DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Duration of anticoagulant therary
Posted by LeoDN, 44, NY
Last Reply April 18, 2014 at 17:34
Started April 18, 2014 at 17:34
Hi all. This paper is relatively new (February 2014). It is the first
I found that clearly states clear guidelines for extended
anticoagulant therapy (to be fair, other also do, but there was always
something in the others the seemed a bit gray to me). Given the side-
effects of anticoagulant therapy, the risks of bleeding and the risks
of recurrence if one is not taking anticoagulants, this is a very
important topic for us who had DVTs and PEs. I personally think that
it is too important of leave the decision to the doctor alone. The
paper is relatively easy to read (and like all papers one does not
need to understand everything to make good use of it).

"Duration of anticoagulant therapy for deep vein thrombosis and
pulmonary embolism" by Clive Kearon http://www.ncbi.nlm.nih.gov/pubmed/24497538

0 replies...

PEs from DVT
Posted by Carole
Last Reply April 18, 2014 at 17:22
Started April 18, 2014 at 15:29
I have pulmonary embolisms in both lungs from a large clot in my right thigh.
Luckily, I'm alive because I've had this for several months, and I thought it was
severe asthma. I've been in the hospital for six days on blood thinner, and I think
my INR will be a 2 by tomorrow according to the doctor.

One thing I'm finding is every nurse is giving me a different picture of what I can
expect. One says there's a chance of forming new clots and sudden death, and
others say I'm okay now because of the blood thinners. I don't know what to
think. Last night I was searching the web, and I got really scared and had a lot of
anxiety. The main thing I'm going to have to do is calm down. It's out of my
hands.

1 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply April 18, 2014 at 14:35
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

58 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply April 17, 2014 at 22:43
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

47 replies...

Brown spotting
Posted by Francisco
Last Reply April 17, 2014 at 21:40
Started April 15, 2014 at 19:22
I'm a 25 year old male and had a DVT about a year ago (genetic
predisposition to blood clots). About a month ago I started getting
brown spots all over the leg, specially in the ankle part. There's
also a little bit of swelling at the end of the day but no ulcers or
anything like that.

I know the brown spotting is a sign of PTS and fairly common after a
DVT but I'm wondering if I can go away with exercise and/or losing
weight. Has anyone with the brown spotting have had it decrease/go
away completetely? Anyone know why it happens?

2 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply April 15, 2014 at 22:06
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

70 replies...

Brown spotting
Posted by Francisco
Last Reply April 15, 2014 at 19:22
Started April 15, 2014 at 19:22
I'm a 25 year old male and had a DVT about a year ago (genetic
predisposition to blood clots). About a month ago I started getting
brown spots all over the leg, specially in the ankle part. There's
also a little bit of swelling at the end of the day but no ulcers or
anything like that.

I know the brown spotting is a sign of PTS and fairly common after a
DVT but I'm wondering if I can go away with exercise and/or losing
weight. Has anyone with the brown spotting have had it decrease/go
away completetely? Anyone know why it happens?

0 replies...

Synthroid and Warfarin
Posted by Rachel
Last Reply April 15, 2014 at 16:11
Started April 15, 2014 at 16:11
I had subclavian stent surgery and developed a blood clot in my jugular. I was put on warfarin. Besdides the fatigue, felling I was in a fog and hairloss I felt lightheaded to the point I couldnt get out of bed. I asked the surgeon, coagulatioin dept and my internist if this was the warfarin and was told no not a symptom. Well I had an appt with my endocrinologist and was telling him how I felt. He said did anyone bother telling you warfarin and synthroid do not play well together? He brought it up on the computer He validated how I was feeling and the reason why. I completed the 6 months of warfrain tho the blood clot did not go away, but 2 weeks later I felt I had come out of the fog AND no more lightheadness. I am posting this for anyone else experiencing issues with synthroid and coumadin. It is NOT in yoru head!

0 replies...

Trading Warfarin for natural anticoagulants?
Posted by Ken
Last Reply April 15, 2014 at 08:58
Started June 27, 2011 at 14:11
Has anyone here had the courage to substitute their Warfarin prescription with fish oil or nattokinase, or any other natural blood anticoagulants with success? The only way to see if you don't get another blood clot is to actually quit taking the Warfarin and start on the natural thinners. And I suppose that if your calf starts to swell or hurt you can have 5 days worth of Lovenox immediately available by your side for your rescue. My hemotologist says "that's like playing Russian Roulette". I've tried going off Warfarin once albeit with no change in lifestyle and no blood thinners and I got a new blood clot in about 10 days. My calf started to swell and hurt, but I noticed it right away, verified it with the Ultrasound and immediately went to Lovenox and Warfarin. Now I'm thinking about quitting the Warfarin again, this time with lifestyle changes (more exercise and moving) and natural blood thinners. It didn't seem particulary risky last time I quit taking the Warfarin. Doe... read more

22 replies...

Lumbrokinase and Serrapeptase
Posted by LeoDN NY
Last Reply April 15, 2014 at 08:08
Started April 15, 2014 at 08:08
Anybody out there taking these supplements as part of his/het DVT avoindance strategy?

0 replies...

Sex drive and warfarin
Posted by Lucy
Last Reply April 15, 2014 at 01:52
Started January 14, 2010 at 01:12
Hi...
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,
Lucy

61 replies...

Your symptoms?
Posted by Michelle
Last Reply April 15, 2014
Started September 19, 2010 at 01:46
I am going to the Dr. in a couple of weeks. But I was wondering what were your symptoms of DVT?

I noticed about two months ago I started having cramping in my right calf. My husband would rub it and it would go away. Now it is a constant aching, cramping, fluttering, throbbing feeling through out my leg all day on and off. It doesn't hurt when I stand on it or put pressure. I did the whole bending my foot up to check and see if I felt pain when stretching and I only just felt the pull from stretching not a sharp distinct pain. Basically my muscles felt really right and it almost felt hard to stretch. I don't have redness or bruises. But one thing that does concern me is on the back left side of my right calf there is a pea size lump. It doesn't really hurt but of course my whole back of my thigh has been hurting so its part of the pain. Feels like it is by a big vein.

I honestly feel the throbbing/twitching feelings when I sit on my bed at night the most. Like I said I feel it... read more

37 replies...

Anaemia, Warfarin and heavy period bleeding
Posted by Angelene
Last Reply April 14, 2014 at 20:14
Started February 26, 2009 at 08:50
Help! I was diagnosed with DVT in right leg and multiple bilateral PEs on 12 Jan 2009. On admission to hospital my HB was sitting on 74 which they decided was way too low and needed correction with a blood transfusion. They gave me three units of blood that night. They also put me on iron tablets. Two weeks later on follow up the consultant told me to stop the iron tablets. In the meantime, my menstrual cycle had kicked in (37 years old) and I had been bleeding for 14 days. He still said stop taking the iron tablets. In the meantime, I have had very heavy bleeding (lasted for four days) followed by "nuisance bleeding" ie enough to be a bother, but not much else. My HB level has dropped from 112 on discharge to 98 two weeks ago and then down to 90 last week. I didn't get last week's result until today and now they are talking about a retest next week followed by another blood transfusion if still low next week.

What I want to know is what can I do to boost my iron levels... read more

7 replies...

Anyone on High Blood Pressure pills also?
Posted by DS
Last Reply April 14, 2014 at 08:06
Started November 22, 2008 at 16:57
Hi, I've recently started Coumadin therapy for a DVT. I've been taking a prescribed diuretic (which reduces salt/sodium in the body as I understand it) the past few years to high blood pressure. My doc doesn't think there will be any issues between it and the Warfarin (which is Sodium, right?), but I'm still concerned. I have been getting headaches regularly since starting the warfarin, so I'm concerned this might be a cause?

Anyone else out there on High BP meds while on Warfarin treatment ?

10 replies...

Blood clot in pelvis
Posted by Wiffle
Last Reply April 14, 2014 at 03:18
Started January 11, 2011 at 03:20
Has anyone had this?? I have a clot in the illiac vein extending into the vena cava discovered via CT scan for an unrelated issue a few weeks ago. I was on lovenox shots and now just warfarin. I'm going to a hematologist in a couple weeks but so far all the doctors I've talked to rarely heard of this?? It would be nice to know I'm not the only one with this :( I also have factor v leiden, heterogygeous. (I just had a baby 6 weeks ago so the ER doctor said this was most likely the cause of the clot)
Also, last night and today I started having pain in my left abdomen/ hip area. Has anyone had this? It's very bothersome and I am using a heating pad all day today. I talked with a nurse who thought it could be residual from the clot healing but who knows??
Trying to get out of this "woe-is-me" attitude...

25 replies...

intermittent pain on outside of right calf - s
Posted by jeanb
Last Reply April 13, 2014 at 22:42
Started December 20, 2008
I've just been reading messages on blood clots on this forum because I have been experiencing several times a day, a dull ache/pinching feeling sensation in right calf, on the outside and always in the same spot.

I have not been to a doctor and I am not taking any drugs at all.

What I have noticed is that the 'pinching/pulling' sensation happens in exactly the same place on the outside calf area and only the right leg. After a few times I marked a X on the area with a biro and it's always that same place!

I usually feel it when I'm sitting at the PC where most of my work is done or if I sit with my leg on a chair. I don't really feel it the same when standing or walking so is there anyone else with similar syptoms please?

My worst fears are a blood clot but there is no swelling, no redness and no warmth, which seems to be possible symptoms and the pain is what I would call fairly minor, but is intermittent and never lasts for long.

Someone said it might be nerve rel... read more

19 replies...

Another DVT while on Warfarin
Posted by Kerri
Last Reply April 13, 2014 at 10:32
Started November 2, 2010 at 20:40
Is it possible to get another dvt while on warfarin. I had my first clot about 2 months ago in my left calf, but now am having pain in my right.
I dont think it is due to using the other leg more as the pain from my original dvt has subsided a while ago.
My INR has not been stable since starting warfarin....
Any thoughts??
Thanks, take care everyone :)

24 replies...

DVT - Recovery time?
Posted by Colleen
Last Reply April 13, 2014 at 10:19
Started February 4, 2010 at 01:34
I was wondering how long it takes to completely recover (if possible) from DVT? I had ankle reconstruction surgery on 12/1/09 and by 1/15/10, my PT sent me directly to the ER due to extreme swelling (rock solid hard), redness in the calf, warm to the touch. The ultrasound indicated a clot from the bottom of my calf to above my groin close to my lung. I had to self-inject Lovenox 2x a day and started immediately on Coumadin. My PT/ INR levels are finally good at 2.4. But my leg isn't really improving. I know it hasn't been long but will I have permanent damage to the veins? I realize that a PE is still possible at this stage. Are there specialists out there other than a GP that can be consulted? Lots and lots of questions here... Just looking for some insight. Thank you.

19 replies...

Rash from Stockings
Posted by Naomi
Last Reply April 13, 2014 at 10:02
Started February 3, 2011 at 17:35
Hey all,

Anyone get a rash at the top of their thigh from the compression stockings? I was fine for the past 7 months wearing them but all of a sudden if I wear it for more than 2 days consecutively, I get a rash on the top of my right leg (DVT leg). It goes away if I stop wearing the stocking but given that it's my bad leg, I need to wear it. Anyone have any ideas on how to prevent that?

I've tried changing the soap to wash them in and cleaning the rubber top with different things.

2 replies...

PAIN WHEN WEARING COMPRESSION STOCKINGS
Posted by JACOB
Last Reply April 12, 2014 at 15:33
Started March 28, 2012 at 22:30
Hi everyone. Im Jacob, age 29. After the last DVT in January 2012 (4th
in my life) I was put on warfarin for a life-time. I was also advised
to wear those bloody compression stockings. Everyone says they are a
must, and they do the job. But I just cannot wear them.

I got one in Poland and I could not wear it at all. It caused a pain.
The skin around my ankle is already very soft and I felt very
uncomfortable after 20 minutes of wearing that bloody sock !

And now Im living in the UK... they gave me another sock. The leg was
measured etc. but unfortunately it is the same thing. Pain and pain.
It makes more pain than it is without that stocking.

Has anyone experienced that as well ? What should I do? If I don't
wear that stocking, is it gonna be more harmful for me ?

Pls help !

19 replies...

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