DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Just released taking Previscan
Posted by Lore
Last Reply November 28, 2014 at 06:30
Started March 18, 2008 at 19:10

I was just released from the hospital today after suffering from multiple small DVTs throughout my left leg and a minor PE. I am 35 years old and otherwise healthy. I was taking low dose estrogen birth control pills and had taken two 6 hour flights over 2 days. I am American but living long term in France and I am currently taking 5 mg of Previscan. I understand that Previscan is widely used in France, but not so much elsewhere. Does anyone have any experience with this drug? Any side effects or things to be concerned about? Also any advice for dealing with my condition? I have not yet had a chance to see what my mobility limits are but the swelling has gone down considerably in my leg and I am getting around my apartment without much trouble or pain. I felt a little winded when I went up the stairs quickly.

Thanks, Lore

54 replies...

Greenfield Filter
Posted by Lisa
Last Reply November 28, 2014 at 03:15
Started June 10, 2008 at 23:06
Does anyone have a greenfield filter? Would like some info on it. I have one and it is occluded

50 replies...

bruising while on warfarin
Posted by suzanne
Last Reply November 28, 2014
Started September 14, 2009 at 19:41
Was just wondering why you get asked when go for inr test if you have any unexplained bruising?I have noticed today that i have 3 small bruises on my dvt leg,but cant remember knocking my leg.

51 replies...

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Last Reply November 27, 2014 at 17:30
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Advice Sought for New DVT Patient
Posted by Jeff in China
Last Reply November 27, 2014 at 16:49
Started July 23, 2009 at 10:47
First, this site is awesome, and a wonderful way to share
ideas/thoughts/encouragement to those of us that have suddenly stepped through a
big scary door into this new DVT world.

Second, I've been diagnosed within the last 48 hours with DVT (after a long-haul flight
back from the US). My DVT is in the right calf, I've been started on Heparin and
Warfarin within days of the flight back, I am in a good hospital with a doctor who sees
30-50 of these cases a year (lots of long-haul travellers get this I understand) and
while I have significant pain in the calf, I can hobble around for 20-30 minutes. Once
I elevate my leg, the pain subsides to a dull, very manageable ache.

QUESTION: For those that have had similar symptoms (i.e. not necessarily upper leg
DVT or PE), I'd be very appreciative to hear how recovery went, understanding that all
bodies are different, of course and that this can always rapidly change. Did anyone
experience a "full" recovery, ... read more

13 replies...

Your symptoms?
Posted by Michelle
Last Reply November 27, 2014 at 16:16
Started September 19, 2010 at 01:46
I am going to the Dr. in a couple of weeks. But I was wondering what were your symptoms of DVT?

I noticed about two months ago I started having cramping in my right calf. My husband would rub it and it would go away. Now it is a constant aching, cramping, fluttering, throbbing feeling through out my leg all day on and off. It doesn't hurt when I stand on it or put pressure. I did the whole bending my foot up to check and see if I felt pain when stretching and I only just felt the pull from stretching not a sharp distinct pain. Basically my muscles felt really right and it almost felt hard to stretch. I don't have redness or bruises. But one thing that does concern me is on the back left side of my right calf there is a pea size lump. It doesn't really hurt but of course my whole back of my thigh has been hurting so its part of the pain. Feels like it is by a big vein.

I honestly feel the throbbing/twitching feelings when I sit on my bed at night the most. Like I said I feel it... read more

43 replies...

Posted by DANIELLE
Last Reply November 27, 2014 at 13:52
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

173 replies...

warfarin due end date tomorrow what now?
Posted by Joanne
Last Reply November 27, 2014 at 09:22
Started September 11, 2014 at 06:19
I am wondering if my end date is tomorrow I am also having my INR tomorrow too, what is the procedure for coming off warfarin? I have 2 superficial thrombohlebitis in my calf have been on the ward for 3 months after Clexane. Is that it now? Will they check if clots are there or is it ok just to stop? Will they reduce dose? Apprehensive but glad.

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anyone heard of the new drug pradaxa??
Posted by sara
Last Reply November 26, 2014 at 23:47
Started April 8, 2010 at 12:43
been doing some resurch into alternatives to warfarin as i am so fed up with all the side effects that the doctors choose to tell us dont exist!! like tiredness, hair loss, feeling cold all the time e.t.c....im not talking about herbs and stuff i know that we all have to take warfarin, as the alternative is risking having another clot. but last year a new drug called pradaxa was cleared for use and is allready used in some cases in the uk but only for people who have had knee and hip operations. ive looked at all the studies and trails and none have the same side effects as warfarin exept the usual bleeding bruising etc as with any blood thinner; also there are no daily/weekly blood tests as the way it thins the blood is so diffrent. would really lie to know if any one else has heard of it or has used it??
thanx. x

241 replies...

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side effects of warfarin
Posted by Shaz uk
Last Reply November 26, 2014 at 11:17
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

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Leg veins feel like over stretched rubber band
Posted by Sharon R
Last Reply November 26, 2014 at 07:06
Started June 7, 2011 at 03:51
So it's been 6 months since my latest DVT. Have been back to work for 5 months, still a little swelling from time to time but overall I thought I had completely recovered. During a recent "field trip" for work, I walked around a racetrack and then a mall nearly all day. By the end of the evening my legs were killing me. The only way to describe it was like over stretched rubber bands down the inside of my thighs (not a muscle ache for being out of shape, although I am).

Anyone else ever have this feeling? Maybe I am just out of shape and just need more exercise. Working on that. Opinions for you experienced DVT folks?

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Chance of missing something
Posted by Jeff
Last Reply November 25, 2014 at 17:31
Started November 17, 2014 at 13:16
So a few weeks ago I started having significant calf pain and went to the ER and
had an ultrasound and Ddimer which both were negative. Pain persisted and I had
another ultrasound later that week which said phlebitis and a negative ddimer.
Now about two weeks since the ultrasounds the pain has persisted. I had another
ddimer actually last week which was still negative. Last week I also went to a
physic therapist for it because my GP said he doesn't even see a chance for
phlebitis and that it's my anxiety and an injury I had about 3 or 4 months ago.
Well the next morning after physical therapy the pain really was bothering me on
the back of my knee but has since subsided but now the pain is to my groin and
actually lower left abdomen. Worried something may have been missed or the
clot has moved.

11 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply November 25, 2014 at 15:57
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

66 replies...

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Vein Ablation to relieve PTS?
Posted by Mickey
Last Reply November 25, 2014 at 08:38
Started November 17, 2014 at 10:17
I wanted to see if anyone on here had any experience with vein abalation as a way to relieve PTS. I had a DVT a couple months ago and the doctor went in and removed it in the hospital. I am now on xarelto, but I have now been diagnosed with venous insufficiency in both my great saphaneous and small saphenous veins in my left leg. I've been to 2 different doctors, one wants to laser both veins and the other wants to do a combo of RF and foam sclerotherapy to close the veins.

I'm very, very scared. My leg swells a little (seems mine isn't as bad as others on this forum). The swelling gets worse when I stand for longer than 15 minutes and my leg will discolor a little. I also have burning sensations in my knee, thigh and groin. I think my worst symptom is how my left leg feels more tired than my right. I've also noticed a bunch of new spider veins. I'm only 33 and maybe it's stupid of me, but I want my legs to look nice for as long as possible.

If this procedure really ca... read more

3 replies...

Side Effects?
Posted by Emmab
Last Reply November 24, 2014 at 15:05
Started June 3, 2008 at 14:51
Hi All: Well, my husband has been on Rivaroxaban now since mid April. We have to go on this research study until Mid July and then hopefully get another dopplar and his knee surgery.
Since this med is still like Coumadin, I'm wondering what the side effects are of Coumadin? He's been getting queasy and having tummy trouble. They only check his blood about every four weeks or so and are supposed to tell him if anything is wrong. Very scary. I wish he had chosen the old fashioned route, but he didnt and doesnt want to quit now.
He has no swelling, no bleeding issues, no more clot pain (though hard to tell since his knee is shattered at the moment).
Anyway, wondering if queasy is normal or no?

16 replies...

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