DVT deep vein thrombosis forum |
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Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.
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Coming off Warfarin
Posted by Sarah |
Last Reply February 8, 2012
at 23:41
Started January 6, 2009 at 19:21 |
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Hi all, I'm back for a bit of advice/your experiences. I'm about to go off warfarin after being on it for nearly 11 months. My history with dvt is: was taking birth control pills, had recently fallen on left hip and fractured elbow in the process; was quite a bit more sedentary as a result. I've been on warfarin longer than they wanted me to be, but did so because I wanted to continue it over the holidays because of air and car travel. So, I'm contemplating weaning myself off of it, simply because I think it would be easier on my peace of mind. Hemo did tell me however that I could quit cold turkey. I would like to start taking something in place of it, perhaps fish oil or vitamin E, if for no other reason than the "placebo effect"... I've gotten so used to taking my meds at 7 pm every day that I think I may panic if I don't do that any longer. For those of you who have come off warfarin, what has been your experience? any body re-clotted? anybody taking natural supplement... read more |
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93 replies... |
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Portal Vein Thrombosis
Posted by Dana |
Last Reply February 8, 2012
at 23:38
Started September 25, 2006 at 18:10 |
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In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience. |
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50 replies... |
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Many questions--Few answers--Rapid Lysis??
Posted by Tom |
Last Reply February 8, 2012
at 17:36
Started March 7, 2008 at 21:23 |
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I had a DVT in July last year and I am 32 yrs old. I was unable to walk more than 10 feet without severe pain and shortness of breath. My leg was swollen for months following the DVT and I still experience pain and some swelling today. It wasn't until recently that I have begun to research procedures and other details regarding DVT. From reading the forum it appears that many people have similar symptoms, but doctors have used various methods to treat this condition. And also they do recommend many differing activities to patients after they begin taking coumadin. I have a few questions I was hoping someone could help me with. Is rapid lysis practiced often, has anyone had it done? I read about a healthy 19 year old who had it done with success. Are stents considered for DVT patients? Venoplasty, or vein grafts? (Any help?, I read of a women on this forum whose doctor recommended it if her swelling returns) Does weight training or extensive exercise put someo... read more |
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13 replies... |
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Injection Site Lumps
Posted by Leigh |
Last Reply February 8, 2012
at 04:34
Started February 7, 2012 at 23:47 |
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I have been on Coumadin therapy for going on 19 years for a stroke caused by a lupus antibody and last November I was scheduled for a heart catherization so my cardiologist put me on Lovenox prior to the procedure, 2 injections for 4 days. I alternated the sites but the last two were painful and I even have what feels just like a marble under the skin and it still very tender almost 3 months later. Is this normal and is it anything I should be concerned about? |
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1 replies... |
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Menstrual cycle and Coumadin
Posted by Marie |
Last Reply February 8, 2012
at 04:13
Started August 9, 2008 at 14:50 |
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Hi all, thanks for the info.. Faye, what is Paracetamol? Can anyone tell me what to expect since I am still having a menstrual cycle and on Coumadin. On Thursday 8/7 I had my first cycle since the DVT/PE diagnosis. I am having the worst cramps, back pain, dizziness, nausea and of course I'm flowing like a fountain thanks to the Coumadin. Could this cause me to become anemic? |
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130 replies... |
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Controling INR
Posted by Danielle |
Last Reply February 8, 2012
Started January 25, 2007 at 17:09 |
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Hi All, Getting to the point I am having problems controling my INR levels. I was at 2.6 my 2nd week of treatment and since then leveled off to 1.5 for 3 weeks in a row. They are rising my dosage to 10mg twice a week and 7.5mg the other days. I control my vit k intake and I am really confused as to why this is doing this???? Has anyone experienced this and why? Thanks, Danielle P.S- I am not responsable for mispelled words as it is very early in the states and have'nt slept very well since I have gotten this DVT!!!!!!!!!!!!!!! Sorry |
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64 replies... |
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Skin Lump at Injection Site
Posted by Jeannette |
Last Reply February 7, 2012
at 23:41
Started April 9, 2008 |
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Is anyone familiar with this side effect from subcutaneous injections? I have been on 1st Lovenox for 1 week and then Fragmin for past 3 weeks, and am injecting myself in my stomach. I noticed after one bad bruise, a small, round, hard lump formed under the skin. It is tender to the touch, and has not gone away after a couple weeks. Then yesterday I got a bad bruise after an injection in another site, and now I have a 2nd lump in this new location. Am I doing something wrong? Or is this a normal side effect? Do you know if they go away? Compared to my DVT/ PE symptoms, this isn't a huge concern (LOL), but am just wondering if anyone else has experienced this or knows how to prevent? Thanks to all. |
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48 replies... |
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Length of time for swelling
Posted by Karen |
Last Reply February 7, 2012
at 20:12
Started February 7, 2012 at 20:12 |
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Hey Everyone, been here awhile now, showing good signs of progress. Have had my compression stocking on since 3 weeks in of DVT, I (knock on wood) have little to no pain in my leg anymore, amazing feeling, but what I do have is swelling, still, and it's quite noticeable. Got measured last week post 2.5 months DVT and it has gone down quite a bit, but wondering if it will EVER be the same size of my other leg? I'd like to hear other people's experiences.... Does it go back to the same size or will I now have two legs that are different sizes? The thought of having it that way forever is pretty depressing, that being said no pain equals a bigger leg is not much too complain about. Thanks any comments great! |
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0 replies... |
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stopping warfarin
Posted by suzanne |
Last Reply February 7, 2012
at 15:54
Started October 27, 2009 at 18:19 |
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Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin? |
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56 replies... |
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anyone heard of the new drug pradaxa??
Posted by sara |
Last Reply February 7, 2012
at 14:28
Started April 8, 2010 at 12:43 |
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been doing some resurch into alternatives to warfarin as i am so fed up with all the side effects that the doctors choose to tell us dont exist!! like tiredness, hair loss, feeling cold all the time e.t.c....im not talking about herbs and stuff i know that we all have to take warfarin, as the alternative is risking having another clot. but last year a new drug called pradaxa was cleared for use and is allready used in some cases in the uk but only for people who have had knee and hip operations. ive looked at all the studies and trails and none have the same side effects as warfarin exept the usual bleeding bruising etc as with any blood thinner; also there are no daily/weekly blood tests as the way it thins the blood is so diffrent. would really lie to know if any one else has heard of it or has used it?? thanx. x |
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191 replies... |
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Rosacea
Posted by Rob, UK |
Last Reply February 7, 2012
at 11:38
Started February 7, 2012 at 11:24 |
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Hi to you all. I've been on warfarin now for 2 years and, unfortunately, this will be life-long. My INR is stable at 2.4/2.6 and I take 6 mg per day. However, ever since I've been on anticoagulants I have had rosacea on my face- never had it previously, so could this possibly have been brought on by the warfarin? My GP gives me the odd course of antibiotics and this does help, although she is unable to confirm any link to the warfarin and is starting to refer to it as 'stress induced'. I'm not convinced, but there seems so much about the side-effects that we just do not really know. Has anyone else had this problem? If so, any advise/guidance would be much appreciated. Take care, Rob |
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2 replies... |
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The Rat Poisen (Warfarin) is killing me
Posted by Ken |
Last Reply February 6, 2012
at 22:15
Started October 19, 2010 at 05:09 |
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Got a DVT in late August from riding my mountain bike. Dyhydration was the culprit, and not taking in electrolytes. That, plus my low resting heart beat. Lucky I didn't die. When I did the ultrasound they found it extended from my ankle to my hip. I had an interventional radiologist do thrombolysis (bust the clot) above the knee (the don't touch the clot below the knee - not UCLA,not USC, not Cedars-Sinai,nobody. Now I find myself on 6mg Warfarin. My brain feels like it is going to explode. I don't have any energy. I have a fever and I am sweating. Every day now. All day long, 7 days a week. I think I am going to quit taking the Warfarin as I would rather be dead than live like this. Besides, I know how I got the clot so I don't think my blood is suspect. |
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9 replies... |
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Big lump where DVT Stitches came out
Posted by Peter Howell |
Last Reply February 6, 2012
at 13:21
Started February 6, 2012 at 13:21 |
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Interesting perspective on DVT operation as I had it while on holiday in Spain three weeks ago, to remove a clot behind my right knee which had completely cut of circulation on my foot, leaving it cold and lifeless with risk of gangrene. Big modern incredibly clean hospital. Fairly painful one and a quarter hour operation going in from groin and leg was extremely swollen afterwards with foot very short of feeling for a week (and even various tingles three weeks on).Unfortunately, when they took the metal staples out a large five inch by three inch clot formed. This was white, rock hard, and stood out by about a quarter of an inch. Although alarming, as it is hard to find out anything about this on the Internet, the specialist who did the operation said it was a blood clot, which would disperse naturally in a few months. By this time I was off the Heparin stomach injections and taking Sintrom, the anti coagulant which is similar to Warfarin, but said to have fewer side effects. ... read more |
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0 replies... |
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Cramping in Legs
Posted by Leot |
Last Reply February 6, 2012
at 12:57
Started February 4, 2012 at 21:33 |
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Hello all. I am a 29 year old police officer who underwent a major muscle/nerve reconstruction surgery on my Right Arm in December of 2011. Three weeks ago I followed up with my surgeon and he expressed concern over the change of color and the amount of swelling in my arm. He ordered a Stat ultrasound of my arm which turned out to be a fairly large DVT in the triceps region. The pain at times is really bad and sometimes just a normal pain. I am on pain killers (can't see how people can stand them) warfarin 5mg, and just recently stopped the lovenox injections. I've been following up with an anticouagulation clinic to monitor my INR (2.7). I just started experiencing legs cramps in both of my up calf region. The pain of cramps just started and I am worried if this will add to what has already been an painful recovery from surgery. Is the cramps normal or is it something to be cause for concern? I hate that I need to ask such a question from being healthy and in shape to no... read more |
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1 replies... |
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DVT in one leg -- now pain in other?
Posted by Victor |
Last Reply February 6, 2012
at 12:49
Started December 16, 2008 at 03:19 |
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Hi, not sure if I'm being too worried about this, but thought I'd check to see if anyone else has had this feeling. I am about six weeks into a DVT on my left side (due to a broken bone) and have been on Lovenox (10 days) and Warfarin (INR of around 2.0 for the past 4 weeks). Last week I started feeling a tingling pain every few hours while walking in my right leg (non-DVT leg). Now, I feel it a little more often and a few times a day I feel a slight pinch in the thigh (I feel that on the other leg as well). The leg hasn't swelled at all, turned colors or temperature. And the feeling is much less than when I had the DVT on the left side. I plan to get another Ultrasound done in the next 2 days to verify if a clot has developed there or not, though my doctor has told me already it's doubtful since I've been therapeutic already on Coumadin. Has anyone else who has had a DVT in one leg noticed similar symptoms in the other leg? Could it be the Warfarin that is causing th... read more |
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22 replies... |
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Sarina Williams
Posted by Tim in Minnesota |
Last Reply February 6, 2012
at 08:33
Started March 10, 2011 at 14:31 |
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All: Has any one hear about Sarina William's PE recently? For those who don't know, Sarina Williams is one of the top ranked womens tennis players in the world. (I happen to be a tennis fanatic.) Anyway, the reason I bring it up is that it further emphasizes that blood DVT's and PE's affect people of all sizes, shapes, ages, and physical abilities. Again this emphasizes that for each of us the cause of our PE and/or DVT (mine is only DVT) is an unfortunate event that has affected us, but, for the most part, we probably had no direct cause in. (Not sure if that makes sense.) Sarina is a top ranked athlete, young, and takes very good care of herself (I'm assuming since she is a top ranked athlete). Yet, she like many of us has been affected by a clot. I wish her well in her recovery as I also do to each of you. |
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4 replies... |
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Stopping warfarin completely
Posted by Bubbles20 |
Last Reply February 6, 2012
at 05:45
Started January 31, 2009 at 12:52 |
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I have been on Warfarin for 4 years now after being diagnosed with a two DVTs when i was 16. Being told i would be on long term warfarin it is now 4 Years later and im still in the same routine going to the doctors taking blood test every other week. Last year i had a scan showing no clots in my leg but my doctor still says i should be taking warfarin just in case. I don't want find myself 20 years later still going to the doctors. Im 20 years old at the peak of my life, i eat healthy and excercise regulary. Now ive stopped having warfarin for a week now and my doctor doesn't know. So far i havnt had any problems. I really want to get off this medicine because it isnt healthy for me in the long run. I believe i can come off warfarin forever i just need some ideas on how i can do this. Thanks Bubbles |
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30 replies... |
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Previous DVT in right leg, another in my left?
Posted by DVT25 |
Last Reply February 5, 2012
at 17:42
Started February 18, 2008 at 12:13 |
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I am a 25 year old male. I was diagnosed with a DVT in my right let at the age of 19 since then it has went away but left damage in the deep vein causing some minor circulation problems but nothing like it was before. I can now walk freely without pain for long periods of time. Recently I have a problem in my left leg. About 2 months ago i went into emergency with a very painful lump on the left side of my groin. At first the doctors thought it was a hernia, but later changed their minds and said it was a stone problem and after testing found that it was niether. The lump stayed but the pain went away so i left it alone. A couple days ago i went back into emergency with pain from the same lump but now is efecting my whole left leg. The symptoms are the same as my DVT 6 years before minus the swelling and discoloring. I cannot walk more then 100 feet without having to rest. I feel pain from my inner quad and groin. After resting for a couple minutes I can walk for another 1... read more |
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17 replies... |
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Pain in thigh
Posted by Heidi |
Last Reply February 5, 2012
at 16:21
Started February 5, 2012 at 15:16 |
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Hi I had bilateral PEs in May 2010, was on warfarin 6 months. This morning I woke up with a pain in my thigh, it feels kind of heavy and aching. No swelling/redness though. Is it possibly it might be a dvt? |
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1 replies... |
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Home INR Testing
Posted by BLC |
Last Reply February 5, 2012
at 15:42
Started January 14, 2012 at 20:41 |
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I have had a DVT and bilateral PE's for a little less than a year now. I was supposed to go off of Coumadin this past week, but just found out I will be on for at least six more months since my DVT has shown no progress. My question is whether or not any of you have tried the home INR testing? I am very interested in this, however I know nothing about the ballpark cost, etc. I have to go to the dr to get my blood checked either every week or every two weeks and am very curious about the home testing for convenience reasons (I'm in professional school and have no time to go to a dr every 7-10 days). I have some paperwork I found online about it, but I can't find anything about cost. I am self-pay so any help about this would be great! Thank you. |
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9 replies... |
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