DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Anyone else taking Xarelto?
Posted by Ken
Last Reply May 29, 2017 at 07:52
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

265 replies...

Posted by DANIELLE
Last Reply May 28, 2017 at 09:13
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

383 replies...

Posted by Madeleine
Last Reply May 28, 2017 at 07:31
Started May 28, 2017 at 07:31
Do the new anticoagulants, apixaban,dabigatran and rivaroxaban also cause hair
loss and interfere with hair colour.

0 replies...

Posted by Lisa
Last Reply May 28, 2017 at 03:21
Started August 23, 2007 at 20:38
Is anyone taking Nattokinase or know of any side effects of taking it. I just want to hear straight from a person whose taking Nattokinase what it's like. I found this site

about it and I can't seem to find anything bad about it. I just want to know anyone whose currently taking it, what you think about it and what kind of side effects you have had from it?

165 replies...

foot swelling
Posted by john cheesman
Last Reply May 27, 2017 at 10:47
Started March 29, 2017 at 14:28
I had an extensive dvt over a year ago which cleared eventually but
left some damage to the popliteal vein and possibly other veins. My
lower calf/ankle and foot still swell a bit though it feels worse
than it looks. I do a fair bit of walking and do half hour to an hour
daily on the exercise bike. I know my leg could be worse but still
find myself getting depressed about the sensation of fullness in
lower leg and foot. Anyone else get down about this?

1 replies...

IVC Filter
Posted by Khalid
Last Reply May 27, 2017 at 09:14
Started October 7, 2009 at 11:23
Hi All,

I have been in touch with this forum for more than a year now. I have sufffered 3 DVTs and PE twice, once it was extensive.
I have an IVC filter implanted on 29th March 2008.

I was wondering how many of us who visit this forum wear IVC filters.

I remember some times back one of the visitor had started a topic inviting all those who suffered DVT due APL syndrome.

Generally you don't get to meet people with IVC filter, is it OK to form a list of people who have IVC filter in this post?

If you think its OK, please mention your name, type of filter, when it was implanted and any special comment you want to share.

1.) Khalid - Gunther Tulip Retrievable filter, but now its permanent - 29th March 2008.

20 replies...

Elevated d dimer w/out cause??
Posted by Chris
Last Reply May 26, 2017 at 19:57
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

76 replies...

Posted by Debbie
Last Reply May 26, 2017 at 07:15
Started May 26, 2017 at 07:15
I have a history of hypertension, but my Blood Pressure has been all over the place. I have been adjusting my blood pressure medicine according to my blood pressure, my Cardiac Dr. is aware of this, he knows I have been an R.N., for 47 years and he said he trusted my judgement regarding this. I now have had a discomfort in my Left calf area, no redness, no swelling, no warm to touch, but discomfort when I apply pressure. What should I DO ?

0 replies...

Your symptoms?
Posted by Michelle
Last Reply May 26, 2017 at 02:02
Started September 19, 2010 at 01:46
I am going to the Dr. in a couple of weeks. But I was wondering what were your symptoms of DVT?

I noticed about two months ago I started having cramping in my right calf. My husband would rub it and it would go away. Now it is a constant aching, cramping, fluttering, throbbing feeling through out my leg all day on and off. It doesn't hurt when I stand on it or put pressure. I did the whole bending my foot up to check and see if I felt pain when stretching and I only just felt the pull from stretching not a sharp distinct pain. Basically my muscles felt really right and it almost felt hard to stretch. I don't have redness or bruises. But one thing that does concern me is on the back left side of my right calf there is a pea size lump. It doesn't really hurt but of course my whole back of my thigh has been hurting so its part of the pain. Feels like it is by a big vein.

I honestly feel the throbbing/twitching feelings when I sit on my bed at night the most. Like I said I feel it... read more

62 replies...

Skin Lump at Injection Site
Posted by Jeannette
Last Reply May 25, 2017 at 14:27
Started April 9, 2008
Is anyone familiar with this side effect from subcutaneous injections? I have been on 1st Lovenox for 1 week and then Fragmin for past 3 weeks, and am injecting myself in my stomach. I noticed after one bad bruise, a small, round, hard lump formed under the skin. It is tender to the touch, and has not gone away after a couple weeks. Then yesterday I got a bad bruise after an injection in another site, and now I have a 2nd lump in this new location. Am I doing something wrong? Or is this a normal side effect? Do you know if they go away? Compared to my DVT/ PE symptoms, this isn't a huge concern (LOL), but am just wondering if anyone else has experienced this or knows how to prevent? Thanks to all.

80 replies...

Posted by Ali
Last Reply May 25, 2017 at 13:20
Started October 16, 2010 at 04:50
Here's a stupid question I guess. I've been eating warfarin for the past 3.5
months due to a dvt. The past few days I have been having epistaxis and my
hemorrhoids have been bleeding more than ever before. I go weekly for Inrs
but haven't heard back from my doc (they are sick of me). How do you know if
you are at risk of bleeding from warfarin ? Sorry to be so gross. Does one need
to be concerned about bleeding where you don't normaly bleed?

9 replies...

New blood clot on warfarin possible?
Posted by Karen
Last Reply May 25, 2017 at 12:48
Started January 2, 2012 at 03:20
Okay so what would I do without this forum? Ha, I don't know!
I do have a question though, and I hope it's not just paranoia as this
blood clot has for sure scared me. I have had a few tinges and pains
in my right calf now, and throughout for the last 2 weeks or so. My
clot is in my left upper thigh and I've been on warfarin for over a
month now with that one. Never really stable on my meds, been 2.5 and
2.92 for one or two times, the rest of them 1.7 or around there.
My question is can i have another blood clot in my right leg while i'm
on warfarin? It is so achey, but I keep thinking that maybe I have
just used that leg so much for weight balance since my left one feels
heavy that I;m just pulling and using muscles...but god it feels odd.
Anyway I'm babbling and I'm nervous. So can you get another blood clot
in the opposite leg while on warfarin? thanks.

54 replies...

Hi New here. Post surgical DVT right calf
Posted by kristin
Last Reply May 25, 2017 at 01:39
Started May 16, 2017 at 22:27
I had a diastasis recti repair and abdominoplasty 2 weeks ago. Two days ago I woke up with a tight feeling in my right calf. No redness, pain, swelling, but I googled (!) and read that dvt may present as a cramp. Told my surgeon, who sent me for an ultrasound, and here I am. I am 42 and otherwise healthy. I am on xarelto 2x/day for 3 weeks, then will probably stay on it once a day for a couple months, or possibly switch to another due to cost. I have young children and am terrified of every ache and pain now, worried that the clot is traveling to my lungs or brain. I worry that this is going to affect my otherwise active lifestyle and that I'll have to be on bloodthinners forever or risk this happening again. Any hopeful stories appreciated!

1 replies...

DVT & May-Thurner Syndrome
Posted by Donna
Last Reply May 25, 2017
Started January 15, 2007 at 21:38
Has anyone who has experienced a DVT been diagnosed with May-Thurner Syndrome? If so, did you have a stent or stents put in your Iliac vein?

139 replies...

New here and just diagnosed with DVT
Posted by Cheryl-Lee
Last Reply May 23, 2017 at 12:10
Started May 23, 2017 at 12:10
Hi everyone

I'm new here so hope no one minds me
posting here. I originally had superficial
thrombophlebitis last March and was given
2 courses of Rivaroxaban then 6 months of
Apixaban. The last few days, my right leg-
where the superficial thrombophlebitis was
- started giving me grief.

I was sent for a leg scan and the
sonograpger found problems with the blood
flow and also DVT. I've been prescribed
warfarin indefinitely and also got a
referral to the anticoagulant clinic amd
thrombosis clinic. The pain is unbearable
and I'm struggling in my work with it.

Just thought that I'd share my story.

0 replies...

What will happen if I drink Alcohol?
Posted by Carl
Last Reply May 23, 2017 at 08:59
Started May 22, 2010 at 19:57
The worst thing affecting my life since being diagnosed with extensive DVT is being told that I can't drink alcohol, what a nightmare!
What are the risks if I continue to drink whilst on the injections and Warfarin? Does it affect the treatment from working or is it just a case of potential liver damage?
Surely a few good sessions would be ok?
Why do they tell us not to drink except keeping within those silly government guidelines?

Thank you in advance for your answers!

23 replies...

Smoking and DVT
Posted by Sarah
Last Reply May 23, 2017 at 08:10
Started June 19, 2008 at 16:31
So I was diagnosed with DVT in January. Had a clot from my ankle to my kidney. Doc said to quit smoking and stop all birth control pills. I did quit for about a month then things got hectic and I started again. My husband is really on my case. He thinks I will die from smoking. I take 10mg of warfarin a day and have an IVC filter stuck in my neck. Will smoking really affect me that much??? My INR has never really been normal. It usually ranges from 1.5-1.9 They want it to be between 2.0 and 2.5. This never happened even while I was not smoking. When it is low my nurse always asks if I missed a dose, and I tell her no, but I do not mention that I started smoking again. Is this to blame??? Is my husband right? Will it really kill me? I am 27 and I guess in a little denial about the whole DVT thing.

35 replies...

stopping warfarin
Posted by suzanne
Last Reply May 20, 2017 at 23:05
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

161 replies...

Bee stings and Coumadin/Warfarin
Posted by Audrey
Last Reply May 19, 2017 at 18:22
Started November 15, 2009 at 19:41
Has anybody has unusual reactions to bee/wasp sting while on Coumdin or warfarin?

Its been many years since I have been stung by a bee or a wasp, but somehow I manged to get stung twice in the last three months while on Coumadin. The first sting had a reaction that lasted two weeks and my INR went up to 3.3 from previous readings of 1.9 and 1.7.

I was stung again this week and two days later, my hand swelled considerably, turned bright red and was hot to the touch. Benadryl did not stop the swelling. The doctor prescribed antibiotics and within 36 hours my hand is back to normal.

I researched the web, but cannot find anything to address this. I'd love to know if others have had similar experiences.

17 replies...

pain in thigh
Posted by scouser
Last Reply May 18, 2017 at 13:18
Started March 30, 2017 at 13:28
i am on xeralto after having 2nd dvt in a year. i did not get any
original pain but now i am having pain in top of thighs into groin
and getting very sleepy. do i need to go to doctor or is this normal?

3 replies...

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