DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Axillary DVT age 25
Posted by Jenny
Last Reply August 29, 2015 at 13:09
Started August 29, 2015 at 13:09
2 months ago was hospitalized with axillary DVT, with the clot
fragmenting into my lung.

Am on warfarin 7 mg and still have an INR of 1 and PT of 12.
Struggling with getting a doctor to treat me due to insurance
issues. Every day is phone calls to doctors. I'm lucky I even have
my warfarin right now

Still have pain in my arm. Have started getting pain in my ankle
and tingling in the bottom of my foot, and bleeding under the
skin. Have coughed up blood 3 times in the past 2 months.

I'm only 25. I have never smoked, done drugs, don't drink. I eat
very well and exercise. I'm the poster child of health. I don't
know why this is happening. The ER doctor thinks it's genetic, but
my mother was tested in the past for genetic factors for blood
clotting, and she has nothing. My father is also exceptionally

My body is barely responding to warfarin, and seems to just be
spontaneously creating clots. First the axillary vein, now my
ankle. Wish I kne... read more

0 replies...

swelling of thighs after aqua therapy
Posted by Jody
Last Reply August 29, 2015 at 11:42
Started August 29, 2015 at 11:42
Hi, all. I am new to this forum and very appreciative to have it
available. I have a chronic dvt in my right calf. The most
bothersome aspect to this condition is an inability to walk more than
a block or to stand without movement for more than a few minutes.
This is compounded by the fact that I have a very bad back, the worst
part of it being severe stenosis in the lumbar area. I have been
using compression stocking, 20-30 mrg, for about 4 years, putting them
on usually before I get out of bed each morning. It seems that the
best way to keep my swelling is through alternating sitting and
walking short distances in the house.

I have noticed for some time that every time I take aqua therapy for
my back (have done so for many years now off and on)my thighs, which
do not normally swell often, are seriously swollen which appears to be
from edema. I don't know whether to continue the aqua or not. Is it
possible that standing, even in a pool, for an ... read more

0 replies...

Skin Lump at Injection Site
Posted by Jeannette
Last Reply August 29, 2015 at 05:04
Started April 9, 2008
Is anyone familiar with this side effect from subcutaneous injections? I have been on 1st Lovenox for 1 week and then Fragmin for past 3 weeks, and am injecting myself in my stomach. I noticed after one bad bruise, a small, round, hard lump formed under the skin. It is tender to the touch, and has not gone away after a couple weeks. Then yesterday I got a bad bruise after an injection in another site, and now I have a 2nd lump in this new location. Am I doing something wrong? Or is this a normal side effect? Do you know if they go away? Compared to my DVT/ PE symptoms, this isn't a huge concern (LOL), but am just wondering if anyone else has experienced this or knows how to prevent? Thanks to all.

68 replies...

Greenfield Filter
Posted by Lisa
Last Reply August 28, 2015 at 21:19
Started June 10, 2008 at 23:06
Does anyone have a greenfield filter? Would like some info on it. I have one and it is occluded

57 replies...

Posted by rick barry
Last Reply August 28, 2015 at 16:50
Started August 28, 2015 at 16:50
Since starting warfarin in July, 2015, I've experienced; night sweats headaches,
difficulty concentrating, ear ringing, restless legs! I'm on a retirement fixed income
and, was told an alternative is much more expensive! Any opinions!

0 replies...

Warfarin headaches
Posted by Claire
Last Reply August 28, 2015 at 16:47
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

90 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply August 28, 2015
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

206 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply August 27, 2015 at 21:56
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

126 replies...

Confused and still no answer
Posted by Jeff
Last Reply August 27, 2015 at 21:47
Started November 7, 2014 at 05:47
Long but want to explain it all. On Oct 25th I noticed swelling and an irritated
feeling in my leg. I had an ultrasound done at the ER on the 27th I think. Went
back to the ER on the 29th and they just said it was muscle and skeletal pain.
Problems and swelling persisted so I went to a different ER Friday the 31st and
they did an ultrasound and didn't find anything. Wednesday the 5th I went back to
that same ER and they did another ultrasound and a ddimer. Doctor said Ddimer
was normal <150 I think and the ultrasound said phlebitis. Yesterday had trouble
breathing and went to another ER as I was traveling for work and they monitored
my heart for awhile and did blood tests which everything was normal including
ddimer which again was <150. Said the swelling was probably phlebitis as the
other hospital stated and that an injury I had month ago combined with this
recent job that is sitting and driving lots has made things more prevalent. I just
don't know where ... read more

23 replies...

Posted by JACOB
Last Reply August 27, 2015 at 13:20
Started March 28, 2012 at 22:30
Hi everyone. Im Jacob, age 29. After the last DVT in January 2012 (4th
in my life) I was put on warfarin for a life-time. I was also advised
to wear those bloody compression stockings. Everyone says they are a
must, and they do the job. But I just cannot wear them.

I got one in Poland and I could not wear it at all. It caused a pain.
The skin around my ankle is already very soft and I felt very
uncomfortable after 20 minutes of wearing that bloody sock !

And now Im living in the UK... they gave me another sock. The leg was
measured etc. but unfortunately it is the same thing. Pain and pain.
It makes more pain than it is without that stocking.

Has anyone experienced that as well ? What should I do? If I don't
wear that stocking, is it gonna be more harmful for me ?

Pls help !

36 replies...

High altitude climbing/hiking
Posted by Derek
Last Reply August 27, 2015
Started January 17, 2010 at 07:37
Was wondering if anybody out there has done any hiking/climbing at high altitude 12,000 feet or more while being on coumadin/warfarin. If so did you experience any difficulties with circulation or did you sense any clotting symptoms. I have been on Warfarin for close to two years because of a left leg DVT and multiple PEs in the lungs. Before all of this I was an avid mountain climber/hiker - but since have done absolutely no climbing above 3,000 feet. Been a basket case and a nervous wreck to even think about getting back into climbing anything significant. Any feedback on this would be greatly appreciated.
Thank you

13 replies...

Prostate and dvt
Posted by Clarissa
Last Reply August 25, 2015 at 15:06
Started August 25, 2015 at 15:06
My partner has dvt which he got in hosputal,
After being in hosputal for three days

0 replies...

Cellulite due to DVT
Posted by Arslan Ahmad
Last Reply August 25, 2015 at 14:19
Started August 25, 2015 at 14:19
I am 30 years old male suffering from
dvt since 2003. I have been to alot of
physicians and vascular surgeons but
they all made it clear to me that I
have to live with this disease with the
rest of my life except the fact that
the intake of warfarin will reduce the
chances of any fatal implications.

I am at peace with my medical condition
and have accepted the consequences. The
only issue I am seriously concerned
about is the cellulite which developed
around 4 years ago on my lower right
limb due to that dvt. It is causing
serious pain and burn since then. I
have taken many antibiotics to catter
this cellulite. I even quit my job for
this. I am applying "clobederm cream
(clobetasol propionate cream USP) 10
gm". It is effective but in a passive
way I.e only if I stay in bed and dont
walk unnecessarily. I dont know what
should I do regarding this. I am
seriously worried as I am the head of
the household and have to make earning
for my... read more

0 replies...

Temporary vs. Permanent IVC filters
Posted by Ali
Last Reply August 25, 2015 at 12:25
Started December 4, 2010 at 02:18
My orthopedic surgeon wants me to have an IVC filter installed before my total
knee replacement surgery. A permanent one protects me from PEs until I die,
from embolisms. Can anyone give me any advice as to which one I should
consider? Not being able to walk is SO old. But what is the safest? I need
input from people who have been there and done that. Thanks

45 replies...

Decreased risk for polygenic disease
Posted by Slimera
Last Reply August 25, 2015 at 07:18
Started August 25, 2015 at 07:18
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0 replies...

How long to wait after DVT before hysterectomy
Posted by Beth
Last Reply August 25, 2015
Started September 17, 2007 at 03:43
This forum is great. I just had DVT and PE diagnosed - not confirmed but speculation given no other health or travel issues is the large fibroid pushing into my vein. If that is really the cause, I'd like to have it out ASAP. It appears most people have surgery, then DVT - not the opposite. Any that needed surgery after DVT and PE know how long you have to wait or what test you have to pass before you can have major surgery?

17 replies...

Posted by Peter
Last Reply August 23, 2015 at 12:37
Started August 23, 2015 at 12:37
My wife has a Clexane injection every 24 hours, here in UK at 6pm. Soon flying to
Florida, they are 5 hours behind us. How should we adjust the timing going out,
while there and on our return?

0 replies...

Iliac vein stents
Posted by Rachel
Last Reply August 23, 2015 at 11:26
Started June 30, 2009 at 18:02
Okay I am a 14 year old female and I have May Thurner Syndrome and I have a vascular surgeon Dr.Franz he is awesome! Well I have had 2 angioplastys and he is was not planning on putting a stent in until I was about 23 and stopped growing.Well he found a stenosis that might be growing and getting progressively worst.So he said that he will be putting the stent in in august after I go back for my regular 3 month appointment and testing as usual I will have a venous duplex(ultra sound)and an mrv.I currently have a dvt and have been on coumadin for 7 months when I go back to him in august I will come off the coumadin yay! I am worried about having the stent placed because I might grow and then I don't know what will hapopen and he said that once the stent is in there he can't move it. So yeah I am kind of scared.How was your or is your experience with the stent?!?

23 replies...

Joint Pain and Warfarin
Posted by Christel
Last Reply August 22, 2015 at 21:40
Started April 13, 2012 at 13:59
Hi, I have been taking Warfarin since December and I have like many tiredness, and often feeling really cold and shivery. I kinda accepted these side effects but I have been recently experiencing a lot of joint pain in knees and legs which has greatly reduced my mobility. (Am also waiting for a knee arthroscopy) I have just had blood tests back and i have been told I have very raised blood levels showing there is a inflammation and I will now have to see a rheumatologist asap. Before the injury i had and DVT last december I was very healthy and always on the move at work, ggoing to the gym sometimes and although not ultra sporty by any means i was fit and active at the least and had no joint issues.
Has anyone else experienced joint pain on Warfarin? Has anyone else had their medication changed from Warfarin as a result of joint inflammation? Would love to hear your experiences if this affected you. I am gathering info on this so that i can go to my doc armed with some potential ev... read more

68 replies...

how long does the pain in the leg last
Posted by Angela
Last Reply August 22, 2015 at 19:00
Started July 3, 2010 at 21:38
i had dvt in my left leg abt a week ago and was hospitalized for 5 days, am now on warfarin. i would like to know how long it will take for the pain in the leg to go away cos the pain is simply unbearable. would also like to know when i can go back to work. has any one gone through the same out there. pls help

52 replies...

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