DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Posted by clintongl69
Last Reply July 25, 2014 at 18:02
Started July 25, 2014 at 18:02
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0 replies...

one big mess at this point
Posted by my3sons
Last Reply July 25, 2014 at 16:47
Started July 25, 2014 at 16:47
I have chronic DVT/PE, and after my last episode I became a Coumadin
"lifer." I'm resistant; my standard dose is 10-10-7.5 repeating. Last
week I got cellulitis and my gp put me on Keflex (I'm allergic to the
'cillins), but I had a reaction to that, too, which left doxycycline
as the safest option. It has a rep for dangerously raising INR, so
vasc Dr lowered my dose to 7.5. Checked INR and it was 1.7, so back to
regular dose. Rechecked today (2 days later) and it was 1.6. I leave
for the beach tomorrow and Dr is faxing an order for a recheck to a
lab there. I had a weird tingling/heat feeling in my DVT leg (though
little pain and nothing at all like my DVT pain) yesterday and chcest
pain off and on yesterday and today. I'm waiting for the Dr to call
back to ask if I need to wear TEDs in the car or if frequent breaks
are enough, and I'll mention it if/when they do. I'm hoping someone
who's experienced week long below range scores in the past can help
rea... read more

0 replies...

On Warfarin. Banged thigh?
Posted by Jo uk
Last Reply July 25, 2014 at 14:04
Started July 24, 2014 at 05:22
Hi all,
Yesterday I walked into the handlebar of a bike and it got the front of my thigh bone (bit like when U smack ur forearm on a doorhandle type of way!) it feels bruised to touch and aches but no visible bruising. I am on 10mg a day have been on it for almost 2 months for DVT x 2 in calf on same leg. I don't want to make a fuss or docs unless I need to don't want to be too dramatic.What do I look out for and should i get it checked.what can they do anyway? Cheers

1 replies...

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Posted by outletnfoet
Last Reply July 25, 2014 at 13:33
Started July 25, 2014 at 13:33
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0 replies...

Occlusion of Common Iliac Vein
Posted by Essie
Last Reply July 25, 2014 at 12:46
Started March 28, 2010 at 11:48
Hello!!

In Oct 2007 I was diagnosed with a large Above-Knee DVT in my left leg following hospital stay for pneumonia. I was 34 at the time

On Warfarin for the usual 6mths, then told to continue wearing compression stockings for 2yrs.

Swelling symptoms & pain have been a feature of everyday life since then, I have changed my car to an automatic as driving was very painful & haven't been able to walk without pain since the clot.

My friend recently qualified as a community nurse & suggested that my GP refer me to a Vascular Surgeon to see if they could help me.

A Doppler & MRI later & I have been diagnosed with a complete occlusion of the left common iliac vein. I have been told that a bypass is not a possibility due to the pressure in my legs & the futher clotting risk, laser treatment/stenting is not possible to due to the occlusion being a solid mass of scar tissue. I have been told not to 'push' my leg, slow down walking & do upper body exercise only, as the vein... read more

33 replies...

New to DVT
Posted by Phil B
Last Reply July 25, 2014 at 11:39
Started July 10, 2014 at 16:16
I'm a new DVT sufferer, just diagnosed two weeks ago. I raced a 5k on a Sunday
morning (I was in the middle of marathon training for my 10th marathon - was at
about 30 miles a week), felt fine Monday, left leg felt tingly Tuesday,
Wednesday left leg began swelling, and Thursday could not walk! D-dimer test
showed abnormality so had ultrasound Friday morning, DVT from just blow the
knee to the groin (not sure if it went above that).

Immediately on Xaralto and compression bandages. Followed up with hematologist,
who said forget the bandage for a few weeks until the swelling goes down (he
says it's a lifetime problem that won't really be impacted by delaying this
several weeks - anyone else hear this?). He also said elevation is my friend
until the swelling is down, so I put it up at night and at work during the day.
Then he ordered a dozen tests to try to figure out the root cause might be -
said this is super rare in marathon runners (although I have found so... read more

13 replies...

Vascular Surgery - Remove DVT
Posted by Kathy
Last Reply July 25, 2014 at 10:11
Started December 26, 2009 at 01:27
Hi, I have been under the care of a hematologist for 2 years for a blood clot running from my groin to my calf. I take ten/mg of coumadin a day. I would like to rid myself of this clot --- there has not been any change since I've gotten it -- multiple ultrasounds show no change.

I've been doing some research and saw there is a procedure where a vascular surgeon can remove the clot. Has anyone out there done this or discussed it with their doctor. I am wondering why my hematologist has never brought this up --my hematologist basically told me there isn't any other option and that my body had to break the clot down on it's own --- which it clearly has not done.

I appreciate any thoughts anyone has on this topic. I am thinking of going to my primary care to get a referral to discuss my case w/ a vascular surgeon.

Thanks!

40 replies...

When to test INR after change in dose?
Posted by Audrey
Last Reply July 25, 2014 at 09:19
Started June 29, 2009 at 20:35
I'm just beginning this long journey on warfarin/coumadin after being diagnosed with DVT.

I did a lot of research on warfarin and understnd that it has a very long half life, which means that it can take the body a considerable amount of time to adjust to changes in dosage levels, on top of its complex reaction to changes in the metabolism. So my question is, if your dosage level is changed significantly, when is the optimal time to have your INR levels restested?

I was on 5 mg. per day starting on a Saturday. My intial INR prior to starting was 1.1. I was tested again on Monday, with an INR of 1.2. On Wednesday, after almost 96 hours at that dosage level at which time the med should have reached maximum effect in my system, I still tested 1.2. My dosage was increased by 40% to 7 mg. starting Wednesday night. Blood was drawn on Saturday morning, or 60 hours after increasing the dose. INR was 2.2, with a targeted level of 2.5. My doctor called me on Sunday and has dropped my do... read more

8 replies...

Fast drop in D-DIMER numbers
Posted by Nellie
Last Reply July 24, 2014 at 23:48
Started July 23, 2014 at 04:49
I have Factor V and previous history of PEs, DVTs etc. Had D-DIMER done
Monday following an increase of symptoms. It came back at 380. Tuesday, after 3
therapeutic treatments of clexane over 36 hours it was suddenly down to 206.
Testing done at the same place, same conditions etc. No one can explain
how/why it dropped so quickly. Anyone have any experience or explanations?

4 replies...

DVT in Groin during Pregnancy.
Posted by Kate
Last Reply July 24, 2014 at 19:55
Started July 24, 2014 at 14:07
Hi, one week ago today I was admitted to hospital with a hugely swollen,
discoloured and fluid filled left leg. After an ultrasound, I was told that I had a
large clot in my left groin. I was started on daily heparin injections as I am 28
weeks pregnant. After 4 nights in hospital, I have returned home and have been
told to rest and elevate my leg. My mobility is severely affected; I can really only
manage to get around the house and even that is very painful. I am taking
paracetemol every 6 hours for the pain. Can anybody tell me about their
experiences of a clot in the groin in pregnancy? I'm petrified that the pain and
immobility are going to be long term problems. I've no idea how I'll cope with a
baby when I currently can't stand long enough to shower. Can anyone advise on
when I might hope to see some improvement? Thanks for any help.

1 replies...

loratadine (Claritin) and warfarin
Posted by Sarah
Last Reply July 24, 2014 at 18:20
Started June 6, 2008 at 22:31
Does anyone take claritin for allergies and if so did it affect your INR levels if taking warfarin concurrently?

13 replies...

The risk of long flights
Posted by Pat N, Silver Spring
Last Reply July 24, 2014 at 10:51
Started July 23, 2014 at 13:50
I was planning to fly to London end of August (approx 7.1/2 hour
flight), then a 3 hour bus trip, and wonder how risky this is since I
had vein surgery on June 25th to correct a superficial vein deficiency
in left leg. A follow up MRI revealed a blood clot had developed,
something I had not had before surgery. I took Lovenox shots for 2
weeks, a follow up MRI showed blood clot had gone. Doctor said due to
my upcoming flight I should have a shot of Lovenox prior to the flight
and one upon my return as a precaution. Various medical sites on the
web suggest flying within 3 months of surgery is risky so perhaps I
should wait until late Sept/early Oct. Some articles even suggest
waiting for a year until flying. My mother is 93 years old and I do
need to go and see her. I can delay my trip until October but not
sure that would make much difference. I could not delay it for a
year. Since I do not have DVT I am wondering if I am worrying
unnecessarily any... read more

2 replies...

PERIODS ON BLOOD THINNERS
Posted by DANIELLE
Last Reply July 24, 2014 at 07:03
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

137 replies...

First Rib Resection Experiences Please
Posted by Becks
Last Reply July 23, 2014 at 20:44
Started August 16, 2012 at 08:35
Hello,

I am a 26 year old active and otherwise fit and healthy female that was admitted to
hospital in January with a very swollen right arm (there was a 4cm diameter difference
from the left arm), it was a distinct purple/grey colour and all of the veins that were
hidden deeper under the skin were visible and the normally visible green veins were
almost protruding.

Turns out I had a 20cm clot running through my shoulder and down my arm in the
subclavian vein. I had surgery straight away to dissolve then vacuum out the clot with
good results. The specialists all tried to put the cause down to being on the pill even
through I had been on it for 10 years, it wasn't until after a venogram that showed my
vein was compressed in my thoracic outlet by the collar bone and first rib that we knew
I had a mechanical issue.

I was on warfarin for 6 months, have now been off it for 2 weeks. The problem is that I
am constantly experiencing a dull ache generally along... read more

4 replies...

DVT Recovery Time
Posted by Ann
Last Reply July 23, 2014 at 12:33
Started September 17, 2007 at 17:35
Can anyone tell me just how long it takes to be fully recovered from a DVT and fit for work? I developed a DVT in the calf about a week after returning from a holiday flight last month and no-one, not even the doctor can give me an indication of how long I'm going to be off work. I'm a teacher - the only answers I get are - everyone is different, it will be a while yet!

34 replies...

Warfarin headaches
Posted by Claire
Last Reply July 22, 2014 at 15:48
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

69 replies...

May Thurner's
Posted by Donna Edgerley
Last Reply July 21, 2014 at 22:32
Started June 6, 2014 at 07:36
Hello fellow DVT sufferers.Has anyone else been diagnosed with May-Thurners?I was diagnosed in February 2014 after a DVT for thirteen years and now chronic venous insufficiency and May-Thurners. I would like to know how people deal with the pain. Thank you.

1 replies...

Worried about new DVT
Posted by Gemma
Last Reply July 21, 2014 at 21:37
Started September 2, 2012 at 13:55
Hey everyone, I'm hoping you guys on here can give me a big of reassurance, I'm
a 23 year old female who has been diagnosed with a DVT and superficial
thrombosis about a month ago. I was On Heparin injections twice a day a 7mg of
Coumadin. My first inr was 1.7 My INR stabilized at 2.3 for one INR test so was
taken of Heparin, but since my INR has varied between 1.7 and 2, I'm now on
10mg of Coumadin and am yet to see a stable result. Im follwing everytging the
doctors told me about my diet and Vitamin K My first question is, how long
should it take to be stabilized? Secondly should I be put back on Heparin since
my results aren't staying in the therapeutic range? my last question is, since
being on Coumadin I have develope a pain in my right leg the same as the pain I
got with the DVT in my left leg, could I have developed another blood clot while
taking the medication?
Thanks, I hope someone can help me out, I don't really understand what my dr
tells me.

3 replies...

Compression Stockings - wear to sleep?
Posted by Ian T
Last Reply July 21, 2014 at 08:47
Started September 8, 2009 at 02:38
I was prescribed grade 1 compression stockings because of the DVT I had in May. The doctor told me to make sure I put them on first thing in the morning, after my shower, and that I can take them off when I go to bed, or otherwise if I'm laying down and can keep my legs elevated.

My question: Can I wear them while I sleep? Or are there negative side effects from wearing compression stockings 24 hours a day?

I only ask because a couple of times I was just too tired at night to take them off before sleeping.. you know how difficult those things are to put on and take off. When I wake up in the morning my legs and ankles feel stiff, but on those nights where I didn't bother removing my stockings, I woke up with my legs feeling a little itchy at the top of the stockings, but otherwise fine and free of stiffness.

42 replies...

DVT PTS and Venowave
Posted by Martha Moon
Last Reply July 21, 2014 at 05:34
Started August 10, 2011 at 09:20
I developed my first DVT over a year ago. It was incredibly painful I
was taking pain meds around the clock. Finally the pain subsided after
about 6 weeks and a full month off work. I gathered info on the
Venowave. It seemed to get mixed reviews here however I went for it out
of desperation to get back to work. So far I am showing virtually no
signs of PTS which was my greatest concern and the anxiety of developing
another DVT is eased by wearing the Venowave. I know the coast is not
clear for PTS yet, but all looks good this far and I am pleased.

114 replies...

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