted by Cindy
Last Reply July 22, 2017 at 10:51
Started May 1, 2008 at 22:54
I wear a thigh high compression sock on my left leg (the one with the DVT) and am wondering if wearing the compression pantyhose might be a better idea. Do you wear a compression sock on both legs or just the leg that your DVT occurred in (assuming you have only had it in one leg)? Also, with summer coming, what do you do with the heat? I know that I will have to wear it no matter what, but we get weather around 100 degrees plus. Do you wear shorts or suck it up and wear pants/skirts? What about shoes? No more sandals or do the open toed compression socks work well for sandals? Finally, what about pants? I can no longer wear any of my pants. I have one pair that is two sizes two big which fits my leg and nothing else. I don't know what to do. I have large thighs as it is, so how do I find pants that fit now that my leg is even larger? I'm miserable wearing this pair of pants that is too big everywhere else.

These seem like pretty stupid questions in light of the others and I'm s... read more

4 replies...

stopping warfarin
Posted by suzanne
Last Reply July 22, 2017 at 05:26
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

162 replies...

Did Your Doctor Warn You About These?
Posted by Ed Barker
Last Reply July 21, 2017 at 12:10
Started July 8, 2017 at 04:47
I'm doing some research.

Could you help me out with two questions,

I'd be very interested to know how many
members of this forum

(1) are on warfarin

(2) were first told by their doctor about the
deadly side effects of warfarin.

Just type "me, yes" or "me, no" below.

Thanks! :)

2 replies...

contraception after dvt
Posted by wendy
Last Reply July 17, 2017 at 21:38
Started July 3, 2007 at 16:00
Hi,I've had advt in my lower calf for 6 months now and am on warferin. I knew that i shouldnt be on birth control pills but was shocked when my doctor told me today that my main options were having my tubes tied or my husband having a vacectomy. We are currently using condoms and not happy to continue with these for ever. Does anyone know of any other safe methods of contraception as im only 34 and too young for sterilization.

50 replies...

Blood clot in pelvis
Posted by Wiffle
Last Reply July 16, 2017 at 22:19
Started January 11, 2011 at 03:20
Has anyone had this?? I have a clot in the illiac vein extending into the vena cava discovered via CT scan for an unrelated issue a few weeks ago. I was on lovenox shots and now just warfarin. I'm going to a hematologist in a couple weeks but so far all the doctors I've talked to rarely heard of this?? It would be nice to know I'm not the only one with this :( I also have factor v leiden, heterogygeous. (I just had a baby 6 weeks ago so the ER doctor said this was most likely the cause of the clot)
Also, last night and today I started having pain in my left abdomen/ hip area. Has anyone had this? It's very bothersome and I am using a heating pad all day today. I talked with a nurse who thought it could be residual from the clot healing but who knows??
Trying to get out of this "woe-is-me" attitude...

31 replies...

Unprovoked occlusive DVT in 8 year okd
Posted by Mia's mom
Last Reply July 16, 2017 at 20:09
Started June 24, 2017 at 16:09
Hello, I am looking to share my daughter's story in hopes of conversing with
someone that has experienced it. I have a very active, healthy 8 year old daughter
that presented with a swollen leg from hip to foot. After some persistence she has
been diagnosed with DVT in her left femoral vein. The vein is occluded by the
clot. She has no risk factors, no family history, did not travel, no surgery or
catheter, etc. She is a competitive gymnast that trains 12 hours a week and is
very active and fit. She has been put on enoxaparin injections for 3 months while
they do the work up to research if she has a disorder. It has been expressed to us
by every single nurse, paediatrician, specialist and haematologist that they have
never seen an unprovoked clot in someone this young and healthy. Has anyone
else found themself in this situation? What was your outcome?

1 replies...

new blood clots on Eliquis
Posted by Jay
Last Reply July 15, 2017 at 23:57
Started July 10, 2017 at 17:17
Can you form new blood clots while taking Eliquis?

1 replies...

Push up
Posted by Robison Katyer
Last Reply July 13, 2017 at 06:19
Started July 13, 2017 at 06:19
How do you do push up

0 replies...

May -Thurner Syndrome surgery
Posted by Ann M Kennedy
Last Reply July 12, 2017 at 11:20
Started July 12, 2017 at 11:20
I am a 59 year old woman that was diagnosed with May-Thurner. I had surgery to fix
this situation and had 2 stints place in the Iliac artery back in May 2016. In October I
developed a DVT in my right leg. The P.A. told me that the reason I developed a DVT in
the right leg was because they should of put me on anticoagulant instead of an aspirin
a day after this surgery. The doctor admitted that too to my husband and I in a visit to
his office. They are now walking that back and sying that they followed correct proticol
for this post surgery. I am sure he did, but I am a patient that has had a DVT and
pulmonary embolism before---I do not think that was factored in with his post medical
care after this surgery....anyone else have this happen to them ?

0 replies...

Posted by Jose Hansen
Last Reply July 12, 2017 at 06:12
Started July 12, 2017 at 06:12
How about starting the day with exercises?

0 replies...

DVT Caused MY Above Knee Amputation
Posted by Freddy
Last Reply July 11, 2017 at 18:43
Started August 30, 2010 at 03:30
On September 21, 1979 while sitting at home watching The Roper's on TV I got this pulled groin feeling in my left leg when I got up to get a beer. I was alone at the time. It did not seem like a big deal at first then about 10 minutes later I noticed my jeans getting tighter.

I went upstairs to change them when I noticed my swollen and blue/purple thigh as my toes began to lose feeling. I made it back downstairs to the phone and called an EMT friend of my father. When he saw the leg his eyes almost bulged out of their sockets. He simply said what hospital do you want to go to?

It took about 30 minutes to get to the UMASS Medical Center. By this time I could not feel anything below my knee. The doctors in the ER were residents and interns who asked the same set of stupid questions.
Finally, one asked me what I thought was wrong and I said, "I have blood clot in my leg." Their response was, "twenty-four year-olds do not have blood clots." Brilliant!

By this time the pain was... read more

5 replies...

What's worked with my DVT PAIN
Posted by Fobiazero
Last Reply July 10, 2017 at 22:56
Started July 10, 2017 at 01:09
Hello All,

I was recently diagnosed with DVT in my right calf 2 weeks ago following my ACL
Orthoscopic Surgery. I am a 35 yrs old male from Los Angeles. I have done a lot
of research on DVT and VET since being diagnosed. I am glad these forums exist
to at the very least, provide some peace of mind and offer some sort of hope to
over anxious individuals like myself.

DVT pain is definitely one of the worst and most debilitating pain I have ever felt
in my life. Days after I went home from Surgery (Outpatient Procedure) I noticed
something was not right. I was feeling a heavy aching pain isolated in the back of
my right calf (same leg that was operated on) and not so much the knee area. My
foot was red colored as if blood was not quite circulating to it. My calf area
seemed to be swollen and definelty tender to the touch. Anyway, after doing some
research on-line I realized I was experiencing DVT symptoms. So I called my
surgeon's office and they had me... read more

4 replies...

Garlic prevents blood clots
Posted by Bob Anderson
Last Reply July 10, 2017 at 15:31
Started July 1, 2011 at 20:36
Garlic is a natural treatment that is very effective, inexpensive and has no real unpleasant side effects. Garlic is probably the best of all foods at inhibiting platelet aggregation; that is, preventing blood clots from forming.

People who eat garlic every day develop a natural ability to inhibit the formation of blood clots as long as the garlic is in their systems. When they quit eating the garlic, it takes a few days for the effects to wear off and then the blood clots normally again.

If one is taking Warfarin or any other anticoagulant, it is wise to inform your doctor you are eating garlic, especially if you eat a lot of garlic and that your prescription may need to be adjusted downward some to compensate. Your doctor can do a prothrombin time (INR) test to adjust your prescription. Same thing if you are taking garlic pills. Most doctors don't really understand how garlic works because herbal medicine is not taught in med school.

Garlic is not approved by the FDA for... read more

19 replies...

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